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Name: Jasmine
[ Original Post ]
I'm a first time mom and I just found out that my three week old baby has sickle cell. I'm really not sure of what to expect and what I should know and I was wondering if there were any other mothers out there that are going through the same thing.
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Name: STACIE | Date: May 29th, 2008 7:45 AM
YES I AM I'M A MOM OF 5 BUT LAST 2 BORN HAVE THE DISEASE WHILE 1 HAS THE TRAIT. SO YES I KNOW WHAT YOUR GOING THROUGH 

Name: tweety | Date: Sep 23rd, 2008 8:51 PM
Hi my name is tweety. Im 22 years old and i Have Sickle Cell and I just want 2 say that my mom and I have beem through alot but keep your head up and keep God first. Also you and your children can survive, ive survived for 22 years and im still surviving. 

Name: Eric | Date: Nov 25th, 2008 8:53 AM
Hi My name is eric and i am 18years old i have a 21yr old girlfriend who has sickle cell and i really love her but im worried for her because she doesnt want to scare me and i want to know is there anything i can do to help her when she has an "attack" Please E-mail me at [email protected] ........THANK YOU 

Name: Mommyluv | Date: Dec 6th, 2008 3:12 AM
I have a 7 year old son with sickle cell and it is very hard when he is sick. You will go through many emotions, and it will tear you apart when the pain is bad for them and you can't take it away. My son has been able to manage and has less painful episodes with the help of the medicine hydroxyurea. This year has been tough. He is just now understanding what he has and sometimes he hates it. He prays that a cure will be found, and so do I. I am not going to say it will be easy but study and learn as much as you can about the disease so that you can understand how to help when there is a crisis. I wish you the best. 

Name: Sarah | Date: Dec 16th, 2008 4:35 AM
Hey, as a person who has Sickle Cell I want you to know that, always. ALWAYS, keep God first. Don't back down, you know what's best for your daughter and don't let doctors tell you something else when you know that it's wrong. All mothers' know best! You mill look at her and wish you can take the pain away...It's hard I know it will be but do your best just to comfort her. Heat packs, massages, blankets, toys, anything but first and foremost is PRAYER. I really wish you the best and I know you will help her get through this and you'll be a great mother to a bright child. May God Bless You and your daughter who I know will do well and I will keep you in my prayers. 

Name: Tonya | Date: Dec 29th, 2008 6:42 AM
Yes, me too I have ss also.Don't worry about your baby she will be alright put it in the lords hands! As your baby get older don't take no wooden nickels from "NO" doctors if they don't your baby's best interest at heart!! Follow your motherly instict if "U" feel something ain't right don't let no doctor do it. Always get a second opinion. 


Name: shawn | Date: Jan 2nd, 2009 5:30 AM
Hello
I am going through the same thing.. My daughter is now 12 months and its very scary. Are you in California?? 

Name: Blanche | Date: Jan 24th, 2009 7:33 PM
my daughter was born with sickle cell 15 years ago. My advise to you is stay strong. It can take a toll on you. Hopefully there will be a cure soon. 

Name: keisha | Date: Jan 26th, 2009 11:42 PM
i found about my baby's disease when he was 6 months. i am trying to cope with it but its hard. Have SC. He is 20 months old. Can you give me some advice on how to handle the situation and how to cope with it please. Because it is really hard. 

Name: Tieyon Hendry | Date: May 14th, 2009 3:27 PM
Hello, I am a first time father and my wife and I just found out that our 2 month old son has Sickle Cell. We are also in search of more information on this subject and are looking to network with other parents and individuals in our similar situation. I your intersted, we would love to share information with you as we discover. Please feel free to contact my by email at [email protected] 

Name: aneesh | Date: Jun 1st, 2009 9:57 AM
hiiiiii 

Name: Dove | Date: Jun 15th, 2009 2:16 AM
I'm so sorry, you have a long road ahead of you, I'm 29 with hemo SC, I don't have advice for your little ones cause when I was little my mom had no clue, Just learn all you can about it, I love this site, www.scinfo.org. Penicillin is a treatment when their young, for blood counts under 8 hydroxyurea when their older, 5mg daily folic acid, plenty of water, keeping warm when your cold, no over exersion, deep breaths is good too. Shower your baby with love and have them bathe only in warm/hot water with no drafts of cold air, don't take any small illness for granted, hospitalize during severe crises, if you can afford it invest in a jacuzzi, its good for the blood vessels and great for oncoming crisis, they can take a strong pain killer, soak for about 15, 20 minutes, dry off, rub with heating oil, bandage the area, fully clothed they then cover with a blanket and go to sleep should be better by morning, this is for when they are much bigger though, and please don't play with fever, also see a opthamologist for eye exams every year in order to catch early retinopathy a good sign is floaters in their vision. B vitamins is also good. when a crisis is coming on always rest, plenty water, take painkiller, rub with heating, once it starts it can only get worse with constant mobility, they key is to catch it, threat it before it gets worse. God bless, remember your baby is normal except for this and make him or her healthy in spirit. 

Name: Sharolyn | Date: Jun 20th, 2009 2:05 AM
My daughter was diagnosed 15yrs ago. I like you was very scared and didn't know what to expect. My advise to you is to love her with everything you have. Treat her as normal as possible. I not going to lie and say its all peaches and cream, you and your daughter have a long road ahead of you. With prayer and a great support system you both will make it. 

Name: Maria | Date: Feb 2nd, 2010 4:31 PM
I felt too concerned about that baby of yours so i can't help but send you this message of hope. This is a disease that is common in Africa and some natives there has thier ways of dealing with the disease to preserve thier tribe before the white men brought thier western culture and education to africa so the knowledge to the cure to some diseases started fading out and the people with these special cure are now a rare breed, but recently we located someone in africa who cured my nephew and on we've taken five other children there and they've all been cured so your child too can be cured 

Name: Missy | Date: Feb 20th, 2010 3:08 PM
My brother is 43 he has sickle cell disease and he snorts heroin regularly-we are afraid that he will die soon. he was so addicted to pain meds and when he couldnt get them as needed he tried heroin and now he is an addict 

Name: Larry | Date: Mar 11th, 2010 1:42 PM
TRUE OR FALSE Maria's article of Feb 2nd 2010 caught my attention and is it really true or false that a particular african tribe has a cure made from roots of some trees. Well the answer is yes, as i am a living witness. It is a fact that this is a disease that is very common among africans, so it shouldn't be supprising that a sect among them has a cure. U can contact [email protected] 

Name: haleema | Date: Mar 16th, 2010 12:18 AM
i have sickel cell disease S.C i be in pain all the time it's hurts alot sometimes i feel like iam going to pass out i ve always pray that this pain will go away and i need advice from somebody who have the same thing that I have I take meds but when i run out I be in soooooooo much pain please give me advice on what to do? 

Name: Micheal Park | Date: Apr 11th, 2010 4:08 PM
I am very happy to tell you folks out there that i am one of the living witness to the fact that there's a cure to this disease in africa. It was by chance that i discovered this yet to be popular forum. I was actually looking for how to relief my nephews frequent chest pains when i discovered the email add posted by Larry on this forum, so i made a contact and we went to W/Africa and behold my nephew is now cured as diagonised and no more chest pain. Pls i want others to be free from pains. Larry, on behalf of my whole family we thank you for posting the contact to this site, thanks in a million. 

Name: Monica | Date: Apr 18th, 2010 8:06 AM
It is true West Africa cure sickle cell?
I am from Africa and alot of people suffere with sickle cell. I would like to know because i have a son sick cell. 

Name: malika | Date: Apr 22nd, 2010 12:10 PM
Yes. I have a 16mos old with it. She is currently in the hospital now because of high fevers. However she is not having any pain. She has been in here 3 days now. They are giving her iv fluids and tylenol and antibiotics. She takes penicillin 2x a day. She has to do this for the first five years of her life. 

Name: Generic for Hydrea | Date: May 10th, 2010 10:29 AM
Generic for Hydrea (Hydroxyurea) is used for treating sickle cell anemia in elders, but I am not what is used for treating babies. You can find more information on it at International Drug Mart 

Name: Annie | Date: Jul 15th, 2010 7:04 PM
Hello my name is Annie and Iam 20 yr old college student dealing wih sickle cell anemia. I am a rare case , at birth I was diagnosed with having SC but later diagnosed with sickle cell beta thalssemia . So I am not exactly sure what type of sickle cell I have. I am blessed because I havent had as many comlications compared to others dealing with this disease. and your child too can be the same way. Jasmine I want you to stay strong and keep faith in a higher being. I have had many crisis in my life time but was never hospitalized until the age of 16 . My parents learned as they went with me and did an awesome job, they taught me how to manage my pain at an early age, and you should too with your child.. Patience is the key , and never blame yourself, for god doesnt make any mistakes. Your child has a promising life ahead, so dont feel sorry for her or him. I always tell people that Iam blessed with a cruse, because sickle cell has me the person I am today. It has made me stronger, patient ,more understanding, and more determined. Be there for your child and never sugar coat the reality.. and your child will be just fine..GOD BLESS 

Name: LASHAWNA | Date: Jul 24th, 2010 2:39 AM
My daugther has sickle cell diease she is 4 months now and its hurting me so much. I have put her in gods hands i will pray for your daugther. 

Name: smalls | Date: Jul 25th, 2010 1:49 PM
hey jasmine........... search SCD in kids and i thinks wikipedia should also say more about penicillin and all........ goodluck to u and u child will be fine 

Name: smalls | Date: Jul 25th, 2010 4:22 PM
hey jasmine!
read the link http://kidshealth.org/kid/health
_problems/blood/sickle_cell.html
 

Name: smalls | Date: Jul 25th, 2010 4:25 PM
hey jasmine!
read the link http://kidshealth.org/kid/health
_problems/blood/sickle_cell.html
 

Name: smalls | Date: Jul 25th, 2010 4:28 PM
here is another
http://www.chw.org/dis
play/PPF/DocID/21860/router.asp
 

Name: lashawna | Date: Aug 11th, 2010 2:36 AM
My daugtber has sickle cell she is 4 months old. Shes has been in the hospital because she had a bad blood infection. They said that most babies will go through pain crisis between 4 to 6 months but im not for sure. If you have someone to talk to that would be good because i heard its very overwellem and very hurtful. I wish you and your baby girl the best and i will keep you in my prayers 

Name: Takesha | Date: Aug 14th, 2010 2:52 PM
Good morning my step son& daughter has sickle cell and now the doctor'ssay my unborn has it too I just do not know what to do anymore I feel like apart of me is gone. 

Name: Eleanor | Date: Aug 21st, 2010 9:06 PM
Yes, mom...I am sorry to hear that your baby has sickle cell..I know this is new to you but my daughter was born with sickle cell at the age of 10 mos. old and has been suffering with it for 45 yrs, now. You can deal with it if you educate yourself with all the knowledge you can find on it...Get into support groups with those who already are dealing with it with their child. It takes a lot of patient and love and care to deal with it...it is time consuming and you must put your whole heart into it and love love and love what you involve yourself to do within it. Please, don't be afraid to ask the doctors questions, find a good hemologist who know the blood hemoglobin behind the knowledge of this disease. I hope I have been helpful to you and you can email me at [email protected] anytime. May the love and strength of God be with you and your child and keep us in prayer too. 

Name: Kathreon | Date: Aug 31st, 2010 7:39 PM
Hi everyone, I have a girlfriend who is 35 years of age. Has a Marketing degree. Employed. African American, 5'11" tall. Very nice young lady. She's lonely. She's needs someone to talk to, a companion really. Someone understanding, kind, sincere and wouldn't have a problem communicating with someone with sickle cell anemia. Help me to help her. 

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