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Name: Tina Crain
[ Original Post ]
Hi my name is Tina,
I have 2 autistic children ages 5 and 6. They are eleven months apart, born the same year 2003. The oldest is more verbal but less social. My youngest can speak but prefers not to. You have to make him use his words or he would go all day without saying anything. I can't believe just being on the internet for a few days of just how many children today have autism. What is wrong with our world?
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Name: nads | Date: Mar 10th, 2009 9:36 PM
hi i have twin boys with autisim ,i would like to have a chat about this condition. 

Name: ramona | Date: Apr 6th, 2009 5:50 AM
hi mother of 2 im the grandmother of 11 2 are autistic my daughters 2 kids boy dayday girl baby ages 3 and almost 5 the older one started out talking then stoped the younger one never did talk family is everthing to my daughter she says with out us she said maybe she would have given them up we take the kids 3-4 days a week sound strange but we talk to them the same as any of the others and when they missbehave they get told the same might have to take theri hand and walk them threw maybe like picking somethimg up he threw on the floor hold his hand walk over tell him what he did was wrong then say pick p use your hand in his to help after what seems like a life time of over an over they learn he just started takeing meds for anziaty and will take some later for his ticks but since on his meds they can handle him better at home so now we take him on weekends im on facebook ramona rattler pipestone mn join as a friend come see the pitures talk with the mom 

Name: alex33 | Date: Apr 24th, 2009 7:54 PM
Hi my name is alex i have a 6 year old autistic son. my son has bathroom issues raging fits and doesnt talk very well. 

Name: alex33 | Date: Apr 24th, 2009 8:01 PM
tina i think whats wrong with the would is that nobody wants to accept our children for who they our and what they can do 

Name: mirs | Date: Apr 26th, 2009 3:00 PM
Hi Tina
I would really appreciate your advice if you don't mind on my nephew... He will be 2yrs old on 6th. July and he isn't walking (recently started a bum shuffle and can fly around) or talking at all - not too concerned about the walking as my sister has too older girls and neither of them walked early but she and I and my parents are very concerned as he is not is not communicating at all. We were both pregnant together and I have a little boy also who was born on 17th July so really there is only 11 days between them and he is great walking, talking running around I feel terrible for her as when she comes home she can see the huge difference between them and its very hard - he is a gorgeous child but mainly what he does is watch Baby TV and loves it if he doesn't like a programme on it he will let you know and is happy when you change channel My sister has recorded his favourites and plays the tape for him He wouldn't know me very well as they don't live here and only come home at school holidays so I haven't seen him since february but he definately has improved since the last time I saw hiom He actually shuffled over tome and cuddled my leg which would never happen before. He mainly would never make eye contact, rocks and moans ... No words at all... Doesn't like you to touch him Only Mommy's allowed do that but he would be ok with me changing his nappy or dressing him but if I just touched his hand or cuddled him He would not be happy.... My sister and her husband have brought him for all the tests and all came back clear He attended a specialist last Monday and she was very slow to dignose anything as he is still so young but is going to make out a list of things to do with him on a daily basis no matter who is looking after him He recently started in a creche which he hates.. Cried first few days now is ok but just sits there Has no interest in toys whatsoever but she advised to keep him going there 2-3 days a wk but that they will have to follow her recommendations also on a daily basis... Just really concerned What do you think? 

Name: mEm | Date: May 5th, 2009 1:34 AM
Hi mirs,

your nephew has autism. those are very clear signs. and nads, having two twin boys with autism can be quite the challenge. twins can sometimes be very reserved and to themselves, i suspect that being autistic would bring out that trait. i am the sister of an autistic brother, and he is autistic. he enjoys watching the numbers on the dvd player, and can sometimes be violent. he can be a complete stain on my family but also is my pride and joy. having autism in the family can be viewed as a burden, but i view it as a puzzle. if you can put the pieces together just right, the result is beautiful and dazzling. 

Name: mEm | Date: May 5th, 2009 1:38 AM
Hi tina,
i do not think there is anything wrong with our world. i have only lived with my brother for seven years and already i have learned so much from him. his accomplishments bring me more joy then i thought possible and i do not think there is any bond stronger than between me and my brother, or the closer in age bond between him and my little sister. he is only seven years old and already he dazzles me in so many ways. its true, sometimes he can be so frustrating i want to explode, but other times he can make the world a much brighter place. try not to think that god burdened you with autistic children, try and think that god thought that you were strong, happy, and special enough to raise an autistic child. 

Name: flaminjo | Date: May 12th, 2009 6:58 PM
Hi Tina,

I found this really interesting and encouraging article for parents.

source link: http://news.yahoo.com/s/ap/20090509/ap_on_

Leo Lytel was diagnosed with autism as a toddler. But by age 9 he had overcome the disorder.
His progress is part of a growing body of research that suggests at least 10 percent of children with autism can "recover" from it most of them after undergoing years of intensive behavioral therapy.
Skeptics question the phenomenon, but University of Connecticut psychology professor Deborah Fein is among those convinced it's real.
She presented research this week at an autism conference in Chicago that included 20 children who, according to rigorous analysis, got a correct diagnosis but years later were no longer considered autistic.
Among them was Leo, a boy in Washington, D.C., who once made no eye contact, who echoed words said to him and often spun around in circles all classic autism symptoms. Now he is an articulate, social third-grader. His mother, Jayne Lytel, says his teachers call Leo a leader.
The study, funded by the National Institute of Mental Health, involves children ages 9 to 18.
Autism researcher Geraldine Dawson, chief science officer of the advocacy group Autism Speaks, called Fein's research a breakthrough.
"Even though a number of us out in the clinical field have seen kids who appear to recover," it has never been documented as thoroughly as Fein's work, Dawson said.
"We're at a very early stage in terms of understanding" the phenomenon, Dawson said.
Previous studies have suggested between 3 percent and 25 percent of autistic kids recover. Fein says her studies have shown the range is 10 percent to 20 percent.
But even after lots of therapy often carefully designed educational and social activities with rewards most autistic children remain autistic.
Recovery is "not a realistic expectation for the majority of kids," but parents should know it can happen, Fein said.
Doubters say "either they really weren't autistic to begin with ... or they're still socially odd and obsessive, but they don't exactly meet criteria" for autism, she said.
Fein said the children in her study "really were" autistic and now they're "really not."
University of Michigan autism expert Catherine Lord said she also has seen autistic patients who recover. Most had parents who spent long hours working with them on behavior improvement.
But, Lord added, "I don't think we can predict who this will happen for." And she does not think it's possible to make it happen.
The children in Fein's study, which is still ongoing, were diagnosed by an autism specialist before age 5 but no longer meet diagnostic criteria for autism. The initial diagnoses were verified through early medical records.
Because the phenomenon is so rare, Fein is still seeking children to help bolster evidence on what traits formerly autistic kids may have in common. Her team is also comparing these children with autistic and non-autistic kids.
So far, the "recovered" kids "are turning out very normal" on neuropsychological exams and verbal and nonverbal tests, she said.
The researchers are also doing imaging tests to see if the recovered kids' brains look more like those of autistic or nonautistic children. Autistic children's brains tend to be slightly larger than normal.
Imaging scans also are being done to examine brain function in formerly autistic kids. Researchers want to know if their "normal" behavior is a result of "normal" brain activity, or if their brains process information in a non-typical way to compensate for any deficits.
Results from those tests are still being analyzed.
Most of the formerly autistic kids got long-term behavior treatment soon after diagnosis, in some cases for 30 or 40 hours weekly.
Many also have above-average IQs and had been diagnosed with relatively mild cases of autism. At age 2, many were within the normal range for motor development, able to walk, climb and hold a pencil.
Significant improvement suggesting recovery was evident by around age 7 in most cases, Fein said.
None of the children has shown any sign of relapse. But nearly three-fourths of the formerly autistic kids have had other disorders, including attention-deficit problems, tics and phobias; eight still are affected.
Jayne Lytel says Leo sometimes still gets upset easily but is much more flexible than before.

Name: flaminjo | Date: May 13th, 2009 9:44 AM
Hi Tina,

I found an interesting article on how the determined parents of an autistic kid helped him overcome his disease and now he is nearly cured.
Some one very rightly said in this thread that "treat autism as a puzzle,if right pieces are fit together result is beautiful"

Please visit this link: http://www.sfgate.com/cgi-bin/article.cgi?f

Name: cowboy | Date: May 14th, 2009 6:21 PM
hello i have a 5 yr old son with autism and he bite,s throw,s fit,s and doe,s not say a word only the occasional dad or hello he still is not potty trained it has been the fight of my life to get him to do it.he has speech therapy and ot .but i trying to find other people in my situation. I mean my nurelogist,s said I should stick him in a home for those type,s of people and boy he,s lucky my sister was with me that day i was thinking of throwing him out his 5th story window. but anyway my wife has left me and so have all my friend,s and would love to meet people in my situation who need,s a friend to talk to . 

Name: crashqueen | Date: May 18th, 2009 3:41 AM
im sorry Nads, please email me if youd like, do you live in Northern KY? I believe you write me like in march, but its been forever since i been on here, and i just somehow accidently saw your post to me. email me at [email protected] if youd like 

Name: crashqueen | Date: May 18th, 2009 3:44 AM
Right now i work with 8 different families with autistic children, and the world just pisses me off. I take these kids everywhere to do everything and i get so disgusted with how rude people are young and old. They are just so nieve of the world. And i say thing to people if they give me or the child a dirty look i ask what their problem is... 

Name: Bounty2009 | Date: May 20th, 2009 4:49 PM
Hey hun, sorry to hear about that. You should see if there are any local support groups in your area? There is also a special needs group at http://my.bounty.com/forums/ - hope thats a help. Autism is a prevalent condition, but there is loads of research out there and new techniques and therapies being developed all the time. Stay strong hun, and know that you are not alone. 

Name: oceanqueen09 | Date: May 25th, 2009 1:37 AM
hi tina, my name is cheryl and i have a son who was diagnoised olmost 3 years ago and has been a battle but now i think he has ODD and Conduct disorder as well as autism. he is olmost 8 in july but every day is tough.. i love him lots but cant wait for him to be on medication cause its our last remedy.
I feel so bad for him cause he has no friends cause of his behaviours and kids think hes strange.. 

Name: nathan | Date: May 26th, 2009 12:54 AM
Hello Iam a mom of a autistic boy who is is 8and I really need tofind a person who I can cry to and at the same time get excited about what my son can do.This is a new format that Iam tryingto hook up with a anothr mom who can understand what it is like to have a child who you would love to be able to have a simple converation with.To be able to just know what it is like not hearing mom I love you,and not just in parrot fashion.He can talk and can understand a few directions but you can not have a one on one conversation.So if your intrested please resond . 

Name: mommyme+3 | Date: May 26th, 2009 7:33 PM
my 5 year old son was recently diagnosed with aspergers and we are struggling to adjust. i feel as though the school has no urge to deal with him and just consider him a child with behavioral and emotional issues. his doctor has put him on add medication and the school and doctor both are fighting me on taking him off the medicine. he is picked on at school by the other children and when i take him in to school every day i feel like they are like "oh great here he is". he is a great child and just wants to fit in he just cannot. i understand your frustrations as my sister has twin 9 year old autistic children who are severe. the one boy has caused brain damage by rocking or banging his head into the walls. she was told that he will never be a functioning adult and will most likley need constant care. unfortunatley the rest of the world catorgorizes these children as being retarded, cold, and unaffectionate. hold strong because we know that on the outside these children seem out of reach but that is even more of a reasonto treat them equal to full functioning children. because they do love and hurt equally to other kids. i hope i havegiven you some comfort during this difficult time. 

Name: laurakrwjkm | Date: May 28th, 2009 5:20 AM
please see my post - Laura Woods 

Name: dalia_in_nevada | Date: Jun 18th, 2009 4:43 AM
I am writing you this letter in the hopes of some desperate
assistance in Nevada. I have a young Autistic adult son,
19yrs old, ( Vincent Ortiz ). I understand the dilema you are going thru.
You are not alone. I will be happy to talk to you any time, if anything
just to listen and support each other.
I will make this brief and to the point.
I am a single mom working many
hrs 7 days a week, savings is now gone in an attempt to pay
on my own for caregivers.
My son has severe "episodes" at which he can bite/scratch/pull hair or
all of the above. These behaviors all began over the last couple of
years and are progressively getting worse.He is 5 foot 10 185 pounds.
I am 5 foot 2. I can not restrain him when he attacks.
I desperately need HELP now.
There are NO group homes or facilities who take children and/or young
adults w/ Autism here in Nevada. The state treats Autism like it is a dirty word.
I am in fear for the safety of myself and my daughter as we have been
attacked a cpl times now without a caregiver here full time.
I was thinking there are several folks in the same dilema as myself
here in Nevada as well as across the country..
I would like to know if you could :
1.) assist with helping me open a
RANCH FOR AUTISM here in Nevada. Pahrump still has land low
priced and it's far enough out that folks who don't understand Autism
will feel comfy, yet it is close enough for medical needs.
I know exactly what these children need to make their life
complete and busy with a scheduled routine and space to roam.
I know that I could sucessfully provide the care and know how to
make it a wonderful structured environment for the children.

For instance:
an equestrian area
music program
arts n crafts
a green house
pool / spa
sand box
walking paths

2.) help / steer / assist me w/ getting some families
together that are looking for longterm placement for their
young adults where they will be loved and cared for as if we were there
ourselves. Home-like environment with plenty of activities to keep them
busy and fulfilled. We need 20 committed families that have a young adult
who needs the special care and guidance the Ranch for Autism will provide.
We all know as parents we can not be there forever for our loved ones.
I know I do not want my son to be institutionalized when I can't be there
for him any longer. Of course our children can have visits ( home or on site)
anytime. You may have the connections, knowledge to get this request
completed. You may know someone with acreage ( we need approx. 50 acres )
that needs a tax write-off, or a family member willing to donate.
Maybe help get a fundraiser, some attorney's, doctors, wealthy
folks. Get the community involved! I have faith in you. Together we can pull
all resources and do this.
I currently have an investor to meet/match up to $800K, which is about
1/3 of what we need to reach our goals.
Please contact me with any contacts / ideas that you may have.
God Bless!

Delia Power
360 Yacht Ave
Henderson NV 89012
[email protected] 

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