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Name: rachtwins
[ Original Post ]
I have two, 2 1/2 year old boys in the process of being checked for autisum. What an emotional time, one day I'm happy another I'm sad. I know that they have something wrong with them I just don't want it to be this but deep down I know it is. I was hoping to share some of the things my boys did in the hope that others could recognise these things as autistic characteristics.

Flapping hands
Twirling objects
no eye contact
no speech
no verbal understanding
no prentend play

They are however very affectionate and love to be cuddled and kissed and interacting with you. If I was to go out and leave them they would be upset and cry. If they want something they take my hand to it for example a drink, they will get out the cordial put it on the bench put their cup on the bench next to it then lead me by the hand to it.

Is anyone else out there in a similar curcumstance to me?????, please let me know.
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Name: clarissa5 | Date: Nov 14th, 2006 4:18 PM
I know how you feel and its normal to feel that way. My son is 3 almost four and while I was reading this I couldnt help but think of my own son. Everything that you said your boys do or are not doing, My own son does and also does not speak. He has Autism. I hope that things get better for you. I know this may not sound like much right now but I wish you and your son's the best of luck! and if you ever need someone to talk to you can email me at [email protected] because I also would like someone to talk to. 

Name: Lynne | Date: Nov 14th, 2006 5:27 PM
Hello,

I have a son that just turned three in July. He is autistic. It's hard to come to term with having a child that is Autistic. I still remember the day when the Doctor told me, I was heart broken. Just this past week when I was out shopping I was looking at the other boys that were about his age and how they were talking to their Mothers and I couldn't help but hurt for my son, I guess I was hurting for me too. My son too, is loving and the sweetest soul on this earth. He does what you have explained that your son's do. I have to say though, for two years old, they are bringing you to their cup, that is VERY good! A lot of Autistic children won't even do that. My best advice to you is educating yourself as much as possible, this has done wonders for me and my child. Early intervention is the key. Call your local Child Development Service Center and get the ball rolling. There is a lot of help out there and wonderful people who will help you and your beautiful sons. Don't be lazy, no time to lose. They are doing wonders now with these children, some you can't even tell they are Autistic. My friend started early with her son (and he was pretty servere) you can't even tell he is Autistic anymore, he is now 8. Lot's of love and patience. These precious boys came into your life for a reason and there is a reason why GOD chose you to be their Mother. Hang in there, the road can be very difficult at times but nothing you won't be able to handle. Take Care and God Bless! 

Name: Becky | Date: Nov 14th, 2006 5:29 PM
My oldest son has not been checked and all his teachers and myself want him to be he dose the hand flapping thing and twirling things drage him away .And my yongest dose have ASD and he dose theno speach or eye contact and no prentend play and leads you to what he wants we have been able to place him into a program called CAB and he also has had eirley intervention and in the past year we have had great progress so if you need a friend my name is Becky email me at [email protected] 

Name: elphick family | Date: Dec 22nd, 2006 12:14 PM
hello, i so understand where you are coming from. My son was diagnosed with autism 12 months ago, he is now 5 1/2 yrs old. I had taken him to the childrens hospital where they told me he wasn't autistic but had autistic traits. But when he started kindergarten ( he also couldn't speak) they refered him to Autism Sa and within 3 hours they diagnosed him as being considerably autistic!! my son too had and still has all those symptoms that you have listed too!! he also likes to walk on his toes and has a lot of sensory issues! take care Lela 

Name: mondo | Date: Dec 22nd, 2006 4:10 PM
Hi,
I am sorry you are having a hard time, it surely isn't easy but know that special children are given to very special parents. Once you get past the initial recognition, things fall into place and you will realize how special you really are to have been given this challenge which without doubt will wake all of your being to the real beauty of life and its fragility. Your sons will enlighten you. God does not cause these things, rather, He gives strength when its needed, something some might not acknowledge but it is a gift to realize it, keep looking at your boys with your heart, that will get you through thick and thin...God bless you and your boys and have a Merry Christmas. 

Name: dana_carmela | Date: Dec 22nd, 2006 9:46 PM
The main thing you have to do right now is take hold of the fact that yes your child is Autistic and the next thing you need to do is start treating it and reversing it! Your doctor will paint a terrible picture for you, but time is crucial and you need to take ownership and start treating it! Find a DAN doctor immediately don't waste time with your reg. medical doctor's. 


Name: Learning Autism Style | Date: Dec 23rd, 2006 4:49 AM
Hello Needing a friend:
I am a teacher of Autistic children, and there are many aspects of Autism that require an observant Mom like yourself to recognize that they do communicate, as you have shared in your note.

There are research-based communication systems that will help your children expand their language comprehension. The formal name is Picture Exchange Communication System (PECS).

Start small by taking a picture of one of their favorite toys, pictures of Mom and Dad, pictures of things they choose to play with as a way to establish the practice of teaching them to ask for what they want in a variety of ways.

Make these pictures up in smallest size you can get and adhere them to a strong piece of cardboard cut to the same size as the photo, then wrap them in contact paper.

On the back adhere a small piece of (male side) Velcro, and get a strip of card board about 4" x 6", and put a strip of Velcro (female) side down the center.

This is a communication board, and we have students who use this to ask for what they want by identifying pictures and placing them on the "choice board-communication board".

It is a simple way to start, so when they are in school later, they have some idea about what the purpose of a communication/choice board is and how it works to ask for things or activities.

There are six steps or phases of PECs used by nonverbal learners, and many Autism learners use language and PECs to various degrees as they mature into their chronological age over time.

Take a picture of each child giving and getting a hug from Mom, because there will be some moments as they develop that you will know they need a hug, even when they don't think they need a hug.

There are many Autism specialists affiliated with your local Regional Center who can help you set up PECs in your home so your boys learn many aspects of living using picture systems.

There is so much research and love in those who work with and teach Autistic learners, and I wish you many loving relationships as your boys continue to grow. Be well Regards Autism teacher 

Name: mtene5 | Date: Dec 27th, 2006 4:21 AM
I have one autistic son who is three who seems to be very similiar to your boys. I have a daughter who is also autistic but is not affectionate and cannot even take a drink from the refridgerater. I think autism is very difficult to accept but I have one child who is autistic and affectionate and another who is autistic and not affectionate and I must be honest and tell you that I find my sons autism much easier to deal with because of his ability to show affection then my daughter's who is not interested in any sort of touching, cuddling, kissing, or playing. I believe that my son who is 3 and a half and non vocal will learn to talk and understand talk later in life and be able to function because he is social but I am not so sure about my daugher. I would be grateful that your boys are teddy bears and I do believe that speech will come just a little later in life then average children. Being able to get their cups is amazing. My daughter is almost three and can only drink from a bottle. She cannot even hold a cup. I truely believe your boys will be fine because I believe my son will also be fine. 

Name: Rhonda W | Date: Dec 27th, 2006 5:39 PM
Hi my dd will be two in feb and she does not talk yet.She will make noises but no words.If you call her name sometimes she will look at you.She has good eye contact though.But she will throw screaming fits sometimes for no reason.When she eats ,she will not chew her food,she just swallowa everything whole,so you have to chop her food very fine.She will only eat certain foods.She will carry toys around,but she dont make play with them.She only comes to you,if you hold out your hands to her.She will not feed herself,or even try.She wont eat candy at all.She moves her hands around alot.I am going to take her to see a dr pretty soon,i thought it was just a phase and she would start acting like kids her age,but i fear this is not going to happen.Im scared it might be autisum,does it sound like autism to you? 

Name: Scarlett Doyle | Date: Dec 28th, 2006 12:00 AM
Unrelated question, please. Were the boys premature, c-section babies or by induced labor? 

Name: gongju7 | Date: Dec 29th, 2006 4:26 AM
I started seeing the same traits you described in my son when he was around 18months. My background is in school psychology so I was somewhat familiar with the topic. With every doctor's visit, I'd ask his doctor, especially regarding the no speech, but the doctor simply said that children have a wide spectrum. It really wasn't until he started preschool at age 2 that his program director and teacher talked to me regarding his condition. Except for the no speech and no verbal understanding, my son is identical to your description of your twins. Even with my training, I was reluctant to get him checked out by the local regional center. I even went to get his ears check just to make sure that it wasn't a hearing issue, which it wasn't. I finally made the call and he was diagnosed with autism spectrum disorder after about 1hour and 45minutes the clinical psychologist. I went through the denial, anger, and now am at the acceptance stage. I started reading the book Facing Autism (can't remember the author) and it really helped me have a starting point. It can be very overwhelming but it is critical that you get them seen not by your pediatrician but a clinical psychologist who has experiences with children with autism. Depending on where you live, you can check with your local regional center (if in another state other than CA, ask your twin's dr.)

My email address is [email protected] if you do want to talk to someone. Since being in preschool, I have seen a lot of growth in him. The people at the school have been very supportive of Ian, my son, and I get reports from them when a milestone, for him, has been made. Before the preschool, his verbal understanding was almost nonexistent but it has increased greatly. He is also able to do hand motions to itsy bitsy spider, which I never imagined he would be able to do. Have faith that they'll progress...but get them diagnosed first then the intervention. I'm still waiting for Ian's intervention team to start...it's been about a month and still nothing. Good luck. 

Name: jacksmom | Date: Jan 28th, 2007 3:48 AM
After the 12 mos. vaccines my son gradually slipped into autism. He was head-banging, hand-flapping, twirling, lost speech, lost eye contact and he just withdrew.

Now two years later.... no head-banging, no twirling, no flapping, has eye contact and is starting to verbalize again. And... he has Down Syndrome to boot. :) Yes... even kids with DS get autism. Actually they get it at a higher rate.

What helped him? First I give God praise.... our son wouldn't be here without Him and we prayed and I believe He guided us. Second... supplements. Especially cod liver oil. I recommend Green Pastures CLO with the X factor. Check out Dr. Mary Megson's work on the web. http://www.diet-studies.com/megson.html Our Jack healed gradually... but he is healing. I actually had to make myself GET USED TO him not twirling everything any more!

Also check out Dr. Amy Yasko's work. www.holistichealth.com

We give Jack alot of supps - cod liver oil, probiotic, magnesium citrate, tart cherry and recently we added cilantro. He takes some other things too but each child is unique. It helps to find a good naturopathic MD or chiropractor.

Don't give up. There is hope! And... I will be frank here.... many mainstream doctors know squat about how to heal autism. Don't let that throw you. There are people who do know how to help. God bless you! Love, Jack's Mom :) 

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