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Name: loriann

[ Original Post ]

My son is raising his son (2 1/2) with autism alone. I don't have to tell you the barriers that this brings. He lives in another state and it's so hard to hear him feel so scared for his son. His son was seen by a neurologist today and needs to have EEG and MRI due to possible seizure activity. I know my son is almost at a breaking point and do not know what to do to help him. He will do anything for his son, yet he needs to be able to work too. I don't know if I should fly out there for him to help him prepare his son for the EEG (no sleep, no food, etc. for the little guy for like 2 days) and be there for the MRI etc. It would not be a hard decision if I wasn't working full time at a job I really need to keep. I just don't know anymore. ↓

Name: Edwardliu | Date: Dec 30th, 2011 1:10 PM

It was very hard for both of you. It was very hard to have an autism child in the family. I gave up my job for my son three years ago. He is five years old now. He will go to the normal public school in the coming year. He is smart at reading and math now. It worths it. But a lot of my friends' son and daughter still improve very slowly.
There are very good forum as below:
http://raisingchildren.ne
t.au/forum/Forum133-1.aspx

You
can discuss your fear with them. They have a lot of experience there. I am sure some of them can answer your question. ↑

Name: Grandma Karen | Date: Jan 14th, 2013 1:48 PM

loriann,
I hear your concern for your son and grandson. You can help your son best by listening to him. If it will cause complications in your life to be able to be with your son, it will be reflected in your mannerisms, and your son needs to hear the voice of calmness and reassurance. You mentioned that your son may be at a breaking point. He needs someone to listen, affirm his feelings and to provide calm. I raised my severely autistic grandson until he was 12 yrs. old, bigger and stronger than me. It's been a long, hard, journey that is not over, I always appreciated having someone to talk with when times seemed unbearable. You can Email me at [email protected].
Grandma Karen ↑