Hello, guest
Name: nickg241
[ Original Post ]
Hi everyone, I'm new to this & looking forward to hearing from someone in a similar situation. My daughter Charlie is 8 years old & cant walk, talk or eat (ate till the age of 3 liquidized then stopped with no explanation) Charlie was 4 by the time she managed to sit on her own. Has reflux & also epilepsy which wasn't diagnosed till the age of 7 1/2. Things were hard at the start butmy love for Charlie has took over the bad now i just look at her & thank god for every minute i have with her, she makes me the happiest mummy alive :D. I'v never met another child who's symptoms are similar to Charlie's so would be great to get talking to someone in same position as myself xx
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Name: cinda | Date: Oct 15th, 2009 7:41 PM
I am new to this site as well. I have a 6 year old son name Brendin ha has cp, hearing loss, adhd, high risk of epilepsy- we was born with cytomegalovirus. My youngest son is 6 months old, his name is Benjermin, when he was 2 months old i found out he was born with DiGeorge Syndrome- heart defect. He had surgery asap, he is missing his thymus gland = no immune system. only time will tell on w2hat his future holds. I am 21 years old, I got to be strong for my boys and my husband. but deep down I really wish I had someone to talk to who understands.

if you would like to talk, my myspace is.


Name: nickg241 | Date: Oct 16th, 2009 9:20 PM
Hey there. nice eto here from you. lots of big words that i'v not heard of there, but we get used to it in our position. I will look up what you said so i can have a better understanding of it :) Not sure if im on myspace but will check it out. thanks for speaking :) xx 

Name: yasmine | Date: Dec 24th, 2009 4:11 PM

Name: yasmine | Date: Dec 24th, 2009 4:12 PM

Name: mira me | Date: Jan 9th, 2010 5:48 PM

Name: Adam | Date: Jun 7th, 2010 3:29 AM

My Daughter is now 10 years old. She has an undiagnosed condition. She cannot Walk has and has very limited balance.

Is there someone that could help us get her walking? Or anybody out there with a child with similar symptoms?

My email is [email protected] if anyone has any suggestions or think they could help us.

Thank you


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