Hello, guest
Name: kparvis74
[ Original Post ]
My daughter tuned 4 in April and was diagnosed in March as autistic. She has tons of personality and persistance!! She deals with alot of sensory issues that effect her daily. She still will not chew solid food and hates to wear clothing! She echos everything she hears, but doesn't communicate verbally very often. She is my blessing! She tought me more about life in her first two years than I thought possible!! I'm just looking for people to chat with and share stories. One of the areas I'm struggling most with right now is trying to find a way to calm her when she gets upset. She gets mad at me most of the time (for being in her space and touching her LOL)....but....It's hard to have a child so upset that they break out in hives and not try everything under the sun to calm her down!!
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Name: Justdad | Date: Jun 16th, 2009 1:04 PM
It can break your heart one moment and the next the smallest thing can give you joy. Calming outbursts is our biggest problem right now. It has been our biggest challenge since we began this journey two years ago.
It would be great to talk to someone outside of my regular circle who understands. 

Name: kparvis74 | Date: Jun 17th, 2009 1:56 AM
Feel free to email me anytime - [email protected] I still am unable to find a way to calm my daughter. She hates it when I touch her and I'm not sure what else to try! I have been on my journey about 2 years also. She was only recently diagnosed, but started when she turned 2. Even though I wouldn't change her for the world....I just wish I understood more what her little mind was going through!!! 

Name: dalia_in_nevada | Date: Jun 18th, 2009 4:38 AM
I am writing you this letter in the hopes of some desperate
assistance in Nevada. I have a young Autistic adult son,
19yrs old, ( Vincent Ortiz ). I understand the dilema you are going thru.
You are not alone. I will be happy to talk to you any time, if anything
just to listen and support each other.
I will make this brief and to the point.
I am a single mom working many
hrs 7 days a week, savings is now gone in an attempt to pay
on my own for caregivers.
My son has severe "episodes" at which he can bite/scratch/pull hair or
all of the above. These behaviors all began over the last couple of
years and are progressively getting worse.He is 5 foot 10 185 pounds.
I am 5 foot 2. I can not restrain him when he attacks.
I desperately need HELP now.
There are NO group homes or facilities who take children and/or young
adults w/ Autism here in Nevada. The state treats Autism like it is a dirty word.
I am in fear for the safety of myself and my daughter as we have been
attacked a cpl times now without a caregiver here full time.
I was thinking there are several folks in the same dilema as myself
here in Nevada as well as across the country..
I would like to know if you could :
1.) assist with helping me open a
RANCH FOR AUTISM here in Nevada. Pahrump still has land low
priced and it's far enough out that folks who don't understand Autism
will feel comfy, yet it is close enough for medical needs.
I know exactly what these children need to make their life
complete and busy with a scheduled routine and space to roam.
I know that I could sucessfully provide the care and know how to
make it a wonderful structured environment for the children.

For instance:
an equestrian area
music program
arts n crafts
a green house
pool / spa
sand box
walking paths

2.) help / steer / assist me w/ getting some families
together that are looking for longterm placement for their
young adults where they will be loved and cared for as if we were there
ourselves. Home-like environment with plenty of activities to keep them
busy and fulfilled. We need 20 committed families that have a young adult
who needs the special care and guidance the Ranch for Autism will provide.
We all know as parents we can not be there forever for our loved ones.
I know I do not want my son to be institutionalized when I can't be there
for him any longer. Of course our children can have visits ( home or on site)
anytime. You may have the connections, knowledge to get this request
completed. You may know someone with acreage ( we need approx. 50 acres )
that needs a tax write-off, or a family member willing to donate.
Maybe help get a fundraiser, some attorney's, doctors, wealthy
folks. Get the community involved! I have faith in you. Together we can pull
all resources and do this.
I currently have an investor to meet/match up to $800K, which is about
1/3 of what we need to reach our goals.
Please contact me with any contacts / ideas that you may have.
God Bless!

Delia Power
360 Yacht Ave
Henderson NV 89012
[email protected] 

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