Hello, guest
Name: crackers
[ Original Post ]
Your Name


Your Reply here

Name: Nithya.s | Date: Nov 2nd, 2010 8:07 AM

Name: Jessica | Date: Dec 22nd, 2010 6:32 PM
Yes I have it and I am 29 years old.
I get tried more frister then othere's how don't have it I can onely work a 4 hr job It make's it heard to learn school work that as been the heard's for me. And most people if I tell them they dont belive me. And I have spatic and my arms and legs sometimes not all the time. And I was taste and school beacuse I could it keep up with the other kids and the class room. And the teaher did it wont to have to help me learn the way I need it to. But I could learn piano and karate. 

Name: toccara | Date: Dec 25th, 2010 10:02 PM
I have an mild case of cerebral palsy I was two pounds two ounces born at 27weeks I understand the being teased and made fun up. Even though I am grown up married with kids some people can still be mean, then you have some that are understanding and treat me normal. 

Name: colbys mom | Date: Dec 29th, 2010 11:30 PM
my daughter is 5 and has mild cp.it affects her left side head to toe.shes very delayed in her speech and motor skills.shes a toe walker(wears billateral afo's).and possibly facing surgery to stretch her achilies tendon.we started our 1st round of botox injections in nov.@ 1st. i thought it was a miracle-and may be.IMMEDIATELY her phys. therapy end daily stretches became PAINLESS 

Name: COLBYS MOM | Date: Dec 29th, 2010 11:30 PM

Name: COLBYS MOM | Date: Dec 29th, 2010 11:38 PM
IT wore off after only a mo. and the pain was overwhelming comming back so suddenly.it was the lowest dose poss. for the first time. so the dr is upping the dose next round.i pray that this will ease my babys pain.i would do anythingto make it better! 

Name: heidi giles | Date: Dec 30th, 2010 11:27 AM
My 20 month old son has mild CP. I have had a "learn as you go" situatiion. He's soon getting fitted with braces on both legs, He pulls himself to standbut has tight heel cords and hamstrings, so he doesnt sit on his rear or walk/talk YET. He is gorgeous and funny and already uses sign language. I still worry, help is hard to get. Any suggestions for any helpful ideas please suggest. You teens w CP I am inspired by you! XX 

Name: heidi giles | Date: Dec 30th, 2010 11:50 AM
OH, btw, my sons braces are called AFO's and i 4got to mention he curls his toes as well. Any ideas from you teens out there would be great. You are all amazing and inspiring! 

Name: beth | Date: Jan 3rd, 2011 4:19 AM
I am a 44-year-old mother of two boys with mild cp and I can happily tell other moms out there that my symptoms eased as I got older. They were much more pronounced as a girl. I walked on my toes, fell often and couldn't do a lot of the dreaded gym class activities. I hated gym, got teased and tried to get out of class whenever possible. My parents, however, never let me take the easy way out, no matter how much I pleaded. But as I got older, I became better able to manage my body and the teasing etc. which lessened as the other kids got older too. By the time I was in college (no gym class!) I often forgot I had cp. Later in my 30s I even took up running (the task I hated and struggled with the most as a girl) and ran a 5K! In turn, I want to tell other moms not to underestimate what their children can achieve and I'm glad my parents didn't baby me. I did, however, struggle with all the physical demands (little and big) of motherhood--carrying infants (and not falling) fastening car seats etc. I find that in my 40s, I'm falling more, encountering more stiffness, dragging my feet more etc., but I think regular exercise helps. I know that cp has made me a stronger, more empathetic person and I'm grateful for all of the posters who shared their inspiring stories. Lots of love. 

Name: candid | Date: Jan 15th, 2011 6:45 AM
Hello friends ,,, its just same wit me..i iwth the slightest ever mild cp... i suppose... here i myself no it after being in my 22 years of age... i am doing my college. and sincerely feel her pain... people ask u sometymes.. why now i walk slow.. before i used to walk fast and tht used to gv boat walk. like drifting water flowing here an there. now that i got this solution of walking slow..but stil
Almighty should help) 

Name: candid | Date: Jan 16th, 2011 8:23 AM
One big doubt that5 i have is there some sort of head being bit dis shaped on one side... i noticed like being a very small depression sort on my right side of head (from my ears) followed by moving fontanella which is also bit different, do lemme no .. if anyone has dis sort of problem,pls.. 

Name: Rachel | Date: Jan 16th, 2011 5:40 PM
I female am 29 yeas old with mild cp. I can walk with walks aids 

Name: candid | Date: Jan 20th, 2011 5:18 AM
Rachel , can u mention what walk aids u wear? .. becoz i m suffering fom slightest ever of cerebral palsy... i do limp ... but very slightly,, pls. reply.. 

Name: Shauna johnson | Date: Jan 20th, 2011 9:39 PM
Please check out my blog. http://johnsonspecialneeds.blogspot.com
Life With a Child With Special Needs

Shauna Johnson 

Name: shaunz77 | Date: Jan 20th, 2011 9:54 PM
I have a 4 year old child with mild Cerebral Palsy as well as seizures.

Please check out my blog:
With a Child With Special Needs

Please pass it on if you know anyone interested.

Thank You,
Shauna Johnson 

Name: KellyDione | Date: Jan 25th, 2011 12:03 AM
I am a 35 year old mother of 1. I have mild cp. I have been struggling recently with more stiffness than usual. I also wanted to know if anyone else suffers from the inability to feel textures of objects. I am limited on my left side. If I close my eyes, I am unable to figure out what the object is. Does anyone else have this problem too? 

Name: shauna Johnson | Date: Jan 28th, 2011 11:10 PM
My son Eric is 4 and has mild CP and seizures. I would love to help anyone in need...I started a new blog please take a look.



Name: Anne | Date: Feb 2nd, 2011 11:34 PM
I have spastic CP. I'm 22. My brother had Severe CP. I was fortunate. It only affects my left side. My hand and my leg. I to walk with a very slight limp that no one can tell. I had my ligaments cut when i was little. I used afo's. It was hard growing up. Cause i too learned a little bit later then everyone else ( bike riding) (driving) ( zippers). Right now I'm frustrated in my life trying to figure out what career I'm suited for. But at the moment Im going for Paralegal. I wish I could easily be a hairstylist. But cannot do so. She is unique in the eyes of God and God has a purpose for everyone. 

Name: simon | Date: Feb 5th, 2011 6:18 PM
I have slight cerebral palsy in all four limbs and I have been bullied in school. I have just turned 21 and am currently a member of the Irish paralympic team. Although mild cerebral palsy can allow many to function in society I believe there must exist a greater awareness of teachers and other people in positions of authority about cerebral palsy. I made it to college but my grades suffered as I spent so much time thinking about what other thought of me. Its hard enough being a teenager without throwing in CP. Because the condition can be mild people other than those suffering with cp fail to realise the impact it has on a persons life. it can destroy confidence. In short there must exist an understanding of the mental strain that people with cp suffer and not just their physical condition. i should know as I suffered depression due to my CP 

Name: alex | Date: Feb 11th, 2011 8:26 AM
hello my name is alex and I myself have mild cp, I am also 21. I dont know if anyone is still reading these but I know without a doubt in my mind, as long as you stick with it and show your kid a much love as you can, you will be surprised at the outcome. 

Name: autumn | Date: Feb 12th, 2011 10:06 PM
hi crackers, my name is autumn. your description of your daughter is near exactly the same. she is currently in preschool and she cannot keep up with them. her name is brandi and she asks me why can't she keep up with the other children. please email me at cookautumn40@ so we can talk more about this issue. i have questions for you and how you handle situation since i do know what lies ahead for her.
thank you
concerned, autumn 

Name: brittany lushman | Date: Feb 14th, 2011 4:15 PM
hello crackers
i am a 17 year old teenager who has mild cerebal palsy and has been diagnose when i was about 8 months old.!!. i have it on my left side , i have no balance whatsoever,but manage to maintain a relitively nomal look when i walk ? jog.. i also cant ride a bike . and also find it difficult to balance to tie my shoes or do up zippers. my feet and anckles roll and sprain verry easy, so i need special sneakers made to surrport my anckles and my feet. i walk with a " sometimes" noticable wable or limp and i also have one leg shorter then the other, and am on my toes all this is only on my left side..
your daghter and i have many simularitys , an i know she will get through everthing that this world has to give, good and bad!!
tell her to take care!!!
brittany lushman, newfoundland 

Name: DR | Date: Feb 16th, 2011 11:29 PM
I'm 14, currently a freshman in high school and I have mild spastic cerebral palsy. Over the years, I've learned that the best thing to do is be open about your situation and let other classmates know that you have cerebral palsy. I've had to deal with CP my whole life, from the leg braces, physical therapy since I was 2, I still wear hand braces nightly, and the list can go on and on, but cerebral palsy is not something to be ashamed of. Letting people know the truth about why you can't do certain things the same as other people will only make everything better. In fact, as I am typing this, I am only using my two index fingers. I've been typing this way all my life, and it's been the best that I can do, and it's worked for me so far. I hope this helps. Remember, be proud of who you are, focus on your accomplishments, not your disabilities. 

Name: Sarah | Date: Feb 16th, 2011 11:49 PM
why in hell are you complaining?? Mild limp?? I have to use equiptment just to move around and youre complaining and I have CP too. Shes so lucky. I`m sixteen and yeah she`ll meet mean people but at the same time it gets better. In high school generally kids are better at dealing with kids like us, it helps if she joins a lot of clubs and put herself out there. As long as shes fine with it and YOU are fine with it everyone else will be. 

Name: candid | Date: Feb 18th, 2011 2:06 PM
here i m in india.. i study M Sc an am seeing the worst days of my life... sometimes happy... ppl,comment outside buses ,,,, in trains in local places,, why just because u are slightly different... besides i m strict muslim... who wears a burqa ... which s so sad... being notified,,, i need to talk to doctor... i once saw a doctor who told me that i walked differntrle .. so i may be affected,,, ian then he has told me to take somer medication s an i think u told abt surgey and trhen leg braces ... so lets c... but pls friends i m clue less,,, as to waht i should be douing ,,, i leave a normal life an walk sloww an good only .. but i want to adjust myself an get better too . so pls ,,, help me with good info on this... with aht i can do it for myself... my parents are very good ... an the biggest support for me)_ but u friends out there will be another.. so pls help..... 

Name: candid | Date: Feb 18th, 2011 2:08 PM
i want to mail u autumn ,, gv me ur id... pls ,, well wisher 

Name: eave | Date: Feb 22nd, 2011 10:56 PM
hey there my little boy is only 7 and tge sameasyour daughter , it isheart breaking because physically they are perfect xx I feel guilty as I know it could be worse but its still my child and its an added challenge for him x 

Name: Pam | Date: Mar 5th, 2011 12:38 AM
I don't know if you still check this. I found this chat when I googled "mild CP" because I do feel alone when dealing with my disability. I'm 32 and made it through school. My cp effects my right side, and I had two acl surgeries as a child - they didn't seem to do much.

I walk with a limp and tightness, and the leg brace has caused scar tissue and plantar cysts because of the pressure on the instep. I know what it feels like to know I'm fortunate, but still struggle with the physical and emotional challenges.

It's so mild that it's hard for me to get people (even doctors) to understand my urgency. But for me the hardest part is that my parents treated me like I was slow, for not picking up things as quickly as my sisters. And, that they ignored getting appropriate treatment... like physio... or different neuro-muscular things.

I made it through school and I'm still learning about self acceptance and making friends. I even set the intention to forgive my parents.

For me the greatest challenge is being left alone to deal with these challenges. Remind her you love her... care... and create the experience that when she looks back she knows her parents did all they could because you love and accept her.

And yoga... I started going to very gentle supported classes when I turned 30... and I wished I had looked into this earlier...

I'm working on forgiveness and self acceptance. But socially the thing that has helped me connect to people the most is being honest... it helps people be honest with me about their challenges.

And people who have become my best friends are people who accept that I could, but don't feel like using a cane yet, people who I can trust to give my arm if I need to steady... and people who understand that I get tired a little faster so they don't mind if I flake out sometimes.

Also, Toastmasters... I joined in University, and it helped me come out of my shell in a structured way...

I still struggle with my leg and hip and limp... and wishing my parents tried harder... but yoga and toastmasters and showing up honestly - has helped me reach other people.

It's not perfect, sometimes people mistake my honesty for self-pity, but their reactions are not my responsibility. But I think, if my friend were a diabetic and she told me - I would not bring brownies to her potluck - and I would not think she was complaining. So, I think I deserve the same in a friend.

Sometimes I get down about things. And then I reflect compassionately and recommit to core goals... exploring options and resources, participating in things I care about, trying new things....

The best future I can create for myself in relation to my CP is one where I can look back and know that I've taken the best care of myself that I can... and I've made an effort to challenge myself and face my fears.

I figure if I can beleive so strongly that my parents should have done more, then all I can do to make life more fair is be sure I lead a mindful life and take good care. 

Name: Pam | Date: Mar 5th, 2011 12:47 AM
When I found this website, I was hoping to find other people on that fence.... slight enough to pass as normal, but still had to struggle and didn't feel normal...

I'm on a waiting list for physio and occupational therapy. Because at 32 to tightness in my hip and the cysts caused by my AFO are becoming a problem. I don't know how long the list is... they will call me...

But I would love to find people who can relate. 

Name: louise | Date: Mar 5th, 2011 3:35 PM
my 4 year old son has it mild. slow for walking an he likes to be like his twin brother who does not have it. he wears splints and a belt, when he has growing spurt he will not walk, easily gets tired and struggles, he scares me when running he looks like he going to fall over, he has his own way balance etc, very clever boy, love hom to bits, 

Name: shane | Date: Mar 15th, 2011 7:52 AM
I'm 48 yrs old and I have Mild CP that effects my left leg and turns my feet inwards, I also have some learning difficulties.Like most of you I was teased at school and told that because of my CP i couldn't possibly do things that 'Normal' people do.

Well you can we just do it differently. I have run half marathons and climbed mountains even though it took me longer than some to do it. I have even studied at Oxford !

Don't give into the bullying, I know its painful but those who tease us are the ones with the so called disability. Be proud that you have come this far, be proud of your achievements however small and don't compare it to what others may achieve, you are specail. 

Copyright 2024© babycrowd.com. All rights reserved.
Contact Us | About Us | Browse Journals | Forums | Advertise With Us