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Name: ZadesMommi
[ Original Post ]
My son Zade is 18 months old and his Dr. has advised us that she would like to have him tested for autism and I am so sad, and angry and just lost, I dont know how to cope with this.. My cousin's son has autism and I see how much she goes through and my heart goes out to all those families that have autistic children and I know it takes alot of strength. I just wanted to vent and talk to people that have been through this stage and know if it is normal to feel so helpless and angry.. and what you did to cope with this first stage.. any advise, thoughts, ideas is welcomed and appreciated.
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Name: jim powelson | Date: Apr 3rd, 2011 12:51 AM
glad to be of help
the child need a chromosomal test called
sky m fish test

the child has deletion syndrome

there is a book call Red flag planet earth on amazon kindle or kindle for pc's

1st 3 pages is free

there is insruction for the doctor and what to do 

Name: sidther | Date: May 16th, 2011 11:23 PM
Dear ZadesMommi,
Please try not to panic! I am the mother of a 7 year old boy with ASD, also I do some advocacy. I was once diagnosed with Aspergers myself. It does take strength, you can do it though! It is completely normal to feel so helpless at this stage, there is plenty of support and guidance available, the hardest part is learning how to find it. Even things like respite care can be found for free.
The actual diagnostic process will vary depending upon where you live. Rating's scales are used, but where to go from there may be a child psychiatrist, developmentalist, multidisciplinary team, geneticist etc. Eventually, you will make the rounds to all (usually) but the most important thing right now is to get started on the interventions - you can get the referral even before the diagnosis- you may need to get creative. Please don't hesitate to contact me if you have questions or need to vent- sometimes it is easier to vent to an objective outsider! 

Name: Edwardliu | Date: Jun 9th, 2011 8:52 PM
Dear zadesmommi

I'm a mum of four and a half years old son. When my son diagnosis at two years and four months, I am very sad. We hope he just delay and no autism please. Then you think about whose fault? Crying for months. My big family have more than 50 children and we are the first record. I think it is good to suspect he is autism and you did something to help him. First Try to find DAN doctor first. Then buy bumblebee video, then read the book " more than words" to train yourself to teach him language. Go to early intervention. Gluten free and diary free food to him. 

Name: Kat_74 | Date: Jun 11th, 2011 3:57 PM
My 19 month old sons pediatrician also wants an eval. for autism, We have an appt. in October, and I am scared to death too. Zades mom, I feel lost too and there is no logical way to describe it.
My son was born prematurely at 24 weeks and 5 days. He has sensory dysfunction and receives therapy once a week, also speech therapy bi-monthly. Lately his behavioral issues have become worse and I really don't know what to do. At the drop of a hat, his mood turns from happy go lucky to violent. Screaming at the top of his lungs, pulling his hair and that of his 12 year old sister. Scratching, biting, punching. He doesn't see this behavior in our home so I am very confused on why he acts like this. And its so sudden. He can be cheerfully playing with his sister and he goes into a complete and total meltdown. We need help. The therapy helps with some things, but oh my goodness, other aspects of his behavior is through the roof. Can anybody offer any insight, please? 

Name: Kat_74 | Date: Jun 11th, 2011 4:00 PM
I want to add he is a very smart child. His speech may be delayed, but he has learned sign language, and frequently communicates with us by using it. 

Name: Edwardliu | Date: Jun 12th, 2011 3:58 AM
Kat,

Your son only 19 months old and can use sign language. I don't think he is autism. Does he point out his finger ? Try to not to stress yourself. When you get stress, your children get anxious. They will behave strangely. It is very common the child try to communicate with you, but sometimes he can't get what he want because he can't speak well. He will meltdown. Love him and teach him more and give him more time. He'll catch up. Remember to calm down yourself as possible as you can. Also all the children love the attention. I just think your little one maybe just normal.


Emily 


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