| Name: ivee | Date: Aug 23rd, 2006 8:11 AM |
Sofia,
I know how worried you are. IAnd i really understand how you feel. I've been through waht you are up to now. But please don't worry to much. I was worried sick during the last month of my pregnancy. Just put your faith in God and trust in Him. Doctors sometimes terrify you. The DS thing, it's not 100% connected with pyelectasis. There aremany things to consider. Based on my experience , i had a nuchal translucency. at 12 weeks which is normal. Then had an echogenic foci, a soft marker of DS which is a contradiction. Take care. ↑ |
| Name: Rochelle | Date: Aug 23rd, 2006 2:59 PM |
Hi all,
I had my 20 week ultrasound 2 weeks ago and they found out that my son has Pyelectasis...I wasn't really concerned until they said that it was a soft marker for DS. I have an older sister who has DS. My AFP test came back normal though it was just on the border...I don't know what to think... ↑ |
| Name: sridhar | Date: Aug 23rd, 2006 10:22 PM |
My baby's kidney was dialated with 5 mm on ultrasound taken on 20th week and my ob suggested a followup U/S in 22 weeks and the left kidney is 7mm and right is 8 mm and I have taken Amnio and happy to get the result as negative but I am still worried about the Fluid in the kidneys.
Is it harmful to the baby girl with 2 kidneys dialated (7mm and 8mm). please respond and send me if there is any reference URL's. ↑ |
| Name: Liv | Date: Aug 25th, 2006 9:05 AM |
This is Liv again -
Thanks to Marie for posting about her daughter's similar findings in the ultrasound
My second ultrasound confirmed the SUA but one of the kidneys had gone down in size. We also opted out of the amnio.
They found to that the umbilical cord was attached to the side of teh placenta instead of the center but reassured it was unrelated to downs or anything else.
I am finding more and more people that are offered amnios and am sure your daughter will be perfect.
Best of wishes on the 29th and congrats on your new arrival! ↑ |
| Name: sbeth | Date: Aug 26th, 2006 11:53 AM |
| I am 17 weeks pregnant and just recieved abnormal afp test results at the level 2 u/s they found an echogenic foci on our girls heart. The doctor said that this is a soft marker for downs but that everything else looked fine. What do you think? = ↑ |
| Name: kristin | Date: Aug 29th, 2006 1:47 AM |
| Hello, I am a mother that dealt with the same kidney issue most of you are dealing with. Please dont worry about Downs syndrome. This kidney problem is very common and it is rediculous that they even mention downs. My son still has a kidney problem but he does not have downs...this kidney problem only gives your baby a 1% increased chane of downs. This is what my doctor and a kidney specialist told me. My son will have a 6 month follow up to see how things are but this problem is something that can be easily fixed, even if it takes a minor surgery. Please dont worry so much.....I know it is hard but if anyone wants to talk to me my email is kristin0769@hotmail.com My OBGYN told me he see's this problem on a regular basis and it rarely turns out to have any issues with down syndrome. Best of luck. ↑ |
| Name: dogsam23 | Date: Aug 30th, 2006 7:57 PM |
| I am going through the same situation only I don't know the outcome.... for I am only 26 weeks. I had a positive afp result and the fetal specialist discovered the pyelectasis at 22 weeks. He said it doesn't clear up (it often does), then there is a possibility the baby will need surgery once it's born. I am going back for another 4d ultrasound on the 21st of September. I will let you know what the dr. says. ↑ |
| Name: sridhar | Date: Aug 30th, 2006 11:35 PM |
dogsam23 ,
how much was the kidney dialation ? when I had gone for scanning in 20th week they said my baby's kidney is dialated to 5mm and in 22nd week it is gone to 7.8mm and I am going to an other scan in the next week. worried about it.
Does anyone know that whether the fluid in baby's kidney harm mother in any way ? ↑ |
| Name: ivee | Date: Sep 2nd, 2006 5:59 AM |
kristin,
is your son on antibiotics everyday? my baby is diagnosed with ureterocele, and only surgery can cure it. But she is fine. She is on amox .5 ml daily until her scheduled surgery next month most probably. ↑ |
| Name: sofia | Date: Sep 4th, 2006 3:49 AM |
IVEE
A SPECIALIST GAVE US THE OK ON OUR BABY GIRL. WHAT HE TOLD US MAY RELAX A FEW OF YOU..... HE STARTED OUT WITH TELLING US THAT OUR SINCE OUR AFP TEST WAS NORMAL THAT WAS A HUGE PLUS....... THEN HE BEGAN LOOKING AT HER BRAIN. hE DID SOME MESSUREMENTS AND THE THICKNESS WAS FINE AND 3 OTHER MESSURMENTS WERE NORMAL AND BY SEEING THAT HE SAID HE WAS 99.7 PERCENT SURE THE BABY DIDNT HAVE DS... THEN HE SAID IN DOWNS BABIES HAVE 2 BONES IN THE PINKY FINGER INSTEAD OF THE NORMAL 3...THAT WAS OK. THEN THE NASAL BONE WAS ANOTHER THING HE FOUND TO BE NORMAL...
HE THEN TOLD US WHY OUR DOCTOR SENT US TO SEE HIM. THEY FOUND A SPOT ON THE HEART BUT IN ORDER FOR IT TO BE A PROBLEM IT HAS TO BE SEEN FROM 2 DIFFERENT ANGLES NOT JUST ONE. AND THE KIDNEY DILATION HE FOUND WAS NORMAL.. HE SAID BABIES NATURELY HAVE SOME DILATION. IT WAS A RELIEF.. I DO RECOMMEND GOING TO SPECIALIST IF YOU HAVENT GONE ALREADY. THEY ARE MORE EXPERIANCED IN WHAT WE ARE ALL DEALING WITH AND YOU MIGHT GET BETTER ANSWERS THAN YOUR OB CAN GIVE YOU.
IF ANYTHING FOR PEACE OF MIND.... I WAS MESS GOING IN THERE BUT IM SO RELEIVED NOW... GOOD LUCK TO EVERYONE!!!!! ↑ |
| Name: Deb218 | Date: Sep 5th, 2006 12:49 PM |
MJ525 (and everyone else),
I just saw the peri again and, at 30 weeks, my baby's fluid levels have remained stable. They are exactly the same as they were when I was 23 weeks, even though he was only 1.5 lbs then and he's 4 lbs now. My amniotic fluid levels are fine, too, and I don't have to go back for 5 weeks. I'm much relieved, so I hope any of you out there upset about how high the fluid levels are in your baby's kidneys to take some comfort in this! Both my OB and the peri were totally freaking me out when my baby's fluid levels shot up between 20 and 23 weeks and I had to hear about potentially having to deliver early because of decreasing amniotic fluid and how shocking it was that his levels shot up. But, none of that appears to be in the cards, so it was a lot of stress and worry for nothing! ↑ |
| Name: MJ525 | Date: Sep 5th, 2006 4:51 PM |
Deb218:
That is great news! It sounds like his kidneys may not need much intervention (if any). That must be a huge relief for you! Anyway, I'm so glad your little guy is doing well. ↑ |
| Name: Deb218 | Date: Sep 14th, 2006 2:52 PM |
| I just consulted with a pediatric urologist. I'm 32 weeks pregnant and my baby boy has 10 mm of fluid on his right kidney and 6 mm on his left. Seeing the urologist was very reassuring, and I'd highly recommend it to anyone else in this situation. He said that 10 mm is actually the high range of normal, and that 80% of the time, these things turn out to be nothing. The baby will have to have an ultrasound in the nursery and a month after he's born, but the doctor did not seem very concerned. I think OBs and peris can get a little more worked up about the fluid in the kidneys, but the pediatric urologists see it all the time so they can give a better perspective. So for anyone that has even lower fluid levels, try not to worry and see a pediatric urologist for a consult if you really want some peace of mind. ↑ |
| Name: rugbratmom | Date: Sep 17th, 2006 11:42 PM |
I want to reassure you that in most babies this resolves by itself and that some dilation is normal. The doctor saw this in my ultrasound when I was pregnant with my daughter. Every few weeks I had to go in for another ultrasound so that they could measure the amount of dialation and monitor my fluid levels. The main worry with this condition is lung development. The majority of amniotic fluid is made of fetal urine. If there is a significant blockage in the urinary tract then baby will not pass enough urine and there will not be enough fluid. With out the fluid the lungs cannot develop properly. ANother worry is that if the kidneys get too dialated they could croud into the space that the lungs need to develop. The odds are that this will not happen to your baby but that is why they monitor the condition durring pregnancy. When my daughter was born they did a few ultrasounds to measure the amount of dilation in her kidneys. They did a VCUG to check for kidney reflux. A VCUG is when they insert a catheter into the bladder and fill it with X-ray dye. Then they watch it on teh x-ray to see if it flows back up to the kidneys. It is not supposed to and if it does that indicates kidney reflux. My daughter did not have reflux. She had to have kidney ultrasound every few months to keep an eye on it. Now she is 2 1/2 years old and it has resloved completely on it's own. I am now pregnant with another baby girl and she also has Fetal Pyelectasis. My doctors have ruled out DS and other chromosomal abnormalities. The ultrasound tech seems to be more worried about it than me or the doctor. I have aleady had a few ultrasounds and I will have a couple more. I anticipate a visit to the pediatric urologist and probably a few ultrasounds but I am sure that things will work out and baby will be fine.
I wish you all the best of luck! ↑ |
| Name: SuzanneA | Date: Sep 19th, 2006 10:26 AM |
| Hello. It has been some time since I posted. (Computer problems at work and at home.) My Quad screen came back normal, and the baby's kidneys have not changed in 5 weeks. They are at 5mm and 6mm. The ultrasound technician (a different one this time) said, "Oh, that is normal in boys." I hope everyone is doing okay. I am at week 24 as of today. ↑ |
| Name: Ana | Date: Sep 20th, 2006 9:09 PM |
| Hi, I just went for my 20th week ultrasound yesterday, and I found out we are having a boy. However, the radiologist found two abnormalities with our baby, pyelectasis and choroid plexus cysts, the doctor scared me to death because she said that when two abnormalities are present, the chances are higher of my baby being born with down syndrome, i'm going for my level 2 ultrasound on Monday, and I wanted to know if anybody has experienced this situation...me and my husband have been doing internet research and I think we are more confused now than yesterday, since there is a big debate between doctors when it comes to these kinds of soft markers....Please help !! we need every bit of information that anybody is willing to share with us..Thanks !! God bless..... ↑ |
| Name: sherryb | Date: Sep 24th, 2006 9:14 PM |
Hi. I have been reading this forum for the past 20 weeks, visiting it every day at least 2-3 times a day but have never posted. I now have a wonderful story of hope and comfort to share with everyone from my own experience. At my 20week ultrasound, the sonographer informed us of our son's minimally enlarged kidneys & EFI told us it was not a big deal & that we had to come back for a follow-up. I went home, went online, began to research only to scare myself to death about the possibility of having a child w/Down's. This was my last pregnancy & I wanted to give my other two children a wonderfully healthy sibling & enjoy a pregnancy myself for the last time. I was devestated. I was scheduled for a level II US the next week in hopes what they saw was a "mistake". It wasn't, they confirmed it & the peri. gave us all the risks & verified that the two markers would increase my chance of having a child w/Down's. The only was to know would be to have an amino which I turned down because of the risk of m/c. I went home w/my husband and was basically a basket case for 6 weeks. All I did was cry & become really sad. My let my joy of pregnancy be stolen from me w/fear & worry. I actually even scheduled an amino just to know for sure & then later cancelled right before the appt. My biggest problem was just not knowing & how was I going to make it through the next 20weeks? Well, this is how I did. After going through basically a 6 week "grieving" period of non-stop emotional rollercoaster. I leaned upon my husband and children & special friends for support. If it wasn't for them I don't know how I could have done it. My husband assured me that no matter what the outcome, we were having a baby and it was to be his son and that's all that mattered. If it had special needs, then we would adjust. I got on many church prayer lists and shared my fears w/my friends who comforted me and told me that we would be wonderful parents to any type of child, even a special needs child and this baby would be a blessing no matter what. One of my fears, as crazy as it sounds, is that I would "disappoint" my children, family & friends if the baby wasn't perfect. I even had the courage to tell them these fears and of course they all told me that was nonsense. I prayed, and prayed constantly, asking for strength, peace & hope through these unsure times. I got myself on a walking schedule to burn off stress and anxiety over the situation. I let myself cry when the stress got to be too much & let my husband and friends comfort me & assure me it would be ok. I think the turning point was when my 9year old son & my 6 year old daughter were playing at the kitchen table & I said, "What do you guys think about having a new baby brother?" My six year old daughter & 9 year old son said "Oh, we're going to love him!" and then I said,
"What would you two think if the baby was different than you, if it had special needs and looked differntly?" My six year daughter said "Well mommy, that's easy... we'd just love him more." The thoughts of a 6 year old summing up the entire situation with one sentence when I had been stuggling for month's to live with it finally let the light in. I was like an angel whispered it into her ear. From that point on, although I continued to deal with the matter on a daily basis, I knew it'd be ok no matter what. As my 28th week US quickly approached, I didn't even want to go. I was so afraid what the peri. might tell me. Isn't that terrible, something as wonderful as seeing your baby on screen, I dreaded because I was afraid to get anymore bad news. However, the US showed that the kidney dialation had passed and resolved and the EFI was no longer visable. My husband and I rejoiced, but the peri. said that even though the baby looked perfect in every way now, he still couldn't say that the markers would be discredited, they were still there at one time. Even though this rained on my parade a little, I was still more joyful than what I was.
Anyway, I continued out the rest of my pregnancy and on Sept. 22, at 11:07 am, I delvered an absolutely perfectly healthy baby boy free from Down's or any othe chromosomal abnormality. The streams of joyful tears that ran down my face as I heard my baby cry and held him in my arms was an unforgettable once in a lifetime experience. Today is our first day home together. I wanted to take this opportunity to share w/all of you my experience and how I dealt with the uncertainty, stress and possibility of having been faced with this issue. Hold tight to your spouses ladies, hold onto the innocence and positive outlook of your children. When you're feeling bad, just hug and kiss one of your other children and know how precious any type of child is. Let yourself grieve, let yourself talk about your feelings with your friends and cry with them. Get yourself on prayer lists and pray yourself for peace, comfort and strength to face anything with His help. Get yourself on a walking regimine to burn off the stress you're feeling, throw yourselves into hobbies and things you enjoy, Keep yourselves busy so your mind doesn't wander. Know everytime you feel that baby kick, that's your baby no matter what and you'll be a wonderful mother to it. Know that whatever happens wasn't your fault and it certainly wasn't a mistake. Take care ladies, I'll pray for all of you and the health of you and your precious angels. ↑ |
| Name: Ana | Date: Sep 25th, 2006 11:21 AM |
| Praise God! Thanks so much for sharing your thoughts and happy ending. I’m going for my level II US today. I’m hoping for the best. I believe in God with all my heart and I know that He will get me through this. Love your baby with all your heart and cherish every possible moment with him. God Bless you! ↑ |
| Name: kristin | Date: Oct 17th, 2006 7:30 PM |
| SherryB That is so wonderful! My son also had the same two "markers" yours did, and he is also perfectly healthy. They grow so fast. But you are right......no matter what the outcome, we all love our children. Good luck to you :) ↑ |
| Name: carah | Date: Oct 21st, 2006 3:47 AM |
| Wow I am thrilled to find this forum! I only wish that I would of found it sooner. I am almost 36 weeks pregnant. I was told that my son had mild bilateral pelviectasis at my 1st ultrasound. Since then I have had an amnio, a MRI (because of cerebral ventricles which they say looks normal now), an echo, and I have ultrasounds every 2 weeks. Oh and now I have to go for a NST every week! I am so tired of tests and I still don't have many answers! The results from the amnio ruled out any cromo. issues and they said that pelviectasis was quite common ( now I see so many of you have been dealing with the same problems). Currently his left kidney is 8mm and his right kidney is 5.9mm. It has ben quite a stressful first pregnancy but it is such a relief to hear all the happy endings that many of you have. I will keep posted and thanks for the encouragment! ↑ |
| Name: Ana | Date: Oct 25th, 2006 3:46 PM |
Hello All..
Are there any other happy endings out there...after so much worrying and praying, I know there has to be. Please share any of them with us. God’s Blessings! ↑ |
| Name: ivee | Date: Nov 7th, 2006 7:56 AM |
Hi Ana,
My baby is now 2 months old and a half. She had ureterocele. Her left kidney is affected. She will do surgery on the 14th. But she is a happy baby. We just take it one step at a time. Prayer works best. ↑ |
| Name: Deb218 | Date: Nov 8th, 2006 3:02 PM |
| Just wanted to share another success story. My son was diagnosed with mild pylectasis on both kidneys at his 20 week ultrasound, with 6 mm on his right and 4 on his left. When I followed up with the peri at 23 weeks, it had increased to 10 mm on his right and 6 mm on his left. The peri also was the first to mention Downs Syndrome to us and we were put in the position of having to decide right then and there whether to have an amnio. Given the good results on my first trimester AFP+nuchal screen, we decided not to risk it but I was worried for the rest of the pregnancy. I saw the peri for an ultrasound every 4 weeks after that, and his fluid levels remained consistent at every visit. Almost 2 weeks ago, he was born a strong, healthy boy, weighing in at 8 lbs 10 oz! I still need to see the pediatric urologist next week to review the ultrasound they did on his kidneys at the hospital after he was born, but I'm so relieved he has no DS or any other health issues. Please keep the faith and know that pylectasis is a very weak marker. I'm so thankful that we didn't risk a miscarriage by having he amnio, and even more thankful for the blessing of a large, healthy baby! All of the sleep deprivation I'm experiencing right now is totally worth it. ↑ |
| Name: cath | Date: Nov 21st, 2006 7:36 AM |
| First I'd like to say how useful I found this site when facing news of a dilated kidney - 7-8mm at 20 week scan. I now, thankfully, have a healthy girl, but we were so scared at the time with the thought of it being a soft-marker for Downs. The kidney was serious, and one consultant said he thought the kidney would need removing on birth, but both discounted - as much as they can -were relatively dismissive of it as a sign of Downs, as there were no other signs (not that that reassured us). I had a reasonable 12 week scan/blood test figures and we decided against an amnio - to lose a healthy baby at 23 weeks would have been desperate. I worried throughout the pregnancy - though a scan at 32 weeks showed that the kidney had not got any larger, so that was good news. The biggest surprise of all was when she was born, as I was 100% sure I was having a boy, as everyone had said this was more common in boys. She's still having checks on her kidney, as the area around it is still slightly dilated, but she is very healthy in herself. No answers here, just reassurance for all those out there facing the worry that we did at that 20 week scan. ↑ |
| Name: dogsam23 | Date: Nov 21st, 2006 7:06 PM |
Cath,
I'm so happy to hear the good news about your new baby girl. Your story sounds alot like mine except, we had abnormal triple screen results as well. At 20 week US both kidneys were dilated 4mm and 7mm. At 29 week scan only one kidney was dilated 8mm. At 35 week scan both kidneys were dilated again one is 12mm.. yikes! The Dr. is down playing the Down Syndrome issue but as we both know, that's little relief.
It's funny you said that you were 100% sure you were having a bay because I feel the same way! I'm so confident that I am already buying blue!!! My due date is Dec. 8th so I will let eeryone know the outcome then. But I will love my baby no matter what!
Congrats again on your newest addition. It's nice to know that you are able to breathe a sigh of relief! If anyone else has any questions for me or is going through the same thing I would love to hear from you.
Hugs!
DOGSAM23 ↑ |
| Name: sridhar | Date: Nov 25th, 2006 5:10 PM |
HI Again,
I had gone to Ultrasound in 36 weeks and doctor said that the babys right kidney is completely normal and left kidney has still diliation with kidney size 11mm and the problem is baby's urine is pushed back to the kidney because of Narrow tube(i am not sure what it means in technical terms) , does anyone has the similar situation . in the first scan the kidney size was 6mm and in the next scan it was 8.x mm and now it is 11mm. please, if anyone knows more please share the information. ↑ |
| Name: dogsam23 | Date: Nov 26th, 2006 11:57 AM |
Dear Sridhar:
I think our situations are somewhat similar. I went for 3 Level 2 US during this pregnancy. At my 29 week US, it looked as though the kidneys were trying to clear up, for only one was dilated. Last US at 35 weeks says one is 8mm and the other 12.5mm. These numbers sound high to me compared to other cases I hae heard. The good thing is that my Dr. said the pyelectasis hasn't turned into Hydrenophrosis which is good. It doesn't sound like yours has either.
The good thing is that I haven't heard of too many babies requiring surgery for this after birth. I think it is treated with antibiotics though I don't know how that would help. When are you due and are you planning to see a pediatric urologist after birth? My Dr. instructed me to see one no matter what the US or my pediatrician say after birth.... just to be safe.
I am due Dec. 8th. If I am due before you, I will be sure to post and let you know the outcome. I wish you a happy healthy baby and an easy delivery!!!
Just wondering.... is your baby at risk for Down Syndrome as well or are you just having issues with the kidney dilation? Just so you know, I have about 3 friends who's babies had the pyelectasis and the babies were born without down's!
DOGSAM23 ↑ |
| Name: lexismomma | Date: Nov 30th, 2006 7:33 PM |
I am terrified!! I received a voice mail today on my phone from my OB. All she said was that everything was really good on my US except that my baby boy had fluid in his kidneys. She never said how much fluid, all she said was that it didn't appear to be serious but I needed to come in for another US in two weeks. I have looked up several things online relating to this and all seem to point to downs syndrome. I guess I really just want to know if anyone on here has had a baby born with DS that only had the "marker" of fluid in the kidneys? Not that I won't love my baby either way, because I will, I just want some first hand statistics.
Thank You,
lexismomma ↑ |
| Name: dogsam23 | Date: Dec 1st, 2006 5:40 PM |
Dear lexismamma,
Pyelectasis is our only marker as well. We are going to be induced next Wednesday so I will post and let you know the outcome. We had an abnormal triple screen and refused amnio so we won't know till our baby gets here. I do know that it is fairly common...... even moreso in
boys.
Was the kidney dilation seen on a regular ultrasound or a 4D ultrasound? We had the $D ultrasound done 3 times. For us, the kidney dilation fluctuated. There is a good chance that it can resolve before birth too. Good luck to you and I will post as soon as I get home from the hospital.
DOGSAM23 ↑ |
| Name: LynnSara | Date: Dec 3rd, 2006 10:33 AM |
| I found out at my 20 week ulttrasound that my little boy has pyelectasis and so all this week I have been so worried, distracted, and crying on and off because of the possibilities. Basically, it seems there are three: Down's syndrome, possible kidney surgery, or it could clear up. It's been about a week since I found out and I know I need to turn my thoughts around. All of this worrying isn't good for my unborn baby. What I need to accept is that these facts are out of my control. It is what it is and I can educate myself until I am blue in the face and it won't change the situation. BUT, I do have control over my thoughts about this. It is so easy to take the gloomy thinking path, but starting today, I am going to think positively because that is what is best for my unborn baby (and me, my daughter, and husband). I am going to start everyday having a chat with the lil' guy in my belly and tell him that he is strong and healthy and so are his kidneys, and that I love him and his mommy is here for him. Throughout the day if my thoughts turn gloomy, I'll let them pass and think positively about my healthy growing boy. This does not mean I am not facing the facts, but rather, I am doing what is best for my baby and myself under the circumstances, because I have 19 weeks to go and I can't spend it worrying about things out of my control. So, remember, we are all in the same boat. Hang in there everybody!! ↑ |
| Name: Ana | Date: Dec 4th, 2006 1:05 PM |
Sear LynnSara,
The same exact thing happened to me at 20 weeks and like you I worried sick about the possibilities. I have been to two Level II US since then and there are no other marks for DS. My baby’s weight is right on schedule and all his extremities are normal size. My due date is February 6, and I’m on schedule. God has been my strength and refuge, I recommend you trust Him with all your heart. Pray for your baby constantly and know that he is very well taken care in God’s Hands. I’m 31 weeks now and waiting anxiously to see my baby’s face. Take Care and Remember God Listens! ↑ |
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