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Name: jackiejack
[ Original Post ]
Hi i am 24 years of age and the mother of an autistic boy of 5. He was diagnosed when he was 3 and i wasn't really sure what autism meant. I know how naive was i? Since the things have gotten worse not easier. I thought having answers would make everything better but it has not.
I now feel like i haven't really excepted the fact that he is autistic at all and i am just getting my head around it. I cry and feel sad like i can't explain i love my boy so much i have always wanted a son but it is so hard. His temper is alwfal he is violent and i don't know what to do please help.
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Name: scarlett1012 | Date: Nov 5th, 2007 5:56 AM
dear Jackie, don't worry. God is with you. have your son tested for mercury. I am not a doctor but i read alot on autism. I just had my kids tested for mercury , still waiting on the results. Also try not feeding him anything with dairy or wheat. as they call it the cfgf diet. If you read up on the internet about autism, you will find alot of answers. I did with my child and now he talks , not perfect but understandable. Good luck to you. 

Name: Ontario_Father | Date: Nov 5th, 2007 1:01 PM
Hello Jackiejack, we found out that my son was ASD when he was 2.5 years old. On Nov 14, 2007 it will have been a year since that day and I was like you. I love my son with all of my heart and I would cry so hard because I had no idea what to do. Since then, my wife and I work every day with him. Teaching him how to talk, etc. We have him on a Vit treatment, as well as GFCF diet, and we are treating him for yeast. @ the time of diagnosiss he was on the severe end of the scale. Now his is doing fine and will be starting school next year. He not only talks but communicates. Things do get better but you must learn about treatments for your son. You should contact a DAN doctor or look up Defeat Autism Now on Google. Work with him and treat it and things will get so mouch better. My heart does go out to you. Be strong for him. 

Name: BlakesMom | Date: Nov 30th, 2007 3:51 AM
Hi jackiejack. Every autistic child is different.....what works for one doesn't necessary work for all. My son (3 in Feb....diagn. at 19 mo.) was very self-abusive and aggressive. We tried the GF/CG diet for 12 weeks with no significant results. He absolutely was miserable on the diet and the only improvement noticeable was that his hand flapping decreased. I would rather deal with hand flapping than an unhappy little boy....he would not eat and was even more aggressive which I suspect was because he was very hungry all the time. I am not downplaying this diet as I know children it has worked with , but it was not right for my son and not right for many others. Does your son speak........is he able to communicate? Through various therapy techniques we learned that he had major senory issues. Now that we use pressure vests, motion (swings), oral sensory devices (chew tube and z vibe) --- along with Picture Exchange Communication, his frustration level has dramatically increased and he only exhibilts 1 or 2 aggressions a week vs. the 300 or so he exhibited in the past. What kind of program in school is he attending and how sever is his diagnossis? Insure that his programming at school is appropriate for his disability. Your son is autistic and you are his best advocate....you have to be strong for him. Take care of him and most importantly, yourself.......... 

Name: aprhere | Date: Dec 5th, 2007 11:23 PM
Hi my name is april. I am a 30 yr old mother of a 4 year old autistic son. Sounds like we are dealing with the same thing and behavior with our son. My son was aggressive too. Now my son takes risperdal at night. It a drug for bipolar disorder but now is used to treat aggression irritability in children with autism. Medication may not be the way to go in your case. Its just an idea. [email protected] 

Name: crofty | Date: Dec 6th, 2007 10:58 AM
Hi April, did you get the risperadol from just seeing a GP. I'm wondering if it might work with our youngest, he has a really bad temper now.
Do you live in the US, we live in the UK and seem to struggle finding out about medical interventions 

Name: aprhere | Date: Dec 6th, 2007 9:56 PM
Crofty
My GP sent us to Children Hospital to a Pediatric Neurologist

. He said that he has seen the best results out of this drug. I live in the US 


Name: momofabeauty | Date: Apr 27th, 2008 2:29 PM
Hi Jackiejack I am so sorry to hear this I know it is very hard! I have a little girl who is nearly 6 years old and was diagnosed in 96 with Autism, since then it has been a struggle . Right now we are dealing with aggression issues at school and at home. I know how you feel, if you need to talk please email me. 

Name: autismrecovery | Date: Apr 29th, 2008 3:05 PM
AUTISM IS TREATABLE TO FULL RECOVERY. SEE
www.son-rise.org or http://www.autismtreatmentcenter.org/ 

Name: mama2001 | Date: May 2nd, 2008 7:36 PM
dear jackie my name is stephanie i am from tacoma washington and i have a 6 year old son who has autism and he has a bad temper as well have you tryed getting him into aba therapy witch is a behavioral speailist have you tryed calming him down like hug him tight are kids love to have heavy things on them like had u tryed a doggy pillow cause are kids have sensory issues as well just try it for him where u put it on his back that helps my son calm down or have u tryed just holding him and telling him it is ok just show him affection let him know u love him and see what happens get back to me [email protected] 

Name: I know | Date: Jun 1st, 2008 6:32 PM
Hi jackie, you are completly normal! When I was told that my son wasn't "normal" I carried on, surprising everyone by how "bravely and head-on" that I dealt with it. 18 months later I remember breaking down and sobbing- finally allowing myself to grieve.
The best advise is to allow yourself to feel like you do. There will be some terrible lows and then something will click and it feels great. To be fair depending on our state of mind is how we see things. When I suffered with depression I decided that I was a terrible mother and that my son would be better off without me! Believe me, that's the last thing that I think now I'm getting myself sorted.
I know that it sounds awful but my way of life now is- hope for the best and prepare for the worst. This way you're not expecting too much from yourself and him.
I have to admit though with a child of 6 and possibly autistic you definately get newer challenges and it can be very hard. Just hang in there and give yourself some time for yourself as it's important that you re-charge the batteries too. Healthy parent- happy child.
All the best! 

Name: vicky35 | Date: Nov 12th, 2008 1:47 AM
hi i have a 3 yr old with autism and would love to chat to others with same situations, my partner thinks he has aspergers too life at present is one big challenge for me it has to be said i love them dearly though
email [email protected] to chat 

Name: Sunshine007 | Date: Feb 14th, 2009 4:25 AM
You are not alone, I am 37 years old, and am having a hard time with my sons diagnosis. You are not naive, hang in there, please chat. 

Name: weebo1980 | Date: Feb 17th, 2009 6:55 PM
Hello my name is nicola fry and iam a 3rd year photogprahy student. my project is on autism awareness and iam looking for familys with people with autism to help me with my project, if you are interested please send me an e-mail and i can tell you more about the project and more about me and what i will need help with
thank you for your time i also have aspergers my self

Nicola fry 

Name: Tina Crain | Date: Feb 22nd, 2009 6:07 PM
Hello, I am new on the internet, but not to Autism. I have two sons ages 5 and 6 who both have Autism. They were diagnoised at 2 and 3 years of age during a pre-K screening. They both are very different even though I am told that they have the same degree of autism. (whatever that means) I have heared of the gfcf diet but have never tried it. I was told by a doctor whom I worked with that it would only work if your child was high tolerant deficientcy. I am not sure but would love to be able to chat with other parents. 

Name: saliff | Date: Feb 22nd, 2009 11:42 PM
Dear Jackie,
I am now retired after teaching special needs children for thirty years. I enjoyed great success with my autistic students. I found the younger the child was when I began working with him, the greater the success. My autistic kids were placed on a regimented structure schedule on day one. A schedule of the day's activities, altering as little as possible day to day, is vital. For my pre schoolers who couldn't yet read, I made schedules using pictures and velcro. The activity pictures were attached to a piece of black construction paper using velcro. Upon arrival the student knew to look at his schedule and begin the first activity. Upon completion of the activity, the student pulled off the picture and moved it to the opposite side of the construction paper attaching it to another piece of velcro. (If this was too difficult, the completed activity was removed and placed in a basket.) The student then went to the next activity. Every minute of the school day was planned.
If your son is speech delayed, he needs a communication book. I used individual photo albums from the dollar store, and filled it gradually with pictures of items so he could show me what he needed.
It's absolutely vital that you get your son placed with a good teacher NOW. You need to work as closely as possible with his teacher following up at home. I would suggest that you visit your son's classroom often, sometimes unannounced so you can see what's going on particularly if he has little speech. I would suggest you "pop" in with special treats for the class, offer to host class parties, go on field trips, etc...
Educate yourself! You have all the rights. Learn about an IEP and the IEP meeting. You can demand anything. Use your computer to educate yourself. Also, on the computer, visit your State Dept. of Ed.'s web site and read EVERYTHING regarding special education.
I found during temper tantrums that if I sat on the floor forcing the child into my lap and hugged his body tightlty while rubbing him it helped tremendously. Often, autistic children appear to become "lost" in their tantrum. Hitting doesn't help but usually worsens the situation.
I considered my classroom my ministry. I prayed often for my students and for guidance. Trust me, prayer works.
Lastly, I found that many parents spent so much time feeling guilty that they didn't enjoy their child. Right now, your child is as frustrated as you are, but it will get better particularly if you begin educating yourself so you can be assured your son is getting every possible advantage your public school system offers.
Jackie, you and your son will be in my prayers. If I can help you in any way, my email address is [email protected]
Take care, Sally Miller 

Name: dalia_in_nevada | Date: Jun 18th, 2009 4:52 AM
I am writing you this letter in the hopes of some desperate
assistance in Nevada. I have a young Autistic adult son,
19yrs old, ( Vincent Ortiz ). I understand the dilema you are going thru.
You are not alone. I will be happy to talk to you any time, if anything
just to listen and support each other.
I will make this brief and to the point.
I am a single mom working many
hrs 7 days a week, savings is now gone in an attempt to pay
on my own for caregivers.
My son has severe "episodes" at which he can bite/scratch/pull hair or
all of the above. These behaviors all began over the last couple of
years and are progressively getting worse.He is 5 foot 10 185 pounds.
I am 5 foot 2. I can not restrain him when he attacks.
I desperately need HELP now.
There are NO group homes or facilities who take children and/or young
adults w/ Autism here in Nevada. The state treats Autism like it is a dirty word.
I am in fear for the safety of myself and my daughter as we have been
attacked a cpl times now without a caregiver here full time.
I was thinking there are several folks in the same dilema as myself
here in Nevada as well as across the country..
I would like to know if you could :
1.) assist with helping me open a
RANCH FOR AUTISM here in Nevada. Pahrump still has land low
priced and it's far enough out that folks who don't understand Autism
will feel comfy, yet it is close enough for medical needs.
I know exactly what these children need to make their life
complete and busy with a scheduled routine and space to roam.
I know that I could sucessfully provide the care and know how to
make it a wonderful structured environment for the children.

For instance:
an equestrian area
music program
arts n crafts
a green house
pool / spa
trampoline
swings
merry-go-round
sand box
walking paths

2.) help / steer / assist me w/ getting some families
together that are looking for longterm placement for their
young adults where they will be loved and cared for as if we were there
ourselves. Home-like environment with plenty of activities to keep them
busy and fulfilled. We need 20 committed families that have a young adult
who needs the special care and guidance the Ranch for Autism will provide.
We all know as parents we can not be there forever for our loved ones.
I know I do not want my son to be institutionalized when I can't be there
for him any longer. Of course our children can have visits ( home or on site)
anytime. You may have the connections, knowledge to get this request
completed. You may know someone with acreage ( we need approx. 50 acres )
that needs a tax write-off, or a family member willing to donate.
Maybe help get a fundraiser, some attorney's, doctors, wealthy
folks. Get the community involved! I have faith in you. Together we can pull
all resources and do this.
I currently have an investor to meet/match up to $800K, which is about
1/3 of what we need to reach our goals.
Please contact me with any contacts / ideas that you may have.
God Bless!

Respectfully,
Delia Power
702-942-0731
360 Yacht Ave
Henderson NV 89012
[email protected] 

Name: There IS Hope | Date: Jul 14th, 2009 2:52 AM
Hi. I work in a school district, as a special-education paraprofessional. I have been blessed to care for and help many different children of various ages, with a variety of challenges. I recently listened to / watched a woman share her incredible story of raising a son with autism. It touched me deeply. Her son was healed, a few years back, and continues to improve in his schooling. I ordered her book and found so much hope in her experience. Hope that applies to everyone, including families with autism but not limited to only autism. My heart goes out to all. If anyone is interested in the details of the book and the radio / t.v. program, please e-mail me at [email protected] (Since it is my understanding that some things cannot be posted.) With excitement, encouragement, and heart-felt appreciation and compassion to every family touched by especially autism...There IS Hope. 

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