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Name: sammic
[ Original Post ]
We have just been told our 3 year old little girl has moderate to high autism , I love her to bits and waited so long for her but i cant seem to except this ,i worrie no stop and look at her and cry . How could this happen everything we do is autism and kids and parents at pre-school discluded her from partys and play dates . I guess i am hurt and angry at peoples reaction . What can i do when will it stop hurting?
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Name: Mommy dima | Date: Apr 8th, 2012 2:17 AM
Hi, I beEn in ur shoes a year ago and I do promise you the feelings do get easier, the acceptance does get easier and your view on life and what is important will change. I won't lie there are days where I'm right back at that very first day I was told my son had PDd but I try to focus on other things. First things first get help for your child. Therapy, it goes a long way for young kids. Don't focus too much on the future, focus on the good present. Talk to other moms in forums like this, and never give up. It's ok to feel bad for yourself we all do. But do it for just a few minutes because then u have to get back on your horse because a little child is depending on you. You need to be strong fr her. 

Name: sammic | Date: Apr 9th, 2012 7:57 AM
Thankyou for answering my thread . It's good to know that there are other people out there . You sound dtrong and i cant wait to be in your mindset ,its amazing how i have gone from strong enough to fight enything to this tiny little child reduceing me to a blubbering reck . my mother said you dont know worrie till you have children and my god she was right. good luck to you and thnkyou c u on here again iam sure!! 

Name: kdavis619 | Date: Apr 9th, 2012 2:02 PM
I need your help...I am in the process of doing some research for my graduate class.. I need at least ten parents of children with autism or maybe someone you know. OTs and PTs are also needed for this questionnaire. I would love to hear from you too!! I have a simple questionnaire for you. Please send me email addresses and I will send you a questionnaire along with a consent form! ***Autism Awareness** Thank you!! The data needs to be turned in by Friday, 4/13/2012. My email address is [email protected] ↓ 

Name: rescrader | Date: Apr 15th, 2012 7:56 AM
Hi there. Know exactly how you feel. My daughter is 5, she was diagnosed in 2010 with severe autism and significant learning difficulties. She is not independant, has no self care skills and her speech is very limited (15 words or so) BUT she has improved since when she was first diagnosed, so don't give up hope. Everyday is still a struggle but I agree with what Mommy dima has said. You need to be strong, for her and for you. She is extra special and is depending on you to help her grow and learn. I believe that God never gives us anything that we cannot deal with. Keep praying and believe that your daughter learns more everyday. As we are kinda in the same boat, if you wanna chat some more my email is [email protected] Take care x 

Name: thinblewline | Date: Nov 14th, 2012 12:49 AM
You will always want more for your daughter, that will never change. The good news is that you will eventually stop viewing her through eyes that see what she can't do but you'll start seeing exactly how beautiful she is. You'll start seeing all of the things that she can do. I'm a single father of a 9 year old daughter with autism. She is the greatest thing to me. I wouldn't change a thing about her. That doesnt mean I'm not trying my best to help her develop as much as I can.
As far as peoples reaction to your daughter...once you realize that what you have is truly a blessing, you won't even think twice about there reaction. Remember, you should be honored to be your little girls dad. HONORED! I'm honored to be my little girls dad. She could have been given to anyone but she was given to me. 

Name: Anuna | Date: Nov 14th, 2012 12:38 PM
Sammic! I have gone through the thread and previous conv. Well I am an AAC specialist who deal with autistic kids.

I can suggest you an ipad app that is exclusively designed for kids with autism which would certainly make a big difference in your daughter.

www.avazapp,com

I am sure you will feel better seeing your kid communicate with you using avaz. Let me know how you feel 


Name: Edwardliu | Date: Nov 14th, 2012 12:48 PM
I got my autism son when he was two and a half. Now he was in the mainstream school kindergarten and did well. He was still struggling in some reading comprehension. At least he made his friends, he told his news and he was just as smart as the other kid now. I remember how I worried before. Three and a half years hard work and a lot of money spent. Now I got a wonderful son. (kind and take care of me) Don't give up. 

Name: sue Lowry | Date: Dec 9th, 2012 9:24 PM
My daughter is 23 and it never stops hurting.She is pretty high functioning. She understands nearly everything being said but has a terrible time forming her oun sentences. Most of her replys are directly from a movie. She can memorize entire lines to movies. It is heartbreaking and I am a single parent. This makes it even more difficult. Dont feel alone. 

Name: Grandma Karen | Date: Jan 1st, 2013 8:15 PM
sammic
It takes time to stop hurting and then something else will produce hurt feelings. You will adjust to the hurt. Your faith can help. Best wishes for your daughter. Always reaffirm why you love her so much. It will help.
Karen 

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