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Name: Vangie
[ Original Post ]
Hi, new person in here. :) My daughter is 9 and her teachers and I have agreed for several years now that she has so many of the common symptoms of Aspergers, but I've been going around in circles with her doctors about it.

They say she doesn't have symptoms severe or obvious enough to be Aspergers, but they are definitely enough to effect her home, school, and social life.

Her symptoms are
- preoccupied and constantly distracted
- unpredictable
- manipulative and deceptive
- immune to consequences (good and bad)
- daydreams almost constantly
- immature for age
- socially atypical (doesn't interact like, or with peers)
- overly imaginative
- withdrawn and nervous for no obvious reason
- constantly fiddling with objects and/or tearing them up
- ignores directions
- emotions and responses don't match circumstances
- requires constant supervision
- has difficulty understanding jokes, or subtle phrases
- very sloppy, disorganized
- has difficulty describing thoughts and feelings

Her doctor decided she only has ADHD and prescribed Adderol and Prozac, and said that should clear up her problems!

He said because she can speak clearly, has normal eye contact and doesn't necessarily do things in a ritualistic way that she's definitely not at all Autistic.

He's a distinguished Nuerologist, so he should know what he's talking about, but I just have that gut instinct that says there's something more to it than just ADHD, and I'm positive that just giving her a couple pills isn't going to solve the problem.

Is there anyone here that can relate or give me some advice? Her social problems and some of the odd things she says and does sound like some form of Autism to me, but could it be possible she just has something different besides Aspergers, or something even milder than Aspergers?

Her teachers and her dad and I are at a loss as to what to do, where to turn, and how to help her.

Even an understanding ear would be so helpful right now, please! I know I'm not alone, and that there are parents with children with so many more problems. But I feel....frustrated....alone... and like doctors aren't listening or caring.
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Name: Sunshine007 | Date: Feb 7th, 2009 3:31 AM
Hi,

I am also new to this forum. I can be an understanding ear. Our 9 year old son was diagnosed two months ago with Non Verbal Learning Disorder, which is on the Autistic Spectrum. After reading your daughters symptoms I was struck by the similarities with our son. The only thing that differed was that he was never prone to daydreaming or imaginative play. He was first diagnosed with severe anxiety, and we put him on medication for that, which helped, but did nothing for the other symptoms. We were told that he would grow out of this and we would reach a point where everything would turn around, this never happened. He continued to get worse, we fortunately live in a city with a well established neuroscience center, and fortunately he was finally referred to and tested there, and the diagnosis was also verified by an autism specialist. We have definately struggled as a family, especially the last six months, but we finally have the proper supports in place, and things are getting better (a little easier) a little bit at a time. I am relieved that I finally know what books to read, instead of constantly wondering does he have this or that, and not knowing for sure. I am not sure what I can offer, but I too am looking for support. Hang in there. I hope you reply. 

Name: kayleigh1984 | Date: Mar 17th, 2009 10:16 AM
hi my name is kayleigh i have got 3 boys aged 6, 5 and 2. my 5 year old seems to be having the same sort of problems as your daughter and i don't know what to do about it anymore. he has got really bad as to be spreading feaces everywhere and as you can imagine this is not nice for everybody else in the family. it would be nice to chat to somebody else going through this sort of thing as i don't know what to do from here i have not seen any professionals yet as i don't know where to start. 

Name: skylerspeaksnow | Date: Mar 25th, 2009 6:03 AM
Girls we can do this.. without instructions or advice but our intuition is amazing! We will survive together! 

Name: Sunshine007 | Date: May 19th, 2009 3:52 AM
I live in Canada and I was able to finally get testing through the local mental health association, if you do not live in Canada maybe start at your local clinic? I am not sure. I do know that every day is challenging and when things seem to seattle down, something else happens. I do know that the more support I have (people to talk to), the easier it feels, I just do not get the support from friends, because they cannot understand what I am going through. Just remember your kids are relying on you, and keep trying. 

Name: flaminjo | Date: May 20th, 2009 4:11 AM
Hi,
I know its really tough for you.But from the symptoms you have mentioned it has all the makings of an ADHD disorder and nothing else,you should not worry unnecessarily.Doctors are correct.But i can understand your nervousness since she is a growing up kid,lots of issues at schools peer pressure and all,that makes her even more withdrawn and lower self esteem.

I think instead of losing your patience you should be calm,do not look worried before her instead smile with her ,play with her but accept the way first the way she is.

I have a good book which could help you:
Brain Exercises To Cure Adhd (Paperback - Apr 2008)
by Amnon Gimpel 

Name: Tears | Date: Jun 9th, 2009 1:24 PM
my son has PPD (NOS), this is on the the very edge of the autistic spectrum, getting a diagnosis for him has been a huge help, and actually has made it easier for him to understand why he does things, hope this helps 


Name: flaminjo | Date: Jun 11th, 2009 6:10 AM
Tears,

Kudos for the prompt action you took,Its always wise to consult an expert at the earliest stage and at the young age.Autism can be cured or atleast controlled to a great extent if detected early.

My Nutrition My Supplement : www.autism-supplements.com 

Name: There IS Hope | Date: Jul 14th, 2009 3:29 AM
Hi. I work in a school district, as a special-education paraprofessional. I have been blessed to care for and help many different children of various ages, with a variety of challenges. I recently listened to / watched a woman share her incredible story of raising a son with autism. It touched me deeply. Her son was healed, a few years back, and continues to improve in his schooling. I ordered her book and found so much hope in her experience. Hope that applies to everyone, including families with autism but not limited to only autism. My heart goes out to all. If anyone is interested in the details of the book and the radio / t.v. program, please e-mail me at [email protected] (Since it is my understanding that some things cannot be posted.) With excitement, encouragement, and heart-felt appreciation and compassion to every family touched by especially autism...There IS Hope. 

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