Home » Pick Your Crowd » Autistic Child » None of my friends "get" what it's like.

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Name: johnnywantsme

[ Original Post ]

My youngest child is 5 1/2 and she is LOW functioning autistic with elopement, mute, along with a few other issues and my husband works six days a week, 10 hrs a day. We have almost zero family support and limited resources. To add to this, I am disabled with PTSD that has left me with ADD and a profound memory disorder. She is becoming so hard to raise that I have told my husband we should consider putting her into a home. He doesn't want that and I really don't either. He recommended I find a chat room to find a peer who understands, because my friends are sympathetic, but they really don't "get it". I am always helping my friends solve their problems and figure things out, but parenting an ASD kiddo is a whole different world of parenting challenges only those of us who live there, can truly understand. ↓

Name: wayneh1252 | Date: Oct 13th, 2012 11:25 PM

My 5 year old is high functioning and he is difficult. I have no idea what you are going through, but I know that most people are clueless as to what we go through each and every day. My son is afraid of the potty. He will not train. He eats sporadically at best. Good luck, it is very trying, very difficult. ↑

Name: oliviamanda2 | Date: Oct 25th, 2012 2:19 PM

Don't give up. It sounds like a tough situation. A friend of mine has 2 ASD children. I don't know how she does it and her husband doesn't help very much, just goes to work and does his own thing. There are lots of resources and support groups out there. You need to find and build a network of support. I know, it's easier said than done. Your child needs you and your love, even if she can't show you in return. Maybe if you can get help for yourself she will benefit from it also. Maybe your other kids can help out more, too? ↑

Name: A mom who gets it | Date: Oct 29th, 2012 7:14 PM

I come with a much different perspective on your family's situation. If you would like real solutions, email me: [email protected] .

If anyone else feels they've hit the wall, this message is for you too. No judgment. Just real life solutions and a helping hand. ↑

Name: wayneh1252 | Date: Nov 15th, 2012 1:56 AM

No one really can get what we are going through. Sometimes my wife and I laugh when we realize we aren't always sure about what is happening. None of our friends and family get it mostly because they spend little time around it. Wish I had advice.

Good luck. ↑

Name: Grandma Karen | Date: Jan 1st, 2013 8:30 PM

johnnywantsme
My grandson always wanted me and when faced with someone else taking my place due to my hospitalization, he told my sister that she would never be grandma. My grandson displays all of the negative behavior of autism. He is 12 yrs. old and has been in a group home for 2 months. I love him dearly, but realized that I could no longer care for him physically or emotionally. PTSD and ADD are difficult disorders in their own right. It is a hard decision to place a child that you love with every fiber of your being. Good wishes to you and your spouse. God bless and help you both to care for your special child.
Karen ↑