|
I want to create this topic specifically to get just the right knowlege we parents need for our special little ones! I knw PDD is also considered autism but I feel there is a fine line between the two. I would love to chat and swap stories and advice. Feel free to drop a line or two. ↓
|
|
| Name: lisa | Date: Oct 20th, 2005 7:12 PM |
my daughter is 6 yrs old and we are currently going through the process of diagnosing pdd. i don't know about you, but our journey has been overwhelming. the school system has tried to tell me she had add and developmental delays, but the puzzle pieces didn't fit. looking into autism and pdd was like reading a book about my child. just like somebody knew her. i didn't know whether to cry or feel relief. i guess i felt both. i feel like you that there is definately a fine line b/t autism and pdd. my child has more of what i would consider pdd b/c in some areas she is high functioning. that's why it has taken so long for us to figure out a diagnosis. she has problems with communication, seperating adults from peers, blurts out inappropriate talk at any time, gets very fixated on certain objects, even obsessive. does not like to be touched by anyone but me, hard time with eye contact, refuses to eat pretty much everything and made to try foods, she gags. temper tantrums have gotten better but sometimes still happen, which include dry heaving, sometimes vomiting and urinating on herself. she has even gotten so upset that she gave herself an asthma attack a couple of times. she is very phobic about animals, to the point where she has panic attacks, putting her hands over her ears , sweating, etc. we cannot go to zoo's or parks at all.
i desperately want to get some understanding into my child's mind. i want her to have a good life. i have doing constant daily research to get all the information i can . i feel the more knowledge i have , the better i can help her.
i am single mother and my daughters father is in denial . he refuses to see the real problems. he says she is just lazy and stubborn. he only sees her about once a month for 24 hrs. sometimes i just wish he would leave her alone if he's not going to be on board.
i wish i had some suggestions or help to provide. at this point i am just trying to learn as much as i can. good luck to you . please feel free to offer any of your info. or stories. thanks ↑ |
| Name: Briana | Date: Oct 27th, 2005 3:56 AM |
Hi Lisa I am also a single mom with a father in DENIAL.. My son is 6 as well. It sounds like you are just getting a lot of this information about your daughter. Smile when u need to and cry when u need to because youre right it is overwhelming.
I just want to affirm you right now w/o adding more to your plate. Please stay connected to people like us it is SO HELPFUL.
I am open to any questions.
Take care - remember that the best decisions we make as moms are those that come from LOVE. ↑ |
| Name: lisa | Date: Oct 27th, 2005 5:22 PM |
thanks Briana for your reply. it's nice to finally hear from someone. For a while now I have become a little discouraged because I feel so alone in this. Her father only made it worse this weekend by telling me I am wrong about the autism . That she is just "slow and will grow out of her problems". those words just destroyed me . I felt like what I already know in my heart and what I have been told by people who are knowledgable was worth nothing. I became sad and angry. I learned that I had no choice but to ignore him and believe in myself . I am the one who is constantly with her and doing all of the research , emails, phone calls, doctor appts. etc. I do everything and meanwhile he sits on the sideline and does nothing but tell me what he thinks i'm doing wrong.
sorry to vent . you probably has your hands just as full as me.
Don't you ever just get tired of having to be everything?
Guess that's where I am . But my spirit is strong and refuses to give up.
I would love to hear about your son. my email address is
[email protected]
thanks ↑ |
| Name: omer | Date: Nov 16th, 2005 8:02 PM |
| i never swear ,im kind and freindly ↑ |
| Name: casey bug | Date: Nov 29th, 2005 4:49 PM |
| Name: Steph | Date: Jan 2nd, 2006 4:04 AM |
| There is a fine line between the two. My 5 yr old son is diagnosed with PDD-NOS. It is of the autisitic spectrum. There is also an other fine line between autism and aspergers. My son's problems started right before his 3rd birthday. It was apparent to us all, that he didn't have autism. However, he had some of the behaviors. It took a while, before the specialist narrowed it down. He'll be 6 this month, and was diagnosed just last year with PDD-NOS. I recently printed out information on the disorder from www.nichcy.org/pubs/factshe/fs20txt.htm. It also includes autism and aspergers. I have found other resources on the internet that chart out the differences of the three, that were better. However, this was pretty detailed. The more I read the three, the more I know he fits PDD-NOS. Rett's is another one within the Autism Spectrum. If you'd like to email, feel free. [email protected] ↑ |
| Name: Laura | Date: Jan 15th, 2006 5:45 AM |
| my daughther 5yrs old and has austim and pdd .and also can not talk.and has tubs and walk on her toes. she is diagnosing on a 17 mounth old. and heard to get her in car,Im a single mom and raise my kids with a dad. my parents help out a lot. she need the one on one.just started to watch moving and play with other kids ↑ |
| Name: Maria | Date: Jan 31st, 2006 2:32 AM |
| My son was diagnosed with PDD-NOS at age 3 because he talked late and was a toe-walker. A while later he started talking and caught up in that area. He's always been a bit difficult (easily distracted, super active, absolutely no separation anxiety, and not a lot of social skills). But on the plus side he's super smart, creative, loving and very funny. He loves building Bionicles. So I never really thought the dianosis fit him. Now he's 6 years old. We put him in a public school Kindergarten this year. He has struggled right from the beginning. He can't stay on task. He does incredibly inappropriate behaviors. He doesn't get along with other kids very well. Now we're faced with having to put him in a special ed class. Has anyone else had a similar situation? We were told by a developmental pediatrician that he had immature frontal lobes and he would grow out of it eventually. What have other parents of older PDD-NOS kids found? I'm struggling to find the right school/settings for my son. Thank you! ↑ |
| Name: angelle | Date: Feb 11th, 2006 6:34 AM |
| i am looking for a chat room for moms with adhd children ↑ |
| Name: Susan | Date: Feb 18th, 2006 11:28 PM |
Hey there!
We have a six year old son who was diagnosised with PDD-NOS at age 4. My challenge at the moment is his "scripting" of movies, books, etc... It is so out of control that it is affecting his academics at school and had resulted in some behaviors at school such as hitting, spitting when he is told to stop in order for him to get back on task. If anyone has any advice on medications or therapy that has helped with "scripting" we would love to hear from you. ↑ |
| Name: Tina | Date: Feb 21st, 2006 7:09 PM |
| I have read alot on here as i am too look for help , the dr say my son has adhd and i hate the medicine so many side affects . I am scared some days and want to just call the school to make sure he is fine because of the medicine and I pray everynight ; that someone will find help for all these wonderful kids that have been put on to these medicnes. I am a parent that wishes for a new info on these issues . I am too look for someone to talk with as i dont have a suport group . I have yaho messanger . [email protected] and email [email protected] I would love to talk with someone as i am married for 14 years and my husband is in deniel and doesnt understand any of this . Thanks so much for all i have read . Tina ↑ |
| Name: moon | Date: Feb 28th, 2006 4:11 AM |
| dealing with a child with pdd and hubby decided he wanted to live with someone with normal kids. just need to talk ↑ |
| Name: monika | Date: Feb 28th, 2006 4:17 AM |
| actually you should be relieved. My son is in grade 3 and reads at a Grade 7.9 level. These children do excell in a lot of things but you just have to keep on them about the things that they are lacking in. Just stick to it and you will do well. ↑ |
| Name: dianne | Date: Mar 7th, 2006 10:17 PM |
| stefanie i have 2 sons 1 diagnosed with asperger syndrome and 1 with pdd. this child has also been diagnosed with, pathalogical demand avoidance, a.d,h.d, bipolar disorder and oppositional defiance disorder. i feel that the pdd diagnosis is given when the child has lots of complex problems. ↑ |
| Name: antoinette | Date: Mar 12th, 2006 11:46 PM |
| my son is 2 1/2 years old with pdd and i need allthe support i can find ↑ |
| Name: lorena | Date: Apr 4th, 2006 12:43 PM |
| i have a child with PDD he is 4 years old i find out when he was 2 year old but the good thing he is in school so the help he need he will get it is taking time but that is ok . ↑ |
| Name: abz | Date: Apr 9th, 2006 5:57 PM |
| Name: Debbie | Date: Apr 11th, 2006 7:57 AM |
| When my son was 18 months old, I knew he had a problem. He lived in his own little world, didn't even try to communicate and seemed completely unreachable (albeit very affectionate). We started out our saga with a speech therapist who told us he had a "developmental disorder." Fast forward to now: he's 8 years old and virtually indistinguishable from "typical" kids: talking, reading, learning, toilet trained, riding a bike with no training wheels, playing flag football and little league baseball. He still has social connection issues, but so far he hasn't been rejected by peers at all. They seem to like him. We got here by working very hard to get him the therapies he needed to address the problems he was having: ABA for breaking him out of his little world so he could learn from his environment as humans are required to; Speech Therapy for oral motor issues, "scripting," prosidy, and other language pragmatics; Occupational Therapy (sensory integration) for tactile defensiveness, self-stimulating behaviors (jumping up and down with his mouth wide open, patting his chest, hand flapping, etc.). Looking back I realize that the most helpful advice I ever got was from that first speech therapist: When I called her back after beginning "research" for an appropriate diagnosis, she said, "DON'T WASTE YOUR TIME SEARCHING FOR A DIAGNOSIS. JUST GET HIM THE THERAPIES HE NEEDS TO ADDRESS WHATEVER ISSUES HE IS HAVING." Now, six years later, I am still following that advice and dealing with whatever issues my child needs help with. And as the issues have gotten more "typical" I realize that this is essentially what parenting is no matter what your child's challenges. YOU DON'T HAVE TIME TO PUT YOURSELF THROUGH MEDICAL SCHOOL AND WIN THE NOBEL FOR CURING AUTISM. Just keep plugging away at each of your child's issues, and you will prevail! ↑ |
| Name: sandy | Date: Apr 11th, 2006 7:16 PM |
| you know i think that you should express your self ↑ |
| Name: Sandy | Date: Apr 12th, 2006 9:56 PM |
| Hi Everyone - My 2 1/2 year old was just diagnoised with PDD - NOS and I feel it is the correct diganosis. HOWEVER, we are very fortuante that he has VERY mild symptoms - his major issues seems to be speech , although we do see some social delays as well - he will play next to other kids, and even has a "friend" but his interactions are just a little "different" - it is hard to put my finger on it. Anyway, i am interested to see if anyone else ot there has a similar child. it would be especially helpful to speak to the parent of an older child with similar issues - sort of see where we are headed. THANKS - Sandy ↑ |
| Name: Jacqui | Date: Apr 13th, 2006 5:27 PM |
| just wondering, if there was a guide (manual) that gave a brief run down on the different Autistic disorders, followed by information on different ways to approach managing your child's behaviour, perhaps a guide that introduces you to different options of managing behaviour and gives practical tips in each to try. Would anyone be interested in something like this? ↑ |
| Name: tracy | Date: Apr 17th, 2006 6:11 PM |
| Name: BEN D | Date: Apr 20th, 2006 10:15 PM |
| Name: Keirsten | Date: Apr 21st, 2006 4:20 AM |
| I worked with a child with PDD last year, she was the most amazing little girl. She started coming to the day care I was working at, and we really weren't sure how to deal with her. She donesn't talk, and doens;'t respond to her name, and we couldn't get to to cooperate. I figured since it was her first week at a day care, in a new place, she was just a little nervous, and scared, and wasn't quite familiar with the envrionment. Adventually after about 5 months, she turned around alot, although she wasn't eating alot, we had to feed her, and she is 3. I ended up teacher her how to eat on her own, and how to properly hold the spoon. She wasn't speaking, and as far as I know she still isn't, but she does now respond to signlanguage. We used certian signs that were easy, like Toilet, when it was time to change her diaper,(she wwasn't potty trained either). STOP, NO, and little things like this. I am no longer at that center, but she ended up doing alot of things, you just need to be really persistant with them, and give them time to do it on their own. also you need to make them listen to you, and understand that they MUST do it,...i don't know it this helps at all but its worth a shot (by the way i can;t spell!) ↑ |
| Name: Holly | Date: Apr 25th, 2006 8:43 PM |
| Hi my name is Holly my son was just diagnosed with pdd. I too feel ther is a difference between the 2. He might have some characteristics of autism but he also does not. To me it is confusing as to what pdd really is. maybe you can help me to understand better and I can help you thank you Holly ↑ |
| Name: jane | Date: Apr 25th, 2006 9:01 PM |
| can someone please tell me the diference between autism and pdd? I am really confused is pdd autism? ↑ |
| Name: TGC | Date: Apr 27th, 2006 3:49 PM |
| PDD-NOS is part of Autism Spectrum Disorder, as is Autistic Disorder. I believe PDD has more atypical autistic features. For example, my son has PDD and will make eye contact, loves to be held, and doesn't have much texture/light/sound sensitivies. The disorders are certainly similiar, but the PDD is frequently considered more mild. Still, my son does have tantrums that can be quite frustrating and will bang his head on the wall or table if very upset. He has also been throwing things at other kids at school (usually when he has to sit at the table during snack time, he never eats at school). Speaking of food, my son is *very* picky when it comes to eating, as are most kids with autism or ASD. He only eats waffles, ice cream, mac & cheese, baked pototates and yams, and drinks milk. That is one area I just don't battle with, he'll eat what he wants. I'm just happy he's eating! I think Asperger's and PDD have more similiarities if you compare all disorders under the spectrum. I don't like saying one is higher functioning than the other, but many Dr's refer to Aspergers and PDD as high functioning autism. What does that mean though? Some are very high in the cognitive functioning area, but might still need help getting dressed in the morning. Or, another might be self sufficient and yet non verbal. Overall, my son with PDD appears to be a perfectly normal child. That can be a bit difficult as those who don't know him expect him to behave a certain way and follow social rules. ↑ |
| Name: Lynn | Date: May 1st, 2006 10:42 PM |
| Hi, my name is Lynn and I have a 4 year old lovely son who was diagnoised with PDD-NOS a year ago. My question is: is there anything to stop the fixations? He loves to remind tapes and DVD's to certain parts to look at them, and recently he has this fixation with babies...which gets him into trouble. Any suggestions?? ↑ |
| Name: M | Date: May 7th, 2006 7:23 PM |
| We have a beautiful little boy with PDD, we got him diagnosed very early. He was given a diagnosis at 19 months so I could get all the therapies I needed for him. He is now 2 doing brilliantly and gets close to 32 hours of therapy a week. ABA, school and home, speech, school and home, OT school and home and we also have a speech therapist who just deals with sensory issues and his mouth. We are getting EI but also paying for some privately...so as our boy does beautifully we are living with financial hardship...worth it ↑ |
| Name: Ty's Mom | Date: May 10th, 2006 3:35 AM |
Our 2 year old son has must been diagnosed with PDD - we too knew something just wasn't right when he never said Momma or DADA. He trys to say words when we work with him with flash cards or read books - My question is for those who are in this process too - can these little guys play sports if they are interested? Can they be in regular school classes? I keep hearing early intervention is the key and we are in the process of securing all avenues of treatment for our boy. I have read through this site and there seems to be quite a few of you with the same type of issues.
Debbie who wrote on 4/11 - do you have an email address? I am at [email protected] if you check back on this site. Your son sounds very similar to my situation right now. I would love to talk to you if you have a minute. Thanks!! ↑ |
| Name: ShannonV | Date: May 24th, 2006 3:17 PM |
My son is almost 8 years old and he was initially (about age 2 1/2) diagnosed as "delayed" and "they" said that eventually he would catch up with other children his age. It was not until he was 5 that his school psychologists and therapist diagnosed him as autistic. The more I researched his diagnosis and saw all the different similarities of behaviors associated with autism and PDD. The more I confused I got. There are just so many different diagnostic terms that fall within the broad meanings of autism or PDD, like Autism Spectrum Disorders,
Aspergers’ syndrome, Rett’s syndrome, and Childhood Disintegrative Disorder. My son seems to fall into alot of these categories and I sometimes think that it is just easier for professionals to diagnose these children as autistic because it seems to cover a majority of the disabilities these children have.
I personally just want him to be happy and healthy. I want him to grow up in a positive environment and to feel loved. I think that he has better days when he is shown a lot of attention and when we spend a lot of time together. I work full time, go to school full time and have a total of 4 kids at home, so I am worn very thin. But I make it a part of my everyday schedule to spend time with him one on one so that he knows that his Mommy loves him no matter what! For all the parents that are struggling with his or her child with this type of diagnosis, the only thing that I can share with you is that even though our children are so called "different" from others, they ALL want to be shown that WE LOVE THEM UNCONDITIONALLY! ↑ |
|
|
