| Name: captain | Date: Apr 9th, 2008 1:20 AM |
I have had CP since birth. I have been able to overcome many of the challenges that it placed on me. With much gratitude, I am now about to graduate from high school. I have also been able to accomplish my goal of becoming a pilot.
I have been told no so many times that it has inspired me to achieve great things.
I want to share my story with others with cp as a way to prove that we are over comers. I am also looking for other stories of success, achievements or parents words of wisdom. My goal is to put these into a book of short stories to serve as an inspiration to others. Please respond, I can be emailed at [email protected] ↑ |
| Name: Christy | Date: Apr 25th, 2008 9:24 PM |
| Hi Lisa i am sorry to hear about your son. have you thought about doing stem cell treatments for him? i know they have had very good results with cp. if you have anyquestions email me. [email protected] ↑ |
| Name: guest | Date: Apr 28th, 2008 2:21 AM |
| sweetcaramelkiss- I was wondering whether you saw my post cp or not cp... i don't know if this applies to your son Anthony or not ↑ |
| Name: yasmin | Date: May 5th, 2008 2:32 PM |
hallo beth
i love you so!!
greets yasmin ↑ |
| Name: Suzy | Date: May 6th, 2008 8:03 PM |
| Lisa - I can't determine when you wrote this - how long ago it was, I mean. How are things? I am concerned. YOu can write tome at [email protected] ↑ |
| Name: Suzy | Date: May 6th, 2008 8:10 PM |
| I am looking for a teen with CP to correspond with my 13-year-old son who has CP. He has left-hemiparesis but he can ambulate without assistance and is very capable. Thanks! ↑ |
| Name: Ami | Date: May 15th, 2008 7:05 PM |
| Hello, I am a mother of a 12 month old girl with spastic quadriplegic CP. She was diagnosed 3 months ago, although I think it nwas apparent that she had it long before that. She cannot roll or sit without help. She can get stuff to her mouth if I put it in her hand but only for about 20 seconds. She tries to reach for things and sometimes is able to touch them. I guess what I want to know is will she be able to talk or do kids with spastic quadriplegia automaticallyhave trouble speaking? ↑ |
| Name: Liz | Date: Jul 17th, 2008 1:58 AM |
I just wanted to share with you all a fantastic treatment that has put my son on the road to recovery. There is a brilliant neurologist in FL who uses medications to dilate blood vessels in the brain of people with brain damage. My youngest son had a severe brain injury at birth. HIE He was spastic with very little use of his left side. He had seizures, tremors, back arching...he was not in good shape. Within 4 days of starting treatment he was bringing his left hand to his mouth and just continued to improve. He is now almost a year old...walking and doing fantastic. This is a baby who had apgars of 0 0 0 2
His doctor called him a medical miracle....the miracle was finding that doc!!! If you would like more info please e-mail me at [email protected] ↑ |
| Name: pooja | Date: Aug 5th, 2008 6:48 AM |
Hi LIZ
Pls send me the details of that Dr in Fl . as my daughter is also suffering from Cp HIE . do it as soon as possible. ↑ |
| Name: maiziemae | Date: Aug 5th, 2008 2:52 PM |
| I am in the exact same situation. I have identical twin girls that are 20 months old. One of my girls is completely normal and the other has cerebral palsy. It has really hit me hard lately. I don't know how to deal with this. Part of me wants to just run away. When I try to talk about it with other people they just tell me how lucky we are that she isn't worse. My twins were born 3 months early. The one with CP had a grade IV brain bleed. She has really not had any health problems at all. She also seems to be fine mentally. She is actually pretty sharp. It is her motor sklills that are my main concern. She can roll over and sit up a little bit on her own, but she can't crawl or walk yet. I am having trouble with the thought of her going to a special school, needing a walker, or a special stroller. What will people thing. I also have trouble with the fact that she can't play with her sister. I don't want her to hold back her sister that is perfectly normal. I love her with all my heart, but I feel like I don't know how to be happy until she is functioning like her siser. ↑ |
| Name: Jeremy | Date: Sep 18th, 2008 4:54 AM |
| My name is Jeremy and I am 19 years old. I have had cerebral palsy my hole life. I've never had anyone to talk to about CP who knows what its like to live with it each and every day for the rest of our lives. I've never had anyone who gets it. I gess thats what I'm looking for. ↑ |
| Name: mum24ineed | Date: Sep 25th, 2008 9:01 AM |
| hi my name is georgie im a mother of three children as well and know where you are coming from. I thougt the same way as you when i see my friends babys the same age doing things and my baby wasnt. My daughter is now 7 and i do everything for her. Feed carry her and do everything. I find it hard sometimes not noing what she wants and try finding it out. Im also only 24 so young as well. if ever want to chat drop me a line at [email protected]. ↑ |
| Name: redhead1 | Date: Oct 4th, 2008 6:31 AM |
Lisa
I have a daughter with CP who is just over 3 years old she still does not talk she is now learning to walk with a walker . After I had my daughter and still even now look at other kids who are younger than her and are walking around talking to there parents giving hugs and ask god why me what did I do I did everything I was supposed to do I didn't smoke, didn't drink went to all prenatal appointments. I don't have any other kids and after this one I don't know if I want to I don't think I can go thru this again. It took me a good year to accept the fact that my daughter has CP I could not even tell anyone for 6 months I did not want other people treating her differently or feeling sorry for her or me. I do not know what the future holds for her yet or me I really don't have much of a life anymore I don't have any real close friends anymore I have basically shut myself off. Mainly I just wanted to tell you you are not alone. ↑ |
| Name: my son, my best friend | Date: Oct 6th, 2008 6:34 AM |
I know you may now believe this or even understand this now. I believe I was chosen to have my Josh to teach me what pure love is.
My Josh has CP, and has had over 20 surgeries from his head to his toes, and is cognative delayed. He is now 28 yrs. old and works at a workshop. He takes a cab every day, dad cramps his style.
Our life with Josh, started by losing his twin at 4 1/2 months. I was hospitalized, knowing there would be a disability and Josh was born at almost 6 months. He weighed over 2 lbs. at birth because I has contracted a virus. He had 3 massive strokes that normally kill elderly folks. Thus CP entered the picture.
Our lives changed for the better even though it had its twists and turns. We told him from the beginning he had a special purpose in life, and figuring it out would be part of his life's journey. I admire him each and every day.
Has it been easy with other siblings? No. There were many times we were told he wouldn't survive and at the most he had 3% of survival. I said we would take the 3 % because God's foot was in the door and it was not going to close. This kept us going. To be honest his dad did have a hard time accepting a disabled child simply because he was exposed to agent orange and felt it was his fault that Josh was disabled. Just wanted to let you know we all have survived this sometimes painful ordeal. Be strong. ↑ |
| Name: monique ij | Date: Oct 7th, 2008 6:54 PM |
| i have mild MR but I think i'm real smart ↑ |
| Name: Barb | Date: Oct 14th, 2008 7:24 AM |
| The one thing I have noticed about my daughter is how strong she is and I do feel she did get this from me. When she is trying to learn something new she will do it over and over again until she can do it on her owe. She has now started walking on her own I started crying when I saw this for the first time after 2 years of therapy it was finally starting to show and the cutest part is she is so proud of herself and is laughing and smiling the whole time. These are area's that I think other parents take for granted the little things walking, talking, brushing hair, brushing teeth and even dressing themselves. I have noticed that I get so proud of her for the little things she does just because I know how hard it was her she to accomplish it. ↑ |
| Name: sylvia | Date: Nov 14th, 2008 10:36 PM |
Hi Lz, I tried to email...but it came back. Can you give me the Dr.'s namd in Fla. that helped your son. My 10 mo grandaughter has cp and we will do anything to help her. Sounds like he has done wonders for your son...This news is so inspiring...thanks, Sylvia
email sylviaellingwood@yahoo. com ↑ |
| Name: redhead1 | Date: Nov 15th, 2008 6:31 AM |
Barb
I know how you feel when your daughter took her first steps we have been in therapy for over 2 years and daughter has been using a walker for the last year and 2 months ago she starting walking on her own I started crying too. She is so determined and so proud when she figures something out she has the biggest smile and all you can do is smile back I am so pround of her and it is so rewarding to see that all of our hard work is finally payoff. ↑ |
| Name: Trish | Date: Apr 16th, 2009 8:46 PM |
| I understand how you feel but do not give up hope. I know its hard but your son can have a good life and you can too. I have cerebral palsy . The doctors told my parents I would not make it . I am now almost 40 years old with 2 children of my own. The doctors said I would never walk, go to high school much less graduate, get married, much less have children. They basically told me I would never have a normal lfe. I proved them wrong on all counts and I started out just like your son. If you would like to contact me further you can contact me through my email address [email protected] Hope to here from you ↑ |
| Name: Chris | Date: Apr 22nd, 2009 3:52 PM |
| Is it common for children with cerebral palsy to have LOTS of gas? ↑ |
| Name: Cristina | Date: Apr 29th, 2009 2:51 AM |
| I have a 20 month old girl with severe spastic quadripligic cerebral palsy, who also can not walk, roll. talk, swallow, is on oxygen and has a feeding tube 24 hours a day. She is a fighter since her birth doctors have been saying that she will not live though this and that, and she has!! I also have an active 4 and a half year old who is unsure of her sister but i am she that she loves her. ↑ |
| Name: speciallili | Date: Apr 29th, 2009 6:58 PM |
Hi Lisa,
dont worry we all feel this at some point, its all part of the grieving process, but one thing i will say is its not going to go away and you have to get strong because later on you will be fighting for education, and health treatments ect and you have to understand that these special children show you whole different way of looking at life with patience and love and yes lots of stresses but you learn so much about life and how much love you have for them.xx ↑ |
| Name: Beautiful Mom | Date: May 8th, 2009 3:44 PM |
| I am the mother of four children, ages 17, 16, 10 and 9. Two of my children have CP. This is my first time in a chat room. I know your heartache. I see your loneliness and feel your despair. Somedays will be too much and others will bring real joy. Hang in there. We're all in the same boat........ I know, I know, I know.....your saying, "You don't understand, mine was just capsized and I'm drowning!!!!!! " I have to tell you one of the best floatation devises known to mom's of C.P. is a great sense of humor. Cry when you need to, scream into your pillow if you have to and take a break if the schedule gets to be too much for you. Give yourself permission to slow down from doctor appts., therapies etc. Sometimes you just need to feel normal. It's okay. Maybe I can share one of my funny stories with you sometime. I it would be great if other mom's would share their side splitters. 'A MERRY HEART DOETH GOOD LIKE A MEDICINE.!" ↑ |
| Name: bev | Date: Jun 4th, 2009 8:11 PM |
| hi lisa first time i have visited this site i can really sympathise with you my son has cerebral palsy he is 7 now but still cant do things his sisters can and it really upsetting for me and him he the only boy out of 5 he does have lots of other problems and have found it difficult but i am determined he will live life to the full nothing going to stop him . i ave a direct payment worker something you may want to look in2 it just gives me that bit of me time . ↑ |
| Name: kylie | Date: Jun 5th, 2009 12:18 PM |
i was born 3 months early i got diagnosed with cp when i was 8 months old
my mother ended up taking me to a special centre for people with cp, they taught mum how to teach me to use my good side of my brain to help with the side that is damaged
and mum did much physiotherepy to help with my muscles. the first 5 years is the most important in helping your child with the problems of cp. i'm 25 i have done nursing and i'm married with a child. i do find things hard sometimes but what my mother did worked. try to find your nearest cerebral palsy league and ask about what you can do to assist your baby with his movement and chin up he will learn those things just will take longer then other kids ↑ |
| Name: zene | Date: Jul 23rd, 2009 5:50 PM |
| Name: zene | Date: Jul 23rd, 2009 5:51 PM |
| Name: Joy | Date: Aug 11th, 2009 7:45 PM |
| . I taught special needs kids for 25 yrs. Now that I have my own health problems and can't work I have been searching for a really good therapy. I found it! Check out Feldenkrais,the child friendly form is called Anat Baniel Method for Children. Check it out online. If you are within traveling distance to Toronto ON there will be a Free Children's Clinic on Oct. 17. There are other FCCs around. Check for someone who does the method close to you. I have seen many kids make great progress! It has certainly helped me. I would be in a wheelchair without it. In the US check Anat's site-www.anatbanielmethod.com/, in Canada check www.uptownstudio.ca ,also www.freechildrensclinic.org/ This therapy works with the person's brain. It is useful for any situation regardless of the disability. If I had been aware of this therapy when I was working with all those kids in special needs day care I'd have sent all the parents to get this treatment for their children. I am not aware of anything that is as good. ↑ |
| Name: Phoebe Blakely | Date: Aug 19th, 2009 2:28 PM |
I feel for you I really do, I have two other children too, Taylor being my youngest, also couldnt do those same things your son couldnt do. I cried many tears just like I am sure you have, Taylor had many other medical conditioins also. I was just sick, didnt know what to do or where to turn. As he got older he couldnt climb steps etc. I want you to know there is hope. the drs. told me my son would never walk, etc. if you would like to email me please feel free. my email is [email protected]. taylor now after years of hard work and therapy. he is now a different kid. Please for me go to this site and look at my son. It will give you hope and know theres people out there just like you. This story was on the TV channel news and in several newspapers. Then it went to you tube. you go to www.youtube.com and type in Taylor Blakely story. It will almost make you cry. I fought had and didnt always listen to the drs. I hope this story give you some hope and makes you feel a little better.
Sincerely,
Phoebe Blakely ↑ |
| Name: Cheryl Grasso | Date: Sep 21st, 2009 12:33 AM |
| 39 years old with 19 month old daughter with cerebral palsy. 2 other boys normal 16 years and 18 years. I know how you feel my life also feels like its falling apart. It seems easier not to go on but then I don't know who would take care of my daughter. ↑ |
| Name: chikiki | Date: Oct 9th, 2009 9:13 PM |
| Hey Lisa, my name is chikiki and I have a 7 year daughter with CP. When she was yonger she wasn't able to sit up or crawl either. She started to sit up at the age of 3 years. Now she's 7 and she's has a worker she wears afo's and she also have a wheel chair. To me it seems like the older she gets the worse it gets for me all because I don't have transportation for or wheel chair. And it's hard to find people or charities to help someone like me. I am a 30 year old mother doing the best I can for my little girl with the resorces have. I just know somewhere in our future thing have got to get better. If not will still praise GOD and live my life how I am know. Take care. MY email address in [email protected] ↑ |
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