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Name: Kylesmommy
[ Original Post ]
I have known that my son was "different" since he was 18 months old. We have never been able to get a diagnosis. I think we may be on the right track now. I know from research that he has sensory integration disorder and I am pretty sure that we will all wind up at PDDNOS. That's the moms opinon. Now, it is so frustrating waiting for the doctors. No one is in a big hurry and I feel like I am at my wit's end. I know that he needs help and I want him to have it. I want our family life to be better. I want him have the best life possible. Any suggestiosn?
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Name: tia | Date: Jun 24th, 2005 12:21 AM
Hi, I know what your going threw. I knew at 13 months my son was autistic and nobody wanted to address the issue. I cried all the time. I wasn't so sad that my son was autistic but irritated that I didn't know how to help him. I am a stay at home mom and my entire world revolves around understanding my son and providing him with the best therapies. I know how frustrating it can be to be placed on waiting list after waiting list. I really believe I can help and steer you in the right direction. The more you know how to help your son the better you'll feel.
Please email [email protected] 

Name: beth | Date: Jun 25th, 2005 3:07 AM
sounds familiar. not so funny how professionals never listen. i have a few suggestions about therapies that will help and how to get them quickly. my son has made amazing progress with this. email me [email protected] 

Name: Sheri | Date: Jun 26th, 2005 2:23 PM
I know it's frustrating& the the experts can help, but dont loose sight that this is your child & if u feel something is not working as far as therapy or even the therapists or Dr.'s goes, find a new direction, asap my experience has been that they (our kids) need the best of all the above & you know as well as I do we have the learned the most from the great techers. Good luck to 

Name: mandy | Date: Jun 29th, 2005 11:59 PM
Have you tried a local First Steps program? You can also take your child to the nearest autism center (you can locate the nearest one via internet). Is he verbal? Does he take interest in other children? Does he twril objects? 

Name: DOLLY | Date: Jul 9th, 2005 9:01 PM
PLEASE TRY TO GET YOU SON IN A GROUP FOR HELP.
THE SUPPORT YOU NEED.

[email protected] 

Name: beth | Date: Jul 10th, 2005 4:33 AM
your best bet is to get your son into an ABA program as soon as possible if there is one in your area if there isnt look into a home program and get the book facing autism by lynn m. hamilton for assitance and catherine maurices let me hear your voice. both are a god send. god bless 


Name: margot | Date: Aug 10th, 2005 10:56 AM
I have been telling the proffessionals since my daughter was three there was something wrong,but apparently us mums conceive carry and give birth and no nothing of our child.just found out i was right and now angry cos there should have been help for me two years ago.Iam struggling with many aspects of my daughters emotional ,physical,and mental well being.iam sorry if i sound bitter i only found out last week and i dont know what to do now. 

Name: Kylesmommy | Date: Aug 10th, 2005 6:44 PM
Well, just an update...the more research I do the more I am convinced that Kyle has AS and probably a seizure disorder with secondary sensory issues...but, we may have to wait up to a year to get the dx from the drs. We are trying to get him seen by a developmental clinic and between the insurance restrictions and the waiting list at the clinic but, that is what makes the wait up to a year.

I am so sorry for all of us who know something is "wrong" with our children and we can't get the "professionals" to listen.

We are our childrens best advocate though so keep on keeping on and don't give up! 

Name: Michellene Bellesong | Date: Oct 13th, 2005 9:31 PM
Ah for gods sake let him be tthe baby he wants to be dont suffocatė him and worry too much as thats as much pressure on the baby and you 

Name: lisa eggleston | Date: Oct 20th, 2005 5:36 PM
i know exactly how you are feeling. I've known for some time that my child was "different" . We have been givendiagnosis that just don't seem to fit. I to am waiting for testing appointment. No one is in a hurry and dealing with the public school system has been frustrating. I really don't have alot of advice for you. Just remember that you know your child best. Waiting sometimes is the most frustrating part and i am there with you. good luck 

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