| Name: Tricia5 | Date: May 5th, 2007 11:03 PM |
| my son was also diagnosed at my 20 wk sono with an enlarged left kidney. i was tracked by a peri for the rest of the pregancy. most drs. told me it would probably resolve itself either by the time my son was born or by the age of one. my son was born in oct. '06. kidney was still enlarged. his vcug test and his lasik renogram were negative - goods signs. he was then tracked by periodic sono's and when he was 5 months the drs. realized that there is indeed a blockage. at this pt they are not sure what it is. he will under go a cystoscope (camera thru penis) at the end of the month. dr tells me it is a problem with the bladder or the ureter. either way they will need to operate. i too was concerned about this diagnosis at my 20 week sono and what it meant in terms of DS as i was 43 yrs old when i delivered and did not have a amnio. my son was 9 lbs 12 ozs and is very healthy other than these urological issues. in addition to the enlarged kidney he was also born with a hydrocele (fluid in the scrotum) which will also need to be operated on - but a in and out procedure - this they did not see till he was born. again - it is something that can resolve itself but his "opening" is too wide and that can lead to a hernia (intestines falling into the scrotum). I too was very anixous when i was told there was a problem in my 20 week sono. the good news (so far) is it can be fixed! i will let you all know the results of the cystoscope at the end of the month - ↑ |
| Name: chrisc86 | Date: May 6th, 2007 6:51 PM |
| thanks for the feedback - i have my regular obg appt tomrrow morning. my dr. will have the report from the specialist so ill know more about whats goin on and well discuss what it means.. ill write when i return! thanks again ↑ |
| Name: Winter | Date: May 8th, 2007 4:57 PM |
| It has been a while so I just wanted to give and update. It seems as if the pyelectasis has resolved it's self and the Drs are not worried about needing any follow up. I am now 37 weeks and just waiting for baby boy to make an apperance. ↑ |
| Name: suebrando | Date: May 8th, 2007 5:36 PM |
| My baby boy had a dilated kidney about 4mm. He was born on 5/2/2007 at 7 lbs 11ozs. Everyone told me it was a marker for downs syndrome. I declined the amino and worried my entire pregnancy. He was born healthy with no downs syndrome. He will have a sonogram next week to follow up on the dilated kidney. I encourage the amino for all parents. I wish I had it. I was not content or worry free until I held my baby in my arms. I will keep you all updated on the kidney. Good luck ↑ |
| Name: cocolove | Date: May 9th, 2007 9:19 PM |
| Suebrando, congrats on your delivery. Although there is a small risk, I agree with you about the amnio and that's why I did it. I could not go through the stressors that you went through and I am so sorry that you had to go through that. I was 35 when I had my first child and he also had dialated kidneys. I didn't do the amnio but I worried the rest of the pregnancy for nothing, but I could not find peace while I was waiting. Chris, remember you are very young and this diagnosis is common in boys who are born healthy. If I weren't over 35, I would not do the amnio. I did it soley because of my age. Good luck to you all. ↑ |
| Name: chrisc86 | Date: May 9th, 2007 11:37 PM |
| thanks im really trying not to worry too much im goin for another sono in 2 weeks and my doctor tells me all the time not to worry and how common it is... i havent been making myself too crazy lately... of course i hope for a health baby boy but if there turns out to be a problem either way im gona love him to pieces so im just goin to enjoy my pregnancy and pray the problem corrects itself which it usally does.. ill let you all know how the next sono goes when i return in a few weeks! thanks again.. and winter congrats on the good news and sue congrats on the baby!! ↑ |
| Name: ruby | Date: May 16th, 2007 6:31 PM |
| I just went for my 20th week US. Everything looks great with my baby ( boy) other then a 3.6 and 5.2 mm kydney dilation. I have done my AF blood test. And thats perfectly normal . I would be 34 yrs old when I would deliver and both me and my husband does not have anyone in the family with chromosome probelms or bith defects. There are no other marker than this (kydney dilation) for DS. I am very upset and feel like my life is a waste. I am extremely tensed up..Do you guys think this dilation will resove on its own? Are there other women in the forum with my situation? Is just a 3.6 cm -5.6 cm keyney dilation cause of DS risk? I really dont understand. I've a followup US scheduled in 4 weeks. ↑ |
| Name: Marisha | Date: May 17th, 2007 2:27 PM |
Hello, Ruby I'm 30 wks pregnant, on my 18 wks uls they did found 6mm kidney dialation, and some kind of cyst . The cyst disolved on its own, the dialation still there. I was told that it is a soft mark for DS, but opted the amnio out- my blood results are good + there is no family history. I have talked to many mothers with the same problems, and so far didn't see anyone with DS. So I pray every day and can't wait tosee my baby boy!
Keep us posted, ok? ↑ |
| Name: ruby | Date: May 17th, 2007 2:55 PM |
Marisha,
Thanks for your reply. So did your dilation size increase from 6 mm since your 18week? Or its it the same size. Yes now after much research and pondering on the fact I feel just a single marker on mild pyelectasis with no gentic history in the family, no other complication , DS is a total rule out fact. ↑ |
| Name: Marisha | Date: May 18th, 2007 1:43 PM |
| Yes, Ruby, at 18 wks dialation was 6 mm , at 21 wks 7.1, at 27 wks 8.1 mm. The left kidney still looks normal. I have an uls in 4 wks, and HOPE there is no dialation at all. My doc keeps me positive , she said she sees it all the time (mostly with boys), and my 2 yr daughter is good example, that healthy people have healthy babies. I still don't sleep at night, and genetics didn't do things easier. ↑ |
| Name: ruby | Date: May 18th, 2007 8:07 PM |
Marisha,
Reading all the posts here as well on net ,I strongly feel you too should not worry and later repent for ruining the good days of pregnancy. As you know , these days would not come back .
I was wondering, Did you do a AFP screening blood test? ↑ |
| Name: Marisha | Date: May 20th, 2007 8:44 AM |
| Hi Ruby. Thank you for your support, I guess I'm just tired. How do u feel? Is this your first baby? I had an IPC which was screen negative- is that what you were asking? I hope you don't have so much stress, as I did. I have 9 wks left and will be happy to share my experience. When is your next uls? ↑ |
| Name: Ana | Date: May 26th, 2007 12:31 AM |
Dear Ruby,
Please try not to worry so much and please, please enjoy your pregnancy, your baby will be perfectly ok, simply TRUST GOD with all your heart. I went thru the same thing and now I have a precious baby boy who is the absolute love of my life. He is 4 months and absolutley healthy...
I had the same problems with my baby boy at my 20th week u/s. The two cysts went away after the 25 week and the kidney dilation did not until a week before he was born. He is now 3 months old and he could not be any more perfect, he is the sweetest baby boy and very healthy. Please try not to worry so much and Trust God, He will pulled you thru. God Bless you!! ↑ |
| Name: Marisha | Date: Jun 6th, 2007 2:11 PM |
| Hello Ana. One day you told me that it's ok to talk to you, so hereI am. After I talked to you last time I felt much better. Until I read the forum Moms of Special Needs Children » DOwn syndrome babies . I can't stop thinking- some of those mothers had normal tests! And I have 2 marks! 8 weeks left, and I'm so scared. ↑ |
| Name: sherryb | Date: Jun 6th, 2007 4:00 PM |
| Hi Marisha, I posted one time some time ago, you can look back & read my post. However, I checked the forum 3+ times a day sometimes every day of my pregnancy. To make a long story short, I know how you feel. I've been there. I had a wonderfully healthy baby boy 9/22/06 despite the 2 markers the u/s showed. Everyone tried to reassure me, even the Dr's said they or none of their nurses ever even got any genetic testing done throughout their pregnancies. They felt ignorance was bliss & I'd have to agree w/them. The peri & scared the daylights outta me & everything on the net scared me too. Too much info. & you can't believe everything you read. Despite everyone saying I was worrying too much & everything was sure to be fine.. as a mom I still worried the entire preg. I'm glad to say they were right! And if you notice NOT ONE person on this forum had a D/S baby! Take some time & read it for yourself. If you'd like to personally email me my email is sbartley11@verizon.net I'll be happy to lend an ear. My advice? Pray your way through it, say an Our Father everytime a negative thought enters your head. Keep yourself super busy & take a walk every day to burn off stress. If you have other children hug them & love them. Hold tight to your spouse for support, cry when you have to but I have no doubt your baby will be just fine. Just like the rest of ours are! ↑ |
| Name: Marisha | Date: Jun 7th, 2007 7:13 PM |
| Thank you, Sherryb. There is nothing else I need more than friends! I'm freaking out. Only when I Look at my daughter (she is two), I feel that there is no way something should go wrong. Right? I pray every time I feel like i'm gonna cry. 8 more long weeks. Im so tired. Where did you have your baby boy ? Did you see that he was healthy soon after birth, or from doc? ↑ |
| Name: Alison | Date: Jun 7th, 2007 8:57 PM |
All,
Thank you so much for sharing all of your stories with us. I just found this site about a week ago and have had a lot of comfort reading through the different posts. 2 weeks ago, at my 20-week ultrasound, the doctor identified 2 soft markers (pyelectasis of one of the kidneys and a white spot / foci on the heart/ left ventricle). Although my quad screen results came back negative (I'll be 33 at time of delivery), the soft markers doubled our risk for chromosal problems. I have a very healthy 2 1/2 year little girl and am feeling a lot of the same emotions that you have all expressed -- can/will I be a good mother to a special needs child if those are the cards I have been dealt? What will this mean to our daughter? How can I enjoy the next 18 or so weeks of my pregnancy with these thoughts in my head all of the time. I declined amnio (wouldn't consider the risk of miscarriage in any circumstance) but am looking forward to my 28 week ultrasound where we can take another look and see if anything has improved. ↑ |
| Name: sherryb | Date: Jun 7th, 2007 10:48 PM |
Marisha,
Keep in mind everything you're feeling, I"ve been there too, yes it can be a living hell. The worrying is crippling at times, believe me, I know, the fluctuating hormones don't help matters either! Even though this was my 3rd child I swore I'd never get pregneant again after this because I could never endure the emotional turmoil of what I went through again.
The doc said this to me too, which made me feel a lot better... when I went for a check up near the end & expressed once again my concerns she said "Well, let's take a look at the notes..." She came back saying, "This all looks very positive to me. No 'physical markers', just the soft ones. We see these all the time, they ususally ALWAYS resolve & mean nothing. That's the thing w/technology, it can be good, yes, but sometimes it provides too much info. It's quite possible that 10 or so years ago these things were just as prevelent but we just didn't see them. Now everyone is freaking out over them & they still really don't mean anything for certain." SHE'S RIGHT! She also felt that I did the right thing by foregoing the amnio & believe me I even made the appointment & cancelled at the last minute because I couldn't possibly take even the slightest risk.
To answer your other questions, when I went in to have him at a hospital in Pittsburgh, PA. Right when he was about to crown I started crying because I knew I'd finally know the truth. I kept asking my husband "is he ok? is he ok?" The pediatrician knew my concerns as well and she came over looked at him right away & said he looked absolutely perfect.
Really, no matter how much the odds are in your favor (& they are!!!) it'll still be in the back of your head as it was mine. Remember too, in this day & age, so many people are "sue happy" that these Doctor's have to tell you ABSOLUTELY EVERYTHING to avoid a lawsuit.
The VERY BEST WAY that I dealt w/it was keeping busy, walking once a day, & saying the Our Father everytime my mind began to wander. Sometimes 10 times in a row! You wouldn't believe how much peace it gave me though. I kept so busy w/running my business, my other two kids & even picking up a part time seasonal job at an amphitheater box office that I rarely had time to think about anything so that REALLY helped. I tried at all times to surround myself w/positive things. I focused on the fact that my other two kids were healthy, nothing ran in the family, I had a healthy lifestyle & how wonderful it's going to be when he finally gets here & I get to hold him. I rejoiced in the fact that I was able to feel my baby moving inside of me & that I was going to bring a new life into this world & he was special & I was going to be his mother. Some women have never, will never, & could never experience this miricle & I was about to experience it for the third time!
I spoke w/my friend who has a son who is blind & asked her how she dealt w/it (special needs child) she said to me " I have 2 other sons besides "Michael" (the blind child), "Michael" will always have a special place in my heart. I could never imagine life w/out him. Just know that your baby is fine right now inside of you, he's doing well! If by some chance he's special then we'll help you get the help you need to give him a great life. W/Michael, it wasn't bad, it was just a different way to do things, you'll adjust you're a great mom! I did & I wouldn't change it for the world!"
After speaking w/her I felt alot better too. Marisha, I know your baby is fine. This might sound querky but think of this too.. You know that show "Deal or No Deal". How there was a 1 in 25 chance that someone would win the million? Guess what, NO ONE WON THE MILLION YET! And that's just a 1 in 25 chance! Look at the odds of your baby being perfectly fine, what 1/200 or something that there could possibly be something wrong? Hang in there, keep busy girl, enjoy the little one moving inside of you, you are living a miricle that so many take for granted. You'll be a great mom to this baby just like you are to your other one. Soon that healthy baby boy will be in your arms! ↑ |
| Name: suebrando | Date: Jun 10th, 2007 12:22 PM |
| Hi I am back to give an update on my baby boy who was born on May 2, 2007. Shortly after birth he went back for a sonogram. It did reveal that his kidney is still dilated. He was put on antibotics Bactrim. He is now scheduled to get a VCUG to check for reflex in the kidney. I will keep you posted to let you all know the results. ↑ |
| Name: suebrando | Date: Jun 10th, 2007 12:29 PM |
chrisc86.........
Please don't worry. As you know I was told that the kidney being dilated was a sign of down s. in my baby boy. I worried and cried all the time which made it so hard to enjoy my pregnancy. I didn't have the amino which I regret because it would have put my mind at ease. I was 35 when I got pregnant and delivered at age 36. My husband is 39. They treat you like a dinasour and make you worry so much. I encourage you to enjoy your pregnancy. I am sure that all is ok. Good luck and I will be back soon. ↑ |
| Name: suebrando | Date: Jun 10th, 2007 12:39 PM |
VCUG......................
If anyone has had this done on their infants. Could you tell me what to expect? If I see my baby screaming strapped to a table I might freak...I think I will have to let my husband take this one and sit with my 3 year old out in the waiting room. Thanks for the information! ↑ |
| Name: Ana | Date: Jun 12th, 2007 9:37 AM |
Hello Marisha,
Sherryb could not have said it any better. This was my first child, the long awaited baby that i had been dreaming of, so you can imagine the shock i felt when they told me about the soft marks, but i was able to survived thanks to my God all-powerful. I couldn't even talk to my friends about it, I could not make myself repeat what the Doc's had said. God was my only refuge and strength. Like Sherry said even thought after the Level II US the baby looked good, the doubt was already planted in my heart and only God could help me. I started waking up at 3:00am just to talk to God and to my baby, I would speak to him in my tummy all the time, you can’t imagine how much it helped me.
Now, I see my baby and I can’t believe my eyes. He is the most perfect one I have ever seen and so beautiful. He is turning 5 months and perfectly healthy…I haven’t had to take him to his pediatrician other than for regular checks and shots. You baby will be precious and healthy, please believe it in your heart and mind and trust God on this one.
You are in my prayers… ↑ |
| Name: bradensmommy | Date: Jun 12th, 2007 10:04 AM |
| I have been reading these messages since I found out at my 20 week u/s that my baby had pyelectasis in both kidneys. I was a mess when the peri first told me it was a soft marker for DS. I went on to have a fetal echocardiogram...it came out normal. I started going to the peri so they can keep an eye on it....it seemed like each time I went, he saw something "new" and that led to more stress during my pregnancy. Well, I had a baby boy on May 4th and he does not have DS. He had an u/s on the third day of life & his left kidney was a "Grade 2" and his right was a "Grade 1." Two days later, he had a VCUG......I was a nervous wreck (especially since they did it the day after he was circumsized!!). Somehow, Braden slept through it.......his nurse had never seen this happen before (we were not with him during the procedure)! This test came back negative!! We recently took him for another u/s....his right kidney is now normal, but the left is still a "Grade 2." The urologist said that babies with his condition usually resolve itself. If it does get worse (Grade 3 or more), the baby will have to have surgery. We are enjoying our sweet baby now, but wished we were able to do that while I was pregnant. Easier said than done, but please try to enjoy this time b/c the odds are in your favor!! ↑ |
| Name: Marisha | Date: Jun 13th, 2007 2:01 PM |
| Thank you , Sherryb, Thank you Ana. I was a mess past 3 days, so I didn't want to read, write or talk about what worries me. My Mom was refused a visitor visa to come to me, and it did added some sad feelings. My husband was the only person I could open my heart to. And it did help. We'll try to get busy, so the last weeks just fly away faster. Thank you All for being such a good support - I don't feel all alone! ↑ |
| Name: Ruby | Date: Jun 14th, 2007 6:28 PM |
Just want to say RELAX to you girls. I had 3.6 mm and 5.2 mm fluid on babys kydneys on my 21st week. following day I went to my gynae and she completely blew off any tensions from my mind says its very common in male fetus and the genetic consellers jus make u get scared because they want u to do amnio. And mind u my gyane is a very reknowned and popular gynae in california. Today I went for my 24 weeeks US. the fluid on right kydney is so insignifcantly small that the sonograph person did'nt even care to look at the. Te other one is still the same size 5.2. did'nt grow at all which she said is a good sign. She asked me to come in another 2.5 months. This time they even could'nt give an appointment date to me as they need my gynae to approve so that they get the insurance approve for the next US. So u all can imagine how insignificant an issue it is.
Its unethical to make us pregnant ladies get so tensed up , when deep inside they know whow insignificant chance of DS is there for such an isolated marker!!!! ↑ |
| Name: marriam | Date: Jun 15th, 2007 1:10 PM |
| Hi,I am 20weeks pregnant i had a ultrasound yester and the doc told me that my baby has a mild fluid in the kidney .I am 37 yrs old and that puts me in to the risk of having baby with trisomy 21 .I had my afp and nuclear translucansy test earlier they cameout negative.But i am really worried they recommend me too have another ultrasound in three weeks please reply me if any body has any information regarding this matters and also pray for my baby thanku. ↑ |
| Name: hahaha | Date: Jun 16th, 2007 12:52 PM |
| Name: canuk1 | Date: Jun 16th, 2007 8:44 PM |
ANOTHER GOOD OUTCOME
i posted here a while ago, same story told at 19 weeks about the kidney dialation, told its a soft marker, was VERY UPSET
literally as soon as she came out all i wanted to know was that she was ok, and did not have downs
she is TOTALLY NORMAL, kidney was still a bit dialated, they thought that she may have an obstruction, had a test (with an iv and a catherter) she does not have an obstruction, so no surgery thank goodness
the test sucked, i wont lie about that, but it is better than having surgery
they are doing another ultrasound in amonth and if it is still dialated then that vcug test
she is still on antibiotics, but is gaining weight like a champ
try to worry too much and good luck to everyone! ↑ |
| Name: Marriam | Date: Jun 16th, 2007 10:21 PM |
Hi ,
Ruby
I also live in the bay area,California.Could u please recommened me your Gynie name .As u mention she/he is the best in her feild. I want to see anybody who is good in this field.I will really appreciate it .thanks in advance. ↑ |
| Name: emunah | Date: Jun 17th, 2007 10:20 AM |
To: suebrando
In response to your VCUG question. My son had one a couple of months ago. It really is not that bad. They take the babys diaper off and clean the area. Then they insert a cathetar in the baby's penis (that is probably the worst part, but not so bad) with my baby it took ages because he kept peeing, so they had to start from scratch several times!. Once the cathetar is in they inject fluid into him to fill up the bladder. This does not hurt hte baby. They they do the xrays and watch the kidneys to make sure the baby is not refluixing. And that is it, they take out the cathetar and you are done. The baby did not seem uncomfortable afterwards. Good luck and let us know the outcome, ↑ |
| Name: Danny | Date: Jun 19th, 2007 12:42 PM |
| my wife went for her 20 week UT yesterday (girl) and the doctor sent her back for a third next month. Dr said the kidneys were diffferent sizes..3.2mm and 4.8mm an just wanted to check. My wife is a wreck...what is the size suppose to be?? ↑ |
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