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Name: sarahdann
[ Original Post ]
I have recently had my Son of 6 diagnosed with Autism and my Parents the childs grandparents keep saying things like "in our days you would just get on with it" or "he'll grow out of it or he'll just have to fit in or you've just been brainwashed by todays society" I feel angry shocked and annoyed by all this but what can I do??? Please help are they just plain old fashioned? What can i say in reply??? Email me [email protected]
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Name: dirtydebbs | Date: Aug 6th, 2007 5:12 PM
get as much info as u can n let them read it if there interested (which they should b) then they wil realise that he can get better but he wil never grow out of it. if u fancy a chat at anytime my e-mail is [email protected] You feelin angry is normal at the end of the day he's ur little boy and u wil defend him. My little girl is 7 but was diagnosed at 3 

Name: irish Amy | Date: Aug 6th, 2007 11:01 PM
I know excatly how you feel sarahdann, my mum has been fantastic but my dad has said the very same thing to me 'oh he will grow out of that i am a bit like that myself' i got sooooooooooo mad with him, just a few weeks ago he asked me if callum was any better, i reakky felt like saying 'yeah i gave him some paracetamol and he is fine now', you would think they should care enough to find at least something out about it. im sorry if i come across a bit strong but that makes me really angry, knowing how important it is to have your family around you who care enough to know what autism is! best of luck sarahdann. 

Name: ltl | Date: Aug 13th, 2007 6:48 AM
Hi Sarahdann, My mom was the same way. She would say that "he's too little, every child is different, he'll grow out of it", even after I pointed out my son's lack of interest in playing with other kids, and lack of eye contact, etc etc. But with all of that denial, I was not angry...some people can't accept certain thing epecially when it comes to their loved ones. After my mom's comment, I just smiled, because it really doesn't matter to me. What mattered is that denials won't help my son, knowledge and seeking help for him is what counts at the end of the day. My son, fortunately, has showned remarkable improvements, and until today, my mom would said, "see??? you're overreacting"....again, I just smiled, because I"m just thrilled to see that he's improving...still a long ways to go, but to my mom, he's perfect. That's fine with me as well. :-) 

Name: irish Amy | Date: Aug 13th, 2007 2:51 PM
thats a really nice way of looking at it Itl, maybe i'll change my views on my dad, well said. 

Name: wallflower | Date: Aug 21st, 2007 5:39 AM
Hi Sozo,

It's amazing with the autism awareness out there, there still is that mentality that they will grow out of it or it's not that bad. It sounds like my parents. They are wonderful, however, are totally oblivious on what it takes to raise 3 autistic boys. My parents are old fashioned and religious. I just tell them to basically be supportive or be quiet, also I send them information on autism periodically that they don't read. I'm still angry and shocked over this as well. Thank goodness I have wonderful friends and a wonderful therapist...HA..to thine own self be true,

shawn 

Name: Eileen White | Date: Nov 9th, 2007 2:36 AM
I am a Grandmother of 2 with autism a girl 5 a boy 3 they came to live with me cause my daughter could'nt look after them , these 2 kids have taugh me a lot maybe your Parents need to get more involved in the day to day care of your little boy it really opened my eyes.like 2 talk [email protected] 


Name: Kelly Boerger | Date: Nov 26th, 2007 2:54 AM
I am a grandma of a six year old boy who I strongly suspect may have asperger's, but his parents are not seeing or willing to pursue the possibility. You have every reason to be anoyed with your parents. I hate reading, but when I suspected my grandson may have AS, I started reading many different books on the subject. I also began researching on the internet. Would they be willing to at least look into some information on the subject? I hope they do. Your child needs they're support. 

Name: Snupi75 | Date: May 27th, 2008 4:55 AM
Hi, I'm a grandparent of an autistic 6 year old. Try to be patient with your parents. "In their day" things all had a name, and a diagnosis was just one thing. Autism is a conglomeration of disorders lumped under the same name, and that is part of the frustration. You can't just pick out the one problem and say "This is the cause, so let's fix it!" Do your parents have access to the internet? I have some suggestions on some sites they might be interested in. Maybe it would help them to talk to another grandparet with a child of the same age and gender? I am also a Registered Nurse. I feel deep kinship with your annoyance, what I hear from your statement is that you feel completely unsupported and you feel like you are having to face this huge thing alone. I will be glad to help if I can, even if it is just to listen. We just obtained a service dog for my grandson, and it is working wonders. You can e-mail me at [email protected] If you have Yahoo Messenger, we can add each other to our contact lists and talk in real time, or you can use my main e-mail addy [email protected] , please keep in mind that the last addy is not for forwards etc., it is my personal address. Look forward to hearing from you. 

Name: asdmom | Date: Sep 22nd, 2008 1:59 AM
is your son high functioning or low functioning, can he talk? 

Name: dalia_in_nevada | Date: Jun 18th, 2009 4:59 AM
I am writing you this letter in the hopes of some desperate
assistance in Nevada. I have a young Autistic adult son,
19yrs old, ( Vincent Ortiz ). I understand the dilema you are going thru.
You are not alone. I will be happy to talk to you any time, if anything
just to listen and support each other.
I will make this brief and to the point.
I am a single mom working many
hrs 7 days a week, savings is now gone in an attempt to pay
on my own for caregivers.
My son has severe "episodes" at which he can bite/scratch/pull hair or
all of the above. These behaviors all began over the last couple of
years and are progressively getting worse.He is 5 foot 10 185 pounds.
I am 5 foot 2. I can not restrain him when he attacks.
I desperately need HELP now.
There are NO group homes or facilities who take children and/or young
adults w/ Autism here in Nevada. The state treats Autism like it is a dirty word.
I am in fear for the safety of myself and my daughter as we have been
attacked a cpl times now without a caregiver here full time.
I was thinking there are several folks in the same dilema as myself
here in Nevada as well as across the country..
I would like to know if you could :
1.) assist with helping me open a
RANCH FOR AUTISM here in Nevada. Pahrump still has land low
priced and it's far enough out that folks who don't understand Autism
will feel comfy, yet it is close enough for medical needs.
I know exactly what these children need to make their life
complete and busy with a scheduled routine and space to roam.
I know that I could sucessfully provide the care and know how to
make it a wonderful structured environment for the children.

For instance:
an equestrian area
music program
arts n crafts
a green house
pool / spa
trampoline
swings
merry-go-round
sand box
walking paths

2.) help / steer / assist me w/ getting some families
together that are looking for longterm placement for their
young adults where they will be loved and cared for as if we were there
ourselves. Home-like environment with plenty of activities to keep them
busy and fulfilled. We need 20 committed families that have a young adult
who needs the special care and guidance the Ranch for Autism will provide.
We all know as parents we can not be there forever for our loved ones.
I know I do not want my son to be institutionalized when I can't be there
for him any longer. Of course our children can have visits ( home or on site)
anytime. You may have the connections, knowledge to get this request
completed. You may know someone with acreage ( we need approx. 50 acres )
that needs a tax write-off, or a family member willing to donate.
Maybe help get a fundraiser, some attorney's, doctors, wealthy
folks. Get the community involved! I have faith in you. Together we can pull
all resources and do this.
I currently have an investor to meet/match up to $800K, which is about
1/3 of what we need to reach our goals.
Please contact me with any contacts / ideas that you may have.
God Bless!

Respectfully,
Delia Power
702-942-0731
360 Yacht Ave
Henderson NV 89012
[email protected] 

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