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I love my autistic 4 yr old, but I have to admit lately it's been getting the best of me. He's basically non verabl but 10 words maybe, he as a ton of sensory issues. Just yesterday celebrating new years eve he was throwing balls at the X mas tree. He knocks over my sitting chair frequently... I so long for the words he should so naturally speak, and the language he should understand. It's so frustrating at times. Still in diapers which makes it rough and he is a big boy to keep hauling around. He was calmer, but the woman who works with him said developmentally he may be going through his terrrible two's...anybody ever heard of this? And why did this even have to happen? Why couldn't my little boy be typical???? It always haunts and hurts me? Any thought? ↓
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| Name: mondo | Date: Jan 1st, 2007 4:18 PM |
| I do, its very natural to wonder. I also seee my son as a gift to me, so much I have learned from him about myself, the world and life. A true blessing. Also, see the entry for "did you when pregnant..." Its focus is on your question.. ↑ |
| Name: daisylou66 | Date: Jan 5th, 2007 12:00 AM |
Hi dianna;
I was in your space 7 years ago. My autistic boy is turning 11 on Jan. 13th. Autism often gets the best of us. The unknown is extremely frustrating. My son was also non verbal at age 4 and always bolting from his special ed program. He could sit no longer than 30 sec. -1 min. at circle time, while being held from behind, with loving arms from his 1:1 ed tech. Developmentally our loving child is definitely behind developmentally and I truely believe your son is going through the terrible twos. My son has made huge strides and progress and still at times I wish it were different. He now reads at a Kindergarden level, has an extensive vocabulary in his mind (but has a hard time with expressive language), he talks to fast, and has speech therapy, OT, PT, an ed tech 1:1. My son has dyslexia, sleep disorder, and has many hand stimming and spinning repetative behaviors. I absolutely adore him! He has taught me much about patience, tolerance and unconditional love.
I am a behavioral specialist and work with a non-verbal 11 yr old, and a 17 year old girl with down-syndrom. Then it's home to my son. Being an in-home-support special I have learned of the many resource out there for us moms and families. My son will be getting his own In-home-support person. He was just approved for 25 hours a week. It's not that I can't take care of him, it's an extra hand to help teach him life skills, reading, socializing and sensory issue techniques. Thank god for the Autism Society!! A wonderful place for resources.
I was so happy to read your question, I can empathize and feel your pain. I am currently writing a book titled "Grieving Autism" with Help, Hope and Inspiration. It's for the love of my son......I have joined several chat rooms in hope of incorporating children on the spectrum and their place in the grieving process or is it just us parents? I've gone from anger, to bargaining with god, to denial, acceptance and back more times than I can count. I use to say "Why me"???? Not anymore, I have gained so much knowledge and have such unconditional love from my son (I also have 2 other children and am a single mom), I wouldn't change a thing. I am a strong advocate for my son and plan on helping many others on the spectrum and their families. I hope this response helps heal a little. Typical isn't always fun either, my other two children are and they drive me more crazy than my Autistic son. Some day researchers may find out WHY....but for now hang in there, the best is yet to come.......Karen ↑ |
| Name: dianna | Date: Jan 17th, 2007 1:13 PM |
| Hi daisylou66 and mondo, thanks for the words of comfort. It's just so hard to handle at times because you see the children who are typical, laughing and playing and talking, and my son can't do those things and on top of that he's hard to handle. I don't know It seems perhaps there is a day when you come to accept it but I don't think I am there yet. But with the right amount of prayer and hope, maybe. Thanks again. ↑ |
| Name: sylvia0366 | Date: Jan 20th, 2007 4:58 AM |
Hi Dianna,
I think that all parents of autistic kids go through this stage. I have 3 autistic children, ages 12, 10, & 8. My 12 is very high function, yet my other 2 are non verbal and not fully potty trained. Jake my 10 yr old is the one that bodyslamms, headbutts,etc...and Sabrina the 8yr old is my screamer, it is very frustrating, especially when they are having a very bad day. I guess that since they do have a delay, they are acting like someone who is 2 to 3 yrs younger. I don't know about you, but I don't go to birthday parties with kids their ages, because it does depress me to see little kids, like 1 or 2 talking and playing like any normal child should and my are not doing this yet or if they start doing their little "stimming", people look at them funny. It does hurt that maybe I won't hear "I love you mommy" unless I say it to them and they repeat, but they do compensate in other things, like their unique way of looking at us or out of the blue they will hug me or kiss me, I would never trade that! Your son is still so young that there is alot of hope that he can improve so much more than my kids will, just keep your faith and even though it is frustrating sometimes, just think that in his own way he loves you very much. I wish you luck and if you ever want to talk you can email me at [email protected] ↑ |
| Name: Heather Ann | Date: Jan 27th, 2007 12:30 AM |
| Hi dianna, I have two boys with autism. One is doing very well and the other is highfunctioning and a year behind his peers. I can empathize with how you feel. The big picture is overwhelming. It took me some time to start looking at the small increments of change in the boys but when I was able to it put a whole different perspective on it. I still have somedays when I find it difficult and so will you, it is only natural.The thing is these children are very intellegent and feel things, they just can't communicate it. He is still young and you have a wonderfull window of opportunityfor him to develop. Take heart you are not alone. I wouldn't trade my boys for anything, they have been wonderful teachers about life. God must have something pretty special planned for you and him. Need to talk contact me at [email protected]. ↑ |
| Name: jacksmom | Date: Jan 28th, 2007 3:17 AM |
http://www.diet-studies.com/megson.html
Cod liver oil really helps.... not only the autistic brain but it also will boost any person's immune system. The healing is gradual. My son, has been healing gradually from ASD with CLO and other supps. There;s more Dr. Megson info on the web. Also check out Dr. Yasko at www.holistichealth.com. Love, Jack's Mom ↑ |
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