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| Name: shea14shea | Date: Apr 26th, 2007 9:35 PM |
| My son is 4 and has cystic fibrosis. It can be very difficult at times but what I find the hardest is that he seems like every other kid and his medicine becomes so routine that it's like brushing teeth or taking a nap and I almost forget he has it and then bam, practically overnight he's sick and in the hospital and reality hits all over again, my child is actually very sick. I am lucky I have moved to Dallas and we have some of the best doctors in the country. I didn't have to deal with enzymes until about a year and a half ago because he was producing them. Good news is that they are working hard at finding a cure. They are in the final stages so HOPEFULLY it will only be no more than 10 years. I look at it like I am just trying to keep him from damaging his body until he's cured, which I know in my heart he will be. Also they just came out with in Australia a special saline solution that taken by itself is supposed to help greatly. I haven't gotten to talk to my doctors yet. There is also a company called manitech that has natural supplements that are very beneficial. I haven't been able to get my son on them yet because they are costly and insurance won't cover anything natural. It's the same for a medicine called Seabiotics. They are both awsome products that arn't fda approved but benefit a huge variety of illness'. You could look into those. Sometimes I worry about my son being so dosed up on medications. I would never have allowed my child to be on so much medication or recieve so many shots if the alternative wasn't so bad. The side affects scare me and I worry that all the antibiotics are weakening his immune system but what else can you do? ↑ |
| Name: shea14shea | Date: May 1st, 2007 10:58 PM |
| Any one out there? ↑ |
