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hi, first time here and just need someone to talk to really. feeling really low since my daughter was born 8 weeks ago. When she was 4 weeks old she was found to have hydrocephalus (water on the brain) and had to have surgery. The doctors have confiemed there is damage to her brain but to what extent we dont know yet. This was the result of a haemorrage before she was born and the feelings of guilt just wont go away. ↓
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| Name: lindalu | Date: Feb 15th, 2007 7:59 PM |
| Not your fault hon! Things like this happens all the time, it wont do you or your child any good by blambing your self! Your baby is only 8wks old, she may not have as much dammage as you anticapate! Hang in there wait till she grows more showing more cognative ability. Then you will know more! For now just take it all one day at a time, beating yourself will not make her better! ↑ |
| Name: Catcorn | Date: Feb 16th, 2007 9:56 AM |
| Hello Kellie1, my son has a condition called porencophalic cyst, this is where part of his brain never developed and is full of fluid. I only found this out when he was 5 when he had an MRI scan to see why he had a fit. He walked at 11 months, started mainstream school at 4 all before we became aware of the cyst. If i had been told at birth about this i would have been worrying non stop also and not letting him develp normally. Because of his condition he has mild cerabral palsy ( a slight weakness only on his left side) epilepsy (hasnt had a fit in a year thanks to his meds) he also has ADHD and is dyslexic. But he is on of the best basketball players in school, plays gaelic football and hurling and swims once a week. All children are different and hopefully like my son your daughter will surprise the doctors. I do not know what caused my sons cyst but I know he is happy so thats all that matters. ↑ |
| Name: kellie1 | Date: Feb 16th, 2007 10:35 AM |
| thanks, finding it really hard to look at her and not think about what she may not be able to do. ↑ |
| Name: Catcorn | Date: Feb 16th, 2007 11:33 AM |
| Id say it is very hard for you. As i said I feel lucky that we only found out my sons prob when he was 5. As he is my first and only child i know i would have wanting to wrap him in cotton wool and not let him try things. The cyst he has could have been caused by a stroke and I keep thinking back to being pregnant and there was no signs. I didnt even have morning sickness never mind any problems. It is easy for me to say dont get too worked up but as a mother i know this is impossible.... I log on a few times a week if you do need to talk or just need to stress!!! Try to be positive and think what she can do like when she smiles at you and recognises you. Remember doctors go by what they learned at college not by living with the children like me and you. They always seem to give you the worst outcome but try think positive and let me know how yous get on. ↑ |
| Name: kellie1 | Date: Feb 16th, 2007 2:21 PM |
| i didnt have any problems whilst i was pregnant either, and no morning sickness. she is my first child aswell. ↑ |
| Name: Catcorn | Date: Feb 16th, 2007 2:47 PM |
| Our children must have been fighters since the womb then, not troubling us but god knows what happened them.. Just enjoy her, it will get easier and dont believe everything you hear. You will get to know her weakness and strengths as she gets older so just look at what she can do not what she cant. Its how I stay positive. It is hard at times but they are well worth it. ↑ |
| Name: lindalu | Date: Feb 16th, 2007 3:05 PM |
Kellie1 how are you hon? I didnt find out there was some thing wrong with my daughter untill she was about 8 months old.
I knew there was but had not had it confirmed due to fear! When I took her to a specialest they told me she has Cerebral palsy.
For me that news ment the end of the worl! I was devestated! Some 8 years later she was then again evaluated and found to have a C5 spinal cord injury.
Not any better news than the last but she was already talking fine, with no neurological problems just physical.
She is a bright 21 year old today. She has completed collage, planning to move across the country to La all on her own.
Never give up hope always keep faith! She was sent to you for a reason. Trust me it will all be worth it in the end! ↑ |
| Name: kellie1 | Date: Feb 16th, 2007 3:32 PM |
| its her future i worry for, did you have a difficult birth? ↑ |
| Name: Catcorn | Date: Feb 16th, 2007 3:46 PM |
| I was induced when i was 14 days overdue. When i finally went into labour i was in the labour ward for over 9 hours, the last 2 and a half hours pushing. They had to use the vacuam and forceps and tear me as he didnt seem to want to come out. He had a large buise on his head for a couple of weeks after. I was thinking myself if this could have caused it but I dont know. The doctors have said his cyst prob happened during my pregnancy. I would like to look into it further to see if there was a problem during labour they didnt tell me about but being a single mother i cannot afford it. Did you have a hard birth? ↑ |
| Name: kellie1 | Date: Feb 16th, 2007 3:54 PM |
| she was also 14 days over due when i went in to be induced. before labour could start though she got distressed and i had an emergency c-section. they still needed to use the forceps though and she had a big bruise on her cheek also. ↑ |
| Name: Catcorn | Date: Feb 16th, 2007 4:07 PM |
Seems like we went through a lot of the same things. Have they any idea why she got stressed? I cant remember them telling me Cian was stressed but there ended up being a few doctors in the room with me by the end where usually just the midwives.
And Lindalu its great to hear about your daughter. Its great hearing such good stories from people with experience instead of the negative you usually come across. What does she plan to do in LA? ↑ |
| Name: kellie1 | Date: Feb 16th, 2007 4:12 PM |
they dont know why she got stressed, or they didnt tell me if they did!! I just put it down to her condition. Your right, it is good to hear about the positive outcomes of your son and lindalus daughter, means even though they have got problems there is still hope for their future,
Going to live independantly must be a really big step for both of them. ↑ |
| Name: Catcorn | Date: Feb 16th, 2007 4:31 PM |
| Well I hope you have cheered up and you feel better knowing you are not alone. Even with their problems you wouldnt change them for the world. Good luck with any other news you hear. ↑ |
| Name: kellie1 | Date: Feb 16th, 2007 4:36 PM |
| thanks, has been good to talk. If you ever want to have chat i can listen just as good as i moan!!! ↑ |
| Name: Catcorn | Date: Feb 16th, 2007 4:39 PM |
| Yeah you too. Some days you do just need to moan and let it all out then you feel great. Just finishing up work now so wont get to log on till Monday. Moved and never got around to getting a phone line in yet. Im in Ireland where are you from? ↑ |
| Name: kellie1 | Date: Feb 16th, 2007 4:42 PM |
| am in the uk. maybe we can catch up on monday then. ↑ |
| Name: Catcorn | Date: Feb 16th, 2007 4:50 PM |
| Yes we can talk then. Try do something the weekend to keep your mind off things. Im on a girlie night out tonight, nothing better to de stress... ↑ |
| Name: kellie1 | Date: Feb 16th, 2007 4:54 PM |
| will keep myself busy! feel alot better than i did when i started this conversation now anyway! talk monday then (if i can find you!) ↑ |
| Name: Catcorn | Date: Feb 16th, 2007 4:56 PM |
Just putting my coat on when I saw your reply. Ill just come back in your Just to chat mail.
Glad you feel better. Well talk monday, have to run now to collect my darling. ↑ |
| Name: lindalu | Date: Feb 16th, 2007 6:13 PM |
Catcorn she plans to attend school and work part time in the Graphic Design industry, thats what she got her dagree in Graphic Design.
Her true passion is with animals, she attemped vet school but was unable to complete the required clinicals so she droped out.
She hopes to continue back to school when she gets to La. Possibly obtain a degree in animal psychology! Now she trains dogs in obediance and special needs training.
When my daughter was young I was terribly worried about her future and always thought how would she manage when she became an adult. Now I dont have thoes worries! She has done quite well!
Keep up hope and always support your child! Never tell them they cant do some thing, let them try for them selfs. If they cant at least they gave it a shot. They will see you was there to support them, no matter how it turned out! ↑ |
| Name: kellie1 | Date: Feb 16th, 2007 11:44 PM |
| lindau, I think that is great what she has achieved, hopefully my daughter will do just as well. ↑ |
| Name: lindalu | Date: Feb 17th, 2007 12:18 AM |
Kellie1she will!!!! A lot of their achievments are due to the quality of parenting. Im not saying I performed the best ,but I did my best! Thats what counts!
Just remember to take mommy time! You are no good to your ↑ |
| Name: lindalu | Date: Feb 17th, 2007 12:19 AM |
| I ment to say ......You are no good to your child if you are worn down! ↑ |
| Name: kellie1 | Date: Feb 17th, 2007 8:59 AM |
| yeah, i know. am going to try , i think the worrying makes you feel worn out all by itself!!!! ↑ |
| Name: lindalu | Date: Feb 17th, 2007 5:45 PM |
| Sure does! I was always tired and couldnt understand why. It wasnt untill I learned how to deal with the stress that I realised thats why I was so tired and worn out feeling all the time. Even if you can have 5min through out your day it help, every little bit of time for you counts! ↑ |
| Name: kellie1 | Date: Feb 17th, 2007 6:34 PM |
| try to have a break when she goes to sleep!!! but always other things to do! ↑ |
| Name: lindalu | Date: Feb 17th, 2007 10:18 PM |
| Atleats you get the little bit of breake from her. Dont get me wrong... we all love our children! but it always feels good to have time away, even if they are only sleeping! ↑ |
| Name: kellie1 | Date: Feb 17th, 2007 10:41 PM |
| yeah its a break. havent been without her since she was born yet, my partner says hes too nervous to be left on his own. ↑ |
| Name: anjelsin | Date: Feb 19th, 2007 1:30 AM |
Hi kellie1- We had some issues with my daughter too. She was born 10 weeks early and is now 7 months old. She has PVL periventricular leukomalatia (not sure how to spell) Basicly damage to the white matter in her brain. They told me in the begining all bad news they said that she would never know who I was or walk she is doing so well and now tell us that she will have CP but to what extent they don;t know. I think that these babies brains are so amazing they will learn new ways to do things to compensate for what happened. Don't give up it will get better. I have just began to go out with my little angel this last week.
Are you still in the hospital? We were there for 4 months. Keep your faith I am telling you these little babies are truly amazing. ↑ |
| Name: anjelsin | Date: Feb 19th, 2007 1:31 AM |
| You want to chat more let me know? ↑ |
| Name: lindalu | Date: Feb 19th, 2007 2:27 AM |
Anjelsin
You have a wonderful possitive attatude, keep it up! We need ladies like you to help keep the sperits of others going! ↑ |
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