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Name: Fran
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Some days I am still confused about what my son actually has. He is diagnosed with PDD but the doctor said he isn't autistic. What the heck does that mean? Everything I read says PDD is on the autistic spectrum. Is the doctor just trying not to get us all upset? I even said to the doctor that I was surprised and thought he would have been diagnosed with high functioning autism or something like that. Does anyone else have a child on that fine line? My son can do so many things.....imitate, imaginative play, seek out others, prefers not to be alone, extremely affectionate, teases, fights with his brother. I mean so much "typical" stuff. He only has a few issues like speech delay, some inappropriate social skills, and a temper at times. Am I looking at a bright future for my son? I work so hard with him and I can't seem to find information that fits him because like I said he is on that fine line.....Help
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Name: jennmom1 | Date: Dec 15th, 2006 8:58 AM
Fran: I bet that is so confusing for you. My son was diagnosed with PDD when he was 15 months old and then they changed his diagnosis when he was 18 months old to autism. How old is your son? And, yes he can definetly have a bright future! Even my son who was dianosed with autism has a bright future! I know it! Where do you live? In California we have regional workers who help us get services for our children. If he is diagnosed take advantage of that and get him any and all services they can give you. All it can do is help him. I'm sure you are overwhelmed right now but hang in there it gets better and you'll learn that your son is extra special because of his PDD and he'll be a great asset to your life! (I'm sure you already know that :) ) If you have any questions or concerns or just need a parent to talk with feel free to email me at [email protected] Take Care!!! 

Name: dana6 | Date: Dec 15th, 2006 12:27 PM
our son has not been diagnosed yet either he is 2 today, they said he has a gross motor delay, mixed receptive/expressive language dissorder, overly tired, and sensory issues, and the neurologist said he saw early signs of aspergers, he goes back on jan 30 th so i am hoping they will give us some more answers, silas has a temper, and like to be alone, and does not watch tv of play with toys, he has a few toys he plays with and he won't expand on to anyting new. 

Name: niffer66 | Date: Dec 18th, 2006 1:16 PM
I am in the same boat. I do not understand the difference. Until you wrote that, I thought that PDD was Autism! I am very confused. 

Name: Ontario_Father | Date: Dec 18th, 2006 7:16 PM
Yes.............My son is on that fine line as well. We had a meeting with the doctor and he said that 2 of the 3 items where boarder line in order to diagnose him with ASD. She said she could diagnose him with ASD or Delayed Speech. It ended up he was diagnosed with ASD at our request for the extra help he would receive. I know sometimes it can be hard, but understand that Autism is a "Blanket" term that a number of conditions fall under, like ASD, Turet, PDD, Etc. Each one is specific and will have different traits. Hope this helps. 

Name: laceymb02 | Date: Dec 20th, 2006 3:55 AM
my son is 5 and was diagnosed as pdd at 4 years. It is just a way to label them because they are not autistic but yet they are not completely "right" whatever they may consider as "right". Basically I see it as a way to get them the help they need at this time. should they need more help later i feel that his "label" will change. There are so many different forms of autism today that they are still trying to figure out exactly what each one is. All I can say is be strong and reinforce anything that they recommend you to do. Good luck and god bless. 

Name: Fran | Date: Dec 20th, 2006 4:08 AM
Laceymb02, thanks to you and all who have responded. My son is 4 1/2 years old and you said it so perfectly....He is not quite right yet not autistic. It is hard dealing with that because at times he can seem almost typical and other times quite the opposite. Many people expect more from him than he can do. (including myself at times) How do you deal with your son and what kind of challenges do you have with him? 


Name: lindacaperna | Date: Dec 20th, 2006 11:25 AM
It sounds like your son has Aspergers. Have you ever gone on the web site Elija.org It was founded by two parents of autistic boys. It has grown over the past few years, the information they provide as well as the seminars and lending library are amazing. I am a speech pathologist, and have been working with kids with autism for many years. Your son sounds amazing, your hard work is worth it. Elija has a clinic on Long Island called Effective Interventions, that is where the free lending library is. Hope this helps.
Linda 

Name: laceymb02 | Date: Dec 29th, 2006 4:13 AM
Fran, I feel your frustration, at times I too expect more out of my son but then I just have to take a deep breath and realize that their is an issue here. My son's name is Seth. He has overcome many issues with almost 2 years of speech and occupational therapy. At this point our biggest issue is food. He is very selective and to the point if I try something different he vomits at the site of it. This has been my biggest struggle. It is more difficult because I also have a 5 year old stepson in my home that is completely "normal". He has now picked up that his brother gets a special meal everyday and he doesn't get to pick. Anyhow, other issues were speech, which I find that lots of other things that we had problems with have been resolved now that we can all understand him and he understands us. I could go on forever. If you could tell me more specifics I could maybe give you some pointers on those situations. As for the temper tantums you must find that "grove" with him, just as any other child. Find the things that make him understand why you said no or why he is in trouble. My first suggestion is get him as much speech therapy as possible!! This is a big barrier break. Once you two can understand each other clearly, things become much easier! If you could email me it would be easier for me to respond.I don't get on here often. [email protected] 

Name: BluesClues | Date: Dec 29th, 2006 5:58 PM
Hi Fran. I have found that the diagnosis PDD is the catch all for being in the spectrum. Unfortunately, it really is not good if you are trying to get services for your child since I have found that if you have the autism diagnosis, it gets you more. No one wants that diagnosis but if you can get more from the schools, you should get the child reevaluated by another neurologist. 

Name: niffer66 | Date: Jan 1st, 2007 2:48 PM
So, is it correct to say tell someone that your son who has PDD is autistic? 

Name: Fran | Date: Jan 1st, 2007 11:05 PM
niffer66, I usually tell people (who I want to know), that my son has a mild form of autism. Except for the educated people on the subject, most people on the outside would not know that anything was wrong with my son except for a speech delay. I guess just tell people what ever you feel comfortable with. I am really trying not to get wrapped up in the "label". I still have my moments of course, like this topic I posted! I'm trying to treat my son just like any typical kid because I think in the end that will be best for him. Good luck to you through this journey! 

Name: BluesClues | Date: Jan 2nd, 2007 3:55 PM
Hey Fran! I am not one for having the society take care of me or my family. Never brought up that way. You say you are not wrapped up in the label. That is great for your personal home life but in order for you to get more services and help for your child such as an appropriate program at school, ot, pt, speech, etc etc, you need to use that label. The schools want you to not want to use the label b/c your child is a person and will focus in on that and meanwhile, it is doing greater harm for your child. We initially got a PDD diagnosis and it was changed to autism b/c the new dr said it pretty much was the same thing just PDD is a nicer way to put autism and you don't get as much services at the school. 

Name: Fran | Date: Jan 2nd, 2007 9:26 PM
BluesClues....We are getting 4 days a week of speech therapy, and 2 days a week of OT. My son attends the early childhood program everyday at school. I have been told by some people that we are getting better services than most schools. And he is still only labeled "developmentally delayed" at the school. They said I could change it to PDD, but it wouldn't change anything so I've left it for now. What kindof services do you get and how often? 

Name: niffer66 | Date: Jan 7th, 2007 11:45 PM
Besides whether or not I should tell someone that my child is autistic, is it politically correct to say that a child with PDD is autistic? 

Name: mtene5 | Date: Jan 8th, 2007 5:49 AM
I have a cousin who could not talk until she was around five and she now talks but not quite perfect. Her parents never got her help so I don't know what exactly a doctor might say about what she has but I think she has a few problems with communication. But she is fine and she is in special ed in high school and she has a very bright future. When you talk to her you can tell something is a little off but you also get the impression that she is just fine she just has some trouble saying what she really means even though she does talk. I really don't know what PDD is but I get the impression that it is something similiar to my cousin. If my autistic children turn out to be like her I will be very happy. 

Name: angelagarvis | Date: Jan 13th, 2007 4:52 PM
I have a child on that fine line, it's hard. it seems like you understand his needs, forgrt the title and keep on track with his needs. Ask yourself what do i want him to learn, and how can i teach him. Sometimes the professional don't understand maybe find anther dr. 

Name: jacksmom | Date: Jan 28th, 2007 3:30 AM
http://www.diet-studies.com/megson.html

My child healed so much from the ASD that his evaluators wouldn't say he had ASD. Yet he was head-banging, hand-flapping, twirling everything in site, lost speech and lost eye contact etc. after his 18 mos. vaccines. The cod liver oil and some other supps helped him so much that when we finally had him "officially" evaluated... he came off as non-ASD. But we know he's on the spectrum as he is still recovering some skills. And we finally found an MD to say he's on the spectrum.

It is hard to be borderline. Please read up on cod liver oil if you haven't learned of it yet. It's one of many natural things that can help autism symptoms. :) It works gradually and has the added benefit of boosting the immune system.
There's more Dr. Megson info on the web. Also check out Dr. Yasko at www.holistichealth.com. Love, Jack's Mom 

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