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Name: Lulu
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Name: Crystal | Date: Oct 1st, 2010 8:59 PM
Lulu,

My son is 16 months old now and he sounds the exact same as your newphew expect for no visual or hearing problems. Does your nephew have seizures?? We still have no answers and have done countless tests. Does your nephew hold his head up?? So confusing!!! 

Name: Shelly | Date: Oct 30th, 2010 4:28 AM
I will apologize in advance. I do not have a answer, but I am experiencing something similar. I am left without a diagnosis. My son will be turning two and he as many spinal malformations that have not been seen as far a the MD's at Texas Children's Hospital are aware of. I just wanted you to know that I am hopeful that you will find an answer soon because it feels terrible not to know what direction to go in. 

Name: Shauna Johnson | Date: Jan 21st, 2011 9:12 PM
Hi there My son has CP and it sounds like yours does too. Keep trying different dr's. Do you have a CP clinic near you? The problem with CP is they don't like to diagnose it til a little later. My son was not diagnosed until he was over 2 years old...even though we knew that is what it was. Have you seen any special needs blogs? There are a ton out there...Good luck

http://johnsonspecialneeds.blogspot.com my blog

Shauna 

Name: Tina catterall | Date: May 8th, 2011 2:29 PM
Feel free to drop by support group for gdd http://profile.ak.fbcdn.net/hprofile-ak-
snc4/211040_160169860682019_647137_s.jpg



Global developmental delay...support group Facebook 

Name: danielle | Date: Jun 11th, 2011 8:19 AM
hi lulu my son is 4 in august and currently undiagnosed. delayed development in all areas. sounds similar low tone at birth and still now, cant walk yet, couldnt tolerate baby milk to which NOTHING was done, undecended testical delayed reaction to pain and generally a very placid little boy and all text have came bk normal they are saying hes a little mystery! how annoying? 

Name: smfourie | Date: Jun 17th, 2011 6:12 AM
I get this, my boy is 4 and still not walking and talking (just moaning). his chromosones patern is wrong, so no name or awnsers, just go from day to day. 


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