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Name: Janean
[ Original Post ]
DS will be six in a couple of months, we have tried potty training several times with no success. His therapists from his in-home program have tried, and DH and I have tried on our own. School has tried and no success their either. The problem is a control issue. He KNOWS what that feeling is, he KNOWS where he is supposed to go but he doesn't want to go in the toilet. He has gone pee in the toilet twice, but just a couple drops and we applauded and cheered like we had won the lottery...didn't care. He smiled an laughed, but it did nothing as far as reinforcing him to do it again. Once he figured out we were trying to toilet train him, he quit drinking fluids and refused to eat anything salty AND he held it the entire day. He's not afraid of the toilet cause he'll sit on it, we have demonstrated to him how to use the toilet. I've even scraped the poo from his pull-up into the toilet to show him where it is supposed to go. Nothing. He just plain does not want to go in the toilet, he waits until he gets a pull-up on. We've tried letting him run around naked, but again no success with that method. reinforcers don't really motivate him. They can change daily, and that has been hard with trying to get him to do anything...there is no real reinforcer. I'm at my wits end, I have no idea what to do. His therapists and teachers don't know what to do because their methods usually work with the other kids...someone please tell me that you have an idea!!
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Name: tam | Date: Mar 15th, 2006 7:58 PM
have you tryed treats or start all over again on the potty if there is something he likes as a treat make it that he only gets it if he goes on the toilet no other time. i have a 6 year old to and i know what you are talking about he just learned last year the treat worked very well he even started coming to me and saying go spee bring me to the bath to show me so be could get a treat make it something diffrent that he will not get any other time and that the school has them to 

Name: postscott | Date: Mar 27th, 2006 12:06 AM
I have a 23 yr. old son with autism and have been there done that ALL!! Have your tried cherrio's with toddlers they also sell little stickers you throw into the stool to pee on. Maybe you could have daddy deminstate to hit the target. Also try contacting the Indiana resource center for autism. They will help with free of charge. you can call them at 812-855-6508. If you have anymore questions e-mail me at [email protected]
Good luck. God bless you!! 

Name: james' mom | Date: Jun 24th, 2006 1:02 PM
you will just have to be patient and know it will happen when the time is right... my son is four and will pee in the toilet for me no problem... buts the poos are another story.. he refuses point blank to sit on the toilet .. he will hawever go into the bathroom and pull down his pants and then he makes it on the floor.. i had a hard time keeping him dry but it happened eventually and i know this will too.. you know your son the best out of everyone.. so try coaxing him into the bathroom every day maybe.. make it a part of his routine and make it fun..thats how it workd for me although i dont know why he won poo in the toilet....can anyone help me on this??? 

Name: john | Date: Jun 24th, 2006 11:33 PM
Janean,

You are not alone, my girlfriends son is 4 1/2 and we have him as close as can seem to get, we put him on the potty with no diaper and try that for about a half hour, then we put him in a diaper and make him sit on the potty and go, and that at least has started to work. So he'll go in his diaper (pee) while sitting on the potty, but its hard to get from the diaper to no diaper on the potty. Something about the feel of the cloth against his skin. It also interferes with getting him doctor checkups b/c he won't pee anywhere and they can't check his urine out. It is VERY frustrating. I have heard Autistic children are very late in potty training, even up to 10 years old or older! Anyway try just getting him to sit on the potty with his diaper and don't let him get up until he's gone at least pee. That would be a good transition from where you are now. Good luck. 

Name: amazing | Date: Jul 24th, 2006 6:51 AM
Even though my son has not been formally diagnosed, I do suspect that he has some type of mild autism. Anyway, I too was so worried about potty training for exactly the same reasons you stated. Amazingly enough, I read a Supper Nanny book and did some other things and in ONE DAY he immediately started going.

My son loves music, so I took him to the potty, CLOSED the door...normally, I left it open for him, but this time I closed it...and SURE enough, he went. When he came out I sang a
song I made up...here it goes...don't make fun of it...cause it worked...hehe...kind of like a rap song...hehe


I push it, I push it, Push, Push, I push it...

hehe...ah yes, and all this while dancing and pressing my tummy...so for weeks, everytime I asked him to go "push it", he'd go, close the door and then came out dancing and singing the song...

Mind you, he barely talks...we don't really communicate on the level of any 5 year old, butg he knows that little song and it worked...

Good luck! My son was in diapers until two months ago and he turned 5 on July 19th 2006.. 

Name: WANDA | Date: Jul 24th, 2006 4:38 PM
JANEAN, My grandson will be six in Dec. and you just described
the problem we are having with his toilet training. So far no sucess and we don't know where to go. He talks but just uses one word at a time. Or he will mimick anything you say to him if you say Hayden say "I want some milk please." He will say that very plain back to you. He talks a lot but it is just jibering. He eats chicken nugets, corn chips, yogurt and loves milk. His mother is trying to change his diet. But those are the only things he will eat. So what can you take away from him.? If you find out any thing that helps your son. Plese let me know. 


Name: Linn | Date: Jul 27th, 2006 8:56 PM
Hi Janean - have you tried a potty training video from the library? It worked for us. Best wishes 

Name: budsky | Date: Jul 27th, 2006 9:22 PM
I have the same problem.Mine is 13 and wets himself when he gets angry, which is alot.We can't even go to a movie without him wetting himself.I started making him wear a diaper whenever we go out.He doesn't have a problem wetting himself and sitting in it. I'm open for anything.We've tried meds and nothing worked.I can't do the alarm because he will destroy it.I wash alot of sheets.I have 3 bathrooms in my house and he still refuses to use them.I don't understand why they feel they need to use this as a control issue. The doctor and I have explained that it is a nasty health issue and I don't know anybody who likes being around the smell. We've tried rewards,special time, etc. and nothing works.I feel like my boat is sinking fast. My house smells so bad and we never get company anymore.The grandparents won't even come by because the smell makes them sick. Hopefully somebody has a better idea. 

Name: kristen1313 | Date: Aug 8th, 2006 3:58 PM
i don't know your son's functioning level.my son is high functioning but also has the control issues. he would ask for a pull up he would urinate but would hold it all in at pre-school and then come home and ask for the pull up.i get the frustration!!! what i did is...sometimes they have those "bouquets" of lollipops. tootsie roll kind nad i used that. he never had candy and alwys wanted one so i bought them and told him everytime you go in the toliet you can have ONE . well it was woriking with sucess until the day he got well this is gross sorry but he got the runs. and then i had to give him one for everytime he went. he went all day. i fianlly had to tell him there is no more. you did it. this is not going to happen anymore. we are so happy for YOU(he cant stand any praise he is so oppisitional) and i told him no more lollypops we know you cna go in the poddy and now expect you to everytime. i also know where are are coming from re: the change in reinforcers. this year he has figured out all the tricks (he is 10 now) he is a very large child 4ft10 and 80 lbs. and has figured out that he doesn't have to do anything for anyone if he chooses not too. so anything that USED to work.....lets just say i have had a heck of a school year! hope this can help you. take care kris 

Name: jacksmom | Date: Jan 28th, 2007 5:03 AM
Jack's story....

After the 12 mos. vaccines my son gradually slipped into autism. He was head-banging, hand-flapping, twirling, lost speech, lost eye contact and he just withdrew.

Now two years later.... no head-banging, no twirling, no flapping, has eye contact and is starting to verbalize again. And... he has Down Syndrome to boot. :) Yes... even kids with DS get autism. Actually they get it at a higher rate.

What helped him? First I give God praise.... our son wouldn't be here without Him and we prayed and I believe He guided us. Second... supplements. Especially cod liver oil. I recommend Green Pastures CLO with the X factor. Check out Dr. Mary Megson's work on the web. http://www.diet-studies.com/megson.html Our Jack healed gradually... but he is healing. I actually had to make myself GET USED TO him not twirling everything any more!

Also check out Dr. Amy Yasko's work. www.holistichealth.com

We give Jack alot of supps - cod liver oil, probiotic, magnesium citrate, tart cherry and recently we added cilantro. He takes some other things too but each child is unique. It helps to find a good naturopathic MD or chiropractor. Don't use supps until you research things for yourself. Cilantro for example...should possibly not be used until some other detox has been done.

Don't give up. There is hope! And... I will be frank here.... many mainstream doctors know squat about how to heal autism. Don't let that throw you. There are people who do know how to help. God bless you! Love, Jack's Mom :) [email protected] 

Name: roisin | Date: Feb 4th, 2007 3:22 PM
boy am i glad i found this site!!!!!!!!!
anyhoo, my son will pee just about anywhere yet will poo only in the loo, amazing little people these autistic kids! the only way i got him to use the potty was by finding stickers from his favourite show and sticking them to the po. i am also aware that he KNOWS how to use the toilet and like most little boys he's a bit lazy and can also become so engrossed in what he's doing he forgets. so every few hours i just have to go get him and set him on the loo, i never put a nappy on him and now he knows that pee and jeans are an uncomfortable combination. we also make regular toilet stops when we go out. 

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