I am new on these forums, and am looking to connect with other Moms/ parents who have children with Asperger Syndrome. I would love to share our struggles and joys, as well as learn how you handle certain social situations. I live in a small community and feel sometimes that my son isn't getting the assistance he needs.
Anyone out there? ↓
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| Name: hazel.golding | Date: Feb 17th, 2011 12:42 AM |
| Hi we are in the process of getting a diagnosis for our son who is 3 and a half. We have 2 specialist reports just need the final approval from the paediatrician. Would love to hear your story. ↑ |
| Name: Kellie T | Date: Feb 26th, 2011 4:09 AM |
| I would love to chat with you... I actually have never been in a chat room before... My Step-son has been recently diagnosed with Aspergers and I am taking it day by day... he is an exceptional student but struggles at times with the appropriateness of his behavior... he has anxiety attacks frequently and melt downs when this occurs... looking for someone to chat with that knows the ups and downs of this syndrome..... ↑ |
| Name: sarah2689 | Date: Feb 27th, 2011 6:09 AM |
| Hi, my name is sarah, however i do not have a child with autism but i am very interested in hearing your story. im actually helping my sister write a paper for college english and we have chose to write about autism and the research on the illness. we need a reference and what better reference then someone who lives it first hand? i would just need to do a short interview a few questions plus your story. if you are interested please email me at [email protected]. i would love to hear from you if not i am so sorry i have bothered you and took up your time! sincerly, sarah ↑ |
| Name: Maxdaddy | Date: Mar 1st, 2011 4:40 AM |
Mattys Mom, how old is Matty and when was he diagnosed with asperger syndrome. Max is 4 and was diagnosed on the spectrum of autism. He is highly functional and intelligent, began memorizing books at 2 reading at three. Trouble with communication,extremely stubborn, and does not truly engage socially if not totally confident or comfortable.
Max's Daddy ↑ |
| Name: Jacks mum | Date: Jun 7th, 2011 12:18 PM |
| Hi, I am new to this forum too. I have a six year old son who has asperger syndrome. We are expatting in Africa so trying to teach the community on Asperger can be difficult - even other expats. There are times when Jack certainly struggles here, but also with small communities it really does benefit as he copes well in our compound. Speech therapy is definitely a must, helps with social skills, games, taking turns. Look forward to talking to you more. ↑ |
| Name: sgwinoz | Date: Jun 22nd, 2011 6:00 AM |
| Hi, I am new to this forum too, I have a son Adam who is 11 years he has had ADHD and ODD since 4 years old and last month was diagnosed with Autism Spectrum Disorder (Aspergers). It can be very hard sometimes between him being so nasty, angry and violent. At other times he can be so sweet and loving it seems like he has a light switch that goes off and there is no way we can predict it happening. I discovered Dr Thomas Phelam the creator of 1-2-3 Magic. It does not cure the problems we have but it helps us cope and not argue back or get any where near as frustrated as we once were. Is there anyone out there using it? I would love to hear from other parents who just need someone to talk too. ↑ |
| Name: amazon | Date: Jun 23rd, 2011 8:43 PM |
Hi , yes I too would like to talk with mums and dads of Aspergers kids. My 11 year old has one diagnosis NOT enough Aspy to be statmented but is going through a second as he will be gooing to secondary school soon and we are concerned for his transition.
He is displaying more antisocial and aggressive behavior at school , it's very tireing . Any ideas on how to help ? ↑ |
| Name: Bellajm | Date: Jun 24th, 2011 4:19 AM |
Hello every one my name is Janelle. My 2yo son will be starting his evaluation soon. The people from early intervention seem to think that he has "red flags" that cause enough concern to have him evaluated! He's a little behind on his speach but not bad, he's having a very hard time at daycare& wont play with other kids his age but loves older kids (5plus), he will play with kids his age with me, he's very stuck in his ways, needs routine, constantly jumps in place and wont stop intil I stop him, has a really hard time transitioning from either one activity to the next or one room to the other, inside to outside while at school, has a certain "unpurposeful" ways of playing with his toys and he wont allow others to show him other ways to play with his toys, major sensory issue with food only. On the other hand he's extremely smart, knows all his shapes, colors, alphabets, counts from 1-30 and back, can tell me what everything is but cant put more then 3words together, has great eye contact, is still making progress with everything all the time but we r seeing these certain things. He always wants to be home watching tv, its more then a typical kid who likes tv, this is all he talks about and wants! While we are out he's constantly saying "mama home, tv, bubble guppies, mickey mouse ect." I can redirect him but he always goes right back to "mama home tv" While we are home its been getting harder and harder to do any activitied with him because he's so fixated on the TV. I have it off from 12pm-after dinner. Only because he's so bad with it! But when its on its like he's not satisfied either, he wants me to constantly change the channel or wants to watch the same thing over and over again! Im really telling you all this because Im hitting this head on with no support. I feel like Im walking in a battle field alone with no armor! Im clueless! Aspergers and just a processing disorder keeps getting mentioned to me by these early interventionist. So our first app was with a Pediatric developmental specialist and she did not see anything that made her think he meets the spectrum but she does see he has a major stimulation issue along with the sensory problem. So when I called her to tell her that its getting worse she was so shocked because he did so well at the visit! I can research all I want until we get the eval done but I came here for someone to just tell me everythings ok! Im hysterical and want to make sure Im doing everything I can for him! Maybe if I speak with all of you and hear how your dealing with all this, things u do to help ur child and so on it can help me along the way! you can always email me also!
[email protected] ↑ |
| Name: Bellajm | Date: Jun 24th, 2011 4:23 AM |
| I just read that and seen how Im all over the place! Im so sorry! Im just such a wreck right now. How these people just threw this in my face this way is killing me! Early intervention,,,they are not DR's so for her to come in and say "ok we need to talk, theres something really wrong with Joey,,he's autistic and he needs help" its not sitting well with me! Of course I do see certain things with Joey but this is not how you tell a parent that theres something wrong with her baby! Im very sorry again for that last post! Im sure you all have been where I am now!! ↑ |
| Name: Bellajm | Date: Jun 24th, 2011 4:46 PM |
| Now that I'v had time to cool down and get a good night sleep I want to come back and introduce myself again! Im Janelle, my son is 2 1/5 and just a few months ago the seed was planted in our life that my son has many characteristics of Aspergers and needs to be evaluated! Clearly Im not dealing with this well. Of course I will do what ever it takes to get him the help he needs but its so hard to see him struggle like this and hes only 2! No one wants to see their baby struggle with anything! He's such a happy boy and is sooo smart. As his early intervention occupational therapist says "hes just so smart, so loving, so happy but he has a few quirks that we need to look into" she really thinks that with a little push, some therapy and in time he will catch up on his speech, come out of his shell a lil more and grow up and do just fine in life! But I want to catch it all now! This way what ever it is we can start working on it to give him a better chance to have a "normal life". How ever, I do want to say Iv read alot here along with all ur posts u all have made! Max's daddy ur son seems to be just like mine! I want you all to know that even though Im new to all this I really need support and you all do to! Im here ↑ |
| Name: cindy scullin | Date: Sep 2nd, 2011 3:56 PM |
| I'm new here too. I dont really know how this works but, would love to talk to others trying to learn how to help our kids! ↑ |
| Name: cmmast86 | Date: Sep 7th, 2011 2:54 AM |
| Hi I'm new here as well and my eldest son is exibiting symptoms of Aspergers. He hasn't been diagnosed per say, but all the descriptions of the disorder seem to fit him almost to a "T". He is 4 years old and now having behavioral problems in his head start program. And I feel the same way. ↑ |
| Name: Ans1976 | Date: Sep 23rd, 2011 9:46 AM |
Hi All
First time on a forum so trying to feel my way .... having a "bad" day today so thought I would turn to internet for some solace .... I have an amazing little boy who will be 6 in November - he was diagnosed with meeting the criteria of Aspergers 8 months ago ..... it was a shock and yet not a surprise as for some time we had noticed Ethan's "quirks" .... these past months have been a rollercoaster of emotion - we have good weeks and then the occasional bad day ... like today.... and then the reality of the diagnosis hits home again..... I am finding dealing with his school a challenge as obviously he does not fit in with the "neuro-typical" mold .... there are times when it is so frustrating to watch your precious child battle to fit in with their peers ... so heart breaking .... I think it will be useful to read/chat to other parents/carers ... i have done so much reading lately that theoretically I understand Aspergers, however its the day to day living and reality that I am finding challenging ...... ↑ |
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