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Name: annie o,neill | Date: Nov 12th, 2011 12:25 AM |
hi i have a granson who is 3 and he has mecp2 dupliation wher abouts in england do you live and are you on face book . ↑ |
Name: Rhona Connelly | Date: Nov 17th, 2011 11:41 AM |
Hi Rachel, we have a lovely lad Connor who is 9 years old and has been diagnosed with MECP2. We live in Scotland but are meeting in Manchester on the 28th January with other MECP2 families. We would love you to come. Please email me for further deatails: [email protected]. Look forward to hearing from you soon, Rhona x ↑ |
Name: Dick Sobsey | Date: Feb 13th, 2012 5:27 AM |
Hi Alfie's Mom, I am the dad of a 21 year old with MECP2 Duplication Syndrome in Canada. If you are not in touch with other UK families, facebook has a group for UK families that recently started called the UK MECP2 Duplication Syndrome Support Group http://www.facebook.com/groups/319013378142233/ ↑ |