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| Name: phc64 | Date: Jan 13th, 2008 2:27 AM |
| This is a question for Jan: I live in Illinois as well, Dekalb to be exact. A while back you mentioned a facility in DesPlaines, do you know the name of it? We are slowly accepting the fact, that someday soon we have to let our son go. So any info about placements in the Chicago area would be helpful. I read about the idea for a farm for autistic adults, I think that is a wonderful thing to hope for. Who is involved in that? Petra ↑ |
| Name: JAN | Date: Jan 14th, 2008 1:00 AM |
| Letty, Thank you so much, I know you and everyone here understands thse days of feeling so pathetic and unable to move forward. Well, I need to get over it and handle things. Andrew remains in the hospital and needs his meds adjusted. Am reading more and more that the drugs are not very helpful with aggression. I think Dr. Wahlberg has the right idea with the behavior modification. It is so complicated. I will do whatever. I have a meeting at the hospital with the psychiatrist Tuesday. Today read UIC is looking for volunteers to study drugs, behavior modification and aggression in autism. Finally a study that is open to adults too. Will be calling tomorrow but don't want to get my hopes up. Petra, I'm excited beyond belief that you live in DeKalb. I live in Elgin. Will try to find the name of the place in Des Plaines. Have been giving it more thought myself. These places have to be geared toward autism or it just doesn't work. Dr. Wahlberg and I have been talking and doing some work toward developing a farm for people with autism. Ofcourse we have to find a person or group to fund it. Are you interested in starting a support group for parents of older kids with autism? I'm starting to feel my sanity may depend upon it!!! I always thought Andrew would live with me forever. It was a huge step to even contemplate anything else. Please let me know if you are interested in the group thing. Really, I'm a pretty regular person. I'm an ER nurse at Sherman. Jan ↑ |
| Name: jakari | Date: Jan 15th, 2008 4:43 PM |
| im jakari fenton i'm trying to have my first child please other than surrgate tell me ways to do that internet solutions ect......... thank you ↑ |
| Name: LettyVLO | Date: Jan 16th, 2008 12:15 AM |
| I too felt the same way. I thought I would never EVER put my son in a home, but things change, I am getting tired.....I know in my heart that someday I would need to make that step in letting Stephen go. I have heard of a farm liike that. But not in California. Our regional center worker said "there is nothing for a level 4. Sorry" I can't even take weekend respite. I told her that in the regional center manual it reads : Prevention Respite: a time -limited period of separation of the consumer from his/her family without which there would likely be a decline in the family's ability to care for the consumer and or resulting deterioration likely to create a need for more restrictive measures to correct the consumer's deterioration. I asked her about that and her response was "but we can't find a level 4 that would deal with Stephen's behaviors, we are so sorry" That is supposed to make me feel better?? That there is NO kind of support to give families in a desperate situation. That is BULLSH&*!!!!! Jan I hope your feeling abit better. I am sorry a serrogate??? What exactly do you need??? ↑ |
| Name: JAN | Date: Jan 16th, 2008 2:54 AM |
| Letty, your kind words mean more than you can imagine. Well, maybe you do know. Had a meeting at the hospital today with Andrew's psychiatrist and some social workers, case managers, etc. I guess things went well. The psychiatrist will try a new med and hopefully everyone where he lives will help in letting the psychiatrist know how is doing before he has a huge meltdowm. I do feel a bit better. Have been keeping to myself except for work and trying to just , I don't know, heal. I'm ready to try again to make things better. When is Stephen going back to school? It seems like winter break should be over. Is that respite thing provided (or should I say supposed to be provided) by the state? I always hear how many benefits people living in California have from their state government. If it is a state thing, aren't they required then to find the level of respite care you need? I know in twenty years there will be lots of places for adults and teens with autism, but how do we start something now? If you want to know about the farms, google in autism farms. I think there are only four or five in the US. There are quite a few in Europe. One problem is that I think they are state funded and you have to be a resident of that state. And also, do most of us want our kids living across the country? I know, on some days, yes. I wish we lived closer so I could give you at least a whole day of peace. Have you looked into any support groups in your area? Maybe they know something more about respite help. Hope you're having a peaceful evening. ↑ |
| Name: LettyVLO | Date: Jan 17th, 2008 1:19 AM |
| You are absolutely right. California has ALOT of programs for autism. FOR KIDS UNDER 8 yrs OLD! For example, UCLA has a wonderful inpatient program for autistic children but they DO NOT take kids over 6 yrs old. All the programs they have a for children not teens. When Stephen was diagnosed in 1994 it was still "new" and some programs were available, but I didn't get to the programs because I wasn't told of any. The regional center is funded but she said "we can't find a respite home for him. No beds available. Or no home will take Stephen with his behaviors" I don't attend support groups anymore. I have been to too many. I stick out like a sore thumb when I explain Stephen. I am happy your feeling better! Stephen is doing well in his new school. He started on the 7th and he LOVES it. The school is called Pyramid Autism Center. You can google it. They have a website. ↑ |
| Name: momathome | Date: Jan 17th, 2008 3:19 PM |
| Hello all, I'm so glad to be back, My computer got broken and I've just got a new one. Well the time is finally here we move Steven's things to his new home this weekend. He's having a hard time. He's been visiting the home every weekend for dinner for about 6 weeks now. He likes it when he's there but he's been really violent and aggitated at home and at his job. They tell me this is "normal" NORMAL? Is anything really normal with an autistic child? Anyway I've been reading thru the comments. Jan, I'm so sorry that things have become rough again. Know I'm thinking of you. Letty, It's good to hear the Stephen has found a place thats working, for him and you I hope things will get better for you. Petra, I know what you are talking about with strain on your marriage, Mine is suffering too, My husband sees Stevens going to a group home as some kind of failure. We try not to disagree in front of Steven, but he feels the tension and it makes things worse. jj I remember when Steven was 14 (he's 26 now almost 27). It seems hard to think of putting them anywhere. My younger daughter she's 21 now just recently has told me how hard it was growing up with Steven. He chose her to take out alot of his aggression on. She has alot of resentment. It sounds dumb I know, but I didn't reallly realize how hard it was on her. That's just something to think about. I feel bad for Steve I keep trying to reassure him. He can't tell me how he feels so he acts out. I'll keep you posted on how it all works out. hugs to all, Claudia ↑ |
| Name: phc64 | Date: Jan 18th, 2008 4:55 AM |
| Jan, I would love to get a group going! Parents at my son's school met here and there last year, but I never went, because they met during the day. I work as an assistant at a regular elementary school, working with kids that have special needs. None of them severe though, otherwise I wouldn't have energy left for my own son. Do you know other moms in your area that would be interested? Claudia, my husband is actually the one who wants my son to live in a home. He feels like I don't have enough fun in life, because I spent too much time worrying about my son. I've tried to relax a bit lately and getting respite (finally) has definitely helped. My kids are twins and so often I feel bad for my daughter, because she's never known anything else and has felt like we don't have enough time for her so many times. Only in recent years I realised how hard this is for her as well. I guess I was too wrapped up in my own exhausted self to understand how hard it is for the sibling of an autistic child. Thanks for the company! Petra ↑ |
| Name: momathome | Date: Jan 20th, 2008 7:41 AM |
| Hello All, Well yesterday we moved all of Steven's things to his new home. I was fine I thought. My daughter in law came to help with my 16 year old grandson (muscel) Steven collects tool so we had 3 toolboxes to move. We bought him a new bed and dresser. By the time we got things loaded in the truck I was beginning to get physically sick. We got to the home and I felt worse and worse. I thought maybe it was my blood sugar (I'm diabetic) so they game me a glass of pineapple juice, big mistake, I had to run for the restroom I was mortified. It must have been nerves. Steve's move has been really stressful but I know it's for the best for him and the rest of our family. Everyone except my husband, believes this is best. Today though, he finally began to accept. He went and visited the home. : ) ↑ |
| Name: [email protected] | Date: Jan 20th, 2008 9:17 AM |
| I can only feel for you I think I would react the same way. It is time for changes, you must acknowlege how special and like ?? you can only cope with so much and you are ok to acknowledge that, I do admire you, I was a weak person I tried to overdose I was so frightened ,I was going to kill my daughter Alex how has ASD. Outcome I am still working hard with Alex, there is no real support but I feel very lucky as Alex has is attending AQ school at brighton . I no longer can cope with Alex, the verball and vilent aggression over the years makes me not a very coping single parent,it is only going to get worse I hate it .I have no life which I hate but accept, I would love to be back at work,(Rnurse). I live in Brisbane Australia . ↑ |
| Name: LettyVLO | Date: Jan 22nd, 2008 2:36 AM |
| OH {{{{HUG}}}} I feel it too. I get like that when my anxiety goes up. I throw up. I hope he is adjusting well. I hope for a good transition. Sometimes people don't have ANY idea how bad the family can get. Not only does this disease effect the child but it effects the family. Especially a parent. I have tried looking at the brighter things, looking for God, trying to stay positive, this terrible disease can trully rain on any parade. I too have been diagnosed with depression/anxiety and last month had my first panic attack. How dreadful. But it does make me feel abit better that I am not alone. My family is not singled out that people do know how we feel. Thanks for sharing. If you don't mind next thread I would like to share my email address so that if you want to contact me via email you can. Thanks. Letty ↑ |
| Name: JAN | Date: Feb 2nd, 2008 1:19 AM |
| Hi everyone, Just returned from seeing Andrew. He has been in and out of the hospital since last November because of med changes. Now he is back at Woodglen and looks and sounds like his old self. Am always hoping the improvement will be permanent. When it isn't , then I'm down in the depths of despair again. I don't know what to do about Andrew or me anymore. Guess I'll just try to enjoy this feeling of peace tonight. Claudia, how is Steven doing at the group home and how are you feeling now? It was overwhelming reading what you wrote on the day you moved him in. Hope things are better. Letty, Does Stephen still like the pyramid school and have you found out anything more about respite? Petra, my e-mail is [email protected] Please contact me so we can exchange phone numbers and talk about the possibility of a support group. Would love to talk to you. I can't remember which one of you mentioned that when you tried to explain about your child, no one seemed to get it. Whoever said that, I really, really know that feeling. Most of the time, it's just easier not to discuss how Andrew is doing. That's why i'm so grateful for this site. I just know all of you get it.. ↑ |
| Name: LettyVLO | Date: Feb 6th, 2008 3:58 AM |
| Hello All I hope all of you are OK. Stephen is doing "OK" in his new school. They even went across the street for some fries and actually "sat" there for 30 min while he waited for his food (something I haven't tried since he was 8) he will be turning 16 on the 27th of this month. They tried to go on the city bus on Monday but didn't make it because of the weather. I get real nervous when they say they are planning an outing. Police have been involved when Stephen has his fits outside in public. Usually because he wants something and can't have it. (sighing) He has meltdowns when the van picks him up but they are getting better. ONLY when he wants to take a book from school does he have one. It takes the WHOLE staff to put him in the van. He has a 1:1 aide on the van (retired police officer YEAH!) I will keep you posted. THANKS If anyone needs to talk here is my email [email protected] ↑ |
| Name: KorienRon | Date: Feb 6th, 2008 6:42 AM |
| Hi everyone!!! My name is Korie and I have a 13 year old son diagnosed as pdd. I am new to this forum, and I am just looking for some one who may understand and offer some support or advice. My son's name is Devin, and he is an awesome kid!!! There is not a soul who comes in contact with him that doesn't feel as though he has blessed their lives. He is very challenging to say the least. He is high functioning, can speak well, and does well in school. The problem seems to be that he has hit puberty, and that is creating all kinds of issues!!! I have 2 other sons ages 10 and 6, and I recently married a man and blended our families. He has a son 10 and a daughter 8. Devin has become obsessed with taking my step daughters blankets and clothing, and well, using them.. if you know what I mean. He tries to get in her room to get the things. I have had to build walls in my home, install doors and alarms, for her safety and his... I was hoping that someone may have had similar problems and may know what in the world I can do.. My husband is at his wits end, and I fear that this may eventually end our marriage. Devin has many aggressive outbursts on a daily basis, and my husband has a difficult time understanding what it takes to raise a child like Devin. I would so much appreciate any advice that anyone may give me!!! Thank You & God Bless, Korie ↑ |
| Name: momathome | Date: Feb 6th, 2008 1:29 PM |
| Hello Everyone, I am soooo glad to say Steven is doing well. I am enjoying this moment of joy. He has lived in his new home for almost 2 weeks now and is really happy. I talked to his supevisor at work yesterday and she said he's doing really well there too. He went on a group activity last night. I'm anxious to hear how it went. The first week he was gone I was sad but now I'm feeling much better,its working so well. Of course I'm holding my breath. I hope and pray all is well with all of you, this is such a roller coaster ride isn't it? ↑ |
| Name: phc64 | Date: Feb 7th, 2008 2:40 AM |
| Hi everyone! Korie, I read your post and I feel for you! I haven't had a situation like this, do you have someone like a counselor or social worker who could talk to your son? Maybe someone who works with him at his school could offer advice. You probably already tried all of that, it must be very frustrating. Puberty brings a whole new set of problems, my son (15) is alot more aggressive and physical in general. Jan, thanks for the great conversation! We had another snow day today and it gave my son one more day to get over his cold. I'm hoping he can go back to school tomorrow. Now all I need is a good night of sleep... Petra ↑ |
| Name: KorienRon | Date: Feb 7th, 2008 9:29 AM |
| Thank You for your reply!!! It is just nice to know that there are others who understand what we are going through!!! Had Devin at the Dr. today and she wants to put him on zoloft. Have any of you had experience with this? He is already on Concerta, Abilify and Topomax. Seems like an awful lot of meds, but i suppose its worth trying. We have him seeing a therapist and get lots of in home services. I always hope for the best and count my blessings every day. Things could be a whole lot worse. Thank You for being here to chat with! Any tips on keeping your marriage happy through all the stress??? We have only been married 7 months, together for 4 years. I don't think he realized just how much work this really is!!! Devin's real dad passed away, so he has a hard time getting close and trusting my husband. Hugs to all of you who work so hard to raise such wonderful kids!! Talk to you soon!! Korie ↑ |
| Name: LettyVLO | Date: Feb 7th, 2008 9:57 PM |
| We have tried soooooo many meds. The only meds that made him violent and more aggressive was Adderol. The other meds were "OK" He is on NOW: Prozac, Clonodine, Resperdal, Ativan, & Depakote. Yes he has tried Zoloft at one time. He was on a very high dose but nothing. We tried him on Prozac and it helps with his ADHD (about 50% but I will take it) I have been married for almost 11 yrs, 14 yrs together. My husband is not Stephen's bio father but he loves him just the same. We met when my kids were 4 and 2 (Stephen was 2) He knew something was "wrong" with Stephen when he meet. But he stuck by me. Alot of the times he just used humor to deal with things. I would be in tears of course, when he had meltdowns but he made me laugh or he took Stephen for awhile. I think working together helps alot. Communication is a huge thing too. And just LOVE and compliment each other is important. AND AND respect &&&& give each other space too. GOOD LUCK ↑ |
| Name: LettyVLO | Date: Feb 7th, 2008 10:00 PM |
| I just wanted to add the Stephen did well in his out in the community field trip. They got on a city bus and went to Dell Taco. The teacher called me to "brag" about him. She was so proud of him. I was in tears (I cry too much I know) I am so proud of him. Now if only I can get him to act like that with us... ↑ |
| Name: LettyVLO | Date: Feb 8th, 2008 1:38 AM |
| Korein I am so sorry your going through a rought time. I know the feeling blending of families and raising a son with autism. When my husband and I moved in they were about the same age as your step kids. It was hard for everyone. Do they come over on certain days?? The way I handled things were to have thier own room. I would lock it when they weren't there and they knew that they had to lock it if they didn't want Stephen to wonder in. My whole house has lock. ALL the bedrooms and front/back door are iron door, garage door ALL need keys to open and we hide them the key. All the windows are key shut. His bedroom window has a plywood and screwed shut (he climbed out twice, broke his foot on the 2nd try) I am not worried about a fire right now. He only sits in the back seat of our cars with the childproof lock. All this as a pain but worth the stress of them sneaking out of the house. I hope this has helped you. ↑ |
| Name: phc64 | Date: Feb 9th, 2008 2:51 PM |
| Korie, my son took Zoloft for a very short time, when he was only 5 years old. I didn't keep him on it, because that medication made him so deliriously happy, he was literally up all night! Of course it's different for everyone. Robby was on Depakote for almost 8 years. Now he is only on a very low dose of Risperdal, it helps, but he still gets aggressive when he is not feeling well. Medications make me very nervous in general. My marriage of 17 years is just hanging on a thread, mainly because of all the stress we have and because I put my kids first for so long. My husband is depressed and went on meds himself just recently. Last year we went to marriage counseling ( which helped alot) and we started receiving respite for our son (15). So every now and then we go out and try to act like "normal" people..... Petra ↑ |
| Name: momathome | Date: Feb 12th, 2008 7:04 AM |
| Hello I was just reading some of your posts. My son Steven has also been on a lot of meds. right now he is on seroquel (for aggression) topamax and prozac for ocd. The combination seems to keep him mellow. He is still doing well at his group home. When we took him back after a home visit this weekend he went straight to his room and didn't even say good bye :). He is so happy to be there. Letty I'm so glad Stephens community outing went well. I wish I could give some advice on keeping a marriage happy but I need to be on the recieving end. My husband is stilll really unhappy that Steven is in a group home. Even though he can see how happy he is. My husband is a truck driver and wasn't home for many of Stevens episodes so he can't understand how come I couldn't handle him when he had one. Steven weighs over 250 and is very strong. My oldest son had to rush over several times to control him, so he understands. My youngest daughter who was attacked several times understands. My 5 year old grandson who was hit several times by Steven understands. If you look at the damage my house has sustained you'd think he would know this is the only way. I'm glad Steven isn't home to feel this tension. Thank you all for being there to listen to me vent. Claudia ↑ |
| Name: JAN | Date: Feb 18th, 2008 3:22 AM |
| Am reading all of your messages over again tonight to find some inspiration.. Andrew just hasn't done well since he went off the clozaril. Well actually he was doing better the last ten days or so on the abilify, then he had an "incident" and was admitted to the hospital. This psychiatrist keeps insisting on trying depakote. A few months ago when he suggested it, I told him it was the only med Andrew ever said he wouldn't take. He tried it again with disastrous results. Now last Thursday, he wanted to try it again at a low dose. Managed to get to the hospital after working 12 hours with five minutes left of visiting hours. They immediately told me Andrew had a very bad day. Found him sitting in the "quiet room" on a bed. This is only the fourth time I have ever seen Andrew cry. Am ready to scream and cry myself. Told them not to give him any more depakote and will talk to the psychiatrist in the am. Am working on finding a new place for Andrew that deals with autism. I'm finding hope from you, Claudia. It is wonderful that Steven is doing so well at the group home. Your description of how he had attacked everyone in your family sounds like Andrew. Can't ramble on forever. This venting helps. Thanks. ↑ |
| Name: momathome | Date: Mar 18th, 2008 5:10 AM |
| Hello, Jan I was just reading your latest entry. I pray that you too can find a place for Andrew. Steven is still doing well CTA the agency that Steven's group home is with is really amazing. He was just accepted into a total heath plan at the University of Utah. We all attended the intro meeting CTA reps me and all of the involved Drs. A psyciatrist, physician, behavior therapist. The psycriatrist said what I've said all along its too bad that parents can't seem to get the help they need until a crisis happens and the parents feel like failures to their children. It is soooo lonely I know not knowing what to do for your child. Just feeling worn out. Keep looking, don't give up. I know how hard it is. Steven has behaved so well they haven't even been able to get enough data to create a behavior intervention plan. They said that this is a "honeymoon period." so we are all holding our breath. They great thing is is that CTA knows what they are looking at and what to do. Maybe things are too good to be true (thats pesimistic I know) but at least I know people are trying to help. I pray for all of you and hope for you. Claudia ↑ |
| Name: JAN | Date: Mar 23rd, 2008 1:45 AM |
| Thanks Claudia. Think I'll move to Utah. Things did get better for about a month. Andrew seemed relaxed and happy and we spent quite a bit of time together. Then last Monday when I went to pick him up people at his place were all yelling and some woman who thinks she is a movie producer was following Andrew around talking constantly. Andrew seemed to be ok, but the minute we walked out of the building, I could tell he was agitated. I went ahead and took him home and we had a terrible and somewhat scary two days. When my older son took him back he was still agitated. He made it for another couple of days before he hit someone and was sent to the hospital. Now he is spending Easter in the hospital. Just went to see him and he seems good now. I just have to find someplace that really specializes in autism. Still have hope that Dr. Walberg and I will find funding to start that farm I talked about. Am thinking I will start a website and see if I can find other parents in the area who need the same thing. Well that won't happen over night so I have to find something else now. My biggest fear is that no one will want to try to handle his aggression. So then what? Am seeing more and more threads at this website related to aggression. I know Andrew and I are not the only ones going through this. I desperately want to find a solution. Am reading so much now about autism and can see Andrew needs such structure to his life. Sometimes I feel optimistic that I can handle this and other times, you're right, it is so lonely. The place where Steven lives sounds great. Does he go to work? How many people live in his house and how many staff are there? You sound much better now. What you wrote about the day Steven moved broke my heart. Don't mean to pry, but you did mention about your husband before. Is he more accepting now that he can see Steven doing well there? If anyone else from the other threads wants to tell their story about how they deal with aggression, please do. I need all the help and insight possible. Jan ↑ |
| Name: LettyVLO | Date: Mar 25th, 2008 9:56 PM |
| Stephen has had a few bad days with aggression. I have mentioned that I become very drained when he has meltdowns. (please I am not being sarcastic in anyway. I am just being honest) I let Stephen have his fit and I take my anxiety pills. There is no other way to explain it. How can you deal with it?? I have been taking medication to deal with alot of Stephen's behavior problems since Aug of 2007. Due to his increased size and wt. it has become EVEN harder for us. I am completely drained. The only way I deal with it is through medication. It is rough to deal with aggression with these kids of ours :( ↑ |
| Name: alutz123 | Date: Mar 28th, 2008 4:01 AM |
| OPRAH'S BIG GIVE Oprah's Big Give is a huge hit with a unique idea: total strangers changing the lives of others. Now, you're invited to join Oprah's Big Give: Arklatex! KTBS 3 and Eldorado Resort Casino want to give10-thousand dollars to one under-served Arklatex charity or group compliments of ABC, and we need your help! Tell us, in 100 words or less, about a group you believe is most deserving. Nominated charities will then be eligible for voting. To vote for your favorite charity, place a comment under it. The 5 charities with the most comments will be the top 5 finalists. Then, watch KTBS 3 News at 10, Sunday, March 30 when we'll reveal the top five groups and you'll receive your next challenge! Votes received by the top 5 finalists will be evaluated by representatives of KTBS 3 and Eldorado Resort Casino. The final decision, and the awarding of the $10,000, will be made by this committee. Please vote for: The Educational Center for Autism! It is making a great difference in the lives of these precious children. In order to make this available for other children in our area who can't afford the expensive one-on-one care necessary, these funds would be a God-send. Let's help our children become all they are designed to be by a loving Creator. We need your vote! The Educational Center For Autism ↑ |
| Name: Matty | Date: Apr 1st, 2008 3:07 PM |
| Hi everyone , Iam new to the site . I have a 8yr old son hew has autism ( high functioning) . He is my whole world rapped up in that little body . I love him more than words can express. Me and my wife had him diagnosed at 2yrs of age. He is so gifted in certain areas and smart in others. That is why i say "My son has autism" and not "My son is autistic". His autism is one part of him that we have excepted . My wife and i have been married 11 yrs together for over 16 yrs,yes she is my whole world also. That brings up somthing else ,i have been reading alot of stories over the years about moms that have taken the bull by the horns mentality with autism ,alot like the moms i have read about on this site . I have to say an award should be given out to every one of you , Back to my son Zachary ,he was an early walker at 9 months and started some communication at 12 months. His eating was excellent ,he ate everything. We brought him around people and crowds at the age of 2 months. He always has been a great kid. Then BANG! Mr. Zach ( my nickname for him) started to regress. He started to shut down ,talk about invation of the body snatchers, no verbal ,eating went from you eat it ,i eat it, and now i wont touch it. motor skilles were affected also. So hear goes the uphill crawl with the state the schools and the uneducated educators. Well this is also where my no nonsense wife (who i love to death) KICKS BUTT!!!! She first educated her self , took classes that were offered for free at some of the colleges and hotels around are area. These classes ranged from dealing with your child with autism to thermisol and autism links, also medication treatment. Then she read what seemed to be every book on autism, she started learning the terminology and rented autism awareness videos from library. She also had to find the wright school for are special son . Also she had to get started on medicare waver forms. Like i said before , you moms ROCK!!! Dont get me wrong i did everything she told me to do and then some . She has been a stay at home mom ever since we found out she was pregnant . I thank god i have the typ of job that we can handle the financial end of all this. Last but not least my wife had to educate me ,NO SMALL TASK.... Then my side and her side. Witch was a waist of are time . This is current situation ,we have the same great kid who is in the wright school and is in some great programs such as horse back riding therapy, swimming therapy . His eating has improved talkes a 1000 x better. Motor skills have improved a lot. I dont know what the future will be for my son as far as being undiagnosed . If he needs my wife and me we will be there ALWAYS..... THATS MY FAMILIES STORY ↑ |
| Name: momathome | Date: Apr 22nd, 2008 6:26 AM |
| Hello everyone, Just writing to see how everyone is doing. Things are still going well with Steven. I have decided to get a job. I haven't worked outside the home for a long time. I was always taking care of Steven. I have a blank resume. I feel just burned out. I feel so relieved that the pressure is off that I feel guilty. I hope things are well with all of you, write soon. ↑ |
| Name: averysmomohio | Date: Apr 27th, 2008 6:19 AM |
| I am brand new to this forum. I have a 15 year old autistic son that never had behavioral problems until puberty over the last 2 years. He is the sweetest kid in the world. The teenage years, high school coming up, transitions into the real world, inappropriate hugging, cursing (although he apologizes right away) and sometimes growling. There is alot more to it but I am exhausted and just wanted to post. The transitions coming up and no "blueprint" to go to is making me a wreck. We as a family are not big on medicine but I think that I may have to be personally medicated to go through these next transitions. I feel like I am flying blind and it is scary. ↑ |
| Name: momathome | Date: Dec 5th, 2008 4:32 AM |
| It has been a really long time since I last posted and I wonder how all of you are doing. Steven is still in his home and most the time is very happy, however he has had enough "episodes" to make a plan of action. The beautiful thing is I don't have to practice them except on every other weekend. I got a job last June and I love working. Please post so I can hear how you all are doing. ↑ |
