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Name: gozlinchick
[ Original Post ]
Hey everyone.. I am new, my name is Kelly. My son, Aidan is 3 years old, and we have been trying to get him an autistic eval. He has been going to school, thru the school district, and they seem to think he is not autistic. When I took him for his 3 year well visit, the DR. said to have him seen by a developmental pediatrician.... He was also seen by a genetisist, who said the same thing. My whole issue, is that we do not have health insurance (a whole other topic...) and I don't know that we can afford to have him seen by a specialist.... Should I just go with the school's :instinct"... are they qualified??? We live in SC. Any suggestions would be greatly appreciated.... My son definatley shows signs of autisium.... but not severe... I know it is a spectrum, and I just want to get him as much help as possible, if needed!
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Name: KellyMarie | Date: Aug 19th, 2006 10:27 PM
Hi Kelly! I have a 2 and a half year old son whom we think is mildly autistic. We are waiting to have an eval done on him also. My advice is that if you think something is wrong, it probably is, and I would never take the advice of someone who is not a medical professional. In fact, we were told by my son's speech therapist that he probably didn't have autism also. He can be so "normal" and charming much of the time. If you are around him all day, though, and observe how he behaves during mealtime, bedtime, etc., it is obvious that things are not right. You may want to check into free healthcare in your state. I am in Pennsylvania, and though we are above the income limit for Medicaid, we qualify for free healthcare because our son is considered disabled due to his speech delays. We had an original evaluation by the county we live in. Well, anyway, don't know if this helps. I'd love to chat more by email if you'd like. Sometimes some encouragement is nice. : ) [email protected] 

Name: jacksmom | Date: Jan 28th, 2007 4:56 AM
Jack's story....

After the 12 mos. vaccines my son gradually slipped into autism. He was head-banging, hand-flapping, twirling, lost speech, lost eye contact and he just withdrew.

Now two years later.... no head-banging, no twirling, no flapping, has eye contact and is starting to verbalize again. And... he has Down Syndrome to boot. :) Yes... even kids with DS get autism. Actually they get it at a higher rate.

What helped him? First I give God praise.... our son wouldn't be here without Him and we prayed and I believe He guided us. Second... supplements. Especially cod liver oil. I recommend Green Pastures CLO with the X factor. Check out Dr. Mary Megson's work on the web. http://www.diet-studies.com/megson.html Our Jack healed gradually... but he is healing. I actually had to make myself GET USED TO him not twirling everything any more!

Also check out Dr. Amy Yasko's work. www.holistichealth.com

We give Jack alot of supps - cod liver oil, probiotic, magnesium citrate, tart cherry and recently we added cilantro. He takes some other things too but each child is unique. It helps to find a good naturopathic MD or chiropractor. Don't use supps until you research things for yourself. Cilantro for example...should possibly not be used until some other detox has been done.

Don't give up. There is hope! And... I will be frank here.... many mainstream doctors know squat about how to heal autism. Don't let that throw you. There are people who do know how to help. God bless you! Love, Jack's Mom :) [email protected] 

Name: Lauri | Date: Jan 31st, 2007 5:35 PM
Don't trust the school system. I live in Maryland and they do not offer anything that is not required. My daughter has Asbergers syndrome. Read some and learn about the different aspects of the autisum spectrum. If you think its a more severe case spend the money to get a diagnosus so that you can qualify for special services. (paid for by the state) (you may also be able to get medical assistance) It would be more from the state than the school. Early intervention is extremely important but you can't do it all at once. Take a deep breath and set goals, this is a long road and you can easily get burned out. My daughter is 15 and doing amazing!! She was not diagnosed until age 11. Good Luck... 

Name: ruth | Date: Jan 31st, 2007 6:40 PM
Hi my name is ruth, i know how you feel when the school is not so much of the help. first of all find out they are programs that will help you to write off the cost of your eval. it cost a lot although we have insurance we were not able to pay everything so call your hospital and find out your options because if he is autistic he needs a special school it sad to say that the school district around the country are not to much of help when it comes to kids with dificulties. Specially when they can't see the problem my son has high functional autism and is like an invisible disorder for those how don't know him it looks like a normal kid and it's really hard because the firts thing they think is the your son is a spoiled kid and it's not that. Good luck 

Name: ltl | Date: Jan 31st, 2007 9:23 PM
Hello gozlinchick. If i was in your shoes, and again, this is just my opinion, ok?....if I was in your shoes, and you don't want to spend the money on specialist, then I would suggest looking into getting him into some therapy to strengthen area he's weak in, for example, speech therapist. Although the school may not think he's autistic, but if he is delayed in speech, he should be qualify for school services...or in whichever areas he may be weak in and hopefully be qualified. Goodluck 

Name: BriansMOM | Date: Feb 11th, 2007 11:17 PM
Hi Kelly..I think that the school district is the best place to start they are qualified to diagnosis him but a developmental pediatrician will be more detailed, if you have any interest in biomedical treatment or any other alternative treatments 99% of insurances will not cover it anyway....What makes you feel that he may be autistic? I think as a parent you just know when something is different with your child. Worst case scenario is if you still feel unsure with the school district then go to a Developmental pediatrician or clinical psychologist. Hope this is helpful 

Name: ltl | Date: Feb 12th, 2007 4:26 AM
Hi Gozlinchick, my opinion is go with your instinct...mother's instinct is very powerful. I understand that you don't have insurance, but if you bite the bullet and take him to the developmental pediatric, you then will receive a diagnosesi. If your son is diagnosed as having autism spectrum, the doctor will also give recommendations on therapy treatment. You can take that to your son's school district and get free therapy services through the school. Remember, EARLY INTERVENTION IS SOOO IMPORTANT!!! I don't know what the law is for SC, but here in Texas, the child under 3 receive free services through ECI (Early Child Intervention), and when a child is 3, he/she receives free services through the school if the child is qualify. So no, do not trust the school...they will not give any services if they feel he is not qualify. Go with your instinct, his pediatric, and his genetisist's instinct. 

Name: SThomas | Date: Apr 11th, 2007 9:17 PM
do not listen to anyone about your child. you already know that there is something wrong! I found out my son is autistic 2 months ago. we do not have have insurance either. If you love your son you will find a way to teat him. The school system has to help you. If they wont go to a spcialist. It is worth it. If he is the sooner he gets thearpy the better quality life he will have. I can probably tell you somethings that will help you out if you tell me some of his simptoms 

Name: karebear28 | Date: Apr 12th, 2007 4:14 AM
Hi Kelly. I am also new here and have concerns about my 27 month old son. The doctors didn't think that anything was wrong with my son. But i as a mom am going by my instincts. I have a team of developmental teachers that come to my home. The first group came and tested hearing, listened to my concerns and things that I thought as a parent were not right. They also tested his eyesight. His eyes and ears are good. But even if you don't have a child in public school try contacting your local school system they might have there own types of teams to help you and it's all free. I contact my local team throught what is called HeadStart. It maybe called something different where you are (Michigan here) but check around 

Name: linkeysmomma | Date: Apr 19th, 2007 4:22 PM
Hey, my name is Kristin and I have concerns that my 19 month old has autism too. We also live in South Carolina. We have medicaid for him cause my husbands insurance wouldn't cover the expenses that was needed to treat Lincoln.
Don't listen to anyone when you have concerns about your child. You instincts are much more powerful that ANYONE. I was lucky to have a good ped. that when I brought up the thought that Lincoln has something wrong. He gave me referrals to speech evaluation, hearing evaluation, and a child development specialist. We did the speech evaluation and his therapist was VERY concerned. So he is now in speech therapy 2x a week. We are on a waiting list for the child development specialist. Which I was told could take up to 8-9 months. But we are doing everything we can while at speech therapy.
Its hard to explain to people that he MIGHT have autism since we don't have definite diagnosis. But while waiting for everything to get finalized I just do everything I cant o help him at home. Cause I know it cant hurt. Autism or NOT! 

Name: dragonchuk | Date: May 17th, 2007 11:13 PM
You are very smart for trying to get some answers and help for your son. Don't give up if you notice signs you are his voice and you know your child better than anyone else. Don't let anyone discourage you. If your son shows some signs, that should be enough to get some help. Because early intervention is the best the sooner he gets help the better. Some of the things you can check into is at your local childrens hospital they may have some grant or financial aid they can give you for testing. I did that, I went to the hospital and got all the paperwork and was approved for the financial aid, which covered all the speacilist he had to see to be evaluated. My son was diagnosed Autistic. Also, I don't know how it works in your area, but you might have to be on a wating list for some time before he can even be tested. I think I waited for his appointment for atleast 6 moths if not more. And you might also need to be referred by the pediatrion for the special evaluation. Don't give up, stay strong you know what is best for your child. Tanya 

Name: jean h | Date: May 26th, 2009 5:51 PM
Hello, my name is Jean and Iam in need of some info about my sons speech. His school did not qualify him for services, but I know as a parent that my 6 year old needs help. What do I do, Who do I talk to please reply 

Name: There IS Hope | Date: Jul 14th, 2009 3:43 AM
Hi. I work in a school district, as a special-education paraprofessional. I have been blessed to care for and help many different children of various ages, with a variety of challenges. I recently listened to / watched a woman share her incredible story of raising a son with autism. It touched me deeply. Her son was healed, a few years back, and continues to improve in his schooling. I ordered her book and found so much hope in her experience. Hope that applies to everyone, including families with autism but not limited to only autism. My heart goes out to all. If anyone is interested in the details of the book and the radio / t.v. program, please e-mail me at [email protected] (Since it is my understanding that some things cannot be posted.) With excitement, encouragement, and heart-felt appreciation and compassion to every family touched by especially autism...There IS Hope. 

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