Hi Dee. My name is cindy. I am the mother of a 15 yr old daughter who has a syndrome called 22q13. She now has another diagnosis which is an acquired brain injury because of a bad accident at school last year. I would love to keep in touch with you. My e-mail address is [email protected].
Cindy ↑ |
Nice to meet you Dee. One of my children is a 5 year old with some speech delays. He has an appointment to see a specialist about his anxiety problems. He also has GI problems, multiple food allergies, excema, and is not yet potty trained. I am homeschooling him this year while we try to get some issues resolved.
I loook forward to getting to know you better! ↑ |
Hi Dee, I am Tina. My 18 month old son is the most beautiful, sweet natured baby. In addition to that, he has microcephally (small head), he has a small brain, he has global developemental delays he is about a 7 month old level, he was born with a soft cleft palate, was tested for digeorge syndrome was found neg, tested for a long worded syndrome 22q1 I think and that came out ok, he has low muscle tone, does not like to eat or drink, he doesn't crawl or walk (but he did just start sitting up on his own), he is visually impaired.
When we first met with neurology, his doctor said he has a low life expectancy, didn't know if he would walk or talk. He said he believes he has a syndrome but doesn't know what it is. We go to Stanford for multiple issues. Now to present time, we didn't know if our son would even hold up is own head, so when he accomplishes each and every developement mile stone no matter how late it is in coming we are delighted. I think of it as a special gift.
I am new in here too. I started in the adoption, because our little one is adopted and we are looking to adopt again. Then curiosity (don't think I spelled that right) led me to here. ↑ |
