|Name: Liz Heaton | Date: Jan 8th, 2012 11:01 AM
|Hello. I read your post. I can't remember if I wrote to you before, but I wanted to let you know that my 18 year old daughter was recently diagnosed last year at 17. She has Mild Spastic CP affecting both legs and slightly in her hands. We were told since the age of 10 that it was a foot condition. This sadly wasted years that could of been used for physical therapy. It has been a struggle and even some family members can not believe that she has this or that this is what it is. I would love to talk more if you want. My e-mail is [email protected] Best of luck to her and your family. ↑|
|Name: jasmine | Date: Jan 9th, 2012 9:32 PM
|Hi , I am 15 years old, & I also have a mild case of CP. I walk With a slight limp , and it affects the left side of my body . It isn't that noticeable , but there are people that joke about it . I've tried to look into getting surgery , but doctors say its too late . I wish the best for your daughter as well . ↑|
|Name: Rebecca Hughes | Date: Jan 23rd, 2012 8:14 PM
|Hi I am 30 years old and like your daughter I have mild cerebral palsy. I live in Elkins Ark. I have 2 little boys Luke who will be 4 tomorrow and Keith will turn 2 July 11. I am pregnant with our third child just found out last Mon. There is hope for your daughter for her to have a normal life and everything that goes with it. I have been married for 7 years in Aug. of this year. I can't drive a car but can do anything else. If you and your family would like to get to know me.. to help your daughter know she isn't alone .. feel free to email me [email protected] . I will also friend you and your daughter of facebook. My profile pic is of me and my husband and our 2 little boys. I am holding our youngest Keith and my husband Randall is holding our oldest Luke my husband is wearing a red shirt with a flag on it. I know exactly how your daughter feels. I went to public school. I would be glad to get to know you guys.. your daughter isn't alone I promise you. ↑|
|Name: Rebecca Hughes | Date: Jan 23rd, 2012 8:19 PM
|Hi, Crackers I am 30 years old and like your daughter I have mild cerebral palsy. I live in Elkins Ark. I have 2 little boys Luke who will be 4 tomorrow and Keith will turn 2 July 11. I am pregnant with our third child just found out last Mon. There is hope for your daughter for her to have a normal life and everything that goes with it. I have been married for 7 years in Aug. of this year. I can't drive a car but can do anything else. If you and your family would like to get to know me.. to help your daughter know she isn't alone .. feel free to email me [email protected] . I will also friend you and your daughter of facebook. My profile pic is of me and my husband and our 2 little boys. I am holding our youngest Keith and my husband Randall is holding our oldest Luke my husband is wearing a red shirt with a flag on it. I know exactly how your daughter feels. I went to public school. I would be glad to get to know you guys.. your daughter isn't alone I promise you. ↑|
|Name: beccajune04 | Date: Jan 23rd, 2012 8:38 PM
|Hi, crackers my name is Rebecca Hughes I am 30 years old and like your daughter I have mild cerebral palsy. I would like to let you know that you and your family are not alone and that your daughter will be ok. My husband and I have been married for 7 years almost. We have 2 beautiful healthy boys. Luke who is 4 and Keith will be 2 in July . We are expecting our third child just found out last week. I'd like to add you and your daughter on my facebook friends list. My profile pic is of me and my husband and our 2 little boys. I am holding our youngest Keith and my husband is holding our oldest Luke and my husband Randall is wearing a red shirt with a flag on it. We live in Elkins Ark. I can't drive a car but can do all the other things .... If you guys would like to get to know me to help your daughter I'd be glad to share with you anything u would like to know... my email is [email protected] ↑|
|Name: emma dowie | Date: Feb 19th, 2012 2:05 PM
|hi, my daughter is exactly the same. She is 10 years old. She does most things the same as her peers but is also slower and falls on uneven surfaces ect. She wears splints on her legs. Startin to know she is different and gets frustrated. Its hard wrk its an emotional time. Up days and down. ╠ know ým lucky as things could be much worse, but it aint easy. Emma ↑|
|Name: Liv | Date: Feb 28th, 2012 5:25 PM
|I have mild cerebral palsy. I walk with crutches and a walker. I am 13 years old. I understand what your daughter has been going through. It has happened to me several times. I have my own quote that I made up that might help your daughter get through some of her tough times- "I don't have a disability, I just have different abilities than everybody else."- I believe that if we put our mind to it, we can do it. I've always learned to keep my head up high, and avoid those people that don't treat me as I want to be treated. I have my own group of friends that excepts me for who I am, and treats me right. Just tell your daughter that everything will work out if she keeps her head up high, and NEVER GIVE UP. ↑|
|Name: Jenny | Date: Mar 13th, 2012 9:31 PM
|I have cerebral palsy mine affect my right hand and arm and my left foot and leg ↑|
|Name: megan | Date: Apr 11th, 2012 3:54 PM
|I am 21 i have mild cp i have had it since i was a baby my whole right side is effect by this i never though i would ever haVE A BOYFRIEND I HAVE A SLIGHT LIP BUT I DONT LET GET IN MY WAY I AM 21 YEARS OLD NOW MARRIED WITH A 2 YEARS OLD ↑|
|Name: Future teacher | Date: Apr 16th, 2012 12:21 AM
|I am a future educator and appreciate parents with concerns for their children and want to know all I can to better understand CP and help children with CP in my classroom. Thank you parents for caring so much!! ↑|
|Name: Future teacher | Date: Apr 16th, 2012 2:09 AM
|I am a future teacher. I want to better understand CP so that I can give a child with CP the best education possible in my classroom. I have respect for parents with concerns and that care about their children and their needs. We appreciate concerned parents. ↑|
|Name: Christie | Date: Jun 10th, 2012 4:35 PM
|I have Mild Cerebral Palsy too it affects my right side and I walk slow too people asked me why I walk the way I do but I just ignore them and I'm 14 years old ↑|
|Name: Christie Clark | Date: Jun 10th, 2012 4:43 PM
|I have mild cerebral palsy too I walk with a slight limp and I have difficulties holding things and lifting objects and I walk slow people ask me why I walk the way that I do but I just ignore them and cerebral palsy affects my right side too sometimes I feel like I'm the only person who struggles because of there CP because I see alot of people who don't struggle:) ↑|
|Name: Stacey | Date: Jun 11th, 2012 10:00 AM
|hey my son is 4 years old|
has Hemiplegia Cerebal Palsy his is his left side tho..
not really noticable he has a slight limp but his left arm is a little more noticable.
he is more mentally affected. rather then physically affected. but maybe speak to the teacher. adn maybe the teacher princable can talk to the school. a disability need to be noticed and not judged ↑
|Name: Katrina | Date: Jun 15th, 2012 1:28 PM
|I have a daughter who is 11 who has mild CP, affecting her right side. She struggles behaviorally way more than she struggles physically. She tends to hug too hard, get too close, talk too loud and be too "intense" for other children, so she's been ostracized, teased and marginalized out of lots of groups. We decided this year to home school her to give her a break from unsympathetic teachers who really didn't seem to understand that her right hand is virtually paralyzed. We also wanted to give her a break from other students who teased her. Her reaction to teasing and being left out is to be very aggressive. So she will tantrum, kick, hit and tell off other kids who she perceives are mean to her. It's hard to know if all these kids are really mean, or if she developed a reputation at her school for being a "bad kid" because of her behaviors. I see she struggles with knowing that she's hungry, so she can get very cranky and not realize she just needs a snack. The year at home was wonderful. She was never teased, her self esteem started to repair, and she learned far more than she ever learned in a group. Now it's summer and there are limited opportunities for her in camps and such for the summer, because her behaviors are so extreme and her disability changes whether she can be an equal partner in regular camps. Sometimes we send her to camps with a babysitter, just to help her have the support she needs and the ability to take breaks from the group. This works when we can afford it. We have always sent her to a sports camp for kids with physical disabilities, but this year they changed the rules that all activities at this camp have to be done in a wheelchair. She thought this was fun at first, but with one hand a wheel chair goes in circles, so rapidly this became quite frustrating for her. There were two girls in her group who excluded her, which added to her misery all week. These girls were in wheel chairs and their CP was much more severe, but between their exclusion, the rule about using wheel chairs for all sports (including tennis) and the staff's obvious annoyance with her, we've had a long, unpleasant week. My daughter is so smart and funny, but when she gets low blood sugar she's downright nasty. She has a very low threshold for things not going the way she expects. In some ways she seems like she also has mild autism. It's tough for us as a family to have to cope with her tantrums and her erratic moods. We work with a psychiatrist to counsel her about getting through life peacefully, no matter how cruel the world might seem. Still, there's no fast forward or easy answer to help her develop her social skills and self control. But for us, that is the hardest part about her CP. The physical stuff is frustrating, sure, but the impulsivity is definitely the thing that has held her back. ↑|
|Name: lisa | Date: Jun 20th, 2012 5:08 PM
|hi my name is lisa i have a son whom is 16 and has mild cp. he is having a horrible time accepting and loving who he is. he has same condition very mild right side cp but to him.its very noticable and i would live to speak to other mothers that are going through this and what can i do more to make my son.love himself and accept himself if u can respond it would be greatly appreciated ↑|
|Name: stan boston | Date: Jul 9th, 2012 9:24 PM
|hi im 23 and I have mild cp by the grace of god im not that inflicted by if, but there is times I feel worthless like y am I alive in first place I also feel at times im a waste of space in the world......so if anyone would like to talk to me my e-mail is [email protected]|
Ps. Im not stuck in pity party all the time.....lol ↑
|Name: Tealeaf | Date: Jul 15th, 2012 1:45 AM
|CHECK IT OUT!|
This is a new website that is dedicated to special needs children.
Spread the word. ↑
|Name: autumn | Date: Aug 9th, 2012 6:49 AM
|your description describes my daughter who is going into first grade. i am going to make an introduction booklet to explain why she is alike and how different. ↑|
|Name: Nitin Nehra | Date: Aug 23rd, 2012 10:46 AM
|Hi my son who is 13 now was diagnosed with mild cp only last year when he started falling a lot in school his left foot is effected and was operated in april this year after 4months now he has started walking slowly he is recovering fast but for me and my husband it is emotinally very difficult but my son is really a fighter he has not cmplained even once after the painful surgery he has undergone my heart goes out to all those little kids who have to deal with this problem and when their parents dont even realise what they r going through v scold them for not learning how to ride a bike or button a shirt which for them is a big achievement i hope after learning about my sons condition i can b more patient with him and can reassure him that nothing is in this world that he cannot do luv to all kids going through this phase:-):-):-):-):-):-):-) ↑|
|Name: Step and Learn Charity | Date: Oct 3rd, 2012 6:55 PM
We set up a new charity in Kent to help children with Cerebral Palsy.
If you are interested in us, dont hesitate to get in touch with us on [email protected]
Step and Learn Conductive Education
Step and Learn is a charity dedicated to assisting the physical and educational needs of children with Cerebral Palsy and associated motor difficulties. Our aim like that of Andras Peto, hungarian founder of Conductive Education, is to view child holistically, educating and motivating the child through play, to become active participants in their lives throughout their day.
Our early intervention programme for pre-school children from birth to five years incorporates the educational values and principals of Britain`s Early Years Foundation Stage (2008). It invites the parent/carer to be fully involved in their child`s learning process, by advising them on how to incorporate the fundamentals of our programmes into the lives of their children at home, thereby empowering the to be at the forefront of their child`s learning and development by promoting home/school collaboration.
How can my child access Step and Learn?
To attend Step and Learn all you need to do is to contact Step and Learn team on 01634 787951 to book an in-school assessment. The assessment will enable the team to determine the appropriate programmes neddeed to aid the child to reach their full potential.
How much will I have to pay?
There is no charge to attend Step and Learn, however any parents or carer`s participation with fundraising events, and ideas given to support the charity would be welcomed.
How old the children have to be to attend?
Children between the ages of 0-5 years will attend the conductive education sessions which will last between one to two and half hours, once a week and term time only.
We will endeavour to run a Summer Club for children between the ages of 0-11 years, and a Saturday Club for children from 5-11 years. ↑
|Name: littlelazo | Date: Oct 5th, 2012 1:46 AM
|I can relate on so many levels. However my daughter is only 3. She has many issues with only 1 being Hypotonic cp. One struggle i have had is trying to explain to people that there are many types of cp and that no two people are alike. I too am looking for an anwser to your question as it is truly my fear of ridicule among peers. Everyone i have come in contact with assumes that cp is restricted to children who are immobile and in wheelchairs. It is hard dealing with the ignorance of others. I hope this helps. Please share this list with your daughter and tell her to look up these names. These are famous people, all of which have cp.|
Abbey Nicole Curran - (born 1987) - Abbey Curran represented Iowa at the Miss USA 2008 pageant in Las Vegas
Anne McDonald - (11 January 1961 - 22 October 2010) - An Australian author and an activist
Bonner Paddock - Born with Cerebral Palsy, Bonner Paddock lived his early years playing sports
Chris Fonseca - Comedian
Chris Nolan - (6 September 1965 - 20 February 2009) - Christopher Nolan is an Irish author
Christy Brown - (June 5, 1932 - September 6, 1981) was an Irish author, painter and poet.
Dan Keplinger - (19 Jan 1973) Artist
Dr. Janice Brunstrom - Pediatric neurologist
There are many more so I will provide you with the website. These people are all famous and successful.
|Name: justin ray story | Date: Oct 13th, 2012 8:47 PM
|my name is justin ray story i have a cerebral palsy im 31 years old i want gf ↑|
|Name: Misty | Date: Dec 27th, 2012 7:55 PM
I sympathize with you and your daughter. It's difficult not knowing what your child's future will hold and having to see them not "fit in". We all want our children to have happy full lives. Our situation is a bit different as our son is only 20 months old and is in the process of being diagnosed. Some doctors think he has mild CP. I was wondering if you could explain what your daughter was like as a toddler..I am desperate for someone who can relate to our son's condition and to determine if it really is a mild form of CP. He has been slow to meet milestones, but seems to get there...at about a 7 month delay. He cruises around with a cart, but is not walking or talking yet. When he first started to walk with his cart, he sort of dragged his right foot along but is not doing that anymore. He is very unbalanced and seems to tire easily. He seems to rather want to sit and play. We notice his fingers on his hands have a tendency to bend under at the first knuckle when he is tired or when he first starts moving around in the morning. We see it happen when he crawls or sometimes when he holds his bottle. His MRI came out clear and only some doctors notice a bit of spasticity while others do not detect anything. Does this sound similar at all to your situation? ↑
|Name: Susan | Date: Jan 18th, 2013 3:33 AM
|Hi there. I realize this is an old post but wanted to throw in my 2 cents |
I am 48 and have cp due to neglect at 14 months. I hope and pray your daughter is not a shut in and is encouraged and have a great support system. And that you see her as your daughter not a disabled daughter.... I never had that but I survived with help from friends not family. I was married have an awesome son. ans still very close to my former stepdaughter and I am still Grandma to her kids. I really am not close to any of my family. They can not see beyond the disability... their loss. anyway "normal" is such a hurtful word. I find with myself that constant repatition helps me and I work out daily I hit the gym 3 days a week. Mine is not mild. I use crutches and a scooter. " I know of no one who is like her and it is really hard to deal with emotionally. We are fortunate in so many ways, but we have our own heartache to deal with as well. She is 15 years old" all 15 year old girls are a handful. She probable feels like a burden. Do you really think she enjoys this?? Are you aying she is a heartache? God I hope not. and I pray that you don't give up on her and what about when she becomes an adult.. Have you taught her life skills like cleaning cooking laundry finances? She is prob 18 now and I pray that you have overcome ↑
|Name: Brittany | Date: Jan 26th, 2013 8:40 PM
|My 7 year old son has CP (right side hemiplegia). He has gait issues as he tends to walk on his toe (with right foot) and has out toeing. We were told that he has tibial torsion and that surgery (tibial osteotomy) would help keep his right foot from pointing out while walking. Also it was recommended that he have muscle/tendon lengthening to reduce his spacticity. We are still investigating these recommendation and he is going for further testing (motion lab analysis).Oh we were also told he had neuromuscular hip dysplasia (told not to be concerned about it) He is a pretty active kid, in swim lessons, ect..and like your child most people don't notice his disability right away. I do struggle with him and his emotional issues at times.. He never says he is embarrassed and actually has no shame it seems to tell people about his need for AFO's and hand splints (he actually brought in for show and tell)but I know his extreme sensitivity at times is due to his limitations and the aggravation that builds up from that maybe even subconsciously. I understand your pain as a mother. For years I have found my strength through my son. If he is happy and content then so am I. If he is hurt emotionally, or feeling bad about himself I kinda fall apart (alone, away from him) but keep face and strong for him in his presence. We are blessed that he is a bright, kind, strong kid with no major health issues but like you said we still have our struggles. |
I'm curious to know if any parents have children who went through the procedure I mentioned above. It really is going to be a big decision to make and I would love to hear all the stories I can... FORGIVE MY GRAMMAR TYPING FAST ↑
|Name: Jill | Date: Feb 6th, 2013 6:37 PM
|Wow - I have been stuck here at my computer for an hour reading all these posts. I am feeling the need to reach out and hear about what life is like for someone with mild CP, as my 3 and a half year son has been diagnosed with mild CP for nearly 2 years now. He was born at 31 weeks and was slow to hit his milestones. Crawled at 16 months and started walking at 28 months. His speech and cognition is awesome - just a "funny walk," and poor balance/coordination in his lower body. I am starting to prepare myself for when he (or another child), asks "why can't I run as fast as the other kids?" or "why do I fall down so much?" "Why do I walk funny?" I am open to suggestions and want to keep things simple, but speak the truth. It seems that most children are curious about his AFOs and when I tell them that they help him be more stable when he walks, they seem satisfied. I am not sure what to say as far as what CP is,etc. or if we keep it simple by saying that he was born with tighter muscles in his legs that make it a bit trickier for him to walk/balance??|
It has been such a pleasure (and a shocking reality check at times), to read these posts. Makes me want my son to be brave and make the most of his life as many of you have mentioned and are doing! One of my best friends growing up had an older brother with more severe CP and their family called it Courage and Power. This has always stayed with me and now and I will pass it on to my son as he gets older.
I appreciate any insight you may have!
|Name: Peter | Date: Feb 16th, 2013 2:28 PM
|I am about to turn sixty years old, and was just diagnosed with it. My left hand is barely functional, and I think my speech may have been affected by it. Because nobody told me I was different, I never set limits on myself. Skied near North Pole, bicycled across America (the summer after college). I always wondered why I had trouble doing anything involving fine motors skills, and always gravitated to things like reading that did not involve them. As far as bullies, I definitely had them, but rightly or wrongly, took the eye for an eye and tooth for a tooth approach. ↑|
|Name: tiffy | Date: Mar 1st, 2013 11:44 PM
|Hi iam 16 I found this look for a friend who can undersand a littel better... my cp is very mild only affect my leg I walk with a limp but still hard at times ↑|
|Name: Kat | Date: Mar 10th, 2013 2:22 AM
|Tiffy - I am sorry for what you are going through. I have dealt with CP my entire life. I just had a birthday on March 6 and turned 56 years old. Depending on who you talk to, I have a mild or moderate case which affected my left side. So I walk with a limp. Yes, like you feel, it has been hard at times. People can be cruel or just plain do not want to even begin to understand what individuals like us have to deal with the CP. I have discovered they usually cannot handle their own problems in life! That said, know that you are a unique person and can be successful in spite of what others might say or think. If you want to talk more, let me know. We can share contact information. ↑|
|Name: marcela | Date: Mar 15th, 2013 10:37 PM
|Have you talk to the school about getting her category changed? That way she will be recognized for her accomplishments. If they refuse to change it, look into getting a lawyer. That's what we ended up doing for our son. The school didn't leave us any choice. They were uncooperative. Our lawyer, [a href="http://www.csnlg.com"]CSNLG[/a] , made sure our son was given the rights as he should be. It took time, but I am so glad we did. Something you may want to look into. |
Hope everything works out! ↑