| Name: shane | Date: Mar 15th, 2011 7:52 AM |
I'm 48 yrs old and I have Mild CP that effects my left leg and turns my feet inwards, I also have some learning difficulties.Like most of you I was teased at school and told that because of my CP i couldn't possibly do things that 'Normal' people do.
Well you can we just do it differently. I have run half marathons and climbed mountains even though it took me longer than some to do it. I have even studied at Oxford !
Don't give into the bullying, I know its painful but those who tease us are the ones with the so called disability. Be proud that you have come this far, be proud of your achievements however small and don't compare it to what others may achieve, you are specail. ↑ |
| Name: haley | Date: Mar 19th, 2011 11:35 PM |
| hi i have just found out my bays step brothe has cerebral palsy can any1 tell me how i wld find out if my son has got it? x ↑ |
| Name: clare | Date: Mar 22nd, 2011 4:42 AM |
| my son has mid cerebral palsy and his is not noticable either. i have a lot of trouble with his mood and i find it very hard to deal with as my partner does not understand about it. my son is going on 13 ↑ |
| Name: twinkle | Date: Mar 25th, 2011 1:19 PM |
hi, i am 18, i am going university to do law and have cerebral palsy.
i feel it can be really tough emotionally and just to let you know we are lots like that. with c.p......... soon she will figure out a dream, want her own life make the best of it....... in all the heartache be there for her,please! it helps alot. ↑ |
| Name: tara | Date: Apr 19th, 2011 11:18 PM |
| I have cearebral palsy and i cope with it very will i did today i was good all day . Tara ↑ |
| Name: angela | Date: Apr 25th, 2011 11:47 PM |
| is there anyone in the world that can pay for the leg braces my daughter an i need.22,000.00 for both of us.someone could send it to dynamicbracing.net or call 1-866-999-9255.and say this is for the mother and daughter .angela gibson an samantha gibson.they can call we will go to ohio and get fitted i dont wont money we need the braces.thank you [email protected] ↑ |
| Name: candid | Date: Apr 29th, 2011 1:18 PM |
| its tough to prove one self .. bet just face an be strng,, ↑ |
| Name: canidid | Date: May 2nd, 2011 2:25 PM |
| can it look like walking on one leg balance? pls .reply. ↑ |
| Name: sarah | Date: May 9th, 2011 3:15 PM |
Hi I am 21 and have CP i also got bullied at school but have recently joined in with events held by this chairty around the UK known as CP Sport you should visit their website it's for all people any age.
I made loads of new friends and had a great day maybe you sholud check it out! ↑ |
| Name: Chris Moore | Date: May 11th, 2011 11:30 PM |
Im a sophmore in high school.
I am on the wrestling team as well.
Mild CP affects me alot.
I want to be a inspirational speaker ↑ |
| Name: Steph | Date: Jun 11th, 2011 3:37 PM |
| hi we jstu foudn out our sin has mild cp 21 months left foot turn out will be fitted for a brace I am crushed cas I have it atlest his is not as bad ↑ |
| Name: candid | Date: Jun 13th, 2011 7:27 PM |
| ppl lemme no if there is brain abnormalities always involved in mild cerebral plasy,, pls. reply ↑ |
| Name: candid | Date: Jun 19th, 2011 4:59 AM |
| a doctor had told i sufer from somatoform disorder.. how stupid it is... just dont listen to them and keep going with pysiotherapy and and ur exercise on day it will be alright..) ↑ |
| Name: lizzy. | Date: Jul 1st, 2011 6:06 PM |
hello, my name is lizzy and I am 16 years old. I have mild CP on my left side. I have a club foot and my left side is weaker, less coordinated, sometimes my arm and hand has very small spastic movements and I have less feeling and control of my left hand and fingers., I knew I wasn't "normal" but didn't know exactly what it was until last October. high school students ARE more accepting of this condition, but some can also be really harsh about it, not knowing what it is. she should let them know what she has, that's what I do; because I have some friends who like to joke a bit too much, so she needs to let them know when it's serious. I'm a senior in September, high school has been great. so don't worry, she'll be okay :)
for all of you reading this: does anybody know what job I can possibly get? I mean, a summer job for next year, have any of you with CP worked at this age? what difficulties did you have? thank you so much! ↑ |
| Name: lizzy | Date: Jul 1st, 2011 6:07 PM |
| and I also walk with a slight limp. had braces, casts and Botox as a kid. OP and PT upto a few months ago. ↑ |
| Name: EMMYSMOM | Date: Jul 3rd, 2011 4:01 AM |
| MY SON IS 6 YEARS OLD AND WILL BE MAINSTREAMED INTO A "REGULAR" CLASSROOM THIS UPCOMING SCHOOL YEAR. HE SPENT 2 YEARS IN AN SECE CLASS WITH 5 OTHER KIDS AND 2 TEACHERS. WHEN I READ YOUR POST I WAS GLAD AND SORRY THAT SOMEONE ELSE HAS THE SAME PROBLEMS I DO. EMERSON IS SO SMART BUT DOES REQUIRE EXTRA TIME AND ATTENTION AND I AM REALLY WORRIED BUT HOPEFUL FOR WHAT THIS SCHOOL YEAR WILL BRING OUR WAY. ↑ |
| Name: Lilly | Date: Jul 7th, 2011 9:16 PM |
| I am 13years i have cp but i was told that i would never be able to walk or talk when i was a born but i can walk and talk, i shake all the time, im really weak, i have poor breathing but people dont reconize thar i have cp unless some one points it out i still do all kinds of sports and do 13 hours of dancing a week, i never have got teased at school but only 2 people know i mit not be the best when it comes to school work but ok at it ↑ |
| Name: nikki | Date: Jul 13th, 2011 9:53 PM |
| i can relate to you my daughter is thirteen and has the same problem ↑ |
| Name: sukanya | Date: Jul 20th, 2011 4:36 PM |
| I am from India and am the mother of twins a girl and a boy of 7 years old.My son had delayed milestones and now he has writing problems,can not run fast like other children,has a very soft skin ,lean body.it was told by neurologist that he has mild celebral palsy but not to worry.Now the problem is we wanted to know whether he would study like any normal kid ↑ |
| Name: candid | Date: Jul 25th, 2011 2:47 PM |
hi der ..
sukanya pls... reply this how did dr. tell u r child may b suffering from mild cp ? how did he diagnose... i myself is an indian and very well study my M Sc here ... pls help ↑ |
| Name: Kashas mom | Date: Aug 21st, 2011 12:57 PM |
| I also have a 4 year old with very mild cp although it effects her left side. She also has mild muscle weakness, runs slower & cannot do alot of things as well as others. She has just started preschool & I worry that she will experience the same issues your child has. You & I know how blessed we are to be dealing with mild cp as compared to the children that we see at dr visits pushing walkers or worse yet setting in wheelchairs, but to our kids it is a very real challenge, they are beautiful, smart,healthy(looking) kids so why can't they run, jump, ect like everyone else? I have to believe when the time comes & my baby girl comes home crying that I will have the strength to not get angry at the other children & that I will set her down,hold her in my arms & remind her of how special she is to this world, how everyone can do one thing really well while others may struggle & encourage her to do an activity she can excell at to gain self confidence. I wish you the best & I hope this helps :) ↑ |
| Name: hujyjyuhyyyyyyyyyyyyyyy | Date: Sep 20th, 2011 9:37 PM |
| Name: CPFamilyNetwork | Date: Sep 23rd, 2011 9:47 PM |
Raising a family with multiple children today can be challenging. Add to the mix a child with special needs, and parenting takes on a more daunting role. Coping with the many physical, emotional and social needs of the family unit demands a team effort. If you're interested in reading more about raising a family with a disabled child, visit this link: http://www.cpfamilynetwork.org/cerebral-palsy-art
icles/raising-a-family-with-a-special-needs-child
for tips. ↑ |
| Name: Nikki | Date: Oct 3rd, 2011 5:26 AM |
| I am 37 years old and just found out I have Ataxic Cerebral Palsy two years ago. My Doctor calls in Apraxia. I shake a little, worse when I pick up things. I have trouble with cordination, my hearing is somewhat bad and I had to wear braces when I was a kid. Still my parents didn;t test me. I was told have a learning disability. However, when I had trouble cutting a pineapple and learning things to slow I sensed that wasn't quite right. My niece has Cerebral Palsy. I started doing research. Then I got tested. The first results were normal. But I got a second opinion and sure enough I was dignosed with a mild case of CP. The problem is no one believes it or cares in my family and at my Job. They think I am normal and when they teach me things I don't quite get it so I find different ways of doing things. Yet, I get blamed for being a clutz or made to feel bad cutting my meat. Chopping, vegetables and fruit. I am in between the normal and the disabled. It makes me be creative and see things in different way then most people sometimes and I can solve problems faster then people who are adverage. I can do some things that a person without CP can't do too! ↑ |
| Name: Jessica Thompson | Date: Oct 9th, 2011 6:43 AM |
| I have a maild case of cerebral palsy with the spastic in my arms and leg. And hand's. But i do have a 3 dergee black belt in kajukembo. It doe's it take lomg for my legs to spastic out afther working out for a little biit. I have a very heard time with school work. But I can play the paino and haave a 3 dergee black belt. It wears me out that i cant do the school work like i need to. And it upset me. I was told by a DR that it takes 10 times more work then people that dont have it . Is that trust? ↑ |
| Name: Alex | Date: Nov 4th, 2011 2:55 AM |
| I'm 16 now and i have mild cp, and nobody has helped us out and i always shake.,. i don't know why ! been to many doctors and had lots of tests done and MRI's. ↑ |
| Name: Shannon m | Date: Nov 10th, 2011 3:55 AM |
| i have the same condtiton as your daughter but am 17 an born with it..thing wil get better and i tell no one till they ask me some time i wake up cry ..for what ill always miss out on but my 2 older and one younger get to do things i cant but i will never hol them back they try to included me but they dont understand some times...i work with kids the same as me 4 my volunteer work and it put the biggest smile on my face ↑ |
| Name: adriana | Date: Nov 14th, 2011 11:04 PM |
| i have mild cp im 17years old n i date lot no one seems to notice but people always say im wired behind my back cuz they dont know ill have friends n quikly lose them i wouldnt know why i wanna be off on my own one day my mom treats me like im 7 somethimes in school i have moments of dumbness forget thinngs n ppl laugh i wish to hear other teens stories n maybe have a real friend who has cp please contact me at [email protected] ↑ |
| Name: JAE | Date: Nov 17th, 2011 3:07 AM |
| This sounds like our story. My daughter is turning 14. She has mild/moderate CP, weakness on her left side. I had her in therapy for years. She has had botox injections, braces, tendon release surgery, the works. She is able to walk, run, ride a bike. Her biggest problem is her speech. People think she is deaf sometimes when they hear her speak. The kids at school, however, tease her badly. She also has a learning issue from the part of her brain that is affected, so being in the LD class doesn't help her situation with the other kids. She does have a few friends, but she comes home more often lately teary-eyed and depressed because she doesn't fit in. She makes excuses and dilly-dallies in the mornings so she doesn't have to deal with the kids on the bus---I end up having to drive her. My heart breaks for her, but I don't know what else to do to help her. She just says I don't understand. Have addressed some of this with the counselor, but not sure how much help this has been. My next step is probably a therapist, but with my insurance plan changing in January, I'm not sure how I can afford it...... I'm worried she may find alternative ways to cope that will make things even worse..... ↑ |
| Name: Ninerrock1 | Date: Jan 2nd, 2012 3:09 AM |
| I had the same experence myself. The one thing I wish I did when I was her age is to go to school activitied like the other kids. Mybe start with one with her close freind and then start doing more than one. ↑ |
| Name: Liz Heaton | Date: Jan 8th, 2012 11:01 AM |
| Hello. I read your post. I can't remember if I wrote to you before, but I wanted to let you know that my 18 year old daughter was recently diagnosed last year at 17. She has Mild Spastic CP affecting both legs and slightly in her hands. We were told since the age of 10 that it was a foot condition. This sadly wasted years that could of been used for physical therapy. It has been a struggle and even some family members can not believe that she has this or that this is what it is. I would love to talk more if you want. My e-mail is [email protected]. Best of luck to her and your family. ↑ |
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