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Name: tara
[ Original Post ]
im 28 yrs old im prego ,due november 13 baby # 5.my quad was postive my risk is 1/150.my level 2 was ok for trisomy 13 and 18 but my risk r the same,im 20 weeks now.the baby moves a little...i would like to no whats up with the babys down syndrom health besides my opion of a amnio..for which im against,my next us is when im 28 weeks prego...
has anyone else had this problem or has a down child?
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Name: Lillian | Date: Jul 5th, 2005 8:48 PM
My child was a down baby. I love him to death, but I wish that I could have done something about it or known sooner. Back then there wasn't much you could do to tell. If you can do an amnio, i totally think you should. It's better for you and the baby. 

Name: Sherry | Date: Aug 10th, 2005 4:10 PM
Hi Tara, My baby is Due Dec 29 and my quad was positive for downs too My risk is 1/12 I go for my level 2 on 8/12. I have been researching on the internet. Do you know the sex of your baby? I have learned that there are more false positives with a female fetus then a male because of the female hormones. I too am against amnio I heard of people having them then miscarrying only to find out the baby was normal. My baby does move ALL the time so I am hoping everything is ok. Good Luck! 

Name: Lynn | Date: Aug 21st, 2005 9:23 AM
Im due to give birth to my second child on 30th of october, my first son who is 7 now has a rare genetic condition called chromosome 22q13 deletion. I was offered an amnio and a CVR which i declined due to the risks of miscarrige, I think it is up to the individule person what they decide to do tara try not to worry to much im sure you will have a healthy baby...GOOD LUCK 

Name: richard frank | Date: Sep 11th, 2005 3:32 AM
hi my son has it well my whif is 27 weeks and they say he has fluid on the brain and his lower spine is not formed right on top of that doc said hie left leg is sitting in a position thats well his foot almost is touching his shin so she is going to get a an amnio i think im not really sure tho does this sound familar 

Name: jane | Date: Sep 22nd, 2005 3:19 AM
hello sherry, iam 30 and my baby is due jan 23,06 i went for a level 2 and the doc found a white spot on the heart and the kidneys was dialated. so at this rate it put me 1/152 now i am waiting on my results from the quad. like you i am very worried!! good luck to you please respond 

Name: jane | Date: Sep 24th, 2005 6:48 PM
just had to share my good news and give hope, i received my test results back on my quad. i tested negitive. so that put my chances at 1/2909 so well we still have to watch his little kidneys so wish us luck and to all 


Name: Tasha | Date: Sep 29th, 2005 10:34 PM
Hello, Tara. Our baby is due Jan 25, 06. I was informed, just a few weeks ago, that my triple screen was positive for down's. I go for my level 2 on Oct. 10th. I'm only 20 years old and this is my first pregnancy, so I am extremely nervous about the results. I will be praying for you. Take care. 

Name: Leeanna Lopez | Date: Oct 17th, 2005 1:20 PM
Well my aunt has this risk and they she might be the same way you are. 

Name: shelly | Date: Nov 10th, 2005 8:33 AM
hi there,
i have a child with downs. She was born 11 weeks early, weighing 3lbs. We didnt know she had downs until she was born as i had refused the tests.
My daughter has trisomy 21 (which is the most common one). Fortunately Alesha has no health issues apart from the odd chest infection when she gets a cold. She was born with a very small hole in the heart which closed up when she was a few months old. If you want to chat anymore then please email me and ill answer any questions you might have if i can ok. my e mail is [email protected] 

Name: Samantha | Date: Nov 10th, 2005 11:35 PM
Hello I am 27 years old, I had my daughter when I was 17 she was born with downs and I wouldn't change anything for the world. She has brought so much joy to my life. 

Name: Wendy | Date: Dec 5th, 2005 2:58 AM
I have a two year old son with Down's. he is my youngest of 4 children and he is the love of my life. He has such a sense of humor and is such a joy to be around. I personally do not recomend the amnio because of the added risk. Down's babies can be such a blessing if you let them. 

Name: Mandi | Date: Jan 12th, 2006 3:42 PM
hi, my name is mandi, and im only 16 years old. about 3 weeks ago my blood test came back i guess you could say possitive for my baby having down syndrom. my chances were 1/47 and when i got a more extensive ultra sound done yesterday they told me that they really couldnt tell . They said the neck looked fine, the nose, the brain, the legs, but the length of the legs was showing that i am warlier in prenancy then i thought, either that or my baby is small. also my babys head is rounder then it should be and there is an echo light under her heart. i dont know what to think. im scared of doing the amnio because im still in my 19th week and i dont want to risk misscarrage. i'll still love her if she has it. but im scared. and i'd like to know. has anyone had results like mine ? 

Name: Mandi | Date: Jan 12th, 2006 3:47 PM
if anyone can help me
i have AIM
and my user name is HawtestxRawkerx3
please and thank you. i'd love to chat 

Name: mia | Date: Jan 17th, 2006 7:35 AM
how is the evolution for children with down syndrome ?? 

Name: sue bugos | Date: Feb 22nd, 2006 12:45 AM
Hi, Breath girl. I had an amnio centessis and my child was perpfectly normal --passed all tests------and I lost him while 7 mos. pregnant. Was it due to the amnio? no one knows. I had a placental tear that was not looked after by my doctor.
NOW--- 2 yrs. later at 42 yrs. old, I was blessed with another pregnancy , and refused the amnio, my NEW " high risk" doctor adviced me that if I was not planning an abortion due to my son having down syndrome......we had no idea... don't worry.
Well, I had a son, VINCENT, 6 lbs 12 oz., and he was born with Down syndrome. He is healthy in all respects. He is intelligent and creative and has his very own personality ( thou I kid alot that he reminds me of curious george an awful lot. He acts like all kids, sometimes abit less shy and a bit more compassionate than alot of kids his age. He is 4 and 1/2 and is going to kindergarden next sept. Yea, he had extra help in occupational therapy---but thats not a reason for him to not be here blessing me everyday and everyone he touches. Yea, he has speach therapy but has a depth of understanding and can communicate better than my 1st. " normal" kid did at his age.
No reason for him not to be here to play pretend ,and sit and watch his fav. disney movies and have his favorite characters to play with and scream and yell if I dare pass by Chucky Cheeses with out telling him a good reason. Boy, look at your kids, even if one of your "normal children" had a heart problem ( which , yes, there is a 40 to 45 % chance that he or she might have, would that be a reason to dismiss their life? Down syndrome children are first " children" some ones child and grandchild and neice and nephew. They end up BLESSING everyone whom ( can't help opening their heart )to. My son had santa clause crying in headstart ( he was the only child to greet santa with a hug.)
He is one of few children whom trys to make the kids wheelchair bound on the playground smile and laugh.
It's not " what are we going to have to do for this child in case he's D.s. It's what are we capapable of helping him/her do-for himself with the help of including parents groups, play groups, infant programs ,hospitals and schools ,tons of organizations in every community, not including the web.; For our child to share and express his/ her joy for life, which isn't a bad trade. Not to mention all I learned about the developmental stages of all children, and all he teaches me. Would you like to see a pic of him.....? He's too cute and belongs here. write me if you like [email protected] 

Name: Kristin | Date: Mar 9th, 2006 10:02 PM
Hello. I am 25 years old and 27 weeks pregnant. In my 20 week ultrasound they found a white spot on the heart and a small amount of fluid in the kidneys. I took the triple screen and everything came back normal, but I am still worried. My doctor has reasurred me time and time again that everything looks fine, because of the good test results, my age, no down syndrome in the family etc... He says I have a one in a thousand chance of having a ds baby. No matter what I will love my baby (who is a boy:) I am wondering for you moms that have a child with downs....did you know you were having a downs baby before the birth or after? If before, how did you find out? THankyou so much. I really apprecitate any feedback on this. 

Name: arif | Date: Apr 6th, 2006 7:09 AM
The same problem i m facing my wife is in 23 weeks. in my second level ultrasound a 5mm cpc cyst was found on lateral ventricle of my baby. i gone thru triple test which was possitive for trisomy 21 cos' of high hcg level.and my risk factor is 1:152. Dr. suggested me for amunio. but the same i against of this test. cos' the baby moves little. i can understand what felling u r getting this time. same phase i m going thru. I just pray for good for u and me also. and hoping for the best from good. Insha Allah we will get possitive result. 

Name: kye | Date: Apr 19th, 2006 5:45 PM
hello,
how are you doing there,please mail me back i will help you out so let me know exactly what you need.mail:[email protected] will be expecting you mail.

cheers 

Name: nana | Date: Jun 8th, 2006 5:24 PM
how did you make out 

Name: Scott | Date: Jun 22nd, 2006 1:20 PM
My wife and I discussed at great length the benefits of doing an amnio. The Tri-test was negative, we weren't in a high-risk group, and we declined. To be honest, the results wouldn't have made a difference since, while pro-choice, abortion wasn't an option for her. To our surprise, Sergio was born and diagnosed with Down Syndrome the next day. Looking back (This was 15 months ago), I really don't think there's anything we would have changed, and certainly have no regrets. Sergio is a spectacular baby, with 2 parents who adore him to no end. The question of doing an amnio really rests on the significance of the results. Will it change your outlook on carrying to full term? 

Name: northstar5 | Date: Jul 6th, 2006 8:41 PM
Hi my name is John, We have a 4 yrs old son,born with downs,we never wanted the tests done,christopher has the part downs.He had his problems his heart,walking,etc,at the moment Little Man is fine,the only thing im waiting for,now is his speech to come,he is making the sounds and tries,but in spite of the speech,i love him to bits,and would never change him ever,he is a joy and makes me so happy,what more could you want,i ask my-self,i'll be much happier when he talks,that will come.In South Africa Downs Children are known as ANGEL CHILDREN,and that is what Christopher is
Also i believe we have as Jehova god knew we would look after our ANGEL Children ALL of YOU,YOU,and ME,I hope this helps and gives you mum and you mom,the hope and makes you feel better.Kind regards John 

Name: northstar5 | Date: Jul 6th, 2006 8:43 PM
Northstar5 has a name its John,Hi to you all 

Name: dogsam23 | Date: Aug 31st, 2006 12:26 AM
I am 26 weeks. My afp result was 1/73 for downs. My 4D ultrasound found fetal pyelectasis (kidneys) so my risk shot up to 1/16 for downs. I said no to amnio and will have another 4D ultrasound to see if the kidneys have cleared up.
i know all this talk of Down Syndrome is scary.... especially when you are 1/16. This will be my 1st child.I wish you the best and let me now if you have any other questions. 

Name: JAB | Date: Sep 17th, 2006 2:10 AM
Please email me if you would like information about something you may find very beneficial [email protected] 

Name: dogsam23 | Date: Sep 17th, 2006 3:06 AM
Tara, I am 27 weeks with my first child and due Dec. 8th. My AFP results placed me at 1/76 for Down Syndrome. At my 21 wk level 2 US, the doctor discovered my baby had mild kidnety dilation which is considered a "soft Marker" for Downs.... however..... it increased my risk to 1/16. Yikes! I opted out of the amnio because it would serve no purpose other than to satisfy my curiosity. It wouldn't change my mind about my baby so I didn't think I wanted to take that 1% risk of miscarriage. All I can do is prepare for the worst and hope for the best. I have another level 2 US this week so I will let you know the results. I will also ask my DR. more detailed questions about Down Syndrome Health and let you know what info I can get. feel free to email me if you want to talk... [email protected]
Best of luck to you and your baby!!!! 

Name: sweetcaramalkiss | Date: Sep 17th, 2006 9:15 PM
Hi I have a 4 year old son who has multiple disabilities being I was only 23 when I had him all the test I got done while pregnant with him were all fine. At about 4 months I noticed he wasn't meeting his milestones it was then we started to see a load of doctors and still to this present day he does't have a official diagnosis. They say cp or a metabolic disorder but the genetic doctor couldnt find anything. Anyway today Anthony can not walk talk or do anything a "normal" four year old could do but I love him to death and he has ultimately changed my life. I love him unconditionally. On a different note I recently had another son Jayden on July 11. I opted to see a high risk doctor even though she said I didnt need to see her because there was nothing to pinpoint with my first son. I saw the genetic counselor all the time and I was stressed out the whole pregnancy I couldnt imagine having two disabled children I couldnt take it emotionally. Needless to say my triple screen came back high for down syndrome as well and that was like a knife had been stabbed into my heart. I could still hear the doctor on the other end saying normally at my age 26 your triple screen should be 1/174 well mine turned out to be 1/156 they told me my options and I was crushed. Even though my chances of having a miscarriage which was 1/200 was greater then having a baby with down syndrome, I opted to have the amnio along with my level 2 us. I was totally frightened. But I just had to know I couldn't go on like that considering what was already going on with my first son. My level 2 was fine and my amnio came back that my son was fine. What a relief my son is now 2 months and he is a handful he keeps me on my toes and my doctors says he is very advanced for his age. I mean he is like a miracle baby and I love both my kids just the same. So please do whatever u feel like u need to do in your heart if u feel like u need to know for sure then maybe u should get an amnio. I mean this is coming from a person that had a greater chance of miscarring then having a baby with down syndrome. But u have to go with your heart 

Name: chris d | Date: Oct 5th, 2006 3:05 PM
hi im a father of a downs baby im the proudest dad in the world he is perfect his name is luke and he is 8 months old he always smiles he is gorgeous 

Name: lindalu | Date: Oct 5th, 2006 10:42 PM
Chris d
Good for you! one more for the dad. I aplaud you, there needs to be more dad like you. Enjoy your child all you can, it will be all woth it in the end. 

Name: Rachel | Date: Jul 2nd, 2007 10:27 PM
I''m in my early twenties and have a 1 in 45 chance of DS with my daughter. I declined amnio at 19 wks. due to my fear of miscarriage . But at 29 wks. I had it done because I worried night and day. So I'm waiting for results and there has been no sign of a problem or complication thus far. So good lluck to you! I'll post again when I get my results. 

Name: April | Date: Jul 9th, 2007 3:58 PM
I have a 4 year old little boy and he is down syndrome. I didn't have the quad screening done because I knew in my heart that I was given this child for a reason. So it did come as a shock for us after he was born when the doctor's said he was down syndrome. But I'll tell you what I wouldn't change it for the world. He is a great kid he loves to give kisses and hugs and you know the best thing is when he is 18 years old he will still hug and kiss us and not be embarrassed were as other children stop giving kisses and hugs by their teen age years. My son plays just like any other child, he rides the school but just like any other child. And I know my son will live on his own and have a job just like any other Adult. Having a down syndrome child was the best thing that ever happend to me. You learn to love more and appreciate life more. My husband and I adore our son. Good luck to you and if there are any questions you may have I would be more than happy to try to answer them the best that I can. 

Name: Cassy | Date: Aug 8th, 2007 3:53 AM
I was givin a level 2 ultrasound a week ago because there was a lt laterial ventical in my daughters heart and when i went to the level 2 they fuond a fold in her neck which will looklike a extra roll on the back of her neck unlike most people who jsut have 2. They said that the fold is another sign of my daughter haveing down symdorme and offered me a amnio. Im not going to do the amnio. But im going for the quad screening.. They said alot of babies that show these 2 signs b4 birth can come out normal. So either way im satisfied. If she has it im going to except her no matter what. 

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