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Name: parksmomof4
[ Original Post ]
I spoke with my 10 yr. old sons learning support teacher about meds. and IEP. She brought up that he is starting to do things/"tics" repeatedly that he has not done before. Will count on his fingers over & over, rubs finger tips together, plays with feet (at home), pushes his glasses constantly into his one eye (to adjust them he tells me). He's been on Concerta for about a year and a half and he is now up to 54 mg. I feel like he is regressing instead of progressing and I am so afraid of middle school next year ( I know it's in the future) but he has such a hard time adapting to change and new routines. I've rambled about alot! lol If anyone has anything to add~I'd greatly appreciate it
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Name: BrendansMom | Date: Sep 29th, 2006 11:24 PM
My son has had some "tics" appear recently as well. He has been on meds for about 6 months. Ritalin. He picks his nails/cuticles constantly, picks his nose (resulting in nose bleeds), itchs his body constantly. I wish I had some good info to supply but don't at this point. I just want to say - I FEEL YOUR PAIN SISTA!! I am going to talk to his doctor. Have you talked to your sons doctor? Maybe he should be on a different med? All the best. Anytime you want to chat - [email protected] 

Name: parksmomof4 | Date: Sep 30th, 2006 11:27 AM
BrendansMom~thanks for replying! I am calling his Dr. Mon. to set up an appt. We'll see what happens!!! My e-mail is [email protected]
Good luck w/ your support group! 

Name: fancy | Date: Sep 30th, 2006 8:36 PM
Hi my son is 7 and hes on concerta and he takes two 28 MG in the morning and thet teachers my guess is with the IEP is for any other learning problems thats what they did to my seven year old my son dont do any tics as I know of he has always pick his nails bite them I always thought it might have been nerves but hang in there and talk to his doctor my sons doctor is good and I am glad she has help hopefully you can get the help also I hope everything works out for you if you want to chat more my email is [email protected] 

Name: DeeDee | Date: Nov 11th, 2006 4:37 AM
It is tics and you need to tell your doctor. when my son was younger his "tic" was biting his lower lip until it was swollen. You need to try a new medication. the tics come in all kinds. 

Name: jamberrt | Date: Nov 11th, 2006 3:46 PM
My daughter was on 36 mg and within a week of going to 54 mg she developed a throat-clearing cough. We went back to 36 and it disappeared. I upped her risperdol and the behavior is better. 

Name: billy22 | Date: Nov 11th, 2006 6:50 PM
My son was on Concerta for a couple of months and i noticed his tic worsened. His tics, we were told, Tourettes Syndrome! Imagine my surprise when I was told that. But since diagnosed I have noticed a lot of kids at his school and even the neighbor boy has tics.......I am wondering if it is more ADD related than Tourettes. He was also diagnosed with OCD...he too picked at his fingers a lot and clears his throat alot....Since being off meds for 5 months, he has done better. So I am starting to wonder about getting a second opinion. 

Name: jamberrt | Date: Nov 12th, 2006 11:44 PM
Aren't all these "D"'s under an umbrella? We've been told that my daughter's ADHD could include OCD / ODD / Tourette's or symptoms like them? Her tic is a throat-clearing cough...drives ME nuts so I can't imagine the school...It's improved since we lowered the Concerta dose and we're going to try Strattera next. 

Name: riggerswife | Date: Nov 15th, 2006 6:31 AM
From what a few of you are describing sounds like tourette syndrom. My nephew (12) has been diagnosed ADD and once he started Ritalin the tics began. He now has to take a medication at bedtime only to relax his body. This relaxation causes bedwetting. Where does it end. Tourettes often goes hand in hand with disorders. Tourettes affects both boys and girls however tics are definalty more prominent in boys, girls it seems to stay hidden easier. For most children with tourettes they will not even know they are doing annoying things, such as throat clearing. When questioned "why are you making that noise?" the usual response is "what noise?". Of course we all know disorders seems to be hereditary as well as the tourettes I have a 5 yr old whom we are in the works of having diagnosed with ADHD. Like his cousin I would not be least bit surprised if the tourettes doesn't surface. I guess time will tell 

Name: lluckgirl07 | Date: Nov 17th, 2006 2:48 AM
I just wanted to let everyone out there know how releived I am to know I am not alone. My 9 year old was on Concerta for about 2 years when he developed severe tics. He was doing this squeaking noise about every ten seconds and he would also develop different tics every week or two. It seemed to be a constant cycle where he had a few differen tics at a time. His doctor switched him to a non-stimulant ADHD medication and most of the tics have subsided, but not all. He still does the squeaking noise. He will try to speak a sentence and he has to stop to do the squeak. My heart breaks everytime he does it because I know he can't help it and he doesn't want to be this way. In doing some internet research, I have found that supposively the ADHD drugs do not cause the tics, but bring them out because of an underlying "tic disorder". Although, now the medication he is on is making him very lethargic for about 2 hours after he takes it. He has been falling asleep in school. Which of course doesn't help him learn. All these medications are such a rollercoaster ride for the child and the parents. I think I'm more exhausted than he is half of the time. It's nice to find this chat forum to reassure that I'm not alone in this fight, so I can breath a little easier each day. 

Name: teresa | Date: Nov 17th, 2006 1:33 PM
he lluckgirl07, what kind of med is your child taking. From your description, it sounds like strattera. this med does make you sleepy about 2 hrs after taking it until you get used to it. I give my daughter hers pill at night so we don't have this problem. My doctor also suggested taking in pm because of this. 

Name: Lucky | Date: Nov 19th, 2006 1:17 PM
Hi to you. My daughter had been on concerta for about 6 months. Although she didnt suffer with tics, we found her movements were quite jerky. She als started pulling her hair out which obvioulsy was a real concern. Since then we have changed her medication and she is now taking Equasym XL. This we have found is so much better for her and thankfully the hair pulling has now stopped 

Name: teresa | Date: Nov 20th, 2006 1:37 PM
gnc30, do you have a child diagnosed with adhd? after reading your info, i think not. If you did, you wouldn't be saying the things you did. My daughter was extensively tested for adhd and she doesn't have a behavioral problem, she has an inattentive problem and unless you have been in our shoes, you should keep your opinions to yourself. 

Name: billy22 | Date: Nov 21st, 2006 12:30 AM
gcn30~ WOW! SOme of the things you are saying are pretty harsh, don't you think? You obviously DO NOT have an ADD or ADHD child or a child with Tourettes or an autistic child, or any kind of child with a "behavior problem"! I think you should be a little more sensitive to some of us struggling parents whom have had our children and our expeiences for a lot of years. Until you have struggled and lived in our shoes, I would think twice about spouting off your so called medical opinions. They make you sound very insensative. This is a SUPPORT GROUP not a "Hears What I think, Even Though You didn't Ask me." 

Name: riggerswife | Date: Nov 21st, 2006 1:51 AM
GCN 30
Why would you bother posting a message on here, couldn't you find a chat room better suited for your type??? I pray to God you never have a child with any of these disorders,or any children for that matter your lack of understanding and your lack of compassion won't take you to far in parenthood!!!! 

Name: Lucky | Date: Nov 21st, 2006 11:54 AM
gcn30. I sympathise with your ignorance!!! We all have a feeling of awe in regards to matters which we dont understand. As your feelings on ADHD and other related conditions are so strong and negative, I and probably other parents would like to invite you to spend some time with a child who has ADHD as you clearly do not reside with anyone who has this or any other similiar condition.
The frustration and unhappiness alone is something very hard to bear on top of the individual behaviour of each child.
This site has been set up in order for us, as parents to be able to meet new people and to be able to share with each other our experiences wether they be good or bad.
Your comments clearly are not welcome on this site as you have not offered any support and encouragement what so ever. All you have achieved to do is upset many mums who so obviously feel quiet down anyway (myself included).
Maybe your comments would be more suited to a site that offers support and understanding to ignorant and uneducated individuals. 

Name: momOFthree | Date: Nov 21st, 2006 3:46 PM
I overhead my friends talking the other day, saying that kids do not have ADHD, they just watch too much TV and eat too much sugar. There is so much ignorance out there! I told this to my husband, and he went up to them and said "Alot of people think that ADHD is from too much sugar and TV, but in fact, it is a problem in their brain, etc." It is up to us to educate these people. But, doesn't it just make you doubt yourself as a mother when you hear these things? I keep telling myself to be strong, be strong. You are the mother, you know better. 

Name: natasha | Date: Dec 6th, 2006 3:37 PM
I just wanted to say that my son has adhd as well as other issues and he just started having tics a few months ago.He was not on any medication.If he had been I would have thought it was the medication.He is now on risperdal and the tics have almost stopped. 

Name: katiegbg | Date: Dec 6th, 2006 8:15 PM
When my son was young and initially diagnosed with add he went through episodes of tics - he had them off and on - even before we ever tried meds - i did some reading and found that lots of kids with add have tics - sometimes they come and go, sometimes they get worse with meds but sometimes they get better with meds - talk to your dr. there are meds - like clonodine ( my son took for a while) that can help - the bigger issue seems to be that your sons meds are not helping as much as they could - ask your sons teacher to write a note for the dr. with her concerns. I just finished reading a great book about add from Translationspress.com called "Pay Attetnion" it was really an easy book to read and gave me some new ideas for my son. good luck 

Name: [email protected] | Date: Dec 7th, 2006 4:13 AM
i am a mother of 5 kids ,23,21,4.3.and2 two olders are married and three littles ones at home,the 4 year old is adhd and the 3 year old is autsim, and i am about to lose my mind.but i have god to lead me through it.i really dont know what to do any more 

Name: parksmomof4 | Date: Dec 7th, 2006 12:38 PM
Thanks to all who have replied...we have since increased his dosage of concerta, but the "great doc" I thought we had doesn't seem so great anymore so I'm looking for another. Some "tics have gone, others appeared, but we are dealing with it.
As to gnc30 ( and I hope you do read this) My son was not dx until he was 8 adn those first 8 yrs. were so hard on all of us, but especially for him. He is an A student but couldn't stay focused on the teacher or the lesson (he was tested as retarded...why? because there was a fly in the room).Precious young children?!? do you have any?? We have 4 blessings from God that we wouldn't do anything to harm them. Have you ever dealt with a 10 yr. old who acts like a 4-5 yr. old in social situations? who doesn't understand that he has no friends because of his inappropriate child like behaviors? who sees his 8 yr. old brother being invited to birthday parties and sleepovers and he's at home?? who is quite content on playing with toddlers but can tell you everything about insects, science and bugs I've never even heard of??Since you like to use your "big" words which you obviously don't have a clue about let me put ADD/ADHD in to a more basic form for you to understand....Imagine you had a movie that you wanted to sit down and watch, but you missed most of it because you saw the cars outside or the ticking of a clock or the frig kicked on (and this is just for starters), it's like you want to see it but there is a switch in your head that you can't turn on and that's the one to pay attention! If you had a clue to any of this your reply would have been much different. And to testing have you heard of a man named Dr. Lawson??? He appears on Dr. Phil often, well guess what there is dx testing that can be done, that does show a difference in brain patterns between normal sugar hopped children and ones who SUFFER with ADD/ADHD. I would suggest, as others, that unless you have something positive to enlighten us with your postings are not welcome here. 

Name: taybry | Date: Dec 7th, 2006 12:48 PM
parksmomof4, THANK YOU, It really is hard to describe sometimes to people that don't want to understand. My daughter is 9 but her 7 year old brother is more mature and has more friends than she does, which counting now is 1, and she is the only one who dares to have sleep overs, and even then I have to pull my daughte aside and explain right behaviour. It absolutly kills my heart that she has such a hard time having and maintaining friends, when like you say, her brother has kids over all the time and he is at other kids houses. Does it ever get better as they get older, will she ever just grow out of some of the things that keep her from being the last kid picked for the team syndrome. I work at their school and everyday I see it and it breaks my heart. So I know exactly what you are saying and yes I agree , to those who are just curious about this forum, please don't judge until you have walked a mile in our shoes, becasue you can't possibly understand. 

Name: parksmomof4 | Date: Dec 7th, 2006 1:28 PM
Taybry ~ Good morning! I keep thinking that one day something is just going to "click" in him. We talk constantly about appropriate and inappropriate behavior and I'm sure you know the "yeah I get it" but it doesn't stick! And we also have the secret bedwetting issue,which makes things even more difficult! Have a great day! Prayers for all! 

Name: parksmomof4 | Date: Dec 7th, 2006 8:39 PM
As I am watching Dr. Phil I would like to correct myself, I got the Dr.'s name wrong...it is Dr. Frank Lawless. 

Name: ccanul | Date: Dec 17th, 2006 5:14 AM
My son is 7 years old and was on Concerta for 2 months. He started to act funny into the 2nd month. He acted like someone had just gave him a 12 pack of pop, and a lot of candy. I had to see a diffrent doctor to get his meds changed, because his original doctor was gone. What realy made me mad is that his origanal doctor didn't tell me that this was a form of ritalin. I told him that I never wanted him on that or any form of it. The new doctor told me that it was not a drug that should be used on kids, and that he was on way to high of a dosage. 

Name: James | Date: Jan 24th, 2007 11:22 PM
Im 15 i take concerta, i jsut typed a whole page but i hit the back button and now its goen so here teh short version.
I take 54 milligrams, I get facial ticks, I also squeeze my eyes
I do well in school, im in 2 college level courses, but when im off my meds, I get in trouble more for talking.
About the regressing thing, as I grew i needed more, but then again maybe concerta isnt teh right thing for your son, the big sign will come, in/after puberty because alot of things change. Once I went through puberty though I still use the medication to help me concentrate, I can completely control myself, and can concentrate off of it, its jsut harder. I used to take it 24/7 but now that im older and more mature, I really only need it for homework and some days in school. The ticks however didnt go away. Also new routines in middle school may be jsut what he needs, and could actually help alot. My biggest challenge is doing homework because, there are so many other things i can do in my room, expecially on the internet, so i would definatly stay ontop of homework. Concerta isn that bad, its has helped me and as you get older you get more control over yourself and the medicine. The tics could also be OCD but probably not. You might want to try other medicines, Im not really sure, im only 15 and not a mother I just thought it woul be useful jsut to tell you some of the things I have noted or felt about concerta and ADHD meds. Hope it helped, anyway now i gotta go study for my AP physics and AP Enviromental tests, which I was doing before my Attention was Disorder was Deficited, hehehe. Anyway goodluck, and dont take all teh fun out of him by drugging him up. 

Name: matsmom | Date: Jan 26th, 2007 3:23 AM
My son had the same problem with Concerta. I had to take him off the meds for the tics to stop. There were so bad that he actually hurt himself. My suggestion would be to talk to the doctor to see if they can switch him to something else. I have lived with tic problems for a long time. I just started my 10 year old on Straterra and finally no tics! 

Name: donna28 | Date: Jan 26th, 2007 8:38 PM
Hi my son is 10, he has adhd and tourette's I know that some of these medication childern with tourettes shouldn't be on but like me I had to wait to see if my son had tourettes. I had my son off of medication for 2yrs and he stil had his tics. my son would pick at his finger until they would bleed I had to hide nail clippers because he used them, my son has a thing with his ears, my son has a lot of tics that come and go. but I do know that a child has to have a voical tic. The hardest thing to do is to try and not get them to stop. and to have the teacher's understand that this is a tic that is uncontrolable. 

Name: pippy | Date: Feb 24th, 2007 9:59 PM
my son who is 10 year old and has adhd have been on medication for a year i;ve notice he pulls faces he sits there and pulls faces and he don't notice he doing them himself and i just tell him you pulling those faces again speak to your son doctor that what i did i just got to watch they dont get worst 

Name: niterider129 | Date: Jul 11th, 2007 3:48 AM
I am amazed to find that this seems to be more usual than unusal. It took me from the time my daughter was in grade 1 until the summer she was going into grade 4 before getting to the bottom of her problems. I had to go to a private child pshychologist because the public system was getting me nowhere. She was diagnosed with ADHD, dyslexia and anxiety. We got her started on concerta and it was an amazing improvement, her teacher even called me to tell me Wow this is a completely different child. I was so thrilled with the results, but by the end of her school year i was noticing that her behaviour was starting to creep back and i also received a phone call from her teacher stating that she wasn't focusing anymore. It was a couple months before that, that she started with this weird cough. She had no other symptoms so i just let it go for awhile, then it started driving everyone including her crazy. So my family doctor gave her a puffer to try, nothing. I went to our pediatrician and the more i was telling him she also picks at her scalp constantly, makes a face (we call it the mad bunny face) and uses both hands to push her hair from her face. The pediatrician told me he thinks they are "tics'. He then told me kids with ADHD can sometimes have them. Now reading these stories it sounds more like it is the concerta that causes these. We have just started with the strattera and i will have to keep ya posted on that. My email is [email protected] and am also on msn if anyone interested in chatting.

Name: parksmomof4 | Date: Jul 25th, 2007 12:55 PM
niterider ~ PLEASE let me know how the new med. is working!! My son also does the hair swiping thing! Small world! :) My email is [email protected] 

Name: mar22 | Date: Jul 28th, 2007 4:08 AM
gcn30, what do you do copy and paste the same message after a period of time? this is the exact message of a few months ago and quite frankly getting old. Obviously you havent done your research and only acting on assumptions. sounds to me like your a pot stirrer and love the reactions of people who may respond to your message. I would like to know why you feel this way? Do you have a personal experience that we should no about? where did you do your research? i want the facts and proof of what you are saying is true as you are saying so?so back your self up with the facts ill be waiting. 

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