| Name: Cindy | Date: Nov 10th, 2005 12:51 PM |
| I am too scarred with the whole thing of pyelectasis, I am expection a daughter and her kidneys have both enlarged since the original findings. ↑ |
| Name: rasha | Date: Nov 12th, 2005 5:37 AM |
| i have the same problem ↑ |
| Name: rasha | Date: Nov 12th, 2005 5:40 AM |
| did they told u that the baby will have surgery immediatly after birth? ↑ |
| Name: Kara | Date: Nov 14th, 2005 11:41 AM |
| From what I have researched, they look at doing surgery if the dilation is 10 mm or larger. 5mm or larger is considered to be "enlarged", so you may want to find out exactly what your babies measured. Most of them that are under 7mm resolve on their own, with 7-10 mm needing monitoring - ultrasound on the baby around 2 days after birth. Hope that info is helpfull ↑ |
| Name: Kari | Date: Nov 18th, 2005 11:13 AM |
| I just had my 20 week ultrasound and the M.D. found a spot on the heart and fluid in the kidneys, which means small markers for D.S. I have am waiting my blood work results and thinking about amnio, even though my family is against it. I am having a boy and don't know what to do. ↑ |
| Name: oforiwaa | Date: Nov 22nd, 2005 6:12 AM |
| i also had my u/s at 21weeks and sanographer said baby has slight dialation am worried ↑ |
| Name: Kati | Date: Nov 28th, 2005 5:14 PM |
| I have just recently had my 20 wk 6 dy ultrasound. The Dr. found a bright spot on the baby's heart and informed us that it is a marker for Downs. My husband and I were told that according to her non official investigation (I have a level 2 scheduled in 2 1/2 weeks, where we can have someone offically look for markers) she did not see any of the other markers. I did not get the quad screening and do not know my odds. I am VERY worried and find myself crying about it often. My husband and I are 25 and 28 respectively so from what I have read we have a low chance, but even a small chance is a chance. I am so worried..... ↑ |
| Name: Kara | Date: Nov 30th, 2005 2:33 PM |
| Jane, Rita, Jennifer, Jay, Kari and Kati, and to any others that have had both the spot on the heart and the dialated kidney show up on their ultrasounds - I would really like to hear how things are going, results as they come up and how your little one's are doing. I have a long 5 weeks until my follow-up ultrasound (done at 32 weeks) and would appreciate any updates in the meantime, as time seems to be at a standstill right now just waiting and worrying. From the research that I've done, it sounded like finding both the spot on the heart and the pyelectasis is supposedly uncommon, but here we have 7 of us together, which seems pretty common to me - hopefully there is power in numbers. Best of luck to each of you, and I will keep you updated. ↑ |
| Name: Rita | Date: Dec 1st, 2005 7:28 AM |
| Kara - Sorry, no new updates for me, but I'm going in to be induced in about 2 1/2 weeks, so I'll be sure to report back. Also, I've found many, many more than just our little group that have both these same 2 markers. I honestly lost count of how many posts I've come across on various baby/pregnancy sites. My impression is that DS markers are found so often on ultrasounds that women have all kinds of combinations. Please wish me luck, everyone. I'm getting really scared, but trying to keep positive, as well. ↑ |
| Name: dawndawn | Date: Dec 1st, 2005 12:10 PM |
Hi!
My daughter Allison was diagnosed through ultrasound at 38 weeks with what they thought at the time was a blockage in her left Kidney. She had to have several tests after she was born to determine what it was and had to be monitored. I am sure the doctors told you that many times the children will outgrow the problem many times even befor birth. Some kidney problems are linked to blue eyes, fair skin, and light hair. Interesting HUH? You pretty early on, so your baby can outgrow it. Sometimes the urter that is attached to the kidney to drain into the bladder gets kinked up and just needs time to grow and unkink itself or their is a vein that is causing the blockage. Our Urologist told us that 60-80% of babies will outgrow this by the time they are 18 months. Allisons' left kidney kept getting worse, not draining... swelling uncontrolably...So she had surgery at 16 months and when they got in there her urter actually attached on top of the kidney what they called a 'High Insertion" and they were able to move the urter and reattach it where it needed to go. She is now 28 months old and is completely healed. She has since gone in for her last follow-up. Her Urologist name is Dr. Gandhi! He is the best!
Dawn
www.FinallyFamilyTime.com ↑ |
| Name: Bec | Date: Dec 6th, 2005 6:43 AM |
| I just had my 19 week scan and my scan report indicated that both renal pelvis's were 4mm +. They suggest I have a follow up scan at 30 weeks. I am 35 and terrified that my baby will have Down Syndrome as this condition is a "soft marker". When I saw my Obstetrician today he did not even know that the condition was related to Down Syndrome - when he looked up his book he said it does increase the risk. I am having a daughter after two boys and want to put my mind at ease - but I am not comfortable in having the amnio test. ↑ |
| Name: SHERI | Date: Dec 12th, 2005 1:32 PM |
| I AM GOING THROUGH THE SAME THING. I AM 23 WEEKS PREGNANT AND ON THE SONOGRAM THE DR. MEASURED LESS THAN A CM OF FLUID IN MY BABY'S RT. KIDNEY. THEY ALSO SAW MARKERS THAT REPRESENTS DOWN SYNDROME. I AM SO NERVOUS AND SCARED. I DIDN'T CHOSE TO HAVE THE AMINO BECAUSE OF THE RISKS OF ME LOOSING THE BABY OR GOING INTO PRETERM LABOR. I HAVE MADE IT THIS FAR, SO I AM GOING TO K EEP PRAYING AND HOPE THE FLUID DECREASES @ MY NEXT VISIT. PLEASE KEEP ME IN YOUR PRAYERS. ↑ |
| Name: Kara | Date: Dec 16th, 2005 5:22 PM |
| hi Rita - I know that you're little one's arrival is coming up quickly and just wanted you to know that you're in my thouhgts and prayers. Best of luck to you, and to all the other expectant moms who are going through this painfully long time of fear and uncertainty, just know that you're not alone! ↑ |
| Name: Rita | Date: Dec 18th, 2005 12:55 PM |
| Hi Kara, and everyone else. Just wanted to let you all know, I had my baby boy on 12/16 and he's absolutely fine! I need to follow up on the kidney, but that should be fine, too. Thanks for your thoughts and prayers. Hope you're all doing well. I'm sure you'll all be posting your happy outcomes soon! I'll be thinking of you all and keeping you in my prayers. ↑ |
| Name: Kara | Date: Dec 21st, 2005 10:30 AM |
| Rita - So Great to hear your Happy News. Thank you for keeping us updated and sharing the hope that things will all work out. Spoil that little guy every chance you get! I have my follow-up ultrasound (32 weeks) Jan 3rd, and will keep you posted. Happy Holidays to all. ↑ |
| Name: Stephanie | Date: Jan 3rd, 2006 1:50 PM |
I had an ultrasound at 19 weeks and the Dr informed us that our baby boy has borderline fetal pyelectasis and a bright spot on the heart. The quad screen that I had done at 16 weeks came back negative. I am now 20 weeks and we are meeting with a Genetic Counselor this afternoon. We have already decided against having an amnio because of the possible risk to the fetus. I'm still very worried but feel so comforted to see all of the posts. I wasn't even aware that more ultrasounds are done for the pyelectasis. My doctor only mentioned an amnio at this point.
I'm hoping that this session this afternoon will give me a lot of useful info, but I will keep looking for posts on this site for encouragement and support. ↑ |
| Name: Melissa | Date: Jan 3rd, 2006 4:44 PM |
Hi,
My 18 week u/s showed my baby boy had pyelectasis and Choroid plexus cysts - both markers for chromosome abnormality. At first I declined the amnio, but ended up having it around 24 weeks because I was too stressed out and having a hard time caring for my 2.5 yr old. The results came back normal male. The cysts have since resolved and we have been following the kidneys ever since. I am currently 34 weeks. The kidneys started at 5 & 6mm and have grown to 11mm at my 30 week u/s. My next u/s is on Jan 18 when i am 36 weeks. I am so concerned about this level of dilation. My perinatologist also has a pediatric urologist who sits in on ultrasounds so I will be asking him all sorts of questions on jan 18th. They think my baby boy has a blockage called a UPJ that might require a surgery called a peyeloplasty after he is born. I am interested to hear of how the after birth follow up has been going for some of you. To the rest who are worried about chromosome problems - try not to worry. If you had good quad/triple screen results then odds are very much in your favor all is fine. My Peri didn't think I should get the amnio - he did it for my peace of mind. And he ended up being correct - baby has normal chromosomes. Try not to worry! ↑ |
| Name: Rita | Date: Jan 4th, 2006 8:18 AM |
| Melissa - I also got really concerned when my baby's kidney kept increasing at each follow-up ultrasound. At one point, it was up to 12 mm, but the size was actually fluctuating up and down during the twenty minutes the tech was taking measurements, so I would try not to get too hung up on the numbers. Even at 12 mm, the pediatric urologist still called it a moderate case (not severe) and still didn't think he would need the surgery. It's only a tiny percentage that need it. Our little guy is taking antiobiotics daily and will have his follow up with the ped. urologist next week. It's possible that the dilation will no longer be there but even if it is, I'm not really worried like I was before. The problem definitely isn't serious, and in the absolute worse case, he'll need surgery, which is very routine. So try not to worry, and keep in mind that your baby's kidney might work itself out before or after he's born. I'll update you all my little guy's appoitment next week. Hope you're all doing well! ↑ |
| Name: melissa | Date: Jan 4th, 2006 9:24 AM |
| Rita - thanks for the response. I am glad to hear your baby is doing well. I find myself constantly worrying that my fluid is low and wondering if he's in pain in there - even though they tell me my fluid level is fine. I think i will be nervous until I actually get to see and hold him! When did they do the first ultrasound after your baby's birth? How is he handling the antibiotics? I have read that some babies don't handle the antibiotics well and have trouble thriving. Which is another of my concerns! I'll be watching for you ped urologist update - best wishes to you! ↑ |
| Name: Stephanie | Date: Jan 4th, 2006 9:09 PM |
| Well, our visit with the genetic counselor proved to be very reassuring. She thought that the original ultrasound findings were probably pretty conservative and that the pyelectasis was only at 3mm. She said they usually do not consider it a marker until it is 4mm at their facility. We spoke with a Perinatologist and he recommedend that I have a level II ultrasound on Fri so he could see for himself what the markers looked like. (my original ultrasound was performed at a different hospital system). So far, the overall risk is 1 in 597, and yesterday they indicated that it may even improve with another ultrasound. At any rate I'm still concerned but I'll be sleeping a little better at night now. ↑ |
| Name: LeErin | Date: Jan 6th, 2006 12:12 AM |
| I have a hopefully reassuring comment and then a question. We had a 19 week ultrasound a couple of weeks ago and learned of a bilateral dilation...one side just over 9mm and the other just under. The perinatologist also felt the bowel was a bit lighter than he would like to see which is also a marker for DS. These issues combined with my age of 37 made me an easy candidate for the amnio which I had earlier turned down. We decided to have one and am I glad because it came back negative and now I can rest easier! Now for my question...I think I only read of 3 of you here having or had a girl and the rest are all boys. I know this condition is more common in boys just don't know how much more common. We want to be surprised by the sex but feel like it's probably a boy due to stats. Either of course is fine as we have one of each already. Just don't want to have the surprise ending already at the half way point. ↑ |
| Name: Rita | Date: Jan 6th, 2006 6:48 AM |
| Melissa - My little guy is doing great with the antiobiotics. He eats plenty and is putting on plenty of weight, and sleeps great, too. Overall, he's really content and has been such a joy! He won't have his first follow-up ultrasound until next week (he's 3 weeks). They'll also do a bladder x-ray. The urologist told us how common this problem is, and not at all serious, so they're not going to rush into any procedures or surgery with him. Just wait and see over the next year, since this kind of thing often corrects itself. You still have plenty of time before your baby's here, so you might find that the kidney corrects itself before he's even born. Good luck with your next appointment. I'll update after we meet with the urologist. ↑ |
| Name: jamie | Date: Jan 6th, 2006 4:06 PM |
| my sister just got news of pyelectasis today at her 20 wk ultrasound. the doctor has her terrified. he did not mention surgery only worst case senarios like renal failure or dyalisis. i know he had to do this, but he did not mention surgery . what surgery is available ↑ |
| Name: melissa | Date: Jan 6th, 2006 8:00 PM |
jaime - i cannot believe your sister's dr mentioned renal failure. Pyelectasis is very mild dilation (usually under 7mm, over 7mm its called hydronephrosis) and almost always disappears before birth. Most often the cause is physiologic and due to hormones circulating in the mothers system. My first son, who is now almost 3yrs old, had pyelectasis when i was pg. His dilation was 5/6 for each kidney. It was back to normal by 32 weeks and he had no after birth follow up and has no kidney problems what-so-ever. I am pg again, and oddly enough we're going through the kidney thing again but this time it's worse - it's 11mm hydronephrosis, and they strongly suggest a blockage. If it is indeed a blockage, my son will probably have a surgery called a pyeloplasty.
Did your sister's Dr say how bad the dilation was? There are some fatal and very serious renal diseases, but pyelectasis alone does not usually signal those. Best wishes to your sister. ↑ |
| Name: shannon | Date: Jan 7th, 2006 7:12 PM |
| I feel the need to make a correction to something I read that may terrify some moms. The division between pyelectasis and hydronephrosis is NOT 7mm...it's 10mm. Any dilation found between 4mm and 10mm is considered mild pyelectasis and anything over 10mm is considered hydronephrosis which often results in a minor surgical proceedure to clear a blockage. You should double check anything you read with your OB and/or perinatologist. If you want to research on your own just google the word pyelectasis and you will find many references stating the 10mm cut-off. ↑ |
| Name: Stephanie | Date: Jan 7th, 2006 10:38 PM |
I had my Level II U/S yesterday in which the perinatologist was present (not just the sonographer) and the findings were quite different than my original U/S. At 18 1/2 weeks they found my baby's kidneys at 3mm and yesterday, at 20 1/2 weeks, they were down to 1.8mm. The original U/S report also mentioned an echogenic focus (bright spot on the heart) and the perinatologist said that it was actually a valve that had been mistaken as an echogenic focus. It was a real advantage to have the person reading the U/S in the room at the time to see it in real time. He said that looking at a still picture of the U/S would lead most to conclude that it was an echogenic focus.
With the results from yesterday he concluded that my risk factor for chromosomal abnormalities was not any greater for anyone else my age. Sometimes a second opinion is a real blessing! Both the sonographer and the peri also said that pyelectasis is VERY common, especially for boys and that it does usually correct itself before birth, which is what many of you have also heard and commented on.
Also, concerning the EF, my peri said that it is not uncommon for the normal population to have these and that it occurs with a frequency of about 5% and in Trisomy 21 it occurs with a frequency of 10-15%, so it does increase the risk but it certainly does not mean there is a strong probabilty that the child will have Down Syndrome. ↑ |
| Name: melissa | Date: Jan 8th, 2006 11:05 AM |
Shannon - that's great news. My pediatric urologist told me two weeks ago that most cases 7mm and above need follow up as they are now classified as hydronephrosis. But I am glad to hear he is wrong! I will let him know of his mistake at my next appt at the Children's hospital in Denver on Jan 18th.
He didn't freak me out about the term though, or make me feel that hydronephrosis was such a terrifying thing - he just said it increases a chance my child has a blockage or reflux that will need a VCUG and renal scan after birth. ↑ |
| Name: melissa | Date: Jan 8th, 2006 11:09 AM |
Stephanie,
I am glad you had a great u/s! I agree, it's so much better having an u/s done by a perinatologist. Mine is one of the leading experts in the US on prenatal diagnosis and he wasn't concerned AT ALL that our unborn baby had two markers (CPCs and what started as pyelectasis and has progressed to hydronephrosis). My first son had pyelectasis of 5 & 6mm and it was totally back to normal at 32 weeks with no follow up needed after birth. I wouldn't worry a bit if I were you! ↑ |
| Name: Jane M. | Date: Jan 12th, 2006 7:01 PM |
I have a question for Natalie.I was wondering what your AFP screening came back as?
My 20 week ultrasound showed that my baby girl has fluid in both kidneys -5mm. With no other soft signs for DS. I am worried. ↑ |
| Name: SHERI | Date: Jan 13th, 2006 1:23 PM |
| JUST WANTED EVERYONE TO KNOW THAT THE DILATION DECREASED 1.5 MM @ MY LAST VISIT. I AM NOW 28 WEEKS AND HAVE ANOTHER VISIT ON FEB. 2. I HOPE THE DILATION KEEPS DECREASING MY EDD IS MARCH 26. HOPEFULLY MY LITTLE BOY WILL BE OK. ALSO THE MARKERS THAT THEY SAW ON THE SONOGRAM WERE NOT THEIR ANY MORE. THE DIALTION IS NOW DOWN TO 8.1. IT WAS 9.6 @MY FIRST VISIT IN DECEMBER. JUST CONTINUE TO KEEP US IN YOUR PRAYERS AND I WILL DO THE SAME FOR EVERYONE ON THIS SITE. I WILL KEEP EVERYONE UPDATED AND POSTED. ↑ |
| Name: LeErin | Date: Jan 13th, 2006 10:07 PM |
| Sherri...that's great news! Good for you, and I feel encouraged too! I will have my 2nd US next week when I will be 24 weeks. My first one at 19 weeks showed both sides at 9mm. Seemed like with the first numbers being so high there was little chance of decrease. So glad to hear it's possible. You must have been so relieved! ↑ |
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