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Name: littleusagi85
[ Original Post ]
my 5 year old was diagnosed with autism educationally last friday, been sinking in, and we are waiting on his medical evaluation to be done. i've never been through this, we were close he had club foot when he was a baby, i don't know what i'm suppose to do to get ready i have no clue on the questions to ask his preschool to get help for us to help him. i mean they are coming up with plans asking me if its ok and i figure they know better then me and its still a shock but nice to know he will get help.
so my questions are these.
are there any points that i need to make sure to ask his preschool about?
what is the medical evaluation like is it like the educational one?
a friend pointed out i might need to change his diet, should i do that or should i ask his doctor about it?
what is the diet(kinda thing) that you put them on?
any tips?
i know autism is everyone is different but any help is better then i've been kinda not knowing what to do. and i've read stuff but i want some first hand info. thanks.
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Name: suzzydawn | Date: Apr 25th, 2010 1:51 AM
The 1st thing is that schools tend to fight and not give you anymore than they know you will fight for. I wish I would have fought harder when my son was younger. Get a book called Wrightslaw: From Emotions to Advocacy. It explains how to read the tests and understand them. It also explains how to deal with the school. Get copies of all school and medical records and file it all in a binder take it with you to all med appts and educ. meetings. Ask for copies if there are any new tests. Talk to other parents in your area, they will be the best at telling you good drs and schools and therapies. My kids are aspergers, they do have some stomach issues, but we don't do the diet. You can have tests for allergies. If you want details on alot of therepies and approches get Jenny McCarthy's book called Healing and Preventing Autism. It is a question and answer book that explains alot. From this moment on you are gonna probably have to fight for what you think is best for him. Unless another parent has a kid on the spectrum tell them you don't need their advice. They don't know how it is. Remember that you know your child better than anyone else. Alot of what is best will come to you naturally. 

Name: Jerry-Lee | Date: Apr 26th, 2010 6:04 PM
the diagnostic is terrible and the feeling of panic is almost inevitable. Years of reading and looking for information led me to the following :
1- the main problem is in the brain which does not produce enough of the one hormone called serotonin (which explains that docs often prescrive anti depressants to calm the kids)
-the symptoms are not the child, they are only the reactions of the child to the environment. Your child is in there, loving, intelligent, and miserable.
-nothing will really help if it takes care of the visible, like the behavior.
The school will suggest behavior therapy (ABA) you want to have all the details (will they sit on my kid when he has a fit? how do you deal with non compliance?how do you teach him (reward system, training, removal of priviledges?)
will you restrain my kid if he wants to get out of the classroom? I heard a lot of stories of parents seeing bruises on their children, one friend could see the shape of a chair in bruises on her daufhter's back!
Don't take advice from anyone. This is YOUR child. Everybody I know had a different opinion and if I had listened I would have lost it. Drugs, stem cells, osygen therapy and so many strange things.
Finally I found something myself on line. It is called MAPS. Several friends are doing it and they are very happy, mainly because it is nice to do, they see positive changes, the child is sleeping for example. They train you and you do it yourself at home and get support online or on the phone. it is really friendly and you don't feel so alone, but you are in charge.
there is a great book called "the brain that changes itself" you have to read positive books and again, don't take advice from people who are not the parents of that kid.
Don't let your chid down, take a deep breath and act yourself.
keep your chin up, there is light at the end of the tunnel, it is only autism after all
love
jerry-Lee 

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