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| Name: Rian | Date: Jan 18th, 2006 3:26 PM |
| I am not a mom of a special needs child, well, besides my daughters have a food allergy that few people we know have been diagnosed with, but I just wanted to offer my support from one mom to another. You hang in there. Too often, people get this idea that parenting is this cookie cutter thing where this one ideal applies to all parents about how to raise their kids, but if you throw in some unexpected thing (special needs), then they're put out by the whole, "you are runing my perfect plan". I don't know what you are experiencing in your family circle, but I truly do want you to know that any parent, no matter what the difficulties the child is or isn't born with will have obstacles they must overcome in some point of their lives. You as a parent, can only make the most of the situation with whatever strength, unconditional love, patience, devotion, and ability you have. Even if it doesn't FIT with other people's ideals. I am telling you all of this to say that if your son is loved by you, which sounds like he is, then he is truly blessed and the other people will come to appreciate all you do and all that special stuff that makes up James. ((hugs)) and best wishes to you both. ↑ |
| Name: Stressed Mom | Date: Jan 18th, 2006 9:24 PM |
| It is a terrible feeling isn't it? I have just now accepted the same thing - my inlaws are not close in any regard and now I have seen the light that my family is the same - I understand that everyone has their own lives but when they know your situation, they should at least try to give you a break or something so you can deal with the situation other obstacles? - everything and anything? from daycare to school to community activities to everyday errands like shopping - I know we just got over the holidays and maybe I'm feeling the peak of being fed up, but I'm tired of the uphill battle day in and day out - sorry I could not be much of a help but sometimes it's best to let it out -- maybe I can cheer you up another day if you want to talk, I'm here ↑ |
| Name: Barbara | Date: Jan 22nd, 2006 6:58 PM |
| Jayla, don't lose hope! I think sometimes family members don't want to face the disappointment they feel and they abandon you. I have felt the same thing at times from my family. I have found the most support from friends who also face challenges with their children (which is really any parent who is being honest!). Do you belong to a support group for Parents of Autistic children? If your son is working with professionals (OT's, pediatrician and others), they should haave some connections for you. I know it can feel lonely at times. Remember to rely on those who really are there for you. You'll know who these people are! ↑ |
| Name: aryanna | Date: Jun 2nd, 2006 7:29 PM |
| I have a son with severe hypotonia and I rely on God and his word for all our needs. You are never alone with Jesus in your heart sis ;) ↑ |
| Name: aryanna | Date: Jun 2nd, 2006 7:38 PM |
| Psalm 91 (The Message) The Message (MSG) Copyright © 1993, 1994, 1995, 1996, 2000, 2001, 2002 by Eugene H. Peterson The Message at Navpress NavPress Psalm 91 1-13You who sit down in the High God's presence, spend the night in Shaddai's shadow, Say this: "God, you're my refuge. I trust in you and I'm safe!" That's right—he rescues you from hidden traps, shields you from deadly hazards. His huge outstretched arms protect you— under them you're perfectly safe; his arms fend off all harm. Fear nothing—not wild wolves in the night, not flying arrows in the day, Not disease that prowls through the darkness, not disaster that erupts at high noon. Even though others succumb all around, drop like flies right and left, no harm will even graze you. You'll stand untouched, watch it all from a distance, watch the wicked turn into corpses. Yes, because God's your refuge, the High God your very own home, Evil can't get close to you, harm can't get through the door. He ordered his angels to guard you wherever you go. If you stumble, they'll catch you; their job is to keep you from falling. You'll walk unharmed among lions and snakes, and kick young lions and serpents from the path. 14-16 "If you'll hold on to me for dear life," says God, "I'll get you out of any trouble. I'll give you the best of care if you'll only get to know and trust me. Call me and I'll answer, be at your side in bad times; I'll rescue you, then throw you a party. I'll give you a long life, give you a long drink of salvation!" ↑ |
| Name: Linda | Date: Jun 9th, 2006 10:02 PM |
| Hi Jayla, Talking helps. Keep up the good work in careing for your son, because in the end it will be all about the support and care you gave to him. ↑ |
