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Name: Jenene
[ Original Post ]
My son was born at 31 weeks only 2 lb 14 oz and now at 22 months old he only weighs 16 lb 5 oz he has been diagnosed with pierre robin syndrome servere brain damage to about 85% of his brain, quadriplegic cerebral palsy cortically blind cortically deaf and he has had 3 surgerys on his lower jaw to correct it from the pierre robin syndrome but will not have his cleft palete fixed and he has had surgery to place a G-tube for feeding i was wondering if there is any other mothers out there that are in simalr situations that r willing to talk [email protected]
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