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Name: mer
[ Original Post ]
Hi am living in West Africa currently but getting ready to move back to Canada our daughter has CP she's almost two. Right now she has phisio therapy three times a week.Its not great but its better than nothing. Looking for information/ideas of what we need to be doing nd things we can access once we return home. Any info is a huge help!!
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Name: lisa | Date: Mar 7th, 2006 4:46 PM
my son is 2 in may and has recently started conductive education this is really helping i would strongly advise having this it is brill. 

Name: Miriam | Date: Mar 12th, 2006 4:38 AM
Hi I'm writing from Finland, My daughter is 3 years old and cp was diagnosed when she was 2½ years old. So this is a new thing for us. She has physiotherapy 2 times a week and they also do exercises in pool. That has given great results. Were also thinking about Botox-treatments. Has anyone's child had that?? 

Name: Beth | Date: Mar 21st, 2006 5:09 AM
Once you get in N. America find a Infant/Toddler program. They have been a huge help to us. The most important thing you can do is play with your child every day. Talk to her. Tell her what is going on. 

Name: Heidi | Date: Mar 27th, 2006 4:52 AM
I have a 2 1/2 year old son with disabilities and we just went through an Intensive Physical Therapy Program in Melbourne, Flordia. The program was great. My son learned alot and so didn,t we. We are scheduled to go back in July! For therapies at home get in touch with an early intervention program and they should be able to give you good direction! 

Name: amber L | Date: Mar 30th, 2006 8:00 PM
My son will be 2 in july. He doesnt crawl, sit up, and only rolls when hes mad and crying. If anybody is in the same situation please message back. Im just wondering if his condition is normal for this stage or if hes just got cp severely. Please comment back. thank you .. amber, a concerned mom. 

Name: Jordan | Date: Mar 30th, 2006 9:37 PM
hi amber L. i just wanted to share with you that i have a 3 yr old who's in the same situation as your little one. My daughter doesn't walk or sit up either and it's very frustrating as a mother to watch your only child not progress like everyone else's children 


Name: Taylors Mom | Date: Apr 3rd, 2006 6:02 PM
Hi Amber L. and Jordan,
I have a 19 mo. daughter that was born prematureley (32 wks). She is not sitting up or crawling. She fusses when you put her on her belly. I am so stressed and frustrated I do not know how to help her. Any suggestions or thought from you would be great. Thanks 

Name: Mandy | Date: Apr 4th, 2006 9:50 AM
Miriam, my son is 5 and had botox last october. The doctor gave him something to calm him down and its supposed to make them forget the experience. He was awake when the nurse and i held him still,while the doctor injected it into his leg.Of course he screamed for awhile, but its unnerving. Anyway,i was told there was a small chance it wouldnt work and unfortunately it didnt. 

Name: MICHELLE | Date: Apr 6th, 2006 6:30 PM
HELLO I HAVE A 6 YEAR OLD WHO HAS CP,AUTISIM, AND A SEIZURE CONDITION. MY SON DID NOT START TO CRAWL UNTIL HE WAS 2 YEARS OLD. HE DID NOT WALK UNTIL HE WAS 3 OR A LITTLE OVER THREE. MY HUSBAND AND I THOUGHT HE WAS NEVER GOING TO WALK, BUT WE FINALLY GOT THERE. HE WALKS ON HIS TOES AND HIS FEET TURN INWARD BUT THAT DOES NOT HOLD HIM BACK. WHEN HE RUNS HE LEAVES ME BEHIND IT IS AMAZING. THE ONLY THING I CAN SUGGEST IS TO NEVER GIVE UP ON HOPE. MY SON BEGAN WALKING WITH A WALKER FROM WALMART OR TARGET NOT SURE WHERE THE SCHOOL GOT IT FROM BUT IT WAS AT ONE OF THOSE TWO STORES. IT IS A REGULAR WALKER FOR BABY'S BUT YOU CAN REMOVE THE SEAT AND IT TURN'S INTO A WALKER THAT HE HAD TO PUSH. THEY WORKED WITH HIM EVERYDAY WITH THAT WALKER AND THEN ONE DAY AT HOME HE STARTED TO JUST LET GO AND WALK ALL ALONE. WHEN HE FIRST STARTED SCHOOL AT 2 1/2 HE WAS ONLY CRAWLING SO I WOULD SAY THIS COULD BE ONE WAY IT WORKED FOR US. AS FOR THERAPY HE GETS OCUPATIONAL THERAPY , PHYSICAL THERAPY, AND SPEECH. THESE SEEM TO HELP AND THEY KEEP HIM BUSY. I DO WISH THOUGH THAT HE COULD GET THEM MORE TIME'S A WEEK BUT I GUESS I HAVE TO PUSH MORE OR SOMETHING, I DONT KNOW BUT I AM GOING TO FIND OUT. I THINK HE WOULD BENIFIT WITH MORE THERAPY. ANYHOW LIKE I SAID BEFORE TRY TO STAY STRONG AND POSITIVE AND GOD BLESS ALL OF YOU 

Name: chevi | Date: May 4th, 2006 2:57 AM
hi, my son is 4 and has cp spastic diplegia. he currently walks with a walker and is in school. its great to speak to pple in similar situations cuz you can always learn s/t. we did surgery last summer to try to reduce some spasticity and it did help but its a really long haul to make any kind of development. 

Name: chevi | Date: May 4th, 2006 3:00 AM
me again, i forgot to mention that he gets. pt 5x ot 2x st 2x and swimming 1x a week - thats alot for a little guy whos only 4 and goes to school until 2:30 every day. I must say never give up hope and you gotta keep trying. 

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