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| Name: [email protected] | Date: Jun 15th, 2009 3:05 AM |
| Hi....my 9 year old autistic daughter is also suddenly (past couple of months maybe) becoming very aggressive. Like you, I often know why she reacts with aggression. But there are now many times when my husband and I are very thrown off by her reaction to seemingly non-threatening events. I am not writing with any advice, unfortunately, but just to chat because I feel we're a similar situation. We have an appt. with our Dr. on July 1 and we are going to discuss medication as well. My daughter seems to be suffering with big time anxiety and panic issues. We are thinking that's the root of a lot of her aggressive behaviors. We are praying that medication makes a big difference. ↑ |
| Name: rabbit81 | Date: Jun 16th, 2009 11:54 PM |
| wow! that must be hard, my 4year old son with autism has changed as well, he cannot sit still for 2seconds, he fights his younger brother and bites me or anyone else around, its so sad cos he never use to be violent, i am worried about this cos he is getting bigger and stronger everyday, i am so confused bcos i am pregnant and he kickes me, sorry i dont have any advice for you, i need help myself. stay strong. ↑ |
| Name: dalia_in_nevada | Date: Jun 18th, 2009 4:34 AM |
| I am writing you this letter in the hopes of some desperate assistance in Nevada. I have a young Autistic adult son, 19yrs old, ( Vincent Ortiz ). I understand the dilema you are going thru. You are not alone. I will be happy to talk to you any time, if anything just to listen and support each other. I will make this brief and to the point. I am a single mom working many hrs 7 days a week, savings is now gone in an attempt to pay on my own for caregivers. My son has severe "episodes" at which he can bite/scratch/pull hair or all of the above. These behaviors all began over the last couple of years and are progressively getting worse.He is 5 foot 10 185 pounds. I am 5 foot 2. I can not restrain him when he attacks. I desperately need HELP now. There are NO group homes or facilities who take children and/or young adults w/ Autism here in Nevada. The state treats Autism like it is a dirty word. I am in fear for the safety of myself and my daughter as we have been attacked a cpl times now without a caregiver here full time. I was thinking there are several folks in the same dilema as myself here in Nevada as well as across the country.. I would like to know if you could : 1.) assist with helping me open a RANCH FOR AUTISM here in Nevada. Pahrump still has land low priced and it's far enough out that folks who don't understand Autism will feel comfy, yet it is close enough for medical needs. I know exactly what these children need to make their life complete and busy with a scheduled routine and space to roam. I know that I could sucessfully provide the care and know how to make it a wonderful structured environment for the children. For instance: an equestrian area music program arts n crafts a green house pool / spa trampoline swings merry-go-round sand box walking paths 2.) help / steer / assist me w/ getting some families together that are looking for longterm placement for their young adults where they will be loved and cared for as if we were there ourselves. Home-like environment with plenty of activities to keep them busy and fulfilled. We need 20 committed families that have a young adult who needs the special care and guidance the Ranch for Autism will provide. We all know as parents we can not be there forever for our loved ones. I know I do not want my son to be institutionalized when I can't be there for him any longer. Of course our children can have visits ( home or on site) anytime. You may have the connections, knowledge to get this request completed. You may know someone with acreage ( we need approx. 50 acres ) that needs a tax write-off, or a family member willing to donate. Maybe help get a fundraiser, some attorney's, doctors, wealthy folks. Get the community involved! I have faith in you. Together we can pull all resources and do this. I currently have an investor to meet/match up to $800K, which is about 1/3 of what we need to reach our goals. Please contact me with any contacts / ideas that you may have. God Bless! Respectfully, Delia Power 702-942-0731 360 Yacht Ave Henderson NV 89012 [email protected] ↑ |
| Name: There IS Hope | Date: Jul 14th, 2009 3:20 AM |
| Hi. I work in a school district, as a special-education paraprofessional. I have been blessed to care for and help many different children of various ages, with a variety of challenges. I recently listened to / watched a woman share her incredible story of raising a son with autism. It touched me deeply. Her son was healed, a few years back, and continues to improve in his schooling. I ordered her book and found so much hope in her experience. Hope that applies to everyone, including families with autism but not limited to only autism. My heart goes out to all. If anyone is interested in the details of the book and the radio / t.v. program, please e-mail me at [email protected]. (Since it is my understanding that some things cannot be posted.) With excitement, encouragement, and heart-felt appreciation and compassion to every family touched by especially autism...There IS Hope. ↑ |
| Name: crystal1 | Date: Sep 6th, 2009 2:31 AM |
| hi sounds like my son he is 12 a lot of times they do these things they just cant tell us what they want. and other times its just the autism u know .my son is takeing meds it does help somewhat.but the autism is there and will never go away no matter what we just got to love them.i just had to put my son in a home 4 months ago i never though i whould but sometimes got to do whats best for him and family i still get him on week ends hes happy. but i cant say i am i miss him its so hard i love him so much!!!! ↑ |
| Name: DebH | Date: Sep 23rd, 2009 12:06 AM |
| I'm wondering if you have tried any ABA therapy. It's horribly expensive, but I've heard it's now considered the most essential therapy for children with Autism. My 4 yr old has autism, and his tantrums and screaming/whining/crying/hitting himself/throwing objects had become an around the clock thing. It was becoming impossible to live with him. I found an online ABA class, did it in three weeks, and we eliminated tantrums in about 5 days. We now have minimal whining, no throwing, etc. Huge improvement. The class is at ABA4autism.com ↑ |
| Name: Terrie | Date: Sep 25th, 2009 4:39 PM |
| Here are a few questions on my mind as I read the above: Is your son receiving special education services in the school system? If so, does he have an Occupationaland Speech Therapist to help the team address issues? Does he have a Behavioral Consultant to help with a proactive plan? Are the behaviors related to a lack of sensory-integrated activities or items? Does your son have an effective communication mode besides tantrumming? Can your son be taught to ask for Help or can he repeat sounds of words? Can you post on a wall in the kitchen or on the fridge a list of his triggers that upset him along with a redirection that will work? For example, when the DVD player isn't working then you can simply acknowledge him by saying "Oh, you need HELP." Immediately help him as long as he is not hitting you- it may only be a one second or two second pause but catch him being good immediately and just help him...later working on teaching him to either say HELP or to give you a HELP symbol on paper to avoid an upset. In addition to school, do you have a Therapeutic Support Staff person in the home that helps you with a behavioral plan to decreae the attacks of aggression? If your son is diagnosed, then he should be eligible for a medical card that will help pay for this service in the home. As for drugs, make sure that you are seeing physicians and specilists that see other children with disabilities- they have a vast knowledge of the disorder as well as experience...do not rely soley on a family physician or a pediatrician without prior experience of treating other children with similar disorders. Drugs may help restore a chemical imbalance but can only be determined through proper testing and follow-through care of a medical professional. Although I am not a parent of a child with autism, I work closely in the field of children with autistic tendencies and other disorders. I do wish you well with your search for answers and would also encourage you to check into Applied Behavioral Analysis...an effective researched treatment approach to working with challenging behaviors. ↑ |
| Name: TysMom | Date: Nov 1st, 2009 5:13 AM |
| Please don't medicate your child.... Seek into ABA Therapy, When he does the following put him in the quiet room some room that doesnt have a t.v. in it. Avoid the word NO!!!! Say... You don't kick me (his name) we use our feet to walk. Hopefully this will work ↑ |
| Name: Daph | Date: Nov 22nd, 2009 10:07 PM |
| I have an autistic son and a daughter the same ages as your kids (9 and 12). My son is almost as big as I am and the violence is getting worse with age. He gets upset about similar things, like not being able to find a particular song on a CD or if he has an ache or hurts himself and you are nearby, he will get upset, hit you, and accuse you of hurting him. Saying “No” can always guarantee a fit. I actually sent my daughter to go live with her father this school year, for the first time. Luckily, the two of them are very close. I am so glad that she is finally free of the "hell" that has to be endured and sacrifices she has had to make. She deserves to be happy. She did not choose to have him, I did. Anyhow, I wish I could give you the answers. I will tell you that he is on a waitlist for intensive outpatient treatment (again). He's was in inpatient treatment for a week at 4 years old and again in intensive outpatient treatment for seven weeks at 6 years old. I know someone suggested not giving him meds, which I do not think is really their call. I worked in group homes for 11 years prior to having children and worked as a case manager for 4 years with the MR/DD waivers, so I am no stranger to the field. However, it is VERY different working with DD individuals vs. living with one. Also, everyone has different problems. For instance, my son is not only diagnosed with autism, he also is diagnosed with "mood d/o, oppositional defiance d/o and a sleep d/o". ABA is not going to take care of some of those organic problems. I have learned probably every behavior modifying technique out there, while working with DD adult in the group homes for 11 years and working with my son's psychologist for 3 years on a weekly basis in the home and clinic. I also took him weekly to OT and do it at least 3 times a day at home. There are just some things medications are necessary for. The problem we have is getting a good balance. We need him to be calmer, but not wiped out. If he is wiped out, he cannot learn anything in school, his sleep d/o just intensifies, and I get NO sleep. His psychiatrist told me if he escalates out of control and becomes combative, to just call 911 and have him admitted through the ER. That is all I can suggest at this point. I wish I had more. ↑ |
| Name: somebodysomewherepleasehelp | Date: Nov 28th, 2009 1:55 AM |
| i understand your situation i have a son 10 with autism and adhd moderate to server i am a single mum i cant work im on a carere pension i get no help from anyone im struggling to keep him in school part time hes never been full time and gets 3 hours aid time thats it he can be agressive too if he is stressed i try not argue with him to much just let things go he is on concerta which makes him grumpy and not eat i honestly think hes better off all meds but the school wont take him unmedicated so i have no choice he doesnt cope at school with out it but at home hes fine our childern arent getting the help they need are they and neither are we as parents i know ive been deppressed and on medication for the last ten years ↑ |
| Name: meantruck1 | Date: Jan 23rd, 2010 5:37 AM |
| Hi My name is Mike. I have a 25 yo brother who is medicated now but was the same way. It has been a LONG LONG LONG trial with many differant meds to control his actions. He is abnormally strong and big for not being a pro body builder. Sorry, he is severly autistic. I also have a 6yo daughter who is autistic. she is not so bad. what i have found works with the both of them is distraction. Anger or force only feeds it. it sucks, i know trust me i know. but i get my brother to settle down with a game of pat-a-cake. its always been our little thing. my daughter a different story. she needs closeness. she needs a different type of disstraction. she needs to feel really close, like touching daddy or mommy.phsical distraction works with her find what sparks his mind. if it shows in his face and interest, go with it. also try clapping when he goes to hit. i whisle with my daughter and most, hence i said most of the time it gets her out of the realm she is in. above all. keep trying differant things till it works. and when it doesnt anymore, try again. ↑ |
| Name: rfamilylove | Date: Feb 6th, 2010 5:59 PM |
| hello new here to everythinng. my 11 yr old son is in process of being daignosed asd, and as a single parent i am finding his behaviour getting worse, i am nearly almost in tears. he swears/pinches/ his brothers younger and older than him, he screams very loudly, and repeats himself so many times, he says things that are just so not true. and has started to say quite rude things about certain boys bodyparts, i just dont know who to turn too, has any1 else experienced anything like this? if so where and wehat did you do, any help is very appreciated :( ↑ |
| Name: nikkiangel77 | Date: Feb 7th, 2010 12:27 AM |
| Hi. I can usually predict when my son is uptight. Its strange, but when he is in "one of those moods" I begin to feel unsettled myself. I start looking for the problem before it manifests (seem to be always on my guard) My son is 7. The most happy gentle child you have ever met. He's beautiful! He smiles with his eyes and glows with happiness....then there is his 180 degree change! Throwing himself on the floor, banging his head and his chin on concreate if thats whats there at the time. Pressure is the key to Daniel. Its hard to begin with, but I start by firmly squeezing his hands if I manage to get that close without getting a kick in the face... and working up his arms like a squeezie massage. Sometimes holding him in a tight hug.... never so tight that it hurts! I mean firm. He seems to love the feeling and it eventually spaces him out. lol sounds crazy I know but it really does work! Now to find someone to give me a massage.... ↑ |
| Name: laberge | Date: Mar 11th, 2010 4:37 AM |
| Hi, I truly feel what your going through, I as well have a son, 12 years old, mental retardation with a lot of autistic charactoristics. I deal with aggressions daily, biting, pinching, grabbing, screeching, dropping to the floor, banging on things... He's in a special needs school now which has been so much better for him and 2 years ago I finally put him on medication because his severe anxiety is the basis of all this aggression. I hated to do it, but it was getting worse and worse. It has helped so much I can't tell you, but unfortunately, it doesn't make it all go away. Still looking for answers and a possible miracle. I feel like my life is so different from everyone elses, people do not realize what we go through as parents. On the positive side, my son is a lot of the time the most happiest little guy I know, huge smiles and big hugs. He always says how sorry he is when he's out of control, I know he cant control it. Want to talk anytime, please contact me, we have a lot in common. Anita ↑ |
| Name: coleminer | Date: Mar 15th, 2010 3:55 AM |
| My son is almost seven. My husband and I also fought against the meds but his agression got so out of control we took a chance. And it paid off. He still has bad days but nothing like what they were. He takes risperdol, 1.5 mg a day. Not enough to hide his personality but enough to calm him. Anyway I hope this helps. ↑ |
| Name: brotherlover | Date: Aug 6th, 2011 7:14 PM |
| Well my brother is 4 and has autism and he use to try to just me 24/7. He would pull my hair, punch me, threaten me, and much more to the point one day I shoved a steak fork in my arm.... But we hav people come to our house and teach us how to deal with it and they teach him right from wrong and he's doing a lot better you should check into see if were u live they hav something like that ↑ |
| Name: Poison | Date: Aug 12th, 2011 11:13 PM |
| hi dksfmx, would like to chat with ya moore. im proud and troubled dad of twin 16 yr old autistic girls. ive got full custody since january theire mompassed away. anyway one is placid and other is going thrue lot of changes like you mentioned your son was doing.My torie constantly hitts herself in chin and upper cheek area and all over head.Got her face mask and boxing gloves to deal with it. She is on meds and will share with you later ,hope to chat with ya later Ride those rapids ↑ |
