|Name: Parker | Date: Mar 11th, 2010 2:30 AM
|I am 15 years old i have a mild case of cerebal palsy. Mine is on my left side though. I play all sports and once i told my friends about my cp they accepted me perfectly into their group. i have self taught myself into almost everthing normal children do with two hands. just tell them what you have! who cares what they will think. When somebody notices and says "what's wrong with your arm? " I say nothing I have a mild case of CP. their reply is "oh" and we move on! its that simple. Never doubt yourself. ↑
|Name: Maddie | Date: Mar 14th, 2010 4:53 AM
|I have cp. I am almost thirteen and am affected on my left side. I could not ride my bike without training wheels until I was 8. I would run into things and I fall most every day I am teased in school. It has been going on since right after preschool where I had a friend and still do who has a slight mental issue. My "safe haven" I guess you could say is horseback riding. Not only is it fun but it helps my cp as well. If possible your daughter should ride too ↑
|Name: Glenn | Date: Mar 15th, 2010 2:55 AM
|I am 29 I have mild cerebral palsy. I did not tell kids either, I always got made fun of in school. PE is always the worse for kids like us. your daughter needs to tell other kids why she is diffrent, I couldent I was too scard and when you are already getting negitive attention you dont know how to talk about cp. maybe if the school has your permision your daughter could be out of class and the teacher or maybe you could do a presentation of Cerebral palsy so kids know what it is like. your daughter would not want to be in the room when it is being discussed but she will be glad you did it for her. school is so hard when you have cerebral palsy. when I was elementry school I had to deal with being picked last always being the slowest always, the stress of tring to catch the ball you know you wont catch. Even when you have mild cerebral palsy regular PE is a source of real stress. there were times I really held back tears and there were times I just cried like a few times in elementry school. ↑
|Name: drwho | Date: Mar 17th, 2010 5:54 AM
|my daughter is 16. We moved here from another state. She wasnt diagnosied with cp until she was about 18 months old. Most of the drs say because it was so mild. She went through ot and pt and speech therapy. To look at her you would never know anything was wrong. My husband didnt know or want to know the extent of it until junior high when he went to a science fair for her class. He cried the rest of the day. We moved out of state when she just turned 13. The dr here said there is absolutley nothing wrong with her which means I get none of her meds. She is 16 now. She has a very low IQ. She does understand when we are talking about her. I dont want to tell my kids that they cant do something but I know in my heart she cant. I still have to brush her hair daily and tell her to shower and things like that. How do I tell her she cant be a dr. Please dont say she can because she cant. I dont know how to school her. I cant get help from my husband. His family just keeps bugging me about getting her "fixed" so she never has kids. I feel very alone and dont know how to handle this. HELP ↑
|Name: Amy | Date: Mar 24th, 2010 3:14 AM
|I am a 34 year old female who has lived with a mild case of cerbral palsy and i would love to share and answer any questions you may have. I remember how hard that was for me and my parents when I was young and the emotions I went through. I must say it isso important that she feels good about her self and that is having supportive parents because sshe will have good and bad days even at 34. I went to college and now a social worker now for 11 years working with the mentally ill and developmentally challenged elderly in a behavior nursing home. there are so many wonderful possibilities for your daughter. CP is a scary word but is not the end only the beginning and it will only make her stronger and a compassionate human being. ↑
|Name: nayblessedmom | Date: Apr 3rd, 2010 6:46 PM
|My daughter is 16, and I have the same issues. It pains your heart to know that there are limitations & things that she may never be able to do well. but I tell if there are things that she does want to do, practice practice practice. That it just takes her longer to catch on & learn how to do things. It is hard & frustrating at times, but give her that can do spirit, it is all you can do. and it is true that not all people are good at everything. ↑
|Name: ninerrock1 | Date: Apr 6th, 2010 10:43 PM
|I was in the same siuation in school. I realy did not find anything to make that go away exept for finding a group of freinds who do not care how you walk or etc. By finding this group of freinds it should make school go by beter. However for me it was easy because we had small schools inside of our high school so everyone was forced to find some kind of group of people to get along with. Once I did this I started making many new freinds. Tell her just to find a group of people who like being with her and do not worry about what others say. ↑
|Name: Diana | Date: Apr 20th, 2010 8:46 PM
|Hi, my son was diagnosed with mild CP when he was 2 years old. He is now almost 3, and he just started walking a few months ago. One place that I have taken him to is the Movement Center and I think that they have helped him alot. His walk does look clumsy and he is off balance. I worry about him every day. He is starting nursery school in Septemer. I hope that everything will be OK. Does anybody have any ideas about how to improve his balance?? ↑
|Name: cmagnozzi | Date: May 6th, 2010 11:36 PM
|Yes! My daughter did not roll over until five months old and crawling at 22 months. She started walking around 27 months. We did the MRI on brain and spine. There was abnormalty in the brain but not her spine. All the orthopedists said she did not need nighttime braces. She has been in "Cascades" braces a little before her 2nd birthday. I started all therapies at 15 months old. I wish I had started sooner!! She has been walking for two years now! She pronates alot and her PT is not happy with the"Surestep" braces I haver her in just recently. I need to get her back into Cascades. I worry for her so much. I have her in an ESE classroom. We are in Florida. We receive all therapies inside and outside of school. She is doing well academically. She reads, colors and writes letters... She has difficulty with some OT skills like feeding, proper grasps of crayons... PT just now mentioned the idea NOW that is may be mild CP. I feel like I have been working on everything with my daughter and now I feel like I have missed something... She is so tight in her legs and now may need night time braces and taller braces altogether! She has SMO's now. Worried, confused....My husband and I kept mentioning the night time braces! What the heck!!!! NOW!! ↑
|Name: Amie | Date: May 27th, 2010 10:27 PM
|i am 23 yrs old now, i got Mild cerebral palsy, my left arm and leg is weak side and i dribbles. i cant eat hard foods. some people dont understand me. ↑
|Name: LadybugMom | Date: May 28th, 2010 6:40 AM
|My 18 month old daughter was recently diagnosed with Cerebral Palsy. In some ways, it is very mild because she can walk and run. But at other times it is very apparent as she is so stiff she can hardly walk, drags her left foot and falls constantly. She also trembles, has hand tremors and sometimes has large choreathetoid movements when she is super tired. I worry that she is in pain when she is extremely stiff. Can anyone give me any insight as to what she is feeling? Any advise? ↑
|Name: halimamuhumed | Date: Jun 15th, 2010 3:47 AM
|hi you are not alone my daughther was diagnosed with 2 % brain damage (mild celbral palsy) she has the same symtoms as your daughther . she is 8 yrs old she forgets a lot her grades are down and she is a left handed she walks in a dragging motion. but she is very helpfull loving and inteligent in her own way . she is speacial in her own way and i love her i wish she can grow out of it if u have any info about treatment or anything at all please email me thankyou blushin [email protected] ↑
|Name: Jeasica | Date: Jun 24th, 2010 5:55 AM
|I myself have mild cp I am 18 and I am happy. Cp has made me a stronger person the thing more ppl need to understand ppl born with cp don't know any different so h
they work with what they have and can live life how ever possible to the fullest because that's our life ↑
|Name: Jessica | Date: Jun 24th, 2010 6:02 AM
|I am 18 in my case I have a worse case but I understand why she doesn't want to explain some teens wouldn't understand and others may feel sorry but she needs not too keep up with others but set her own pace and see through this it is easier to find the truely good ppl and thy ARE out there and the ones who just don't get it are not worth the time let her know she is not alone ↑
|Name: thehun | Date: Jul 27th, 2010 12:40 PM
|I am 33 years old woman and I was born with CP the mild form of muscular dissorder I had botox injections and started walking when I was 26 months old. I have been through various therapies through out my childhood. Children born with this type of CP can lead a happy life. once I learned to walk there was no stopping me! I have a curious personality which helped me a lot. I had a lot fo encouragement from my family to achieve things I wanted to achieve. I am happily married have two dogs and do a lot of sports such as Kung fu and go to the gym etc. the only downsize to my CP is that I get tired quicker then normal people but that does not stop me doing things I like doing. I just need to take more rest that is all. ↑
|Name: CAM | Date: Aug 10th, 2010 8:33 PM
|My daughter has not been diagnosed with mild CP as of yet but her physical therapist thinks she may have it. She was diagnosed as hypotonia with an abnormal MRI(brain-whiter matter) Still do not know what this all means. She is 4 and a half. She wears orthotics and we are not sure if they are helping. She pronates badly and has very bad balance. She still falls down a few times a day. Her speech can be unintelligable at times. Her fine motor skills are getting better. She reads wonderfully at her age. I am so proud of how far she has come. She has some emotional needs,I can see . She still poops in her pants and has trouble making it up to the potty seat. I wonder if she will get stronger because she doesn't show a "drive" to get stronger. She has a more relaxed attitude. I worry about her emotional state on a daily basis for her future. I just try to do the best I can. ↑
|Name: Lauren Kimel | Date: Aug 14th, 2010 9:46 PM
|Hey I am Lauren Kimel I am eighteen. I have mild cp too just like you. I am very weak on my left side as you are on your right. To the mom I know what your daughter is going though. It makes it really difficult. My dad name is Joe Kimel. My balance is effected as well. It takes a long time for me to do things as well. I can walk, but I would have trouble on a bycile. It efects my gross moder and fine moder skills. My gross balance and walking downstairs. My fine I have tremers and difficultity writing takes me a lot longer and my writing is like on a 1st grade level.I am cerrently living with my dad, because I am ready to have the skills to be an independent person and my mom kept treating me like a baby. I am an only child. I am in the same boat with you so far as friends are concerned. I really really need some help in this area. Just like your daughter I have friends, but I have trouble making friends. If you would like to contact me by e-mail adress is [email protected]. I would love it to get together with your daughter sometime. Really I would. ↑
|Name: benjah | Date: Sep 10th, 2010 4:44 PM
|Name: on our own. | Date: Sep 24th, 2010 3:33 PM
|i live in il. health is care horrible. i noticed my daughter had problems at 6months. she too is mild spastic diplegia.with much force i got her into easter seals.from there we took over.my family and i (3 other kids& hubby).did all the pt at home.we did all the learning at home. my husband was always on the floor with her and reading to her. my other kids helped too.she has been pushed aside and we can't find any help for her at all.i'm fighting to get her to a behavior therapist.i too am told she is "normal" that she is spoiled that she needs just to have her episodes.it is too hard emotionally. she is 6yrs. old and very sweet. but she struggles with so many things. i hope you have good care givers. as a parent.stand up for your daughter.treat her as a reg. child but let her have her moments or days w/o guilt.be her advocate get the school involved.ask permission to share info on cp with her teachers and class.so far i don't have peer problems. and by working with the teachers & principle it hasn't been too bad.but her new teacher doesn't really get it.there are many like our girls out there. they just sit in silence kicked to the side because they aren't in a wheel chair & are able to function well.that's where these kids have it worse than the "reg."kids with cp.i am very thankful that my daughter is mild.wish other kids didn't have it so bad.but the mild lable really causes so many problems. i have even been considered a problem mom because i read charts & files and speak up.i'm told i worry too much.when i bring up her cp i'm passed over or scoffed at.i'm tired,it's taking a toll on the family and i'm at a breaking point. we don't have credit cards or any help from the state.i fought just to get her medicade.my husband works,i can't.we live on his paycheck.it don't take my med. or see dr.si save the money to travel 3 hrs with her to her neuro dr. i hope he stays a good. doc. i was told he's good.but even he doesn't seem over concrened.didn't answer me when i asked about her constant pain. but did get her on med. with her migraines. she also has lazy eye,stomache disorders.also fructose malabsorbtion. a few months back my daughter said she wanted to die. she knew what it meant and was serious.people don't realize these kids suffer in silence.i hope for your daughters continued care and wellness.the fact she has such wonderful support at home will go well by her.i know this prob. didn't helpyou but i wanted you to know you are not alone. keep fighting for her & you are not crazy for feeling so emotionally spent. ↑
|Name: Joan | Date: Oct 2nd, 2010 12:41 AM
|I am 35. My CP is mild enough that I can walk on my own but both legs are affected and my gait is definitely unique and noticeable. It gets even worse when I am nervous which kind of sucks but it is what it is.
I had tremendous support from my parents growing up and I still do. My parents put me in everything that my siblings were in. I took dance, gymnastics, music, tae kwon do, swimming . I even ran track. I was not really good at any of these things but I got to try them all. I learned through this that I would have to define my own victories - I never won first place in anything (usually I came in last) but sometimes just knowing you can do it at all and do it on your own terms is enough.
Support your daughter, encourage her to try things and push her comfort zone. Also, finding a group of friends who are accepting of her as she is will do wonders. I know the friends I had and have have conscioulsy made a decision to accept me as I am and to stand beside me. This has blessed me with some of the best friends any person could ever hope for.
Despite CP, I have been able to create the life I hoped for. I am an RN, I am married and have two beautiful children of my own. Life with CP is a challenge but I don't think I would change it if I was given a choice. This disease has taught me empathy and schooled me in determination. I am who I am because of it. Keep supporting your daughter, she will be fine. ↑
|Name: Terry | Date: Oct 6th, 2010 9:42 PM
|I am age 12 and i have a mild Case of CP. My CP Affects All parts of my body. I have suffered from bullying because of my syptoms. But still i could not wish for anything diffrent. I love my life and enjoy it :) ↑
|Name: Terry "!Again!" | Date: Oct 6th, 2010 9:46 PM
|Though i have wrote that i have one wish including cp, that NO ONE no matter how ugly of overweigt of super skinny of Has cp ETC... is not treated Diffrent it breaks
my heart to see people treated diffrent ↑
|Name: Susana | Date: Oct 13th, 2010 4:46 AM
|Hi, My daughter has some form of mild CP. She is 17 and also has difficulty making friends that will accept her and include her in their group. She is doing well in school but everything takes her twice as long. She asks kids at school if they want to hang out with her, go to movies or the mall and they always seem to be busy with other kids but never invite her along. She has one loyal friend whom she has sort of taken under her wing. Her friend also has some special needs and my daughter tries to help her with school. But somehow, since my daughter has tried include her friend the others have shut them out more.
I would so much like for my daughter to find a circle of friends where she would feel accepted and not left out ↑
|Name: chloe | Date: Oct 18th, 2010 6:21 AM
|My son is 7 with mild spastic diplegia. He is getting the walkaide this week. It is a wireless estim cuff that helps get a heel/toe gait pattern instead of being on his toes. Normally, he uses his arms to balance, so they tend to be up in the air a lot. When he tried the walkaide his gait improved considerably and his arms came down to his sides. If your child has decent range of motion, ie the tibia extends, search for a walkaide provider in your area. The walkaide in conjunction with a lot of physical therapy to build strength and stay flexible is a great chance for improvement. Maybe he'll learn to ride his bike this year, but if not he has a very cool three wheeler available at costco online that has the handlebars attached to the backwheels- it does great spins. the kids in the neighborhood love taking turns on it. There are some good accommodations that aren't stigmatizing.
So far, he has been lucky and has not been subjected to much teasing. One of his classmates told him his walk was cool and that it looked a little like a dinosaur.
Another idea, look into challenge air. It's a program that lets kids with disabilities fly a small plane with along with a licensed pilot. They offer flying days around the country. It's free. The kids leave the airplane with such a sense of empowerment. Not too many of their peers ever get to a fly a cessna. He loved it and his classmates can't believe he flew an airplane. They are in awe.
My son knows about CP, and knows that we are his biggest cheerleaders. It is tough, but it has made him the person he is, and we are very proud parents. I don't feel sorry for him and I don't ever want him to feel sorry for himself. Things are harder for him, but he was a positive attitude and doesn't give up. I always tell him he is lucky in so many ways. Every childs situation is different and he might be a different kid as a teenager, but I pray he continues to take this on and not let it stop him. ↑
|Name: Amanda | Date: Oct 20th, 2010 3:26 AM
|i have had mild cerebal palsy for
almost 29 years now any body wanting to talk? ↑
|Name: hoobxx | Date: Oct 20th, 2010 5:41 PM
|I am 12 with cerbal palsy, I have had to wear a leg brace since i was 8. i have been teased for this time. i have to go to frequent therephy and always come last in races. Any ideas to cope with this????
I always think it is the taking part that counts so everyone remeber that! :) ↑
|Name: aimz | Date: Oct 24th, 2010 2:19 PM
|my little girl is five and has mild cerebral palsy, these points you have made about your little girl are exactley like my little girl, my littlie girl has this as she has damage to the brain from when she was born, it is very hard to deal with i total agree with you, i take every day as it comes ↑
|Name: annon | Date: Oct 27th, 2010 9:55 PM
|I, myself have mild dyskinetic cerebral palsy. It isn't noticeable to everyone unless they see me run... It is nothing to be ashamed of. I am currently in first year university (18 years old) and I made it through high school (a standard 'regular' high school) fine taking part in extra curricular activities, head of many clubs and doing well in school. Obviously, my running was noticeable to be not "normal" but luckily only the stupid, jerky people were the ones who actually cared to make fun. Sure, I grew up with being bullied but it made me a stronger individual. Sure, I am different, but it hasn't stopped me in anything. The friends I have all know that I have a disability and were supported of it when I struggled with like catching up with lecture slides, carrying liquids and were always there for me to help. But the ones I lost in the process of telling about my disability weren't true ones, which is what many friends tell me. Your daughter is not alone. ↑
|Name: Tammi | Date: Oct 29th, 2010 4:54 AM
|My son is 10 and sounds very much like your daughter. We were just told today that he probably has mild cerebral palsy. He has a slight limp and has been slower in things you listed also. He also is always teased. It breaks my heart to hear people pick on him...especially now that he has been diagnosed with this. ↑
|Name: Jessica | Date: Oct 30th, 2010 4:46 AM
I have left sided mild hemiplegia CP.
I know it's hard at times but you just need to remember to keep a positive attitude because no matter how normal other people seem, everybody's different. Always remember having CP or any other limitations does not make you any less of a person than anyone else. Embrace you disability and don't hide it from people because if you can't be accepting of your limitations, nobody else will ever be. ↑
|Name: Nithya.s | Date: Nov 2nd, 2010 8:07 AM