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Name: Melissa
[ Original Post ]
Hoping there are more of you out here that can relate some of the struggles.Would like to hear from you.Thanks
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Name: Tiara | Date: Dec 3rd, 2009 1:18 AM
Is it possible you'd be available for a online survey/interview?
I'm using it for class and it would be really really helpful!
Please let me know 

Name: Mary Tremblay | Date: Feb 2nd, 2010 11:46 PM
I have a grandson with fragile x syndrome. He is 10 years old. He has never spoke, he is not potty trained. He has been in special school for approximately 5-6 years. My daughter in law stays home with him during the day, but it is getting to the point where he is to much for her to handle. He is very very strong. We have been bitten, slugged. you name it. He has been on 5 different medications, but nothing seems to calm him down. His bed room has pads on the walls and has a bed on the floor. He is under doctors care, but he is getting out of control to the point where my son may have to quit work to take care of him. Frankly the older he gets the stronger he get. We dont know where to turn. Do you have any suggestions.

THANKS 

Name: yolanda reda | Date: Aug 16th, 2010 4:40 PM
I have 2 sons with fragile x and I know what you mean Zechariah is 9 yrs and Justin is 8 yrs. My 2 sons never talked and they both are in pull ups.the meds are not working at all. My son Zech is so strong I can hardly handle him sometimes I feel like I'm all alone. I know that there are other people in the world with kids like this. I just need someone to talk to that is going through the samething I'm going through. I just found out last year that I'm a carrier of fragile.I have to drive way to akron ohio just to take my 2 sons to the doctor.That like 1 hour away from where I live. 

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