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I am the mother of an adult disabled child. You think things will get easier as they get older, well think again! When they are small you get caught up in the hussel and bussel of all that is going on. The appointments, meetings, caring for other children, taking care of the home and possibly working. You dont have the time to think about what will happen when they grow up. You assume every single need that they have, not once thinking of your own. You loose your self so much so that you dont know who you are! One day they are grown and their life some how became yours. You dont know how or where to begin to find the life that was once yours. To get back your self. I have worked hard to asure my child would be a well productive person in life. Some one that you could look past her physical needs and see her. Although all this has been done I still find myself afraid to leave her at times. I still constantly check on her needs. I worries more now about her now than I did when she was younger. Moms dont make the mistakes I have made! Find time for yourself. Dont assume every single need on your own, take help if you can get it. Dont feel guilty if you go some where and they cant come, they dont have to go all the time. Dont wait untill they are grown to hire an aid, that is what I did and now im lost. Takeing care of a special needs child is difficult and some times rewarding. But dont make it your lifs work. Love your child do all you can for them just dont give more than you have. ↓
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