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Name: Jan | Date: Aug 9th, 2008 2:50 AM
Do not know how old you are, but I do believe things are getting better for down syndrome children. I had one twenty years ago., 

Name: Jan | Date: Aug 9th, 2008 2:51 AM
I have had a down syndrome baby and all other tests were negative, the amino was very accurate. It is up to you and your spouse, things are better than ever for a down syndrome baby but it is a tough road. 

Name: stacy | Date: Sep 1st, 2008 2:26 AM
i am the mother a 4 month old down syndrome son. I did not find out until about a week after his birth. I had an ultra -sound and everything showed up okay. It really did not matter so I choose not to have the amnino. He is the joy of my life! 

Name: Carmen | Date: Sep 4th, 2008 2:52 AM
Hi
My Grandaugher , Dezzy, is now 1 year old , we just found out she has two chromosome 19 , that havent said it is Downs yet , I have been serching the net to see what it might be , as Dr is not moving fast enough for me, if you have any place i can look up or any answers please email me a [email protected] and please add Dezzy and her parents and me to any prayer list you have. Thank you for being here
Always Carmen 

Name: sonja | Date: Sep 18th, 2008 4:12 PM
Hello I am a Mother of two little boys. Our youngest child has Down Syndrome. We found out when I was 4 months pregnant. He is an amazing child. Just like his brother he lights our world. 

Name: Amanda | Date: Sep 25th, 2008 3:56 PM
I'm a young mother in the mid-20's. My son who's 6-month old has down syndrome. I didn't find out he had downs until after he was born. He's my first child. My son was born 3 weeks early and I had to have an emergency c-section because he was in breech throughout my pregnancy, and wasn't gaining enough weight inside of me. Noah has no health problems. I thank God everyday for my Little Noah. 


Name: Lisa | Date: Sep 29th, 2008 4:08 AM
My daughter was born with Down Syndrome when I was 17 years old, I didnt have any reason to suspect I was having a Downs baby, therefore no tests were performed until after she was born. 

Name: Joselyn | Date: Sep 29th, 2008 8:31 PM
Well I am actually a friend of a person with down syndrome and i know her mom 

Name: helen | Date: Sep 30th, 2008 8:28 AM
hi i am a 31 year old mother of a 10 month old boy, i found out he had downs syndrome when he was 2 days old i had a blood test but it came back low risk so i did'nt have the amnio .I.was concerned about some little skin tags he had on his ear which had nothindg to do with downs syndrome when the doctor checked him over thats when he said theo may have downs syndrome he had a blood test and we got the results 2 days later 

Name: HEATHER FERREIRA | Date: Sep 30th, 2008 11:38 AM
I found out after my son was born. 

Name: Becky | Date: Sep 30th, 2008 8:32 PM
I am not pregnant however it was just one year ago I gave birth to my 3rd son Landon. I found out at 19 weeks that he was going to have Down syndrome.....If you want more of my story email me personally... at [email protected] There are plenty of moms that have awesome stories that you can read on the web. 

Name: carrie | Date: Sep 30th, 2008 11:56 PM
I have a 7 month old with Down Syndrome.And I found out at 15 weeks by nuchal translucincy test,a stage 2 ultrasound and then an amnio! 

Name: Christine | Date: Oct 12th, 2008 4:58 PM
My son is almost 14 months old and I found out he had Down Syndrome when I was pregnant through a routine ultrasound. They found an omphalecele (part of the intestine was out of his body). They sent me to a perinatologist who did a high level ultrasound and told my husband and I that out baby was to have Trisomy 18 syndrome. I did not believe him and told him he was wrong and had an amniocentesis. The results come back Trisomy 21. He was wrong. I am glad that we did't listen to his advice to abort our baby. I couln't picture my life without him and either could his three older sisters! 

Name: Brian | Date: Nov 14th, 2008 5:01 AM
We found out our oldest son has mosaic downs syndrome when he was 5 1/2 years old. He's been in the special needs programs since he was 18 months but no one ever did the genetics test because he does not have any of the typical facial features common with DS. After changing doctors, my wife explained all his issues and they recommended the tests.

And please, I read and hear this so often, you do not have a downs syndrome child or a downs baby, you have a child that has downs. Why do we refer to someone with downs as a "downs baby" but don't refer to someone with allergies as an "allergy baby" or someone with cancer as a "cancer baby". Let's not put them in a different "baby" category, they are babies with a diagnosis. 

Name: diane | Date: Nov 26th, 2008 10:00 PM
hi there, i have a 2 yr old boy with down syndrome, i was 19 at the time of his birth and his father was 20, we didnt have the tests as we were living in ireland and they dno offer this. we were told it was practicly impossible for this to happen 2 us given we were both so young.
can i just mention many people take it the wrong way when ppl say down syndrome child, they are children WITH down syndrome. 

Name: Sarah | Date: Dec 4th, 2008 6:44 AM
I found out that my first son Angel had down syndrome after he was born. I gave birth at 7:32 at night, then early the next morning about 4:00 they woke me up to tell me that he was having some problems. They transfered him to a different hospital where they did the trisomy 21 test. The test later came back positive. I hope that in your paper you will not only educate, but encourage mothers who know they are having a baby with down syndrome to carefully consider there options. It is my understanding that the abortion rate for mothers who are having down syndrome babies is nearly 90%. Speaking from my own experience, I would have probably terminated my pregnancy if I had known about the down syndrome. My feelings about down syndrome where based on stereotypes, and believing that my son would have no hope. I am so glad that I didn't know about the down syndrome before he was born! He is such a wonderful and special little boy! I was wrong about down syndrome before. Angel has a world of hope, and he has changed my life so much that I could never imagine my life without him. My point is that women who know that there baby is going to be born having down syndrome should at least consider the facts. I am all for a womans right to choose, but informed decisions are best. 

Name: Charlotte | Date: Dec 7th, 2008 9:39 PM
I found out when I was 18 weeks gestation. I went through a quad screen and it gave me a 1 in 5 chance then I verified it with an amniocentesis 

Name: Downi | Date: Jan 5th, 2009 12:10 PM
Hallo, ich habe ein kind mit down syndrom geboren ich bin sehr unglücklich darüber weil es keine lebensfreude austrahlt!! :-(
lg downi ursel 

Name: bug | Date: Jan 5th, 2009 11:00 PM
iam 19 weeks pregnant our doctore told me just after christmas that we have two indicators on the ultrasound for downs the thickness of the neck and a larger than adverage pocket of fluid on the back of my baby's head
iam scared but we have already decided not to do ans aminocentis the risk is to high
i just need somone that can talk to me 

Name: jane lacey | Date: Jan 7th, 2009 5:35 PM
my daughter is 9 years old, I found out after her birth. Nucal scan at 13 weeks (routine in my area) did not raise any concerns. 

Name: julie | Date: Jan 9th, 2009 11:59 PM
I recommend having an amnio done we have 4 children and with our 4th we were in a high risk catagory i was very scared but the doctors were amazing and the procedure didnt hurt to much. doctors perform amnios all the time so to me i knew i would be in good hands. I dont think there is a high percent of miscariage.in saying this i think you and your partner should ask yourself what if the baby has down syndrome would you go ahead with the pregnancy and if so then there is no need to do an amnio. 

Name: Michelle | Date: Jan 18th, 2009 4:43 AM
heyy 

Name: brittany | Date: Jan 29th, 2009 6:50 PM
Hello,
My name is Brittany Moran. I am a direct support worker as well as a college student. I am currently taking my second year of the Disability and Community Support Program, at Red River College in Winnipeg, MB. I am required to write a 15 page research paper of a topic of your choice. I choose to write about the affects of amniocentesis on children with who are living with a diagnosis of Down syndrome and the pressures parents may feel to terminate pregnancies that test positive from trisomy 21. If you have any information about this topic area, or know where I could locate information, I would be very grateful. I would appreciate any type of information you would be willing to send me about Down syndrome and amniocentesis.
Thank you:
Brittany Moran
[email protected]
184 14th street
Winkler, MB, Canada
r6m 1c6 

Name: lynn deegan | Date: Feb 11th, 2009 9:14 PM
I am a parent of a child who has downsyndrome. Iam 29 years old and found out i was having twins. I went to all the scans and had the test which came back low risk for both babies. They where 5 weeks prem when i gave birth emily came out first weighing 4ib7oz she needed a little oxg, then joseph came out weighing 4ib 9 oz he got rushed off as he had not sugur in his body so they had to set him up on a drip. Three days later the nurse came in and asked us to go the parent room, when we got there, there was a doctor waiting for us. She asked us if we noticed anythink different about emily to joseph, gary said her eyes are wider then joseph. That is when she said we think emily has got downsyndrome but we have to run more test, we had to wait a week tthen the doctor came in and told us the results have came back and she is.. Since then she had open heart surguery at 4 months old and has had 7 operations since. They are 4 and have just started school with joseph she can walk with help but has no speach she is using sign laguage. I know people say they are special, they are i would not change her for the world. I hope this has help if u need anymore my email address is [email protected] 

Name: kathy | Date: Feb 15th, 2009 1:14 AM
HI, I found out that my fourth child had Down's by amnio. 

Name: jessica | Date: Feb 22nd, 2009 10:01 PM
i am a mom of a 5 month old girl with down syndrome... i found out by an AFP and also an amnio...i was around 18 weeks when i found out and cases like mine are 1 in 2 million because i am 20 years old if you have more questions my email is [email protected] 

Name: Tyjhae | Date: Mar 3rd, 2009 7:41 PM
hello i am doing a research paper for LA n on down syndrome children and adults . I would like to chat with a parent whom i can interview 

Name: Katherine | Date: Mar 11th, 2009 4:10 PM
I must say im so enlightened to hear all the storys of you great mothers and how you describe the love you have for your children with down's, i am a mother of a 3 year old boy with downs and i didnt find out till after he was born, he was a premie and was in an incubator for about a month, we had a really tough time with him in the hospital, all day and night next to him, praying, and just hoping to god he will be ok, 3 years later our miracle baby is doing great!! he has no heart problems or kidney problems, his stage is mild, although he doesnt talk much yet, the way he expresses himself and the acts he does you can tell what he is trying to say, it is incredible how he expresses himself, not to mention what a happy baby he is, i would not have wanted to have him any other way and i wouldnt change him for the world, he wakes up with a smile and goes to bed with a smile, i cant remember the last time he really cried or had a tantrum, his behavior is great!!! hes in school already and is doing great i can continue on with the joy he brings to the family, im so happy and proud of all you mothers out there that coup and except your children just how they are, keep up the good work, i know its hard but that smile n happiness is worth it all!! 

Name: bob | Date: Mar 27th, 2009 6:44 PM
hi yes im a father of a downs syndrome baby and we found out after he was born , it was in the delivery room if you would like more infomation do not hesitate to email me and i will provide you with the relevant information regarding the birth of my son , my email is [email protected] 

Name: Toneau | Date: Apr 7th, 2009 10:37 PM
My daughter is eight and has Down Syndrome. I didn't find out until after she was born. 

Name: john | Date: May 11th, 2009 6:46 PM
does this work 

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