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Hello I have an 8 year old son with Severe Autism,developmental delays,nonverbal,PICA,sensory,tactile issues.aggression. About a month ago we just had to place him in a hospital 2hrs away from our home for a medication evualuation and now they are recommending residential for him and I strongly disagree. He is my baby and I can't do that to him. If I could just get more help for him at home it would be so much better. Do any of you find it hard to access any support services at home for your child? ↓
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| Name: Kelly | Date: Mar 2nd, 2006 9:19 PM |
I live in Va. and receive no support svcs at home. Your son sounds alot like my child. The school system doesn't give him the therapies he needs. They really don't want to be bothered with him. If you strongly disagree with a residential placement, don't let anybody talk you into it. Do you have a support group in your area, maybe somebody has some good advice?
Take Care ↑ |
| Name: may help | Date: Mar 2nd, 2006 9:38 PM |
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| Name: mommytokris | Date: Mar 3rd, 2006 2:09 AM |
| We live in Mass and here where I live there is no support group for children with Autism.My son receives 6 days a year for respite and to me thats no way near enough. I have been fighting for services for him for So Long and have came up empty each time. Its so frustrating to keep asking and being told No all the time.Hes only 8 years old and there is NO way i'm placing him in residential.I am going to visit him on Monday at the hospital and i'm telling them I Do Not want residential and if they could PLEASE make some reccomendations for him for support services so he can remain home. He goes to a Wonderful school. He goes to an out of district school just specified for children with Severe disabilities and there he gets Great services but if he goes to residential he will lose his placement and they also said that if I agree to residential than the residential home will be as far as 2 hours away from our home if not further. So there is No way i'm going to have my baby that far away from home. I placed him in this hospital to help him with his medication and to try to get more support services for the home for him and they turn around and say residential is the best for him No Way. Then I go to the hospital to visit him and I noticed a bald spot on the side of his head and they had no idea what happened to him.I was So Mad!!! Come to find out he has a fungas infection and he has been in the hospital for a month.How on earch he caught it Is beyond me.Than I go to touch his hands and his hands are so dry his hands are cracking. I can't believe they are treating my baby this way.When he was home he was well taken care of and he had no problems. I am So worried about him and can't wait untill he is back home. ↑ |
| Name: fluy | Date: Mar 4th, 2006 2:15 PM |
| Name: katie | Date: Mar 24th, 2006 6:26 PM |
| Name: zach | Date: Mar 31st, 2006 9:33 AM |
| mommy to kris you are not alone . ↑ |
| Name: Demi | Date: Apr 30th, 2006 2:08 PM |
| Name: FC | Date: May 6th, 2006 11:06 PM |
| I am in the almost-same situation as you are. MY son is severe and just turned 8years old, only thing missing is PICA. You need to search for an in-home helper for daily living skills (ask the MRDD in your area or social worker if you get medicaid). Have you tried studies for different medicaation or therapies? We live in Delaware Ohio, a couple of years ago, we had someone come in to work with Jacob while I was gone to school. It relieved us and my mom. Good luck. Never let anyone talk you into doing something you will regret for life. ↑ |
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