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Hi everyone. I have a 2 1/2 year old boy whom I feel may be autistic. He does not however fit into any specific category . I had him tested 1 year ago. The doctor, upon entering his office, toldus that there was no chance that he was not autistic. However, after he was tested, I was told that he was not. He only had autistic like behaviors that he chose to do. Needless to say, 1 year later, I still have my parental instinct telling me that something bigger is going on. Can anyone relate to my situation? Please do tell!! ↓
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| Name: mwellm | Date: Aug 30th, 2006 6:39 PM |
| I am wondering what your signs are that he is possibly autistic? I posted about my son today as well. Read, "Is my son autistic?" And let me know if anything applies to your son. I too am questioning. ↑ |
| Name: niffer66 | Date: Aug 30th, 2006 6:55 PM |
| Hi mwelm. Thank you for responding! Well, he walks on his toes; flapps his hands; has violent meltdowns; he , like your son, does not listen to me or do what I say; he never cooed or made sounds when he was a baby; also when he was a baby, he would straighten up; he only will look my husband and I in the eyes; and he enjoys being around other children, but does not engage in play with them. The reason I am not sure if he is or not is because he has an excellent vocabulary and engages in imaginative play. ↑ |
| Name: mwellm | Date: Aug 30th, 2006 7:25 PM |
Hi-
I guess my red flag is the speech and the social problems. He doesn't have any obsessions with objects or spinning or putting things in rows etc. but does not have a huge interest in toys. Sometimes his attitude problems I think are a result of the lack of communication and not a problem. I think I look too much into what he does and over-analyze everthing! I am assured by my pediatrician that he is not autistic all the time. It is such a hard thing and I try to trust that my doc would be able to tell. He is getting evaluated by our school district so we will see what that turns up! Good luck and thanks for responding. ↑ |
| Name: rhokesa | Date: Sep 15th, 2006 10:37 PM |
| My son is is 2 1/2 also, and I had a neurologist say he is PDD and I had a pediatric developmental specialist say that he didnt think Sam my son was anything on that spectrum but Sam is verbally delayed and shows some odd of behavioral issues so i'm confused also! ↑ |
| Name: niffer66 | Date: Sep 15th, 2006 11:20 PM |
It is so difficult to trust your doctor! I feel like my son was misdiagnosed and has, as a result, missed out on a year of therapy and intervention! Maybe you could ask for a third opinion. It was also a pediatric developmental specialist that evaluated my son as well! I am trying to get an appointment to a a pediatric neurologist but it just takes soo long in my area.
Jennifer ↑ |
| Name: Hemiola | Date: Oct 4th, 2006 1:49 AM |
| Hi. My daughter had some of these symptoms too, when she was 2 1/2 (she will be 4)..., she still walks on her toes, will flap her hands, and not listen to us. Her eye to eye contact is not bad, but only when it' s on her terms. She has speech delay, but can make herself understood. She was diagnosed on the autisic spectrum - yet she doesn't seem "autistic". The traits she does have are noticeable, but not ALL the time. It is like she exists in a grey area - at the top of the autism class, but at the low end of typical. It may just be that your son is on the autistic spectrum scale. But it also may just be that MANY people are mildly autistic without ever having been diagnosed, and they are the simpletons, or the "weird kid" who live among us. In other words, a diagnoses is good, because they can receive services etc., but I don't think you need to "worry" for his future either. Because even if he has to go over some moguls to get down the hill..., he will get down it. ↑ |
| Name: tremaine | Date: Oct 4th, 2006 8:12 PM |
hello
my son was recently diagnosed autism. I was having a hard time with his doctor( before he was diagnosed). I had to take measures into my own hands and change his doctor. being a mother, you know when something is not right with your child.
i must say I am very pleased with his new doctors. I took him to a hospital that specializes in children disorders. Don't let a first diagnoses stop you from reaching out for a second opinion. I did and right now my son is getting the help he needs. he is in school right now. he is 3 years old. to hear him sing new songs and respond a little better than before shows me that he can get better(although autism is lifetime). If you would like you can email me at [email protected] ↑ |
| Name: Lynne | Date: Oct 17th, 2006 7:15 PM |
Niffer66,
He has the same exact systems as my child did at 2. My son is Autistic. It was hard for me to except it but it is what it is. Being a good parent is giving your child the best chance in life possible. In an austic life, early intervention is the key. Doctor's don't know everything, you are his parent and know him like no one else does. If you have a gut feeling about your child, go to someone else that will listen to you. The sooner the child is getting the help he or she needs the better the outcome. When you think about it isn't it like that for everything in life? Good Luck and God Bless, Lynne ↑ |
| Name: felicia | Date: Oct 28th, 2006 3:02 AM |
Hello,
My advice is to continue to take him to the specialists and get the diagnosis. Your instincts as a parent are the most accurate, trust them. Push until someone helps you!
Regards,
Felicia ↑ |
| Name: Ontario_Father | Date: Nov 10th, 2006 2:18 AM |
| Hello, my son as well had a very preliminary diagnostic of showing signs of autism Just today. We are not sure if he does, or if he doesn't but he has been in treatment for about 7 months now with a voluneer Development Worker and he has come along way. I'm hoping if he is diagnosed we caught it early enough to make that much more of a difference in his life. It was our gut at around 14 months old and not the doctor noticing anything that has made a difference. I mean you can only ask the question so many time and get the smae answer but a second or even a third oppinion never hurts. ↑ |
| Name: niffer66 | Date: Nov 10th, 2006 3:50 AM |
| Thanks everyone for your advice! I am so torn about my child because sometimes I think he is (more so than not), and sometimes I think he isn't. It is very hard to hear others go back and forth too. I will meet someone who works in the profession with autistic children, and they will say that they think he is not. Then, I will meet a parent of an autistic child and they will say that they think he is. I know that I should only listen to a professional, but until that doctor's appointment rolls around, they will have to suffice! The city did, however, determine that he is "developmentally delayed". Whatever that means! My town dosen't have a lot of schools for these children, so I am having to send him somewhere that I hate! ↑ |
| Name: Johnsmom | Date: Nov 10th, 2006 3:56 PM |
Good Morning niffer66,
I have a son who will be 12 in January and is very, very high functioning when it comes to education but very low in the emotional area. Can you tell me some of the things you are seeing in your child? What area do you live in? I am asking because there are a lot of support groups that you can seek out and possibly there is one in your area. I am surprised that they would test for autisum at such a young age (although I know it is done, most diagnosis' are not defenitive until age 3). If you would like to e-mail me, feel free to at [email protected]. I hope this will help give you a bit of peace.
Johnsmom. ↑ |
| Name: niffer66 | Date: Nov 10th, 2006 11:26 PM |
| Hi, Johnsmom. I live in the Southeast. Some of the things that he does is (and I could list for days but I will only mention the big ones).....he has no sense of boundaries; he will "attack" you, or his 5 mo. old brother, for no reason at all; he flips out if he dosen't get what he wants: he is scared of the most random things, like his bedroom; walks on his toes; flaps his hands; and ,currently my biggest problem, screams at the top of his lungs. He just turned three a month ago. ↑ |
| Name: Johnsmom | Date: Nov 11th, 2006 12:04 AM |
| OK. You say you are in the southeast. Me too. By chance are you in the area of S. Carolina? ↑ |
| Name: niffer66 | Date: Nov 11th, 2006 12:10 AM |
| Name: Johnsmom | Date: Nov 11th, 2006 1:31 AM |
| we have started a parents support group for parents of any special needs child. It just so happens that most of our members have austic kids. Some with downs syndrome. You may be able to find something in your area like this also. We work on teaching ourselves about the laws and holding the schools accountable. If you dont have anything there like that, but may want to start one, let me know and I will be happy to pass all along that I can. Keep strong! ↑ |
| Name: jacksmom | Date: Jan 28th, 2007 4:16 AM |
Jack's story....
After the 12 mos. vaccines my son gradually slipped into autism. He was head-banging, hand-flapping, twirling, lost speech, lost eye contact and he just withdrew.
Now two years later.... no head-banging, no twirling, no flapping, has eye contact and is starting to verbalize again. And... he has Down Syndrome to boot. :) Yes... even kids with DS get autism. Actually they get it at a higher rate.
What helped him? First I give God praise.... our son wouldn't be here without Him and we prayed and I believe He guided us. Second... supplements. Especially cod liver oil. I recommend Green Pastures CLO with the X factor. Check out Dr. Mary Megson's work on the web. http://www.diet-studies.com/megson.html Our Jack healed gradually... but he is healing. I actually had to make myself GET USED TO him not twirling everything any more!
Also check out Dr. Amy Yasko's work. www.holistichealth.com
We give Jack alot of supps - cod liver oil, probiotic, magnesium citrate, tart cherry and recently we added cilantro. He takes some other things too but each child is unique. It helps to find a good naturopathic MD or chiropractor.
Don't give up. There is hope! And... I will be frank here.... many mainstream doctors know squat about how to heal autism. Don't let that throw you. There are people who do know how to help. God bless you! Love, Jack's Mom :) ↑ |
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