| Name: LeErin | Date: Jan 13th, 2006 10:07 PM |
| Sherri...that's great news! Good for you, and I feel encouraged too! I will have my 2nd US next week when I will be 24 weeks. My first one at 19 weeks showed both sides at 9mm. Seemed like with the first numbers being so high there was little chance of decrease. So glad to hear it's possible. You must have been so relieved! ↑ |
| Name: Alex | Date: Jan 13th, 2006 10:28 PM |
| I am 25 weeks & one month ago I had an u/s & the kidney measured 3mm. The Dr. said that his left kidney was kind of enlarged & he wanted me to go back for a follow up. I went this Wednesday & the babies left kidney is at 7mm! It has more than doubled in size & now he is sending me to a perinatologist for another u/s & a consulatation. I read online that these dr.'s are there to provide bad news. Naturally I am really freaked out. This is my first baby. He is a boy & I read this is commom in boys but after reading about down syndrom etc. I don't know what to do. Stress isn't helping obviously & I haven't slept in a week. ↑ |
| Name: melissa | Date: Jan 14th, 2006 7:57 PM |
| Alex - try not to worry about down syndrome. most likely your baby doesn't have down syndrome nor does he have a kidney problem. my first son's kidney dilation was close to 7mm and it was totally back to normal by 32 weeks with no follow up needed after birth - and no he doesn't have down syndrome either. The triple / quad screen is a better indicator of a problem than one or even two markers for down syndrome. i am pg again and my baby has two markers and i know he doesn't have down syndrome b/c i had an amnio which showed normal chromosomes. best wishes! ↑ |
| Name: Melissa | Date: Jan 14th, 2006 8:01 PM |
| Everyone - I have a follow up u/s with my perinatologist and my pediatric urologist this coming Wed Jan 18th. My son's kidneys were at 6mm & 7mm at 23 weeks and 7mm & 11mm at 30 weeks. I am hoping that the dilation has gone down. We already know we will have follow up after birth though - a kidney ultrasound, a VCUG, and a renal scan - regardless of what the outcome of this u/s is. But it will still be very reassuring if the dilation is down. I will update on Wednesday. I will be 36 weeks 2 days at my u/s this Wednesday. ↑ |
| Name: SHERI | Date: Jan 17th, 2006 12:53 PM |
| LEERIN... I THINK THAT EVERYTHING IS GOING TO BE OKAY. KEEP ME INFORMED ON YOUR NEXT VISIT AND I WILL DO THE SAME. ↑ |
| Name: SHERI | Date: Jan 17th, 2006 12:57 PM |
| MELISSA... YOU ALSO KEEP US INFORMED OF YOUR DR. VISIT. ↑ |
| Name: Stephanie | Date: Jan 17th, 2006 2:44 PM |
Alex-
Try not to worry too much. I think that seeing a Perinatologist will be very worthwhile and may even put your mind at ease. My peri indicated that they see enlarged kidneys all the time and that they are constantly changing. It's true that it is considered a "soft marker" for Down Syndrome, but with no other indicators I don't think it is a great risk. Talk it over with your Peri, they are very knowledgeable. Try to relax and enjoy your pregnancy. My thoughts and prayers are with you and everyone on this board. ↑ |
| Name: Melissa | Date: Jan 18th, 2006 9:10 PM |
| I had my follow up u/s with the pediatric urologist and my perinatologist today. It went great!!! I am 36 weeks 2 days and they said that one of his kidneys is beautful - no dilation at all. And the other is now only a 5/6mm! The ped uro wrote a script for antibiotics for him after birth adn then I have to maek an appt at 2-4 weeks after he's born to do a VCUG. The ped uro said he suspects it might be kidney reflux, and not an obstruction after all. And he said reflux is often just a normal part of development adn they outgrow it by one year. So things are going great! My c-section is in 2.5 weeks. Thank goodness i am almost done! Oh - and they estimate he weighs 6lbs12oz today so by the tiem I have him he'll be pretty big! ↑ |
| Name: Mary-Dare | Date: Jan 19th, 2006 9:52 AM |
| I went for my regular unltrasound last wk at 18 wks. Was then sent to a specialist the next day. Found pyelectasis with measurements about 6mm on both sides. Had no idea about the downs implication prior to the visit . So, of course I was totally freaked out. I barely heard anything about the kidneys. My husband had to do most of the listening on that. I had the AFP test done at my regular ob but didn't have the results yet. I had it with my last preg. I ended up talking to the specilalist later on the phone. My risk at my age without the kidney prob is 1/1100 for downs. With pyelectasis 1/733. My risk of complications from amnio is 1/250. I then got my AFP results now my risk is one is 1/2726. I have done a lot of reading and feel much better about things. I am saying all of this to say that an amnio is an invasive test. If you want an extra help in knowing about the downs risk that is not as invasive the AFP test maybe a good choice. EIther way you have to decide what you will do with the info you get back. It would never change my mind about having my baby. Even still it was greatly reassuring to get those AFP results and they be normal. My prayers are with us all! ↑ |
| Name: SHERI | Date: Jan 19th, 2006 1:11 PM |
| MELISSA... I AM SO GLAD THAT YOUR VISIT WENT GREAT. I HOPE EVERYTHING GOES WELL WITH YOUR DELIVERY. LET US KNOW ABOUT YOUR LITTLE ANGEL ONCE HE ENTER THE WORLD! GOOD LUCK ! ↑ |
| Name: Lorelei | Date: Jan 25th, 2006 7:38 PM |
I can relate!! Same story here as yours. I guess it could be gone in our thrid tri-mester. But if not yes I guess surgery is the answer. I am confused though because I was just reading on the internet about it "Fetal Pelviectasis" and it says that it is a soft marker for Down Syndrome. I ahd a test done for that would it not have shown up? Would love to chat and trade stories.
Email me......gldumont@sasktel.net ↑ |
| Name: Jennifer | Date: Jan 26th, 2006 8:22 PM |
| Hello everyboby I just found out today that my 18 week US showed a mild dilation on my son's right kidney so I've been looking for answers on the internet about what this means and now I am really freaked out because I had no idea it was a "soft marker" for DS. I had a first trimester genetic study done the was neg and my AFP test was neg. but I'm still really worried my baby might have DS. Can anybody give me some advice? This is my first baby and I'm really nervous!! ↑ |
| Name: Stephanie | Date: Jan 27th, 2006 5:14 PM |
Jennifer--
A mild dilation sounds like what my son had at my first ultrasound. I later learned after my level II u/s (the dilation was less pronounced at that one) that it was very common to see this and as long as the dilation was not too big it isn't a problem. Did they tell you the actual measurement? Some of the other women on this board have posted a lot of information on this and their own experience, which I think you may find useful and reassuring.
I think that having your blood work come back negative is a very good sign. Did your Dr refer you to a perinatologist or for a level II U/S or a genetic counselor? My doctor was only going to refer me to counseling and an amnio if I chose to have one, but when I met with the counselor she said that I ought to have another U/S with a Peri just to see what is going on (I had an additional marker for Down's with my first U/S--an echogenic focus on the heart, which was later determined to just be a normal heart valve!) I found that just talking to the genetic counselor put my mind at ease and the second opinion from the perinatologist was comforting.
Based on the info you mentioned and having no other markers present I'm sure that your risk of DS is very very low and probably close to the same for anyone else at your particular age. Talk it over with your medical professionals. Try not to be too scared, most likely everything will be fine. It would be a shame if you were not able to enjoy the rest of your pregnancy because of this. Good luck to you. ↑ |
| Name: Mary-Dare | Date: Jan 27th, 2006 5:48 PM |
Jennifer-
See my previous entry. My babies kidney's actually seem a little worse than yours. I have had my level II untrasound and my AFP tests. My specialist told me that with my age of 26 my risk of DS is 1/1100. With the kidney 1/733. Then factoring in my neg AFP test it went to 1/2726. Making it better than my odds without the kidney prob or just my basic age risk. No, the AFP test is not definite only an amnio is but it certainly made me feel better. I had it with my daughter and it was neg and she is fine. Will keep you in my thoughts and prayers. ↑ |
| Name: Jennifer | Date: Jan 27th, 2006 6:22 PM |
Stephanie-
I spoke with my Dr.'s office this afternoon( I see a PA most of the time) and she stated that my baby's kidney is [3mm dialated (borderline dialated) and that the chance of my baby having DS is 1/10000 since all my other tests are neg. I asked for an amnio but she didn't think I should have one because I have no other risk factors. My OB Dr. will review my chart and see what the next step should be, usually it's just a 28 week US. Thank you for responding, I feel more at ease. Thank you Mary-Dare for responding as well, it's nice to talk with other people that are having the same feelings as I am. My thoughts and prayer's are with you all. ↑ |
| Name: Stephanie | Date: Jan 28th, 2006 1:53 PM |
Jennifer--
My son's kidney was also at 3 mm at the first U/S, my peri told me that if they had seen that that they probably would not have mentioned it to me because it is so borderline. He said that they consider their threshold to be 4mm. At my second U/S it was down to 1.8mm. I also decided not to have an amnio. ↑ |
| Name: Diya | Date: Feb 1st, 2006 4:04 PM |
Hello. I am new to this board and I am glad that I just found it. We are having a baby girl, but she has a dialted right kidney. Is anyone else having a girl and does anyone know if that increases any risks?
The dialation was first detected at our 20 week ultrasound. At the next, ~26, no change in dialtion. Then at our last, 33 5 days, the right had increased to .8. We have not seen or been referred ro a pediatric urologist or anyone else. By the way APF was normal.
Any insight??? ↑ |
| Name: SHERI | Date: Feb 3rd, 2006 1:25 PM |
| HELLO EVERYONE!!!! I HAVE GREAT NEWS I WENT FOR MY DOCTOR APPT. YESTERDAY AND MY LITTLE BOY'S RT. KIDNEY WAS BACK TO NORMAL. I JUST TURNED 31 WEEKS ON YESTERDAY. I COULDN'T BELIEVE THAT THE DILATION WAS NOT THERE ANYMORE. WHEN I FIRST WENT TO THE DOCTOR IN DECEMBER THE DILATION WAS 9.6MM. ON MY SECOND VISIT (JAN5) THE DILATION HAD DECREASED BY 1.8MM. AND NOW HIS KIDNEYS ARE NORMAL. THIS IS TRULY A BLESSING. I WOULD LIKE TO THANK EVERYONE ON THIS BOARD FOR LISTENING AND RESPONDING TO ME. PRAYER REALLY DOES HELP AND TO EVERYONE THAT IS STILL WORRIED PYELECTASIS CAN REALLY RESOLVE ITSELF BY THE TIME THE BABY IS BORN. ONCE AGAIN THANKS!!!!! I WILL BE KEEPING EVERYONE POSTED ONCE MY BABY ARRIVES. ↑ |
| Name: Lexilee | Date: Feb 3rd, 2006 2:15 PM |
| thanks so much for posting that!!! I'm 27 1/2 weeks pregnant with twins and have never posted here before but have been reading the posts. At my 20 week u/s the peri told me that one of the babies had mild dilation (3mm) on one of it's kidneys. At my 24 week u/s it had increased to 5 mm. The doctor said he is not concerned at all but it scared me. We had very good results from our nt and afp tests. THe doctor keeps telling me that this is a common finding and the babies look good but I have never heard of this and was/am quite concerned. We have another u/s on the 10th and I'm hoping it's gone. Thanks again for your positive posts!!! I'm very happy for you!! ↑ |
| Name: dean & mona | Date: Feb 6th, 2006 7:04 PM |
| We would like to thank each and every one of you for your information. I had only discovered this chat room yesturday. My wife is 37 years old, 1st risk factor for down's, and our little brandt has an 11mm hydronephrosis at 29 weeks of gestation, which is the 2nd. The AFP test came back normal. Of course we were still very concerned about the possibility of a chromosomal defect. My wife underwent an amnio. We received the preliminary results today, eliminating down's, trisomy 18, and trisomy 13. I hope that this posting helps alot of you still awaiting results or opting to wait for birth. My wife and I will have all of you in our prayers and hope this posting will ease your anxiety and depression, as yours helped us to cope a little better with the possibility of down's and the still looming hydronephosis. Because of your postings, we feel alot better about the resolution of the latter. GOD BLESS! ↑ |
| Name: Michele | Date: Feb 7th, 2006 9:45 AM |
| Is pyelectasis more common with boys than girls? ↑ |
| Name: Vanessa | Date: Feb 7th, 2006 10:51 AM |
| I had my 18 week ultrasound yesterday... the doctor noticed a slight dialation of the kidneys. They measured 4mm, then went down to 3mm once the baby had emptied its bladder. Also noticed the white spot on the heart. My risk from the quad screen is 1/590 and I'm 29. Not sure if I should get an amnio. I don't want to risk any harm to the baby, but I also don't want to go through the entire pregnancy feeling this anxious. Any thoughts from parents who did the amnio? Thanks! ↑ |
| Name: Stephanie | Date: Feb 7th, 2006 12:11 PM |
Vanessa-
I would recommend getting a level II Ultrasound first because it is non-invasive. My situation was identical to yours and the bright spot turned out to be just a heart valve when the perinatologist looked at it. I am 31 so my risk factor is higher than yours and I am no longer very worried. I opted not to have the amnio because, like you my risk was less than 1 in 200. My doctor did not even mention the level II ultrasound, but when I met with a genetic counselor they recommended one. So I would push for that U/S if I were you. Good luck. ↑ |
| Name: dean and mona | Date: Feb 7th, 2006 6:45 PM |
Vanessa,
I would definately have the level two u/s first. At 18 weeks there are a lot of other things to look for , such as, nuchal fold, confirming the spot on the heart is a spot and not a valve, femur length, and something to do with the fifth digit in the hand. at 3mm I would not get the amnio without another u/s. you also have to ask yourself what would you do with the results of the amnio. My wife did not think the amnio was a bad expirience. However, there is a risk. Is the stress and anxiety going to be worse for the baby, than the amnio risk. There are safe things your doctor can prescribe to lesson the anxiety also. ↑ |
| Name: oforiwaa | Date: Feb 8th, 2006 7:02 PM |
| i went to my 32 week scan and every thing is normal thank God so much and thank you all ↑ |
| Name: Vanessa | Date: Feb 10th, 2006 5:26 PM |
| After talking to my doctor, and much thought, I decided to have the amnio. I just got the results and everything is normal!! I hope these good results will be reassuring to others in the same boat. We'll continue to monitor the kidneys, but it's a big relief. Thanks to everyone on this board for sharing their stories and advice. ↑ |
| Name: Stephanie | Date: Feb 10th, 2006 8:01 PM |
| That's excellent news, Vanessa! ↑ |
| Name: Jane M | Date: Feb 11th, 2006 6:21 PM |
Diya- Hi! My baby girl had 5mm in both kidneys at our 20 week ultrasound. At my 25 week US(this week) the dilatation was 5.6 and 7. The doctor said it needed to be under 8mm at that time. I have read that if both kidneys have it ,you are at higher risk for the kidneys to be refluxing or a possible blockage. My doctor does not seem to be worried at all,even though both the kidneys are showing fluid. My afp screening came back that I am at very low risk for any problems(negative) and we have decided not to do the amnio.
I will be nervous until she is born. ↑ |
| Name: Amy | Date: Feb 13th, 2006 12:57 PM |
| I have to admit that I'm really nervous and sacared now that I have read these postings. I'm 26 weeks and waiting for my 2nd U/S on March 1st. I was advised at my 24 week appt. that my son's left kidney is slightly dialated but my doctor never mentions the word "PYELECTASIS" and now I'm really worried. He told me not to worry and that it will mostly resolve it's self by the next U/S appt. I wasn't worried until I read this so I have all these questions I want to ask my ob... just asking for prayers and thanking everyone for posting there stories. At least I have an idea of what to expect when I go back to my appt. and hopefully that God will see our little man through this! I did not have the AFP test done because of the false postive results. Will keep everyone posted and will say prayers to those who are going through this also! ↑ |
| Name: SHERI | Date: Feb 14th, 2006 1:10 PM |
| AMY.... EVERYTHING IS GOING TO BE OK. I WAS WORRIED JUST LIKE YOU MONTHS AGO. AND I PRAYED ABOUT THIS OVER AND OVER AND I AM STILL PRAYING. MY LAST VISIT WITH THE SPECIALIST ON FEB 3RD MY SON WAS OK. PRAYER CHANGES EVERYTHING. MY BABY'S KIDNEYS WENT FROM 9.6MM TO NO DIALATION @ ALL. GOOD LUCK AND KEEP ME POSTED OF YOUR LITTLE MAN. ↑ |
| Name: Vidya | Date: Feb 17th, 2006 8:32 AM |
Hi All,
I am new to this forum but share your concerns. I have been on the internet trying to find answers since we found out that our baby boy has bilateral pylectasis ( .77 and .79). I had my first U/S on Jan 18 and the next one on Feb 13 but the situation has not changed and the dilation remains the same. I am right now 26 wks. I see that many of you noticed reduction after the 30th week scan so hoping for the best. I am so worried but trying to say positive...thats what the doc says too 'Stay positive' ..my prayers and wishes to all of u in the same boat. ↑ |
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