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Name: Jessica
[ Original Post ]
My 4 year old nephew is showing all the symptoms of Autism. I am worried because my sister and her husband are not doing anything about it. When my sister finally told her pediatrician that he wasn't talking at the age of 3, he recommended bloodwork. He said they would check for Downsyndrome and Autism. My sister was relieved to hear that the results were negative. I have never heard of a blood test for Autism. I only hear of kids being diagnosed by evalutation. So another year has gone by, and he has not progressed in any way. He is still in pampers, still not talking, and still keeps pretty much to himself. We have had to buy all kinds of locks for the doors and windows of our home, because he tries so hard to leave. He has run away five times already. Three out of the five times were at night and he ran directly to a busy intersection. I am so scared that if we don't find a way to teach him the danger of running away, we will lose him. Please help me. How do I tell my sister all this without insulting her parenting?
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Name: Mary | Date: Feb 17th, 2006 12:01 AM
Read....learn... then help your sister to understand.

This site is amazing....

www.generationrescue.org

Also.......
Autism
Society of America
http://www.autism-socie
ty.o
rg/
site/PageServer

Autism
Resource
s
and
articles
http://www.reedmartin.c

om
/autismresourcesandarticles.htm

Teac
h
you child sign language. Autistic babies, toddlers, kids can learn this quickly and it cuts down their frustration in not being able to talk directly to you.

A few links are:

http://www.deafhomeschool.com/stud
y/lang
uages/aslhearing.html

http://ww
w.signingbaby.
com/why.html

http://www
.signingtime.com/

h
ttp://www.signwith
me.com/default.asp

http://w
ww.babysig
ns.com/index.cfm?fuseaction=aboutus.ma
in
 

Name: Tiff | Date: Feb 17th, 2006 4:54 AM
Autism is a diagnosis that is hard to deal with. My husband didn't want to accept the fact because he thought it meant we were bad parents. I had to have the 1st evaluation done without him knowing and then I had to have him go to specialist with us. That's when she got in his face and told him if you don't except this you are going to lose him to it. Maybe you can get in touch with the pediatrician and tell him your concerns as an aunt and the research you have done. Explain to him you don't want her to know you came to him and he should just ask her how the child is doing developmentally and if there is any unusual sleeping patterns or behaviors. Make sure you tell him whats going on. I know this is a sneaky way but it would work and you wouldn't have to worry about insulting her parenting. 

Name: Eva | Date: Feb 26th, 2006 8:07 PM
It's so amazing that the pediatrician hasn't proceeded further. My daughter at the age of 3 mos. I knew something wasn't quite right. The pediatrician at the time kept making excuses like, well, some kids do this and some kids do that at different times, yadda yadda. I changed doctors. The new doctor said, rather than say nothing is wrong, I'll send you to someone who knows better than I. We were sent to someone who evaluated her, and I was right. She was in early intervention from that point on, till 3 yrs. old. Then she started full days at a special needs school...till 21 yrs. old. Your sister needs to change the doctor or find a special needs program in her area that can evaluate her child. 4 years old is too long to let it go without some educational intervention. 

Name: Tanya | Date: Mar 14th, 2006 9:59 PM
Just tell her. Give her information. She may not know what it is. 

Name: laurel | Date: Mar 17th, 2006 10:55 PM
Hi I am new to this board- but I belive that my niece is autistic- I am just wondering if you talked to your sister and how it went. My email is [email protected] maybe we could help eachother. 

Name: postscott | Date: Mar 27th, 2006 12:11 AM
Please contact Indiana resouce center for austism the number is 812-855-6508 free of charge!! all except phone call (long distance) They will give you ANY and ALL information needed. They have been a BIG help for me. My son is 23 yrs. old with autism.
God bless you.
any more questions e-mail me at [email protected] 


Name: Melinda | Date: Jun 1st, 2006 8:22 AM
Insulting your sister should be the last thing on your mind. The saftey of your nephew is the most important!!! Imangine him being killed in the intersection. How much thought would you put into insulting her. No, you would be kicking yourself for not saying something. Please HELP YOUR NEPHEW!!!! 

Name: Kim Mori | Date: Jun 29th, 2006 7:09 AM
I wouldn't be worried about what your sister thinks of you, she's your sister, she'll get over it! But you are right something need's to be done before it's too late! Try and have a heart to heart with her, get some information together and go out for a coffee and tell her of your concerns, be loving and help her through it! My son is 12yrs old with sever disabilities and has just been diagnosed with Autism, so it does happen, she need's to be aware of that! Hope it all works out for your family!
She is very lucky to have a caring sister like ''you''!
Cheers! 

Name: Bonnie Sayers | Date: Jul 4th, 2006 10:09 PM
get a copy of the CARS - childhood autism rating scale or visit autism research institute to ask some questions to see where your nephew falls on the spectrum.

Why not offer to watch the child and have someone come to the home for an evaluation. Get a book or print out some data for your sister and explain this to her that she needs to get her child evaluated and then move through the process to help her child. If not try her husband.

Good luck

http://autismspectrumdis
orders.bellaonline.com

Bonnie
Sayers 

Name: shica | Date: Jul 6th, 2006 5:19 PM
is she 

Name: Cindy | Date: Jul 17th, 2006 9:42 PM
I also have a sister that is taking care of her grandchild who is a 4 year old boy and I believe that he is autistic. I don't know whether to say anything or just wait until he starts preschool. He needs a physical before he can start preschool and I was hoping to find out when and where so that I can give the doctor a heads up before he sees the child. I feel bad about this but think the childs needs help. Hopefully I am wrong about the diagnosis. 

Name: Cindy | Date: Jul 17th, 2006 9:49 PM
If somebody can help me I would appreciate it greatly. See my first letter above:
This 4 year old boy can only say about a handful of words. Repeats some words over and over. Screams all the time because he cannot tell her what he wants. Also he stares at me when I am in the room like he is confused. He will just come up and hit me in the back for no apparent reason. He just got potty trained a month ago. Also when my son goes into the bathroom and shuts the door this boy just goes crazy. He screams and cries for no reason. Just because he doesn't want the door shut. I don't understand why nobody in the family notices anything wrong but me. Everybody wants to blame it on being spoiled. IT"S NOT. I've been around my share of brats and this can't be the reason. 

Name: Cindy | Date: Jul 17th, 2006 9:55 PM
I forgot to mention that this boy doesn't get sick often so he hasn't been to the doctor since he was one years old. I was hoping if he went to the doctor that maybe somebody would catch this. I would really like to mention this to my sister before he starts preschool so that she can get some help. But, my mom says to stay out of it. It is on my mind everyday. Thanks for listening. 

Name: michelle | Date: Jul 25th, 2006 1:47 AM
Greetings Jessica, I can understand your fears, sometimes it is better that we go to out pastor or someone close to the family sometimes our relatives will receive from others. First ask God for wisdom. 

Name: Hello | Date: Jul 25th, 2006 10:37 PM
Jessica some people need a push and your sister might be one of those people. I was in you sister boots a while back I thought there was somthing wrong with my son but if i didn't acknolege it then it would go away. My sister had metioned autism to me and to begin with I was hurt because a part of me I felt wasn't born right. He wasn't "normal" and I didn't want that pointed out to me. (Of course he is normal because what is normal anyway? : ) I got over it and took him in to the doctor and we're awaiting more testing. I thank her for being forward. she gave me the kick in the butt I needed. I would talk to your sister better she do something now than later. I would print this site off or get he to look at it. I would also print some information about autism and treatments for her to read through. Tell her you love her and your nephew and that you would never do anything to hurt her. Caring is never wrong. Take care. Good Luck!! 

Name: Linn | Date: Aug 2nd, 2006 12:15 AM
Hi Jessica - there is no blood test for Autism only evaluation so you are correct. Tell your sister your concerns for your nephew and he needs to be evaluted as soon as possible. You are not insulting her parenting as that has nothing to do with Autism. If your nephew has Autism the sooner he is enrolled in a special education program the better off he will be. Best wishes 

Name: Cathleen | Date: Aug 8th, 2006 5:48 PM
Dear Jessica:
First of all there is no blood test for autism. She just told you that so you would not bother her about your suspicisions that
your nephew is autistic. It sound like you're too close to the
situation to be effective. You may want to have someone outside the family just happen to notice that there is something
odd in the child's behavior and suggest that your sister have
your nephew tested now.
The problem with this denial is that with autism you have to start early with working with them. It's a long road. My son was 2 1/2 when he was diagnosed by Easter Seals. We were told to put him in school right away. So we did. Your sister needs to get her son in school because when she tries to get him into kindergarten the school will have him put into a special needs class. Good luck! 

Name: elphick family | Date: Aug 9th, 2006 3:44 AM
Hello Jessica,
not many parents like to hear that there maybe something wrong with their child, however your nephew very much sounds like he is autistic. When he starts kindergarten i'm sure that the teachers will pick up on his delays and will get an assessment done on him. I've been there done that!!! my son had the blood tests done too and they came back " normal" you can not pick up autism through a blood test! that i know for sure.
take care and good luck as i think your sister is going to need your shoulder to cry on
Lela 

Name: jacksmom | Date: Jan 28th, 2007 4:58 AM
Hi. I don't have an answer regarding your sis. But maybe there is some info. below that would help your nephew.

Jack's story....

After the 12 mos. vaccines my son gradually slipped into autism. He was head-banging, hand-flapping, twirling, lost speech, lost eye contact and he just withdrew.

Now two years later.... no head-banging, no twirling, no flapping, has eye contact and is starting to verbalize again. And... he has Down Syndrome to boot. :) Yes... even kids with DS get autism. Actually they get it at a higher rate.

What helped him? First I give God praise.... our son wouldn't be here without Him and we prayed and I believe He guided us. Second... supplements. Especially cod liver oil. I recommend Green Pastures CLO with the X factor. Check out Dr. Mary Megson's work on the web. http://www.diet-studies.com/megson.html Our Jack healed gradually... but he is healing. I actually had to make myself GET USED TO him not twirling everything any more!

Also check out Dr. Amy Yasko's work. www.holistichealth.com

We give Jack alot of supps - cod liver oil, probiotic, magnesium citrate, tart cherry and recently we added cilantro. He takes some other things too but each child is unique. It helps to find a good naturopathic MD or chiropractor. Don't use supps until you research things for yourself. Cilantro for example...should possibly not be used until some other detox has been done.

Don't give up. There is hope! And... I will be frank here.... many mainstream doctors know squat about how to heal autism. Don't let that throw you. There are people who do know how to help. God bless you! Love, Jack's Mom :) [email protected] 

Name: Mel Mel | Date: Jan 31st, 2007 2:05 AM
Dear Jessica,
Just tell her that her son is autistic he shows the signs of autisum. That she needs to get him tested my a nurologist and a psychologist a blood test can not detect autisum. 

Name: sylvia0366 | Date: Feb 1st, 2007 3:04 AM
Hi Jessica, my sister was in the same situation as you are, she did not know how to tell me about my oldest son, who is 12 now, back then he was 3 and only using 1 word sentences, at the beginning I was kinda of upset that she even suggested that anything can be wrong with my baby, but I eventually did and that is when I got the diagnosis of Autism, it was very hard to accept but now I think back if she had not pushed me I would have let it go till he was much older and it would have been harder for him. He is 12 and is a very high functioning Autistic kid, you would never know that he has autism. I had blood work, cat scan and even an MRI to rule out Autism and they all came out normal. Only a Neurologist and Psychologist can really give you the diagnosis of Autism. Just tell your sister, she will probably be mad and hurt, but in the end she will thank you. Good luck 

Name: roisin | Date: Feb 4th, 2007 2:42 PM
sensitivly, yet quickly. her doctors a moron by the way you may suggest changing that too. my boy, ciaran, is four years old and he went through lots of evaluations and hearing tests for his speech. how her doctor didnt even do as much as that is dumbfounding. one thing though, everyone said to me, and still do by the way, "You should do this and do that" noone said,"I realize this is distressing for you,i'll come with you and support you." i hope this helps 

Name: jnnfrstark | Date: Feb 21st, 2007 9:37 PM
when my child was born(1998) i felt somthing was wrong. everyone including my mom said he was perfect. at 1 week,2 week, 1 month...well you get the idea,my ped. said all babys develop different rates. by the time briar was almost 3 and i was tired of fighting with the doctor i had to threaten to goto his supervisior because i felt he was not doing his job as a ped.he finnally sent me to are childrens hospital(riey indianapolis,indiana)the told me within 20 minutes hes autistic.so i know its hard sometimes weather its your family doctor or a loved one. the web autism society of america should get you started.also CAN ,ure autism now is wonderful!! good [email protected] 

Name: niffer66 | Date: Feb 22nd, 2007 2:57 PM
Jessica,
I think thAt a good way to help your sister to understand it to tell her that 1 in 150 children have autism. That way she will not feel as if it is a rare disorder. It is actually quite common. However, you must tell her now!! Everyday lost is hurting that child. 

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