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Name: lucinda
[ Original Post ]
My oldest son is 6 years old and is name is Brendin. He was born with ( CMV ) Cytomegalovirus virus. It effected his vision, hearing, kidneys. Brendin had 3 surgeries, 2 for central lines to give meds and 1 for his kidneys. He has a mild case of CP and ADHD.. His left ear is profoundly deaf and his right ear is mild hearing loss. It also effects his learning, he is a little behind.

My youngest son is 6 months old and his name is Benjermin. He was born with DiGeorge Syndrome. We discovered at 2 months old he was missing the pulmonary valve and a huge murmur in his heart. He had to get rushed to Pittsburgh and have heart surgery ASAP. During the surgery they realized he is missing the thymus glad as well, no immune system. He came home on oxygen for the next 2 months, constantly gets measured- Head, neck, fingers, ears, chest, face, toes, feet, penis, birth makes, height, because it can effect everything. It also effect his learning.


im not on here a whole lot because i really dont know nohing about how this works but my myspace is,



http://www.myspac
e.com/cindalong



reall
y
wish i would have people to talk to who understands my life sytle and just how stressful it can be, knowing im not alone.
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Name: shanna | Date: Sep 19th, 2014 9:06 PM
I have a 13yr old daughter with cmv and she's deaf in one ear and hard of hearing in the other she has a cochlear implant and I'm in desperate need of help in regards to my daughter continuing her sign language at school even tho she can verbally communicate the school Feel's she no longer need sign language 

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