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Name: babyhuie61
[ Original Post ]
Hi there, my name is Cindy. i am new to this forum. I have a 15 yr old developmentally delayed daughter named sarah. It would be nice to talk to other moms who are in my position. It helps to talk to my friends but sometimes they don't understand because they are not in that boat. I know that a couple of times i have come close to a break down.
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Name: lindalu | Date: Oct 22nd, 2006 5:24 AM
Yes I do understand how you feel to have a child with a disability. I have a daughter with a spinal cord injury, she had it since birth. Let me tell you it hasnt always been easy not only do you worrie for them and wonder how thier life will turn out, you worrie for your self in thinking if you will be strong enough to forfill you duties as a mother. It is hard at time but on the flip side it can be verry rewording as well. Just stay strong! find people you can talk to or even vent at times if needed. Stay positive one day you will look back at today as just a memmory! I will check back in from time to time if you want to talk. 

Name: babyhuie61 | Date: Oct 22nd, 2006 7:08 PM
Hi Lindalu. Thank you for responding. Where do you and your family live? How old is your daughter? Do you have an e-mail so I can e-mail you sometime if that is ok with you.

Cindy 

Name: sweethailey109 | Date: Oct 24th, 2006 6:10 AM
hi cindy my name is stephanie and i too have a 2 year old daughter who is developmentally delayed. her name is hailey. i totally understand how you feel about talking to other people about this but nobody gets how we feel, they try too but, the're not the ones in our situation. my daughter was healthy and normal but, 3 weeks after she was born she suffered loss of oxygen to her brain and suffered brain damage from it. shes almost 2 years old but really only has a mind of 3 month old baby . shes slowly getting better as each day passes. we just need to have alot of faith and patience with our children and in the end its all worth it. these kids need us to be strong for them 

Name: babyhuie61 | Date: Oct 25th, 2006 1:54 AM
hi Stephanie. Do you have an e-mail so we could e-mail each other once in awhile.

Cindy 

Name: lindalu | Date: Oct 25th, 2006 3:42 AM
I prefer to talk here and besides there are a lot of good people that check in from time to time that can also talk. My daughter is now grown she will be 21years old on the 29th. Thats not to say I dont worry about her and what will her future be like. 

Name: charlies_mum | Date: Oct 27th, 2006 12:50 AM
Hi Cindy. Im new to this forum also. I have a 13 yld son who has mild cp, visual impairment and epilepsy. He is developmentally delayed due to his epilepsy and medications. I know how you feel about family and friends just dont understand although they try. I was looking for some interaction for my son on here with kids his own age. He finds it difficult to socialise and be accepted by other kids. Would love to chat with you. Where you from? Im on Sunshine Coast in Queensland Australia 


Name: babyhuie61 | Date: Oct 28th, 2006 1:15 AM
Hi Charles-mum. I am from Hamilton, Ontario Canada.
I would love to chat with you. Would you like to e-mail each other? Hope to hear from you soon.



Cindy 

Name: mommyinwaiting | Date: Oct 28th, 2006 4:18 AM
Hi babyhuie I am in California, I have a beautiful 18 month old son who has global developmental delays. He is about a 7 month old level and sort of stalling. We have a lot of different therapist. I like to think of them as his team all working together to help him be the best he can be (sounds like an army commercial huh) It is ok to break down and you need to give yourself permission to do this when you can (hopefully not around your kids it freaks them out-know this because been there) and you are right unless you are going thru it, you don't know what it is like and how sad you are that things didn't turn out they way you dreamed they would. What helps me get past this, I realize these are my dreams and my little one doesn't know any different. When our children have special needs from birth or there after they don't know any different kind of life. 

Name: mylilangel | Date: Oct 29th, 2006 2:46 AM
Hi Cindy! I emailed you tonight. Hope to hear from you.
Debbie 

Name: charlies_mum | Date: Oct 30th, 2006 12:09 AM
Hi Cindy
My email is [email protected] I look forward to hearing from you. 

Name: babyhuie61 | Date: Nov 3rd, 2006 3:32 AM
Hi mommyinwaiting. It is very nice to meet you. Thanks for your kind words.
Cindy 

Name: deedeesgang | Date: Nov 20th, 2006 6:34 PM
My son is 14 yrs old, and very delayed. He functions more like a 2 year old. 

Name: babyhuie61 | Date: Nov 24th, 2006 2:30 AM
Hi deedeesgang. Sarah's functioning level is also low. I would say around a five year old. 

Name: deedeesgang | Date: Nov 25th, 2006 3:17 AM
Tyler is really doing the self-stem lately. Somedays it drives me nuts. His sleeping habits are bad at this time. Seems to go hand & hand. He goes through periods where it gets better, but boy when it is not, it is bad. He comes into our room in the middle of the night. Then he is up & down the rest of the night. Sometimes he is up at 3am, 4am, 5am, slamming doors, and clapping his hands. Most of the time it doesn't bother me much, but lately it has been so bad, it stresses me out. 

Name: babyhuie61 | Date: Nov 26th, 2006 3:27 AM
Hi deedeesgang. Sarah gets up sometimes at midnight, one two in the morning laughs, bounces on the bed, whatever. She is not as bad as she used to be but still does it occassionally. I have seen her get up at one in the morning and not go to bed until the next night. She even functioned at school well that day. i don't know how she did it. It drove me nuts. I think sometimes she goes to bed to get up. 

Name: mswhitley2 | Date: Nov 27th, 2006 4:54 PM
i am a to be teacher in fall of next year would you be interested in answering a few questions...kind of like an interview..im need a parents point of view for a paper i am doing.. 

Name: mswhitley2 | Date: Nov 27th, 2006 6:50 PM
i am a to be teacher in fall of next year would you be interested in answering a few questions...kind of like an interview..im need a parents point of view for a paper i am doing.. = 

Name: 4childrenwithdisabilities | Date: Nov 29th, 2006 10:14 PM
Hi Cindy, I am also new to this forum. I have a 18 year old girl with brain damage and seizures. She is autistic like. It is really tough to have a girl with disabilities because you see yourself in her and you have to deal with all the women problems because men don't want to deal with all that. I have to bath her, pick her clothes out and help dress her. I recently put her in depends instead of pads during her period. You might consider that. It is much easier for her and less work for me. She is In-Home Waviered. She has a caregiver who comes for a couple of hours a day to take her out. It gives me a break. Do you have any respite services? She stays in respite for two days. If you don't, look into it. I am also trying to get some one in for one hour a day to bath her and groom her. That you can inquire with your insurance company. I asume you have a MR case manager. Use every resource you can tap into so you can get some rest to deal with your daughter when she is home.. I hope I have been some help. Cathy 

Name: dana6 | Date: Dec 7th, 2006 6:27 PM
My name is dana we have a son silas who will be 2 on the 15 he has mixed receptive/expressive language dissorder---Gross motor delay----sleep disterbance, excessive sleeping----he also has alot of sensory issues. he gets therapy three times a week. the neurodevelopmental doctor though he might have williams syndrome then ruled it out. then we went to the neurologist and he said he sees early signs of aspergers. i know what you meen. none of my friends know how stressful it gets, sometimes family too. i know my dad is still in denial saying he is perfectaly fine, and that we are crazy. i would love to chat to 

Name: babygirlsmom1005 | Date: Dec 8th, 2006 4:27 AM
My 14 month old is developmental delayed, partly because of prematurity and other due to sensory issues. It is hard to talk to friends and even family because they just don't get it sometimes (I even had a family memeber tell me I was making it all up - funny, ECI or Early Childhood Intervention is the one that found everything, not me). Anyway, your not alone and HUGS to you!!! 

Name: dana6 | Date: Dec 8th, 2006 1:56 PM
Does you little girl seem to like to do dangerous things? Silas like to . he insists on touching the oven when it is on. he dangles off the end of the steps which has a drop to the hard tile floor, he climbs out of his high chair and has fallen off the table top many times. and over the fourth of july we were camping and we had a GOOD fire going we had to sit back it was so hot, well anyway we caucht him inches from walking right into it hand stretched out as far as it would go. he acted like he could not feel the hotness. 

Name: babyhuie61 | Date: Dec 15th, 2006 2:57 AM
Hi cathy.It is very nice to meet you.. Sarah has home care three times a week for 2 hours each time. She has a case manager. Sarah goes to respite care one weekend amonth. it gives me and her step father a break. he gets her ready in the morning for school as I am at work. He is so good to her. I can not speak too highly of her bio dad. I hold down two jobs. I have sarah in depends which she has her period. I look forward in hearing from you.

Cindy 

Name: CarolinaSunflower | Date: Dec 26th, 2006 7:28 PM
http://www.freepowerboards
.com/hypotoniahelp/

Fee
l
Free To check this board out as I have found it very helpful myself:)

God Bless you
CarolinaSunflower 

Name: Shelley | Date: Dec 8th, 2007 3:00 AM
I have a son who has just been deemed developmentally delayed. From what I understand it's not very bad, but it is affecting his life as well as mine, my husband's and my daughter's. There's times I just want to pull my hair out because I feel like I'm going crazy listening to everyone else tell me it's my fault because obviously I didn't work with him enough to help him learn to do the things other kids his age can do. I would love to find other moms who know what I am going through and understand it's not a lack of trying that causes this! 

Name: rowan | Date: Jul 27th, 2008 1:55 AM
Hi Cindy.Its nearly 3am here in UK and I am having a bad night.I tapped dev.delay into google with chat and this is whatcame up.I dunno if I will be any use as my beautiful dd isonly 2 and a half but I am so sad today. 

Name: Mamaof7 | Date: Aug 26th, 2008 7:51 AM
Hi, my son Naja is 16 and has been on OT and speech path for a few weeks now, unfortunately his schooling is suffering tho and although I'm glad he has made some friends at school, they have started truanting, just when i though he was finally settled and getting enuff support with learning! He has a premi "failure-to-thrive" baby with reflux, then nearly drowned at 2 1/2 while being cared for, the one time we got someone to care for him so we could work! on top of that my father thinks he has mild autism, going in for full screening shortly...his father was in denial for years but now thinks he will neva be fully funtional, I still have hope tho!!!!
Najas sleeping has been crazy, seems to suffer from a lot of anxiety about going to sleep and would stay up all night, playing computer games if we let him...it is getting sort of easier, but now, with him retreating from school, and so many other children to care for.....I do find myself at a loss of how to proceed, luckily his Dad is going to take full responsibility now, as he is on a carer pension, so he can stay home to help......
It is very stressfull and worrying and hard not to feel kind of guilty and that I am to blame.....still, he is a loveable, innocent young man and one tries ones best, thats all we can do eh? 

Name: andrea | Date: Sep 6th, 2008 10:41 PM
hi cindy,my name is andrea and i have a 4 year old boy named kieran he was 1st dignosed with low muscle tone,severe developmental delay at 13 months old and suffers with fiberal convulsion fits only when hes ill ,it will be nice to talk to some1 else in my situation 

Name: mamakeene | Date: Sep 8th, 2008 9:41 PM
It's so important to have people to relate to, it's hard for others to really know what you are going through. There are many of moms out there than can really relate from their own experiences. I have a child with an autism spectrum disorder and overall developmental disabilities, it's tough to relate to my other friends who really have no clue what it's like. I am here to chat anytime. [email protected] :) 

Name: timbit77 | Date: Sep 8th, 2008 10:40 PM
Hey Cindy. I am new to this too. I have two kids with delays. One is 3 and the other is not 2 yet. I feel you it is like you are in your own world and no one understands you. I feel like I could have a break down any day. And to add more crazyness I just had a 3rd baby who is only 6wks old. 

Name: MsKeva | Date: Sep 11th, 2008 2:40 AM
Hi,
I need educational information in San Antonio TX to help my 7 year old child. I'm in the military and I can't afford private school. I feel that the public isn't helping my child. If anyone can help me e-mail me [email protected] 

Name: mum24ineed | Date: Sep 25th, 2008 9:07 AM
hi i have a 7 year old daughter with cp and developmentally delayed love to chat with people in the same boat 

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