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| Name: UNFORTUNATEEVENTS | Date: Jan 30th, 2007 7:12 PM |
| what were your childrens special need issues? ↑ |
| Name: wonp | Date: Jun 17th, 2007 12:17 AM |
| Hi Lifelongmom, I have just read your news. You are so good mom, you have taken care of 2 special needs kids. I came to American in 2001 and got married for 6 years already. I have one stepdaughter, she has brain damaged. She graduated the special school for changelled kids 2 or 3 years ago. From that day until now, she has just stayed home, do nothing. She lives one week with daddy and one week with her mother (from this Friday until next Friday), they just take turn to watch her. My husband wanted to look for a group home for her because honestly, he is exhausted with his situation. I feel sorry for him but I can do nothing. She has been spoiled too much, she is smart if she is compared to the other challenged kids. She is never learn how to take care of herself, independent if she isn't away from her parents. My husband asked her mother to keep her full time but her mother said how much he would pay for her if she kept the daughter full time. It is soo horrible to hear that. I tod him that if he really wanted her to go and live in a group home. He should look for private service instead of waiting for group home operated by goverment. He was told that she would be in the waiting list for group home when her youngest parent was 55 years old. Right now he is 50 and his ex-wife is 48. It would be long time for him. I don't like the way they have been raising her because they just spoil her, they feel sorry for her because she is challenged child. Maybe I don't have experience about how to raise a child but if you love your child, you worry about your child's life, you should think about how your child will be able to live by herself/himself when the parents pass away. She learnt very fast especially from her mother. She taught her to lie, make up stories, etc... Please, give me some encourage, some advice about this situation. I hope I wil receive some advice from you soon. Sincerely, Wonp ↑ |
| Name: lifelongmom | Date: Jun 17th, 2007 6:29 PM |
| Thank you for your replys. My children/adults, my son is developmentally delayed, mentally 7-8 years old. He just turned 27 on june 1. His speach is very limited. about 25 words out of 250. But He can dress himself and feed himself. He works two days a week at a place called cintas. He seperates cloths hangers, large and small. and gets a small check every other week. and alls he wants to spend it on is his goldfish food, and puzzle books, find the words. The rest is not important to him. so he puts it in his small can for his money. The other three days he goes to a tech school. and loves it. My daughter is on the other side of the building in the day care side. She is 24 years old and wears diapers. Cant talk or dress herself, or bath herself. So shes a lot more care. The advice I would give you wonp, with having brain damage, your step daughter would give a rest for the parents or those careing for her, to go to an adult day care or child day care in your area, depending on her age. when my 4 kids were small, I was a stay at home mom and took care of all of them by myself while my husband worked, but had help from a niece to babysit when we needed to go out for an evening. now my oldest daughter and youngest daughter help when we want to go out for an evening. Also we have a single mother that works at the place my kids attend, and she takes them overnight, and gets respite care pay. And we are working on putting our adult/kids with this young mother and her little boy in a house and let her take care of them for us more full time. We will get them one weekend per month and every sunday to take to church. and give her time with her little boy. we will give her their ssi money to help them live and take care of their needs. It is hard to let someone else to take care of your child, but since our kids are adults, we need time to be a married couple. like Ive told people, I shouldnt have to worry about baby sitters, and changeing diapers, except for my grandkids. does that make any sense? I hoped Ive helped. ↑ |
| Name: my son, my best friend | Date: Sep 17th, 2008 4:48 AM |
| I have a 28 yr. son who is developmentally delayed with cerebral palsy. I would just like to have someone to talk to since there is no one here who understands what is behind really behind my smile. I love him dearly, he is very well mannered, cute and charming, but there is another side of him that I am always on watch of. Anyone care to talk. ↑ |
